Thank you for sharing with us

I am NOT a medical professional. Lol. But, maybe ask around about Trintellix for another drug that works on Serotonin as well. It is a unique one. But, not used for seizures. Helps brain fog, and you feel like yourself I think. Not too numbed out.

this medicine destroyed my moms liver!

Good for you to be on asexual spectrum

What if I manifestes almost everything, but at the same time get sick and even I belive and manifest as I can, health go still down, chronic infection

Cassey, have you ever put a 9 volt battery up to that nose ring? Try it!

I am currently coming off clonazepam I’m on an 8 week weaning off , i as taking it for 4 years for my anxiety and I found out it causes dementia for prolonged usage .

Im on week three off venlafaxine my psychiatrist didn't wean me properly the withdrawal was so hard but i got through it thank goodness 🎉 What helps me now is a clean diet no sugar carbs and low salt & taking a supplement called ashwagandha has helped tremendously. Im finally starting to feel again ! One day at a time we'll recover ! ❤

I tried coming off pregablin for generalized anxiety and depression I take 450mg three times a day,with theses symptoms I get very bad diarrhea, shaking hot and cold,can't balance properly and slurred speech headache and hallucinations paranoia these symptoms,soon stops when I start taking pregablin again

It works great for my Vertigo which is a crippling disease of the inner ear that I have had my entire life! 🤪

Been on 600 mg a day for 6 years ,DONT TAKE IT ,,your body get addictive to it without you knowing, trying to come off is terrible side affects horrible

What to do being scary on this withdrawal symptoms 😢😱 Even this is not prescribed for anxiety 🤔

I clicked the link because I thought it was a word from the astral. Do you take any THC products, Psilocybins or LSD? Great review, thanks for posting ♥ I'm grateful for the whole thing, the whole universe, even with the ups and downs and struggles and triumphs and confusion its wonderful!

I do a couple every week just for buzz and really good sleep, do drink with them. Just doing one day I get 2 days of withdrawal. Itching, moody, fog. Could not imagine someone doing this shit all the time

Miss you and hope you are well

I don’t understand why anybody can say it feels so real. don’t even remember the beginning. Don’t even remember the end and nothing in between. You just wake up. Glad I woke up though.

This makes me feel AMAZING. I have so much energy and it doesn’t affect my appetite and sleep.

I have just been prescribed Effexor,, i am really afraid after reading those negative feedbacks😢

Have you been tested for covid or cirs or lyme?

No need to apologise, we understand, we are all going through this, different symptoms and new ones arrive, we are the strongest people, its night time here now in the uk and i am dreading sleep as i know il wake up ill in the early hours of the morning shaking and sick.. sending u love

I's very hard isn't it and gets us down, I got better for around a month now its back worse, a new one is my body builds up inside like I'm about to jolt and then it doesn't and makes me feel really sick, before I would jolt but now I don't, I have had tremors, pins and needles in legs and arms difficultly walking and speech, it's so hard dealing with it and feel all of you x

I was also given Pregabalin because I have FND, chronic pain, GAD. Worked well aside from the neuropathy for a month or two, then it felt like a waste of time. I just started gaining weight, tired, depressed. I realised my seizures were still happening while on it until I moved out of an abusive household, now it’s mostly tics and tremors. So I decided to taper off and I didn’t expect for it to be a living hell. Withdrawals from Pregabalin have probably been the worst I’ve ever experienced. I’ve come off multiple benzos including Xanax, stimulant, illicit medications (years and years ago) and nothing has been this severe. I have also come off pristiq finally but I had to take Effexor to get off it and I’m not game enough to try stopping that altogether. I’ve come off seroquel too, never ending insomnia. I feel like my body and mind just wants me to di3. This just sucks so badly.

bose quiet comfort headphones are the ones that are really common for autistic people. they are normal headphones with active noise cancelation and they are a lifesaver. i literally can not leave the house without them

Thank you for sharing. I'm 45 and have only just started having seizures and FND is suspected, going through all the tests now- but I have been having tics, tremors, spasms etc for a long time that got written off as anxiety. Some of your footage is what I think I look like as well so its very helpful, thank you.

I wish I was as brave as you are. This is my second year taking 150 mg and no clue when will be able to come off this drug :((

Hi Cassey. I hope you continue to heal and feel better and better. Can I ask if you were put on venlafaxine or pregabalin first?

I found you and I’ve been on 4 mg daily, 10 yrs, can I successfully get off this medication without it taking years I’ve heard my brain will never heal from taking it for so long, so I’m not sure what to do from leaving this world

Its nice and comfortable

Appreciate U 😢 Stay safe and well 🙏

Good luck! I'm on Cymbalta, which is similar. I've gone off before but am back on for pain management. I had brain zaps going off, but it wasn't horrible. However a dear friend had a horrible experience getting off her SNRI. Getting off these meds is different for everyone. Wishing you the best.

I absolutely remember hating the drug Effexor for multiple reasons. I was in my early twenties when I first tried it and it was kinda like a Hail Mary kinda drug to try for my untreatable depression and anxiety but if I remember correctly the side effects were way worse than any benefit from the medication and too had a really ruff time weening off of it. This was unfortunately taken alongside several other medications that were fogging my cognitive functions but I didn’t really know how bad it was until I was able to get away from them. And while I took Effexor I also began ECT or better known as Electric Shock Therapy which was the thing that finally pushed my mind and body too far and my life changed for the worse. I had to drop out college and get on Social Security Disability Benefit and I’m still on it about 18 years later. Now I share FND, Graves Disease, endometriosis, degenerative disc disease, etc. I’m actually feeling better now than I have in decades and I owe my change in the positive direction actually to the fact that I was in the lowest place of my life when I lost my father 3 years ago and I had no other choice but to take advocacy for myself because I was in isolated hell and couldn’t even walk to the bathroom on my own. Now I’m gardening and spending most of my time with my art and my spiritual practices IE meditation mindfulness and loving kindness ❤❤❤I love you everyone, and know that it’s never time to give up, every single moment is a great opportunity to start over again.❤

What were your first symptoms years ago?

Hi Cassey, please be careful coming off though glad U doing it very slowly, U might need to stay one 1 med at least if U feel worse, work with DR and a specialist in coming off, it's hard though just be careful U don't get worse, therapy may help also, take care and I'm happy for you 😊

Always amazed at how similar our stories are. Came off this medicine after 2 or 3 yrs. It was hard. We are currently medication free for maybe 6 weeks now. It's a challenge for sure but we are just taking it 3 seconds at a time some days. Good luck!!!

Hang in there. I’m only half way through but I know about the emotions thing. I find that all my emotions and love for music gets crushed by medication. Good luck! If you can exercise or go for long walks I find that super helpful also.

wish you a speedy one. You sound so genuine, that it mde me listen to it despite little relation to the Subject Matter . Do share your journey!

Hi sweetheart, I have just been diagnosed with FND about 2/3 weeks ago. It all started with me about 3/4 years ago. 🌻 It's so difficult to live with. 🌻 Keep being you and keep doing what your doing sweetheart 🌻 I'm from Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿 in UK 🇬🇧. Your amazing x I'm thinking of documenting my journey. 🌻 Sending big hugs x 🤗

I was just finally diagnosed with FND a day ago. My symptoms have not been near as bad as yours but it has been hell not knowing what was wrong with me.

It doesn't just feel real, it is real

I've been an a challenging journey myself, thank you for being so brave and sharing yours. My therapist recently had me read "Healing Back Pain" by John E. Sarno. It's not necessarily for back pain, it's more about the power of mind & emotions. (I listened to the audio book version in 2 days and found a link to a movie it references which is so good, I'll look for it for you.) You've gone through trauma and it's manifesting in your body. This book suggests once you recognize certain things, you can reclaim parts of your body that used to work just fine. I had to surrender to believing in this book, which was the hardest part. But I did get some healing and do function better more days than not. It's challenging because I don't necessarily believe all of this book but accepting the concept may help your brain jump back to the healthy neuro-loops you used as a normally functional person before all of this started. There healthy neuro loops are still in your brain, you need to get back on the right track. Art therapy is awesome. Learning something new, all the time, it key to keep your brain healthy. Zentangle is my favorite at the moment but it always changes. I'm going to look for the movie link now.

My grandson is 10 years old and was just diagnosed with conversion disorder. I was looking at your video and he had the same symptoms. I am extremely scared for him.

Cassey, thank you so much for sharing your story. I can relate to soo many aspects of your experience and it’s not easy. It’s hard enough to manage fnd, all the more when opportunities are getting harder to come by. I’m also at a similar spot where i’ve moved in with my parents, can’t work anymore or drive and it starts to hinder our self worth. But i want to let you know that you’re making a huge impact already by sharing your experience. You’re a beautiful person and you’re doing the best you can. Sending so much love your way ❤️❤️❤️

How are you now?

Hi there, thanks so much for sharing this. I’m going through similar problems with seizure like episodes, very strong head/neck spasms to my left shoulder. I’ve had about 8 or 9 years of it now. I also have Postural Tachycardia Syndrome. I’ve not been particularly well by health professionals over here in the uk. I’ve been told it’s psychological, that I’m resistant to treatment, I’ve been treated like a time waster or like I’m putting it on. Often that is more of a battle than my day to day problems. I have been diagnosed with FND but it feels like an incredibly lazy diagnosis to me. It covers an enormous spectrum of symptoms. So, like you and many other people on here I’ve spent hours, well months researching online about FND. There’s an absolutely amazing guy at The Keizer Clinic which I think is in Michigan. He’s a chiropractic-neurologist which is incredible as he does hands on manipulation of peoples bodies as well as devise treatment plans for people with FND and other neurological problems. From some of the treatment examples he gives I’ve begun to write my own treatment plan which to begin with involves daily eye movement exercises. These stimulate and activate nerve cells in the cerebellum that’s responsible for movement. So I put a large black dot on a small square piece of card and stick it on the wall every morning. It’s at eye level. What I do is start by looking straight at the dot then I begin to turn me head to the left, horizontally in a straight line while my eyes are still fixed on the dot. So I go from left to right with my head looking at the dot the whole time while my head is moving. I do this 10 times then come back to the centre. Then I repeat the process but this time with my head going upwards then down. Again I keep my eyes on the dot. I repeat this twice. Sometimes I’ll do 20 of each in sets of 2. I’ve been doing it now for about 2 weeks and my symptoms have definitely settled. Iv3 also been looking at dystonia and dystonic storms. I tried a sensory trick when my spasms and vocalisations begin - where you very gently touch the side of your jaw and underneath it. I was absolutely amazed that it stopped my symptoms. I’ve done it since and it’s only stopped things temporarily but it’s still having some impact. The guy at the Keizer Clinic calls it ‘closing the loop’ via the brain and body. The other thing I’ve discovered which is an absolute godsend is Diphenhydramine. It’s used to treat dystonic storms in a lot of A&E departments in the USA. My episodes look really similar to a dystonic storm. Diphenhydramine can be found in Sleepeaze in Boots and Nytol here in the uk and in Benadryl in the USA. It completely stops and settles all my symptoms like nothing else. I’m NOT a doctor so if you’re thinking of trying this PLEASE check with your doctor first as it might interact with other meds you’re taking. It also makes you very drowsy with it being a strong antihistamine so I will only ever take it later in the day or at night unless my symptoms are very bad and i just need some respite from it cause it’s completely knackering and really painful. A consultant neurologist here in London at St George’s Hospital says FND does actually show up abnormal brain activity and eg lesions etc BUT an FMRI scanner needs to be used rather than a regular MRI. The Keizer Clinic guy talks about the importance of having Doppler Ultrasounds on your neck and face to determine what’s happening with the blood flow to the brain. I’ll try to post the link here to his clinic. His videos are amazing and so helpful. They’ve given me a lot of hope and reinforced this isn’t in my head - well it is haha! -but it’s not imagined, it’s not attention seeking, it’s not a psychiatric problem that might be classed as dissociative or a conversion disorder. Yes sometimes mental health issues play a part but it’s incredibly lazy and I think irresponsible to label everyone the same and to not be looking at the whole person. It’s an archaic idea that a psychological or psychoanalytic therapy can cure all physical ailments. That’s dating back to Freud and Charcot and even before that to the Greeks/Roman times. Psychological therapy can be absolutely incredible and life changing AND can sometimes help us link certain behaviours and maybe sometimes SOME physical symptoms to psychological problems and areas of our lives where we may have blocked things out or had trauma, a lot of loss etc. dissociative episodes can and DO happen to people who may have experienced severe life events and maybe in those instances those people might benefit more from a very experienced psychological therapist BUT it might also be that person needs some physical therapy as they might have eg paralysis or a lot of difficulty walking etc. it’s rare that this happens - I mean that people are looked at individually and that a proper treatment and care plan is set up for them as would happen with other neurological conditions. I find it really troubling that people with FND are treated in the way we are. I’ve stopped being angry about it as I’ve had almost a decade of people telling me it’s all psychological. I ended up in A&E the other week with a seizure like episode which wouldn’t stop. At the end of it I got whiplash because of how forceful my head was banging against the wall in the hospital. The nurse got annoyed with me cause i couldn’t speak to tell her my name during this when she wanted to give me some meds. In the end she pretty much threw the tablet in my mouth and like a headmistress said to me ‘you’re going to hurt your head doing that!’ Like I was doing it deliberately. Honestly it beggars belief. Anyway I’ll stop waffling now. Here’s hopefully the link to The Keizer Clinic KZbin channel. Check it out - it’s SO helpful and reassuring. Big love to everyone x youtube.com/@dockeiser?si=oKdK7UMavyOxXCQC

I have recently just been diagnosed with Functional Neurological Disorder im only 16 and all this came to me from having Ovarian cyst surgery i've had no symptoms of this before the surgery but after surgery everything just fell on me. I was very active on dance teams and more. I feel like my life is over cause I really don't know exactly when i'm going to be better or the doctors don't even know either. I'm getting ready to graduate as a college and a high school student next year. I can't walk at all like most FND patients can do, it has been a year since i've walked.My headaches won't go away. My voice is fully gone and so much more. I'm every single therapy you can think of now Occupational, Physical, Speech, and Physiological. I really hope everyone gets better. Thanks Cassey for sharing your experience with it 😊

My husband on doctors prescription clonozepam with lexapro15mg. Later have to give clonozepam and on lexapro15 mg I till you are well to get it off

Thank you Cassey for doing these🙏🏼You are a natural at explaining how you are feeling and all of what you're going through, even being comfortable with video-taping yourself in the mids of it... You are and will be a valuable Teacher for the rest of us, especially Young People 💕🤗🫂😇I wish you all the best as you adjust to living with the uncertainty of this terrible Disorder and hope you get Disability soon! It took me 3 tries but finally got it, be persistant and be gentle with yourself 💕🫂🌷🇨🇦💛

Hi Casey. Its lovely to see your video. I watched some of your videos in the past and I found them really helpful. I am so very sorry about what happened with that Yoga studio. Its disgusting the way they treated you. I really felt for you. I relate to everything you said. Its funny because I struggle with the same things you do. When I watched you, I felt so much compassion and empathy for you. And at the same time I realised that I have the same thoughts as you, that I don't have a place in society and that people are over it. People rally round us to start with but then decide it's gone on too long. Like you saiid, I felt immense sympathy for you and yet I cant apply it to myself. I, too, feel like a burden and don't know how to explain to people that I can't do simple tasks or why because I cant even understand it myself! Anyway, you've helped me feel less alone and I hope I can help you feel less alone. You're not alone and you are a very kind, compassion person.

Right now I don’t mind not having a place in society. If I even come come into contact with a stranger atm I get stressed out.

Hi Cassey, glad I found your channel and have subscribed, I have had FND for 5 plus years and know exactly how debilitating it is, stay strong woman, I get your symptoms too and it's horrible but we are stronger for going through this, much love from Australia. Peace ✌️