1 Year Anniversary FND Diagnosis

Hey fam, I'm back with a new video about my 1 year anniversary fnd diagnosis. Feels kind of crazy that its been 1 year. enjoy xox.

[@sheritenbusch]

As someone who was also diagnosed with FND, it is really great to meet others with the same. Not alone!

[@christellemege9479]

Hi Cassey. I’m feeling the same thing. Today, in the beginning of the afternoon, I’ll have a date with the administrative medical center. I’ m highly stressed. I don’t know if they’ll believe in thé FND effects. I’ll write a new message in a few days. I’ m thinking of all the world FND patients to be very strong and brave. Take care of you Cassey. I’m sorry, I have no Time to read my English mistakes at thé moment. I’ll do the job later. Friendly. Chris. 🌈🌈🌈🌈🌈🌈🌈🌈🌈🌈🌈🌈🌈🌈

[@sonjamurphy]

Hey there fellow FND artist! I’m not sure if you will read this or care about it if you do but I remember seeing one of your videos sometime in the last several months and I was compelled to reach out to you. I think at the time I was probably struggling with twitching and shaking and other symptoms I have from other chronic illnesses that I have developed in the last 20 years, and lol in January I was diagnosed with a new disease called Graves which is a thyroid disorder. Anyhoo my life is been so amazing and so painful throughout my life and I’m now about to turn 41 years old next month and I was diagnosed with FND a little over 7 years ago. I’m living in Colorado USA and now I just watched the video of the one year anniversary for you and it triggered me and that compulsion I had before and then never got around to reaching out to you. Now like I said I have a lot of serious enough chronic illnesses that I have been on Social Security Disability in America now almost 18 years I think. But our government doesn’t hand out help and or money easily so I have only been able to get health care and about $600 every month and I can’t even imagine how anyone could possibly afford to live on that small amount of money alone. I’ve had part time jobs here and there over the years and I was married and we had to move in with my mom and dad when I started getting more sick and unable to work. I have such a history and if you are not interested in hearing anything else I am going to kinda break here as not to waste your time or mine. The few points I wanted to share with you first is that I heard you mention the fact you are living in sorta like an isolated situation or not having a social life. Well I’m an extrovert and after a long time of suffering from this FND and not knowing what was happening to me and having doctors even accuse me of lying about my symptoms, when I was finally diagnosed at this point my marriage was wrecked and my parents split up after 43 years of marriage and so I was living with my father on a farm/ranch with about 13 acres of land in the Rocky Mountains and I would go weeks without going to town or seeing anyone else other than my father. I couldn’t stand the pain and awkwardness of my uncontrollable muscle movements and I felt like I was just being stared at and judged everywhere so I stayed alone and isolated myself intentionally and then Covid hit and I continued to be alone, in the last 7 years I lost my marriage, my best friend/dog , one cat and one kitten, and then my father died two years ago this January. My father was my best friend I have ever had in all my life and he loved me and enjoyed my friendship equally as we were very similar in our interests and educational skills and etc…. Im now living with my mother because I have NO other choice and she doesn’t want me around to say it simply. I have gone through a transition because of my suffering and the practice of meditation and my life long love of philosophy and if not for my spiritual journey I recently started on the isolation of the last 7 years alone, not even with all of my health issues but that almost tore me apart. I’m sorry I know this is still long but I just hope I mentioned enough about myself and the personal desire for friendship in this community and my desire for helping others throughout my life… I guess I’m saying let me know if you would be interested in hearing anything more like the treatments I’ve been doing for FND and what is helpful and what wasn’t. I’m not gonna try and turn you into a Buddhist or something like that lol but I do have some years of wisdom I could share and I would love to talk with someone else that actually knows what I’m struggling with and how it feels to grieve my future and all of those things that my current friendships are clueless about so I don’t have anyone to talk with about this stuff. My name is Sonja and I’m almost 41 with no kids but a furry baby kitty cat and I have been an artist for as far back as my memory serves me. Check out my Facebook or instagram under Sonja Murphy and let me know if you want to talk. Otherwise I wish you the best of luck and hope you feel better soon enough for you to be social again and not forget what it’s like to live. Thanks for your videos and if you read this message thanks for your patience and compassion to read it all. Take care of yourself.❤😊

[@casseyklie]

Thanks for sharing Sonja

[@axonis2306]

Please stay strong

[@avasabadishin5765]

Thank you for making these videos. I haven’t been officially diagnosed with FND but I’ve been have progressive weakness throughout one of my legs and none of my Drs can explain it so they were looking at FND as a diagnosis.

[@casseyklie]

Thanks for watching. Wishing you the best!

[@avasabadishin5765]

@@casseyklie Thank you so much ❤️

[@FirstmaninRome]

Well, you are doing great getting the word out on what that FND is, I had never heard of it.

[@MrAllaqua]

You are spot on expectancy is working for me ,but it's not a choice of two things it's accepting both of your wanting to do and accepting the fnd ... we are what we are ,and this channel helps me also . That's why I keep coming back ,I feel normal here .. whatever that means .love and peace to you and yours

[@MrAllaqua]

Accepting... sorry typo

[@casseyklie]

Thanks for watching!

[@yvonnefarrell1753]

I have FND myself so I can understand what you mean

[@juliekay2293]

I did not know frida was bedridden-

[@yamabushi170]

Coming up to my one year soon. Toughest year of my life but you are suffering more than I am and still showing such courage and grit. You're inspiring so many people out there to stay strong and positive. How are you coping in terms of mental health? Do you have an adequate support network around you?

[@casseyklie]

Proud of you! and thank you so much. I'm having a bit of a hard time with mental health. I have a lot of anxiety with leaving the house and I need to work through repressed emotions. I go to an art therapy group but I am looking to find a holistic therapist to work on opening up and experiencing my emotions! Thanks for asking.

[@yamabushi170]

@@casseyklie it's good to hear you're not isolated. I created my own motivational quote for the therapy group I attend ; "the days when you want to be here the least are the days when you need to be here the most". It serves me well in terms of maintaining the discipline to keep going even when I'm struggling mentally. After all, going on a day when you're feeling fine isn't when you benefit the most from these therapy groups. Making yourself attend when all you want to do is hide under the duvet, that's when you develop the mental fortitude that you need.

[@mrssuzybuck2070]

I got mine in 20.21 now 20.23