10 Vital Warning Signs of Lupus

[@jamzee63]

I am 60 and was diagnosed with lupus since I was 17. I had all the drugs, chemo for my kidneys ( now at stage 5 kidney failure) over those years my lungs, heart and blood was involved. My long fight will be over soon! I go home to Jesus! Hang in there everyone, keep stress levels as low as possible, go the the chiropractor, take supplements and most of all get to know Jesus Christ as your Lord and Savior! Praying for all of you!

[@australiamyway]

Bless you. Beautiful soul.

[@christiangirl2222]

​@@australiamyway Agreed wholly Aussie stick together hi from Nsw/Qld

[@optimisticdespite]

I am sorry to hear of your diagnosis. Have you asked your doctor about immunotherapy? It kills only the bad cells in the body. It has been instrumental in saving my life from kidney and liver failure, along with every other organ that was collapsing in my body. I am 51 years old and was diagnosed with lupus when I was about 19 years old. I wasn't given but a day or so left to live, that was in 2018, in 2023 thanks to God's overwhelming mercy, I'm still here. Sometimes doctors despite wanting to help do nor always know how, so we may need to present ideas that they haven't. You are very brave! What you are enduring is quite difficult and yet you are encouraging others. I'm praying for your well-being spiritually, mentally and physically! May God direct your steps.

[@metube0309]

I am happy that you know that you are going home to spend eternity with Jesus! I pray that your homecoming will be peaceful and comfortable and that your heart overflows with His love. See you on the other side someday soon!❤❤❤❤

[@ibelieveinyour]

God bless you & give you a miracle! Love & healing prayers!

[@rosewright4605]

SLE lupus for 30 years. All symptoms are now gone. I went to eating completely organic food, and stopped eating all processed food and drinks. I mean I looked at every label on every sauce bottle and package. It took several months but as my system was cleaned out I began feeling much better, and my new energy is amazing! Been on this regimen for 4 years now and have had no flares in that time. Also cleared my restless legs syndrome. They are putting toxins and chemicals in our food and this is slowly making us all sick.

[@Angeltara02]

I did something similar. I was diagnosed in 2015. I changed my diet and started sleeping better, keeping the disease at bay. My flares drastically reduced and got better. Prior, I was eating the standard american diet and sleeping only 4 hours a night. Now I eat cleanly and don't push myself so hard and I'm much, much better.

[@rosewright4605]

@@Angeltara02 Wonderful! Yes, diet certainly has a lot to do with getting better. (I also ditched my doctor! )

[@sallyfreeman9971]

👍

[@goldenautumn3073]

Absolutely! Label-reading has become essential if we're to even survive in this world, unfortunately. The amount of sugar, vegetable oils and the high carboyhydrates in commercially-sold foods is gradually killing us. Dr Berg on KZbin has excellent videos exposing these issues, also advice re the keto diet. I'm vegan and so don't uphold his carnivorous keto regime, but a vegan can adjust the diet to fit, and there are vegan and vegetarian keto diets on YT as well. Glad you found a healthier and natural way to help with the lupus - if only the conservative medical treaters would open their minds to the vital role diet plays in our health. So tragic that they're trained only to push pills!

[@crazyratlady3438]

Absolutely. Had a similar experience. Idk exactly what my diagnosis were bc I never actually went to the Drs (except a trip to ER thinking I was having a heart attack which set this all off). In 2018 I started having a worrying array of symptoms that all seemed to be related and came on in episodes. I have ideas as to what possibilities my diagnosis would be but the point is I changed my diet completely, organic clean whole foods as much as possible. I've learned to read labels and what to look out for both bad and good. I take a load of supplements, use food and supplements functionally. It took several months as you stated but man what a world of difference it's made. I feel like a different person and I can feel a deep down feeling of healing, strength. I've also never been better mentally, like night and day. I'm not 100% but I'd say a min of 80% improvement physically and 95% mentally. I'm a firm believer that if we limit/avoid as much damaging things as possible and give our bodies what they need to thrive they will do so. We're living in a world where we need to be educated on these things and be very proactive to maintain any semblance of health.

[@marisa5934]

10. Dry eyes and mouth. 9. Thyroid issues. 8. Digestive problems. 7. Swollen and painful joints. 6. Nephritis 5. Lung and breathing issues. 4. Skin lesions or skin rash. 3. Thinnig hair. 2. Fever 1. Fatigue.

[@nikkis7375]

You the real MVP haha thanks ❤

[@tammi67able]

Thank u

[@virginiaashy9859]

Thank you !!!😊

[@trixie9777]

Thank you!

[@paulineverriere8054]

Oh darn…I have RA…plus all those symptoms includin* gout in knees…looking at me having lung cancer..I know my body…it’s no5 cancer

[@TheEmerald524]

I’ve got every single symptom listed, but between insurance companies and doctors that don’t even feel the need to lay eyes on a patient before determining whether they have a specific condition or not, I deal with them on my own. I’d like to point out that a number of these symptoms are often characterized as symptoms of mental illness, which doctors seem all too enthusiastic to diagnose and prescribe medication for. Whether those medications work is irrelevant, because you’re considered crazy and incompetent. Frustration is a constant companion in life trying to figure out what’s wrong

[@Christy.1]

100% agree and I am done with drs. I too have every single sympotom listed here, and then some lol. Plus, I don't think I'd really want to be on all the meds to "treat" the conditions. My levo for my thyroid is awful, quit that to taking it sporadically when I'm feeling really run down. I can tell when it's flipping to hypo thyroid. And yes, they love prescribing all those mental health meds. It's really sickening what they do. I really believe it's the foods we eat, our foods are so toxic anymore. So many chemicals in stuff. I've been thinking about all that, think it's about time to try going all natural, though I think it'll be hard. Healthy food is so expensive.

[@druannpellegrini5661]

Taking thyroid medicine sporadically is NOT effective. You are doing more harm than good to yourself. Stop playing doctor and see 1 you can trust. There are not any 'herbs' to take for thyroid. GL

[@noeldeal8087]

@@Christy.1 no, illness is expensive. Fluoride and chlorine in water blocks iodine. Chemical fertilizers block the sulfur cycle. We need sunshine!

[@noeldeal8087]

@@Christy.1 try armour thyroid meds or at last take kelp! You can't just forget about taking care of your thyroid. XOXO

[@alainejohnson839]

Yes they did exactly that to me and lately I have been sick frl frl talking about mental illness 🙄🙄

[@sarahbrekel2538]

On hospice now with lupus. I am 44 and have had it since 17. Suffering joint infections so taken off meds to slow it down. Praying for everyone who suffers from this.

[@martinleon3145]

R u still with us queen?

[@giselebatters2024]

"You shouldn't ignore these signs" except for the docters, that always do

[@nikicarrie4071]

Right

[@8656737s]

So true they never listen

[@deloraevans8338]

Truly they do

[@suzanneclemens5167]

Always, because we're hysterical women, even though we're telling them EXACTLY what is wrong with us and they SHOULD be able to connect the obvious dots. 🙄

[@nancysmith8626]

@@suzanneclemens5167 You would think, but you would be wrong.

[@valeriedorsey7527]

To all who are suffering from any sickness or disease, please know that you are not alone, and that even though i may not know you personally, i have do care about whst you're going through. I have great compassion for you because I can relate to you in many ways because i've had my own health challenges throughout the years, but God has sustained me, and brought me through it all. What we go through may be difficult to bear, and we may get tired, but if we continue to look to God, and trust in Him for the help and the strength that we need, we will find thst He is faithful and merciful. We must simply never give up. God knows how much we can bear..There have been times when i truly thought that i wouldn't make it through, or get better, but each time, God brought me through! So stay encouraged. Praying for you and standing in agreement with you for your healing miracle.

[@nannag5801]

HalleluYah!! YHUH is my strength. Bless you🙏🙏❤

[@lauriekurad]

Thank you so much ! May GOD Bless you, as well 💜🙏💜

[@tipy1977]

Amen❤

[@jriverar1436]

Amen❤ thank you 🙏🏼

[@mjblue84]

AMEN!!! God Bless.

[@diamondseries7221]

I've had Lupus now for eight years! It took a specialist to diagnose this disease after several trips to the doctor. What annoys me the most is that it compromises your immune system, so even a simple cold can seem like pneumonia. I'm so over this disease and want someone to put their hands on me and pray this Lupus out of my body 🙏😂

[@francesterrell7722]

Jesus no weapon formed against this person will prosper in Jesus name🙌

[@grammyb5216]

In Jesus name, please Lord help this person to heal. 🙏

[@isabelpimentel1415]

🙏🙏

[@diapers124]

Yes I pray 🙏..I'm so sorry for ur pain..I have family members.. my mother's sister and daughter have lupus...an I listen carefully for their symptoms for my self🙏 ...An yes Healing 🙏👐🙏👐

[@shahadahqalam4282]

PEACE SENDING PRAYERS.

[@elainegoad9777]

My friend has Lupus. This video helps me to be more understanding and have empathy and compassion.

[@nikkis7375]

I have severe chronic pain and illness and it makes me happy when my loved ones learn about my illness. Just please never suggest treatments to them because we already know and have tried most if not all of them

[@susanpuckett6163]

I have had Lupus for 21 years along with fibermyalsia, hypothyroidism , kidney, Gerd, A fib ,hair loss, tiredness, osteoarthritis. Just seems to get worse over the years. But still kicking.

[@diane6920]

Hang in there!

[@sallyfreeman9971]

I have a friend who has Lupus and she had hair loss. And she drank herb tea that's supposed to help with hair loss.

[@mbeards5323]

Sounds like me.

[@pattystueber9655]

I have Sjogrens and crest for 40 years plus. The lupus symptoms sound just like my symptoms. I have shortness of breath and no doctor can figure it out. You mentioned The diminished lung capacity was eye opening.

[@salcuti6421]

Me too

[@ndlz1]

Good luck finding a doctor who will diligently look for what’s ailing you!

[@annconforti9294]

So true!

[@Donna-cc1kt]

Amen. Daughter died at 34.

[@wendyaustin498]

I’ve lost all faith in Drs

[@RH-ul2bc]

​@@wendyaustin498 i lost faith 35 years ago. Researched everything on my own after that. It was very worthwhile. I had raynauds at 15, then graves disease, chronic fatigue, then lupus in my 30s,....gave up seed oils, gluten...began to eat much better. Now my thyroid is norma (it may or may not stay that way, hopefully it does)l. I started with dry eyes and mouth (a few months ago) i am in my late 50s. Last year i was able to go on bike rides that were 20 to 30 miles at a time. Working on bumping up my vit d, minimize stress, and eat even cleaner. I feel that my autoimmune has forced me to eat much better. I hate that i have to manage my energy as i do but what else can we do? Good luck! 🙏

[@conniepfannerstill817]

Totally agree. I saw rheumatologists for years. Many different ones. I kept telling them my symptoms. I had 7 of the above symptoms. Finally at the age of 63 I was diagnosed with with LUPUS. My symptoms started in my early 20’s.

[@donnabaardsen5372]

I have the following: EDS, SLE, Scleroderma, Sjogrens, Hashimotos Thyroiditis, temporal arteritis, RA, OA, scoliosis, a stroke at 26, heart attack at 45, etc. I look 100 percent healthy, and work hard to act it as well; however, I feel very sick all the time. It's amazing to still be alive. I'd rather have one year of feeling wonderful, than all the years I've had feeling sick.

[@elizabethc3842]

I agree. I'm having so many new problems and all they want to do is take away the pain meds that make my life manageable

[@ellakajfasz2569]

I have fibromyalgia, degenerative disk disease, osteoarthritis, spondyloletheses, migraine headaches, dry eye disease, gurd, chronic constipation, Major Depressive disorder, general anxiety, tachychardia, left hip replacement, 4 foot surgeries, including lapiplasty for my bunion, gall bladder out at 45, hysterectomy at 48, chronic back and neck pain, carpel tunnel, arm muscle pain and foot pain. My son was diagnosed with EDS at 38. My sister was diagnosed with Lupus at 70. I'm 68 yo, been to all the specialists, had tons of tests, too many doctors, but not any one to put anything together. It took about 10 years to get the fibromyalgia diagnosed. You would think there would be a group of immunologists that would study these things.

[@donnabaardsen5372]

@@elizabethc3842 Thankfully, my doctor isn't doing that. You should seriously find another doctor if he/she does that to you.

[@iowasunshine5600]

They are called functional medicine integrative neurologists. Or nutritionists. Look into a vitamin b1 thiamine and other B vitamin deficiencies along with magnesium. I have had chronic pain including fibro for ten years and taking these for my tmj and nerve care having veritgo and muscle cramps. And taking these nerve care supplements has changed my life.

[@simhifree]

14:38 I agree.it seems that most Dr's don't know the symptoms of all the autoimmune diseases.Recently, I experienced signs of Lupus - huge butterfly rash with anxiety , swelling of my face, especially around my eyes. Nobody in the hospital told me what was happening. They just wanted me out of the hospital. A hospitalist in the ER told me that I was not welcome any longer , that I had something that could not be fixed. They don't have a Rheumatologist or Endocrinologist. I was in shock that I was basicly bared from the only ER and Hospital in my 14:38 County. This made me start researching why I developed Lupus while in the hospital and nobody told me. I found in my research that there are six medications that are known to give . RHEUMATOID ONCALL on KZbin has a video all about this. Apparently, somebody, at the hospital, knew I had such a drug reaction. They knew they could be sued for negligence. reaction

[@rosebudadkins6803]

SLE for past 23 yrs and iI am now 68. Went into heart failure 2 yrs ago related to lupus. I have started fasting to help my toxin load. It helps. I am experimenting with some supplements. Will come back when I have an outcome. I have many of these hellish issues. My vision is affected at present and lost most of my teeth. I was treated first two yrs for MS. I finally had a spinal tap and my fluid was clear. This is hellish to live with.

[@iluminameluna]

It sounds like you might be also suffering from Sjogren's Disease. Please talk to your rheumatologist about it. The teeth issues, joint & skin problems, dry eyes & mouth, GERD, etc., I've had all of these as well & are all parts of the same thing. Some supplements can help, & watching what you eat can as well. I've become sensitive to all sorts of foods, & try to eat as few already-made foods as possible. Makes my diet kinda boring, limited, & somewhat expensive, but the alternative is me feeling sick all the time, not being able to enjoy more days, & Knowing that I have more time w/ my family the better I take care of myself. Wishing you the best. Lupus survivor of over 35 yrs. ❤

[@rosebudadkins6803]

@@iluminameluna. Thank you! I am going to have a bx for Sjogren’s my eyes are so dry no tears and constant dental issues. I wish you well and send you healing energies. Also now have Hashimoto thyroid. SLE is very rough.

[@CarolJenkins-k2g]

14:38 I was diagnosed with SLE at age 55. It took a year to finally determine what was wrong with me. I have a wonderful Rheumatologist that I see every three months. The disease has affected all my joints. I’ve had both knees replaced, two shoulder surgeries and two back surgeries. I am so over this disease. I’m currently 72 and struggling with most of the ten symptoms. Having a husband that understands is the only way I can make it.

[@laura6344]

Good morning, can you have lupus with negative ANA, ENA autoantibody blood tests?

[@stacyroberson8000]

This is caused by your diet. I'm the 1970's it was treated with an all meat and water diet. Check out the videos by Dr. CHAFFEE . All autoimmune diseases stem from the wrong foods. .. check out Dr. Jordan Peterson's daughters relief from arthritis.

[@tisithomestead7971]

I have had LUPUS SLE for 38 years and have or have had nearly all the symptoms mentioned, including restless leg syndrome. I have been vegetarian and only eat organic. I believe this has kept Lupus at a low level but not clear, although it does flare up and recede, more irritating than drastic. But this video has been a blessing in that it covers all of my symptoms, which helps me as most time I just feel as though people think I am a hypochondriac and I know I am not. I try addressing the symptoms with herbs, vitamins, minerals, exercise, hydrotherapy, etc., but nothing seems to really work. Prayer is what keeps me going. I know there is a reason for this and just pray it will somehow bring glory to His name.

[@Riddhi0707]

Plz try ayurvedic medicine ❤️🙏

[@laura6344]

Good morning, can you have lupus with negative ANA, ENA autoantibody blood tests?

[@stacyroberson8000]

This is caused by your diet. I'm the 1970's it was treated with an all meat and water diet. Check out the videos by Dr. CHAFFEE . All autoimmune diseases stem from the wrong foods. .. check out Dr. Jordan Peterson's daughters relief from arthritis.

[@PerveenAmir]

I have the same issue I am 35 years when I am pregnant lupus attack my fetal heart and I lost my baby two times I am treats it cupping therapy now alhumduliha I am good

[@PerveenAmir]

​@@Riddhi0707which one??

[@indiashante1560]

My Dad has Lupus. He almost died from it since it's more rare for men to get it. Luckily for him when he went to the VA hospital a younger doctor went over his symptoms again and had him tested gor Lupus. Thank God. 🙏🏽

[@sallyfreeman9971]

I hope he's doing okay now. 🙏

[@sl4983]

And? What did they do?

[@fionaparr4768]

I was told by doctor there isn't a test for lupus. It is a collection of symptoms that then 'add up' to lupus.

[@tammyedwards8641]

I have all those symptoms but my doctor says it's not. What should I do?

[@The_Only_Tracy]

@@tammyedwards8641nothing you can do. If your saying you do not agree then see a different doctor. I always have a raised antibody titer which is indicative of an autoimmune disease but my doc also says he doesn’t think it’s lupus he thinks it’s rheumatoid arthritis and fibromyalgia. There is no specific test for lupus or fibromyalgia they do a series of tests and use your symptoms to help diagnose. I have bloodwork every 3 months and I still test positive but not for all the tests.

[@MsMonica1724]

I was diagnosed with SLE lupus via kidney biopsy in 1975 (age 13) as my legs were swollen unable to stand or walk! When I was 5 I had a rash on my wrist that would never go away. In 1973 (age10), I was diagnosed with Myasthenia Gravis (MG) and one of my meds was prednisone which caused the rash to disappear. In reality I had lupus when I was 5 but doctors had very little knowledge on lupus/rash in 1970’s. I’m now 60, take prednisone (10mg) and CellCept (1000mg2xday) for both autoimmune diseases, vitamins D3, k2(mk4/mk7), collagen, zinc, C, copper and B(1,3, 12), avoid stress and anxiety, avoid processed/fast foods and eat lot, lot and lots of fruits and vegetables. I thank GOD that I never had any pain from lupus, my hair would shred but the more it shreds the more it grows and the sun doesn’t bother me.

[@mozakhalfan7431]

Can u help my daughter

[@abbey428]

The vitamins help a lot. I started proteolytic enzymes and have greatly reduced the inflammation and pain that were my constant companions. Doctors didn't seem to care. I don't want to die young like my Mom did. That's why I treat myself instead of waste time and money with them.

[@UteNagel]

Dr. Brooke Goldner on youtube! She is Lupus free for 18 years now and helps People with Lupus,

[@peacefulearth4us]

@@UteNagel I'm also free from lupus and fell so thankful that I need to share my story but no1 believe me. This is the first time I've heard some1 also free of lupus. Thank you! I'll look for him. *Note: I took turmeric, the "real" turmeric, NOT the turmeric from store.

[@brendahall3413]

It also sounds the Henoch-Schonlein Purpura (HSP) which they now call Vasculitis. My daughter had it when she was 5 and her legs swelled up and she couldn't walk and had bruises on them too! That's what the docs came up with at the time which was in 1998. It came back later and it has a lot of the same symptoms as Lupus. I wish you good health and healing! God bless you!

[@anurse2794]

I'm so grateful for the video. I have all symptoms, I've had them for years. Fevers, swollen joints etc. Doctors have said it's in my head. I finally got a doctor to listen and have a referral to a specialist! Thank you!

[@jolenewells]

Thank you for posting. You're a nurse and still couldn't get the doctors to listen. I've had some of the symptoms for years, and then after my accident I am showing all the symptoms but it seems to move all over my body at any given time depending on what I eat or if I'm in the sun for a little too long. This is so painful, and I pray for a diagnosis so I can be on my Mediterranean Diet again(this helps in a big way). Prayers yo you all.

[@dawnkelly2052]

Yes!!!!!!!! Me too!!!!!!! ALL these symptoms. My dr ignores me because she says I complain so much. It’s all my head she told me. I’m fine.

[@PhoenixYah]

They don't care it's lazy they always say it's in our heads while women constantly die due to their lack of care or listening. Honestly they ego tripping because you dare to tell them what's wrong with you when they went to school to tell you your problem. Honestly it's a good thing I understand we all got a date with the dirt it's not a date anyone wants to go on but no person is exempt from leaving the earth. 🥲❤️🕊️🙏 PS don't think I've had 10 likes before thanks 😀

[@annconforti9294]

Specialists are just Dr, too. Good luck. I had hope this time last year. Back to square one, again.

[@lucbelcher7256]

I'm 39 now but at 21, I couldn't leave the bed. No one would do blood work, etc. Finally had a Dr do the work and found out a few years later.

[@joannejohnson7006]

I have been diagnosed with SLE, connective tissue disease osteoporosis etc Everything began with mononucleosis @ 17 The symptoms were so varied and increased with severity over time. I looked into Lyme disease awhile ago and almost all symptoms were related. This journey began in the 70’s and I became the hypochondriac, through my life. Only in the last 6months much testing and adjustment has been necessary. 3 major surgeries etc. My youngest daughter almost died from the nephritis version.😢 She became a nurse instead of a business major. It’s life changing in every way, and doesn’t age well. 68 and still fighting the good fight I wish us all relief and peace.

[@sallyfreeman9971]

I have an Aunt who has Lyme Disease. She got bit by a tick when she was little. Prayers for you and your daughter's health to get better ❤🙏❤🙏✌

[@stacyroberson8000]

This is caused by your diet. In the 1970's it was treated with an all meat and water diet. Check out the videos by Dr. CHAFFEE . All autoimmune diseases stem from the wrong foods. .. check out Dr. Jordan Peterson's daughters relief from arthritis.

[@janetparlato4341]

This is one of the better videos on common lupus symptoms but there are three other symptoms that are also common that often alert doctors to check for lupus and should have been included. Mouth sores, headaches, and a changes in memory nicknamed “brain fog”.

[@loriandrews7100]

I have thyroid issues for years. Diagnosis 2 weeks on my own. I'm 56. Please make sure you have your iron and iodine checked. Was my issue..thyroid which pretty much controls everything..hormones immune system etc. Please research iodine deficiency and iron. I'm trying to spread awareness. Be well. ❤

[@jackie9090]

what do you mean when you say mouth sores? x

[@kellyshomemadekitchen]

I’ve had Lupus since 2010 and can definitely confirm horrendous memory loss is a huge side effect. It’s terrible when someone says, “hey, remember yesterday when we talked about such and such?” And you have no clue whatsoever what they’re talking about. It gets very annoying.

[@janetparlato4341]

@@jackie9090 when lupus is active there are sometimes painless red or white lesions in the mouth.

[@jackie9090]

@@janetparlato4341 thank you, i wasnt aware :)

[@yvettetorres7829]

My support for anyone who lives with any autoimmune related issues. Helpful for me...eating fresh foods, greens,salads, nothing processed or fried, moving around a bit as you can, reduce stress, rest, and supportive circle of friends or family. Lots of strength and love to you.

[@Blessedtruly3000]

Everyone can’t tolerate salads is they have GI issues that’s not the best food for them ..

[@foxywhitetip7387]

Salads and green is anti nutrients and oxalates

[@evajerram975]

Thank you for advice and being so positive. I have Lupus but doctors say I haven't. I have most of the symptoms. Take care - wish you well.

[@deecee901]

Over ten years to my lupus diagnosis. It was horrendous experience to be blown off all that time. Now I have no hair. Thx. Docs. For listening & blowing me off!

[@sallyfreeman9971]

Your doctors should've listened to you 😲

[@jacquelinejohnie2598]

@@sallyfreeman9971 Doctors shrug off everything we tell them about our body. It upsets them when you tell them what you think could be wrong because of the symptoms you're experiencing. It's almost like an insult to them because it seems you're telling them how to do their job. Pride is sinful.

[@deecee901]

Agree 100 %..my good friend is an Md..she was able to say. Sounds autoimmune. I told Dr. I feel im undiagnosed lupus. Took 3 years for her to admit. I suffered so bad. The pain, fatique. I thank Jesus i was finally heard. Tough disease..

[@Donna-cc1kt]

Yup, lazy bastards. Been there.

[@stacyroberson8000]

This is caused by your diet. In the 1970's it was treated with an all meat and water diet. Check out the videos by Dr. CHAFFEE . All autoimmune diseases stem from the wrong foods. .. check out Dr. Jordan Peterson's daughters relief from arthritis.

[@conniemaggio3665]

I had symptoms for 28 years before diagnosis! I had all these symptoms!

[@beverlyfrancis8433]

Oh my!

[@terryclish6177]

So sorry to hear that I hope you are receiving proper care now.

[@aphroditeaw4423]

I'm 60. Been sick most of my life, been told Lupus on and off since I was 17. My mother says now she realizes I showed signs even as a small child. I've also been diagnosed with Fibro about 15 years ago. I have almost all of these symptoms-and many more. I don't keep track of my temp but have noticed that during quarantine for possible COVID exposure, noticed it spiked in the afternoons. Current Dr. tested recently and said no sign of Lupus. I guess it doesn't matter, nothing that can be done for it anyway, I'd just like o know what I'm dealing with. All I know is I'm sick and tired of being sick and tired. I don't even remember what feeling good feels like anymore. I'm stubborn and strong and that's the only thing that's kept me going all these years. I still wok full time in a demanding job but I sure am looking forward to retirement!

[@debraemig417]

Lyme test, I never knew I got bit nor did I get any rash let alone a bullseye rash.

[@sandracrocker6143]

@@debraemig417 💯 Was here to say the same thing. PROPER Igenex testing , LLMD or non-western doc. 💚

[@michellejones2070]

I have known for years that my immune system was attacking me. A decade ago, a rheumatologist was on the verge of a diagnosis but passed away. Another took over, told me I just had bursitis. Saw another rheumatologist in Feb 2023. My blood tests 10 years ago turned out to be identical to recent tests. I have probably had lupus since childhood and I am now 71. New rheumatologist has me taking hydroychloroquine and, although still experiencing some pain, I am free for the first time in decades. There is no cure but there are treatments.

[@gwendarrah9068]

I soooo get it.. same with me.

[@sandracrocker6143]

Please take Dr Horowitz MSIDS questionnaire takes 7 minutes. Google and YT

[@cheryl1909]

LETS PRAY 🙏---- DEAR LORD HEAVENLY FATHER PLEASE HEAL ALL THE SICK IN THIS WORLD 🌎 🙏 ❤️---- SHELTER ALL THE HOMELESS AND GIVE THEM PEACE ON THIS EARTH----- KEEP OUR WORLD 🌎 SAFE AS YOU GOD ARE OUR REFUGEES------ FEED ALL THE HUMBLED IN THIS WORLD THAT ARE SUFFERING EVERY DAY--- 🙏 I THANK YOU LORD AND GODS TIMING IS ALWAYS ON TIME----- 🙏 I HAVE COMPLETE FAITH IN YOU GOD AS YOU ARE OUR SALVSTION IN EVERY WAY --- THANK YOU 😊 🙏

[@TheEmpressSunshine]

Amen! Thank you! 💜

[@vickysikora3394]

Amen & Amen!

[@cheryljenkins6029]

Beautiful in Jesus name Amen thank you Jesus ❤

[@Grandma_Mary]

Amen, thank you for your prayer.

[@suzanneholt7561]

Thank you for the heartfelt prayer

[@nitahamilton4270]

It’s so much easier if your family understands. My daughter understands but my husband and boys don’t understand because I don’t look sick

[@frobbsy27]

It's the same as fibromyalgia😔I'm almost 40 and was diagnosed in my early teens. It's progressively gotten worse over the years with some years worse then others. My mom has ALWAYS understood thank god but my bf doesn't bc i also don't "look" sick. My baseline days would lay him out in bed ALL DAY if he felt what i do so when i flare up it's BAD. i've gotten to the point where i don't give him an option anymore...if i need to lay down i just go & he can take care of the kids. I just need to do that more😄lol

[@teressaclarkclark9200]

My daughter has lupus. Her vary with some of these symptoms. We pray it just keeps her in the hands of the Lord.

[@tonibrissey8564]

Dr. Goldner wrote a book called goodbye lupus. Her story is amazing. There is hope. My husband had followed some of Dr. Brooke Goldner diet suggestions and he has done amazing. He is very active, and has only a few symptoms. Hang in there! May the Lord bless you all!

[@MyPemma]

My mum was diagnosed with lupus in her early 30s. She changed her diet and her health improved a lot. She also suffers from lymphedema since age 13. She is now 64 and I often have to remind her to slow down as she is ever occupied with something. I on the other hand I'm 37, I've been having a lot of these symptoms since I was a child. I remember having those throbbing headaches. As I grew older my lower legs were so painful, it felt like something was eating my muscles. My mum asked the doctor to check me for lupus one time when my legs wouldn't support my body but the doctor didn't do it saying I don't have lupus. Last week I was finally tested for lupus and I will receive the results in two more days. I check for most of the symptoms explained in this video. They missed out on miscarriages and difficulty conceiving.

[@szan776]

how was your test result

[@missolesoul]

How are you Christie? I have had some odd reactions to news. I can't tell you how many times I have had the tests, but still told that they were "within normal ranges", etc. only to become so ill that I have had emergency surgery once, A flesh eating staph infection (I really thought I was dying), acute abdominal bleeding with Fever of unknown origin. I had to be seen by Infectious Disease physicians. I have been accused of drug seeking when I could it walk nor raise my arms. Sadistic pig. It gets hard to even be your own advocate.

[@missolesoul]

I didn't realize that about fetility. I want to cry. .y doctor didn't understand what had happened with my eggs. It was like a war had taken place. Miscarriages and trying and trying. My marriage suffered. I can't even think about it.

[@graveart1105]

I was diagnosed with Rheumatoid Arthritis in 2020. I have every symptom listed here, except kidney function. I’ve been taking hydroxychloroquine for RA for 3 years and it’s working great to keep me feeling great, almost every day.

[@benitalpaxton8120]

I read that making a tea of grapefruit, oranges, lemons, & limes PEELS Is a auto immune booster...

[@suziecarr1566]

How long does it take to feel better cause I have been on it a few months and still have no relief.

[@joycehillsman8457]

I was diagnosed in 2016 I know how you feel I take hydroxychloroquine, folic acid,and Methotrexate

[@joycehillsman8457]

Do u take Methotrexate and folic acid as well?

[@darlenegeorge4386]

​@@joycehillsman8457 T4r

[@marysherwood8879]

I was formally diagnosed at age 26. Probably got it after a very nasty strep. I couldn't be out in the sun for very long. I had the horrible joint and body aches, hair loss, continuous night sweats and exhaustion. During my active illness, l lost 30 pounds in 30 days. Went to the good doctor in our small town who if was unsure or had concerns sent me to the close metropolitan area to see experts. The doctor l saw had a daughter who died of it 3 years earlier. He and his good friend my dad who was also a doctor went on a full attack. I got drugs that were not approved of for many more years. I was an experiment. I'm now 82 years old. I absolutely stay out of the sun, get plenty of sleep and avoid stress. I substitute taught so if I had bad days I simply chose not to work that day. I'm in charge of me so l determine what I can do each day.

[@laura6344]

good morning, can you have lupus with negative ANA, ENA autoantibody blood tests?

[@ritamccomas9271]

​@@laura6344 GOOGLE is your friend! Yes, it is possible, but rare with only 2% having a negative ANA. 35% with ENA. Better check for yourself. Not sure if I commented correctly.

[@tinahickman6300]

I was diagnosed with lupus when I was 22 but I can trace the symptoms back to when I was ten when I first started getting the rashes. I'm a massage therapist and I had tried working full-time and then part-time but I still continued to have flares frequently. So I started working from home I stopped driving and eating a lot of meat and processed food. I'm a massage therapist and at first I would just work on a couple of clients every couple of days gradually I increased that very slowly and over 20 years now I still work from home but I'm doing much better and have been able to go completely off the daily prednisone. It's still an everyday battle but by doing my best to get as much stress out of my life as I could that made the biggest difference.

[@deecee901]

I have love / hate with prednisone. We need a new drug.

[@donnamuller6460]

I also had to close my massage therapy practice; the only break I EVER get comes from liquid steroids into my IV, like I get in the hospital when I can’t breathe.

[@vivianvan1842]

​@@donnamuller6460 😮

[@rosaliearentsen2983]

​@@donnamuller6460 😊

[@tracyrenae6320]

When you say rashes if you don't mind me asking what type and where? I was somewhat diagnosed with lupus, sjogren's, hashimoto's and Lyme disease but my tests are always different and my levels aren't high enough to fully diagnose me. The last set of ANA testing I had 2 yrs my autoimmune test were actually negative that was a first since 2012. However the Dr said I had a positive marker for Lyme but I was ok and didn't need to do anything. My new Dr is starting all the blood work again and my new Neurologist too but recently I started swelling in my ankles and my legs and also a almost full body weird rash!! It started on my face almost shaped like a mask. It's under my eyes and around my eyes and sides of my nose but it's also on my ear and around my hair line at the back of my neck. When it first started mother's day weekend it was all over and I just thought I had caught Poison ivy again because parts of it looked and felt like it. Most of it went away but the face and ear rash came back. I've never experienced rashes before but I have every symptom and then some for Lupus and other autoimmune diseases. I'm hoping they figure it out soon. I'm currently getting my heart checked out due to the swelling. Good luck everyone!!

[@brendajoycewhite5747]

I was diagnosed with Lupus, in 2008, I had it long before this. I have all these symptoms, just had some of my 17 meds. Increased. Our weather here has been unusual cold , rain or snow. I got the covid shot, had a horiable reaction. Inflammation in my brain, all my organs, all throughout my body, I am taking a lot of natural herbs, vitamins, minerals, ect. I have days I feel like I am dying. Ready for a reprieve, to be able to injoy life again, like I have in past.❤🎉😢😊

[@CH-kr2df]

I’m so sorry you are going through that. Praying for strength, comfort, and healing for you ♥️🙏🏻

[@terrybullen3826]

Let your body give you a warning Don't even think about having anymore covid shots.

[@boobandit13]

Try olive leaf extract for covId reaction maybe helps. God Bless

[@skulltaylor1616]

I had a horrific reaction to the covid shot too. I’m not diagnosed but have every lupus symptom. I have been slowly (and I mean slowly) ‘improving’ wit sone pain relief (it’s milder but not gone) from nattokinase supplements. About to add serrapeptase too. Maybe it could help u. I also have found a fish oil blend that includes shark oil and cod liver oil plus hempseed oil, zinc and a strong turmeric supplement help too. I have so many bad symptoms from the 💉 brain fog, couldn’t walk for nearly a year from excruciating nerve pains, muscle deterioration, extreme pain & burning in all joints, debilitating brain fog, severe chronic fatigue, lost clear vision few times, acne, significant hair loss, my gut health is destroyed, and more.

[@sdd123]

It is a horrific disease to live with. As with any condition no one knows how hard it is to live with. The pain is awful and not being able to tolerate certain odors is a life changing thing. You have to always think about things that you never had to think of,however, at least I am still here and hope to be long enough to see my son graduate medical school. Be well everyone.

[@bayoumeme7743]

My favorite aunt had this disease as long as I can remember. She suffered so much. Normally she worn a size 6 dress but she would have a flare up over night and wake to having to wear a size 16 dress. Eventually she could only eat broccoli and white rice and Gin alcohol. Now this was in the late 50’s when she was diagnosed. She was a tall slender lady but when lupus roared it’s ugly head she would swell like a balloon.

[@sallyfreeman9971]

😟

[@abbey428]

I have two pictures of me 1 month apart. The first one I look 50-75 lbs heavier than the one taken a month later. The inflammation with Lupus is no joke. Doctors do not want to address the inflammation, EVER! I finally found proteolytic enzymes and have reduced inflammation dramatically. Doctors treat symptoms and not the causes. Done listening to them.

[@Donna-cc1kt]

Yes.

[@irishwitch6642]

I know it is stupid but unless you have a certain number of symptoms of Lupus dr.'s do not like to declare you as such. I was the classic case with everything and every organ involved other than my eyes and liver. I am thankfully now in remission ( and hope to stay so) because I had to have chemo for my kidneys due to glomuronephritis. Dr. told me sometimes it will put you in remission and it did even though it took about 2 yrs. It is a painful ugly disease and I hope everyone finds a wonderful dr. to lead you through it, plus it takes a lot of determination to overcome.BTW it takes a 24 hr. collection of urine to get the correct amount of protein in your urine. Best to everyone, if I made it through all i went through you can too, mind over matter is so important in this disease.

[@kathybrooks4270]

I'm 65 and been diagnosed since 35. I have been through a lot. Now have autoimmune hepatitis. That I will have chemo for. Try to keep positive thoughts. And of course pray often. Love to my Lupus people. God bless

[@jolenewells]

I'm curious how they know it is hepatitis related to the autoimmune snd not to something else? I have all the symptoms except the butterfly rash plus hepatitis c, but it is non reactive, and to my knowledge, it has never been. I have pain under my ribs sometimes that feels like it is trying to blow my ribs out. I also have fibromyalgia and trigeminal neuralgia. Right now, my eyes are hurting and have been for more than a week, almost finished with my prednisone and antibiotic and still feel terrible. I feel like I lay in the same fetal position for as long as I can because of the all over pain. I just wish I was listened to. Prayers warriors 🙏 ❤️

[@noeldeal8087]

@@jolenewells how are you doing?

[@Justice4Skye]

Easy to dismiss is a damn understatement, and surely isn't 90% women, as I started showing signs at 15 as a male, severe, but until now at 38 I've suffered with it and am just now getting the diagnosis, all the while been treated for things I don't even have. It's been absolute Hell.

[@lucylou9030]

I'm with you on that Jason. After years of struggling and a fibromyalgia diognosis and other lupus related symptoms which I didn't know were at the time a nurse decided to order blood work ana and ds dna which came back highly positive rheumatology have now put me on lupus medication. I really hope you get the help you need now. But what a journey it is to get there.

[@muchlove1111]

Sorry, you had to go all those years not knowing. Now you know, don't give up. Educate yourself for your family...

[@Justice4Skye]

It's neither of your faults and I have noone to educate or live for anymore i really don't, I have given all I have and there's none around to care. It's hard to keep going and that's something I never thought I'd say, but when you are choosing between even paying for 1 out of 5 or 6 medications you need or food, or the unending debt, and have to think about the inevitable homelessness it's really impossible at some point. Especially as much as I've been abused, used and hurt. That's life. God is in charge not me, I gave all I was and had to others when I had any health at all and that's my own fault. So dying alone with nothing is just how it's going to be, and I have to accept that. Thank you though it's nice that people ; strangers on the internet are nicer then anyone I've ever met in real life, at least when I used to be able to go outside.

[@muchlove1111]

I am living out of my trk. And just been put on insulin. I have 1 uncle and a aunt from that generation and brothers and sister. We've lost one from my gen and now 1 from the next gen. This is my life and God is good . I divorced 3 years ago from a 14 yr marriage. 134000 a yr to barely 12000. Thrown out of house to homeless So, I do understand.. your medicine should be taken care of with everyone being able to get Medicaid.. You could use an advocate. Call your local dhs and Medicaid off in your city they can help point you in the right direction. GB Ps. Stay in the solution, The devil seems to be working his magic on you . Life is good Give all your worry's to GOD..

[@lauriewilson4741]

@@Justice4Skye I feel this, Jason. When you’re alone, it’s overwhelming

[@irishravr632]

My late mother had lupus for 23 years before she passed, she suffered kidney & lung disease, her eyesight failed towards the end of her life, RIP mum you are deeply missed. St Anthony intercede for her.

[@sallyfreeman9971]

Sorry to hear your mom passed away 💔

[@stacyroberson8000]

This is caused by your diet. In the 1970's it was treated with an all meat and water diet. Check out the videos by Dr. CHAFFEE . All autoimmune diseases stem from the wrong foods. .. check out Dr. Jordan Peterson's daughters relief from arthritis.

[@noeldeal8087]

she will be resurrected...

[@drintx5734]

St Anthony is dead. Jesus is our only intercessor with the Father. It’s in the book of Hebrews, look it up. Dead ppl don’t intercede for anyone.

[@dianereynolds2761]

my mom has lupus,she was diagnosed when she was in her early 40s in 1984,none of the doctors knew what she had,nobody knew much about lupus back then,i noticed a rash on the back of her neck and after that she got real sick and was in the hospital for over 2 weeks fighting for her life,it took about a year to find a doctor that actually knew what she had and that doctor put her on predisone and she blew up like a cabbage patch doll,well,she is 81 years old now and got alzeheimers about 7 years ago and i quit my job and have been taking care of her the whole time,i really believe that lupus gave her alzeheimers,lupus still rears its ugly head everyday,she did go into remission at the beginning but now its back with vengenance,i am 53 years old and hope that i dont have lupus,i think im going through perimenopause,lupus and perimenopause have alot of the same symptoms so hopefully mine aint lupus!!

[@donachaffinhodge]

May God be with you and your mother through this difficult horrible heartbreaking time! She is blessed to have you!!❤ Lots of love from a believer in Jesus the Christ❤

[@dianereynolds2761]

@@donachaffinhodge thank u ,dona

[@jodybogdanovich4333]

Bless your heart. 😢 My fear is that my daughters will end up with some of my medical issues because a lot of them do run in the family. Prayers for you and your mother. 🙏

[@dianereynolds2761]

@@jodybogdanovich4333 thank u

[@sheriwilliams8942]

It skips a generation, but the stress of taking care of a person could cause any disease. Dis-Ease of the body is what causes Diseases.

[@JKThom-59]

I'd like to know how many Lupus sufferers also experienced trauma in their life. One of the issues w trauma is how it disregulates the whole body. (Yes, I've been reading The Body Keeps Score.)🤔

[@jodybogdanovich4333]

I experienced multiple forms of trauma throughout my life and never addressed them until my 50s. That was when an astute neuropsychologist, who was treating my husband after a TBI, turned to me after one of his sessions and said, now I think it's time to help you. I was eventually diagnosed with depression, anxiety, PTSD, and ADHD. About 10 years after that, I was diagnosed with psoriatic arthritis and my therapist at that time said that he wasn't surprised because research has shown that underlying stress from trauma can trigger autoimmune diseases. BTW, my rheumatologist recently had me tested for lupus because of unrelenting fatigue and persistent low-grade fever spikes. One test in the panel came back abnormal but on the low end, so he's going to have me undergo the bloodwork again but will send it to a medical university lab because of higher sensitivity.

[@JKThom-59]

@@jodybogdanovich4333 I hope you continue through your recovery successfully. I'm so amazed by trauma and autoimmune diseases. I'm having trouble w a lot of symptoms but no diagnosis yet. ❤️

[@jodybogdanovich4333]

@@JKThom-59 Best wishes on your journey for a diagnosis. It took 3 long years and a lot of specialists and dead ends. I finally found the right care team who refused to give up, and I thank God for them. BTW, I'm going to look into that book!

[@JKThom-59]

@@jodybogdanovich4333 it's a little hard to read. It's about how trauma affects the body. Lots on how your brain actually changes from exposure to trauma. A must read! 🥺

[@debraemig417]

I've had much trauma in my life. I feel like a cat with 9 lives. I have read traumatic experiences actually change your brain. I've often wondered if those experiences never happened to me what kind of person would I be now.

[@bettyhoo6604]

Stress is a big part. Take care

[@doceansdeepwoo2532]

Wow I've had most of these, some as far back as college, I'm 65 now, and they just kept adding on. I had to find my own way through all the crazy symptoms. Realizing how many poisons we swim in all the time prompted me to start changing my lifestyle, decreasing the worst stuff as much and as fast as possible! Which was actually slow due to poverty and the FDA not doing its job. First thing I cut was drinking city water, that gradually healed Gerd, got rid of nightshade like tomatoes and peppers, started reading labels. Found products to clean my blood and decrease inflammation, ate cleaner and cleaner. This helped a lot. My swelling went from epic to moderate. I lived mostly in old places with lots of problems like mold. I had trouble sustaining work. There were times I thought I was gonna die, but decided to keep looking for solutions instead. Finally I got myself into better housing for seniors, and that helped a lot. And finally I got the strength to go keto and g-free. Add many spiritual practices and prayers. Finally here at 65 it's turning around completely. Let me tell you, we are being poisoned. Our bodies are made to heal themselves, they mostly just need a healthy environment and clean food. I'm better now than in my 40s in many ways! Getting to the doctor won't always solve your issues, doing your own research goes much further. I have lost most of my trust in doctors and govt agencies to keep us safe and healthy and I think that's a big reason I'm still here while many people with these issues are gone! The battle is not over, but at least I finally have a more level ground to fight from!

[@ArcoirisDeZebulon]

Bravo! 👏🏾 Very similar to my situation, thank you. I have just begun focusing on “clean” water & simpler foods. It’s very hard to afford this lifestyle as a widow but I don’t like the alternative. The flares come and go but when they’re here 🥴😭. I regret ever trusting western physicians would actually try to help me figure this out! Never diagnosed or even tested. ❤ I’ll have to look into the nightshades- I love ALL peppers and they make bland food manageable! 😂

[@pilindauka2492]

Sure, quiting sugars and all added sugar food and drinks, eating green veggies and fruits, eating home made prepared food with low salt diet, having enough time to rest and sleep, doing simple excercisea and stress free environment, reduces risk of recurrent attack of lupus, thank you for sharing these very useful information, God bless you, Amen.

[@donnamcdonald3709]

See a doctor? Doctors usually will not recognize or care about these symptoms. Sadly a good doctor is a rare find.

[@UteNagel]

Dr. Brooke Goldner on youtube!

[@ArcoirisDeZebulon]

Agreed! Wasted time & money on co-pays just to be ignored.

[@michellemason222]

So very very true ! So unfortunate finding a new doctor taking new patients is impossible! Have asked me doctor to somehow check me for this since I have hoshimotos hypothyroid ( auto immune) and had an aunt with it. It was totally discounted without asking any questions or talking about. Tried twice in last 4 years to find a new doctor in my area taking new patients and came up empty !

[@codyjenn8785]

Been trying and seeing drs for 3 yrs trying to get them to help me and they still don’t know what’s going on hardly

[@LadyKestrel23]

My rheumatologist could care less and ignores everything I say. It’s maddening. Wish you all better luck! ❤

[@pilindauka2492]

I was diagnosed on December last year,currently i am on hydroxychloquine,predinisolone , azacin and calcivita,i was very weak at that time,due to illness includes heart palpitation,chest pain,joint pain,and cough,severe skin rash,and GIT problem,but as the days going on with the frequently followup,thank God now i am doing fine,thank you for good information shared,God bless you all,because it give me courrage and gain positive thought about the disease lupus,seeng others have been in these situation for more than 30yrs,we have to thank God.Amen.

[@IBLV2DOU]

Yes it is helpful. I’ve had symptoms for years, but was diagnosed in 2021 with SLE sjogrens and fibromyalgia. It is easy to shrug off many symptoms when doctors dismiss them as well, especially when we do sports, work, etc. in our younger years. I would tell anyone younger who also has these symptoms to find a doctor who listens, and then find a rheumatologist. Good video!

[@faithbaker8233]

I am 59 and have had Lupus for 15 years. Thank you for this video!

[@sisterpamop]

Fatigue is the greatest life changer and the most debilitating for me.

[@deecee901]

Me too. But im so much better with pain management.

[@merenjungla9139]

Same here

[@stacyroberson8000]

This is caused by your diet. In the 1970's it was treated with an all meat and water diet. Check out the videos by Dr. CHAFFEE . All autoimmune diseases stem from the wrong foods. .. check out Dr. Jordan Peterson's daughters relief from arthritis.

[@lp9194]

I can't work I take a shower and I need to lie down or fall down. My brain has energy and motivation my body says let's take a nap

[@mylife-321-0]

Lots of great information in this video. I have been diagnosed with Lupus SLE now for 20 years. I also have a host of other conditions associated with this disease. Prayers for those that suffer. Rest is a plus

[@mylife-321-0]

Also I have had a big relief of pain from the drug Cymbalta or Duloxetine

[@claudettemonty4077]

Thanks for your video cuz some symptoms I didn't know about lupus!! And let me tell you that à my next appointment with my doctor, I will bring your video for not forgetting some points and make him understand!!! Thanks a million times!

[@staceyallen9300]

I appreciate this video because I've gone through a lot of these problems even after having SLE Lupus for 12 years. The biggest problem with my condition is that when I have a flare-up, I lose my voice and ENT did numerous tests and simply told me to change my diet, eliminate citrus etc but I still have the same issue. I forgot to mention that when it rains or gets cold, the voice also goes and still, they cannot explain why.

[@australiamyway]

Also gluten. Gluten can be highly inflammatory try that to help symptoms

[@heatheralbert5404]

Cut your medications and try holistic remedies! ❤️

[@roseannamanues2111]

One of the rare side effects of one of my antiseizure medications is Lupus. My mom had a friend who had it. She passed in the early 2000s. Our area it's a high number of people who have it. One of my friends who lives some where else was recently diagnosed with it.

[@staceyallen9300]

Heather, thanks for the suggestion but I did that the first few years with the same results and decided not to continue with it.

[@sheriwilliams8942]

Citrus is not the problem. Keeping your body Alkaline is essential to keeping Lupus away. Citrus is a way to keep the body Alkaline unless you have acid sensitive stomach. After 40 yrs of age one may need Hydrochloric Acid to help with proper digestion. Apple Cider Vinegar can increase Hydrochloric Acid, but Apple Cider Vinegar can cause potassium depletion so you my have to supplement with Potassium. Celery is loaded with Potassium...

[@godferns7452]

I'm 62 years old. Went through along experience of Multiple Myleoma(Cancer) Kidney Dialysis.But fought a g8 fight, and God bless me.I went in remission.And now because of the medication I had all this side effects & now i'm confined to a wheelchair.And lately i'm feeling very sick as most of the symptoms you mentioned I feel im going through them. But well let me try & fight it out with your wonderful explanation and kindly guide me...And please update me. May many people around the globe be blessed by your guidance & knowledge. God bless. 🙏

[@kadeneforde7875]

Sorry to her about your fight with cancermay you regain your strenght in jesus name🙏

[@cynthiac6110]

I have had many of these symptoms but have never been diagnosed with Lupus. I have Hoshimoto's, Fibromyalsia, osteoarthritis, COPD, and Asthma. The word fatigue does not begin to describe how tired I feel somedays. Even though my Blood pressure is under control now they still have me on a low does of lisinopril for my kidneys. I'm getting ready to change doctors I just got a new one and I have to wonder if she knows what she's doing. I wish everyone well. Love and hugs to all.

[@jodybogdanovich4333]

Very helpful. My rheumatologist, who is treating my PsA, recently ordered a lupus panel because of worsening fatigue and persistent low-grade fevers. One test came back abnormal but on the low end so my doctor is going to have me retest but will send the panel to the University of Washington Medical Center lab because of higher sensitivity for this particular test. In the meantime, I am consulting Dr. Google and found this video. It clearly explains each symptom and to be honest, this is the first time I've seen any mention of the fever component to lupus.

[@floramenzie4764]

My daughter died recently from Lupus. She suffered for years but it came out bad after she had a baby and than it went down slowly. Her kidneys, skin, bad arthritis. She had the worst case and all her organs were affected. She was 55 years old and looked 70. It is a cruel disease and I miss her so much

[@jodybogdanovich4333]

@@floramenzie4764 I am so sorry for the loss of your precious daughter 🙏✝️🙏

[@sallyfreeman9971]

@@floramenzie4764 I am so sorry your daughter passed away. She is resting in peace now. She doesn't have to suffer anymore. I pray that God will wrap his arms around you and your family and comfort you. ❤🙏✌

[@sdd123]

I have had lupus for 36 years and it has become increasingly difficult to do things.Does anyone have sensory processing disorder also? I also have the usual fibromyalgia and lichen plants and pyoderma gangrenosum. The sensory issue,specifically smelling perfume, cleaning products etc have been the most frustrating because it is difficult to go out. I wish all good health and peace.😊

[@abbey428]

I have severe neurological symptoms now at age 56. My back and legs feel wet or like I used Ben Gay on them after a hot bath. Gets painful at times. This is a relatively new symptom for me. I just keep on going despite what Lupus does to me. Prayers for you.

[@jillijane9793]

I was diagnosed with lupus in my 40's and I am 62 now. I had to go on disability about 5 yrs ago. The frequent use of Prednisone has had many negative factors on my body. In addition to all of the symptoms listed, I frequently get the mouth and nose ulcers, and have lost all of my teeth due to the severe dry mouth, acid reflux eating the enamel of my teeth, insomnia. Personally, at this stage and the way I feel, I am not looking for any life extending treatments

[@jade4udl]

❤

[@dianeesther6942]

I am surprised and concerned that there was such little emphasis put on heart disease in this list. My brother was diagnosed at about age 35. His first sign was a sore that wouldn't heal on bridge of his nose. Over the years he's had major kidney involvement, fatigue that has disabled him, and finally, quadruple heart bypass surgery at age 58. I believe that this 'symptom' should be emphasized, as many other people may never make the connection to Lupus and be misdiagnosed and not treated properly.

[@datondradavis5202]

Awesome breakdown. I definitely appreciate how much easier it is to find information about lupus these day. When I was diagnosed it was really difficult to find information,even from my doctors. Be blessed ❤

[@sajufiroz6467]

Thank you for the video.. i have SLE.. since 2008.. have each of the symptoms shown in the video except for thyroid. Was diagnosed at the age of 34.. went through chronic kidney failure,DVT due to dialysis. Steroid induced cataract, AVN of the hip so had a total hip replacement.. the battle is still on! I can proudly call myself a LUPUS WARRIOR 🦋

[@lauriewilson822]

I keep questioning if I have lupus, having the lovely butterfly rash since forever. Had a doctor test me due to that and my ana came back find, a coworker told me to keep on it. After watching this I have everything listed, so I'm going to push my doctor to listen to me. Thanks!!!

[@marystrope1345]

My mom had lupus.. she was diagnosed when she was sixty.. it's amazing how much still isn't known in the medical community about this disease!! I've tried finding out more about my chances of developing this and and the warning signs but I keep coming up with nothing.. after seeing what it did my mother it kinda scares me.. she was on a medication that caused her to taste blood all the time and she hated it tasting copper was how she described it..! I hope that people have better understanding of my condition if I develop this I know that I have a good chance of contracting it and want to keep an eye out for symptoms so I'm better prepared.. it just hit her right out of the blue.. I feel like her system was already so compromised.. she was diagnosed with liver cancer ten years into her fight.. I believe that it was all the medication ..

[@sallyfreeman9971]

I hope and pray 🙏 you don't get Lupus. I feel bad that your mom had lupus 💔

[@iluminameluna]

It wasn't the medication, necessarily, that gave her cancer, but maybe a predisposition if there was cancer already in her family history, plus the meds, like omeprazole, and antibiotics like azithromycin, which can be prescribed if you're allergic to the penicillin or Sulfa families of antibiotics. I'm going to comment on your fear of developing any form of Lupus because your mom did: there's only a very small chance you will. Here's why I say this. For one there's very little evidence that Lupus is a direct inherited disease. If it were, a genetic marker would've been found by now that more clearly shows a familial link. There's been over 100 years of studies in rheumatic diseases (rheumatoid arthritis, discoid Lupus, ankylosing spondylitis, etc.), and so far, they can't even find a single drug that can be effective for every case of Systemic Lupus Erythematosus, much less for all the other related autoimmune diseases. I had 2 sons before I was ever diagnosed with SLE, but I know I'd had symptoms after I delivered my firstborn. And even more after of them after I had my 2nd. My Dx came shortly after he was a yr old. Neither of them has developed SLE, but they've had a few things that were somewhat, and very distantly, related, such as eczema and TONS of allergies. But that's it. Asks believe me, I taught them to be on the look out, and to take very good care of themselves. I'm 60, they'll be 39 & 36 this yr. So we've all lived with this ghost all of our lives. I have rheumatic disease on both maternal and paternal sides, that's rheumatoid arthritis and ankylosing spondylitis, Type 2 diabetes, and 1 uncle had gout. That's my ball and chain. Both my kids have healthy habits, they don't generally smoke or drink, eat well, and my youngest doesn't get regular exercise but he works physically and gardens on the weekend with his kids or goes bike riding in the sunny months, or roller skating indoors when it's winter (lives up North Midwest). Same with my older son, he's always out or indoors doing something active with his kids, even takes karate with them. And that's important. Keep your stress levels in check! Take up a hobby, join a group of people with whom you share an interest, ANY interest! Whatever takes your mind off of yourself and whatever is worrying you, because like the song says, "when you worry, your problem becomes double!". Stress is the biggest provoker in someone with Lupus. For me, I believe it's what tipped me into developing it. Get it out of your head that you might develop it. You won't unless you obsess over it. ❤

[@marystrope1345]

Yeah..if I have a predisposition for anything it would be the ALS that my brother died of.. I worry about familia in my kids and grandkids And yes.. my mom had pretty much the WORST case of exema that I've ever seen in a person.

[@sheriwilliams8942]

It skips a generation. Hereditary is not destiny. Keep your body in proper Alkalinity...

[@debraemig417]

My mother got very ill at about 78 yrs old. She could hardly move. She was diagnosed with polymyalgia. I never heard of it in my life. I took care of her for 3 months till she got better, but had to be on prednisone the rest of her life. 😊

[@claudettemonty4077]

I have Lupus and EDS, an other autoimmune disorder. I am making the joke that I think that my body don't like himself!!! Lol! I prefers to make jokes and laughing than to cry cuz certain days, the pain is ....

[@lindahollander3588]

People have to suffer TOO much before they die,Lord have mercy!

[@kerrytopel9835]

There may be an answer to this problem in Scripture: not until every Penny is paid can one enter Heaven. Be perfect as your Heavenly Father is perfect. So while believers are saved, they do pay a penance for their sins. Jesus made the ultimate sacrifice so that we may be forgiven our sins, but our suffering here may be in penance for our sins. Jesus both set an example for us AND redeemed us. Catholics believe we pay for our sins either through our suffering in this life or in Purgatory in the next.

[@dwayneneal9977]

Thank you for the information that my doctor never gave me I suffer from lupus and now I suffer from stomach issues and back pain and joint pain

[@michellebonneau413]

My mother had lupus, so for that reason I get tested every few years. I have hypothyroid, osteoarthritis, over sensitive to processed foods and who knows what else. I am also a 20 yr. survivor of breast cancer.

[@lisakitzberger3931]

I was diagnosed with lupus in 96. I'm 60 years old, and I've been on medication for it

[@maryjanepate4359]

I do have lupus, but I always want to know more about it.

[@TheUltimateLauren]

Diagnosed in 2018 at 30 years old but experiencing symptoms since high school, its been hell

[@LindaMata-f1q]

Thank you for the Lupus video, very informative. Ive got something weird going on and my PCP, Nephrologist, Rheumatologist, Urologist and Gastroenterologist don't know what's causing my current symptoms. I know there is something causing daily lower grade fevers (99.6 to 101.9) daily and night sweats. Extreme fatigue, plus I have stage 3 kidney disease, esophageal disease, IBS, RA, osteoporosis, vitamin D and calcium imbalances, which caused hyperparathyroidism. I'm 71, and I feel like I'm dying on the inside. I've been waiting for my endoscopy for over 6 months. I had one a year ago and the surgeon found damages to my esophagus from 25 yrs of GERD. The stomach acid caused major scar tissue and in my stomach he found an ulcer and a bacterial infection called H Pylori that was hiding in my stomach tissue. I suspect it may have come back but that's only MY opinion. All my dictors push me away to see another specialist. Well I've seen them all and they aren't concerned.😢 I had a chest xray a year ago and the radiologist found a small black tumor in my lung. He said it was benign and to follow up in a year because it may grow and become cancerous. So my kidney doctor ordered a CT Scan which showed it's still there. Still small 8 mm, but advised me to have it removed when it's 9 mm. They call that Small Cell Lung Cancer, the fastest growing cancer and it spreads fast. I received the results from my radiologist and none of my doctors were concerned enough to follow up with me. I've had all I can take. I just want to know what's causing my fevers and night sweats and why on earth do I feel so tired ALL THE TIME? Why does my skin break out in dermatitis every other month? MY RA doctor tested me 3 yrs ago for Lupus, negative. Does anyone relate to my symptoms? Thanks for any thoughts. Linda

[@butterflyblue879]

I don’t have all the answers but a good place to start is having your doctor do lab tests for your hormone levels, checking your Progesterone, Estrogen, and Testosterone. It’s been found through much research that Testosterone is more important than estrogen/estradiol in a women’s body throughout her lifespan when it comes to her heart health, muscle strength, bone strength, and joint strength. It’s misleading or just uneducated thinking for doctors in our society to label testosterone as a “Man’s hormone” and saying the only benefit of testosterone replacement therapy is enhancing a man’s sex drive. It’s false and a determent to women’s health. Testosterone is NEEDED by both men and women throughout their lives for many involuntary body functions and cell functions. The body can not function properly without hormones. It’s how the body was made to function by our creator. It’s also been found that men NEED estrogen, usually misinterpreted as a “woman’s hormone”, in their bodies throughout their lifespans to function and to function properly as well. The hormone Progesterone when released in the body is a natural muscle relaxer, a calming hormone that helps the body sleep, and is the feel good hormone many women naturally produce in large quantities in their “feel good, all is well with the world” stage of pregnancy. So replacement of this hormone for both men and women as it depletes with age should be a no brainer. Fact is Hormone imbalances based on aging should never be accepted as normal, bio-identical hormone replacement which are hormones that absorb into your skin and are naturally accepted by the body, should be considered as a medical need and covered by insurance companies, just as pharmaceuticals are considered a medical need and covered by insurance companies. It’s no different than treating high blood pressure, high cholesterol and other symptoms of aging with medication. Hormone replacement Therapy is not the fountain of youth BUT it helps with the quality of a persons life as they age and it helps in reducing many physical symptoms that we all get attacked with and doctors categorize as “normal aging symptoms” which can in reality be reversed or reduced in severity. The doctors also misdiagnose people with autoimmune diseases instead of acknowledging that hormone deficiency’s can cause these very real symptoms, that are similar to many autoimmune diseases. The next Lab tests you should request is for your vitamin levels to be checked for deficiencies. In our current world we don’t eat balanced diets from fresh food sources anymore, especially in the USA. It’s almost impossible for most folks to eat foods with any natural nutritional value. The majority of folks do not eat farm to table anymore, so there’s no way for our bodies to consume the vitamins and minerals we would naturally consume. We eat processed foods, even when we don’t think we are, which are found in our grocery stores, on the menus at most Restaurants, even fine dining, and of course in all the fast food outlets. FOOD that is processed in warehouses, in bulk, that is filled with all kinds of chemicals, artificial colors, and bioengineered DNA which our bodies consider to be foreign substances and we are continually fighting against those foreign substances causing inflammation in our bodies, causing our immune systems to be attacked daily and overwhelmed, which in turn causes many types of autoimmune diseases to present themselves, causes chronic illness in our bodies and an early death. The government ALLOWS this if they deem the good to outweigh the bad, or the reward to be greater than the risk when it comes to food additives. The doctors are usually reluctant to do these lab tests and you must be adamant about getting the tests done because balanced hormones are required for the body to function properly. Hormones dictate all functions in the body, they tell the cells what to do, where to go, etc. Hormone imbalances can be found in younger folks but on average as we age our hormones start depleting, as early as forty years old in both men and women, and that hormone imbalance can and should be treated medically as hormone imbalances can cause very real physical symptoms in both MEN AND WOMEN such as weak and brittle bones, trouble concentrating, night sweats, moodiness, Irritability and depression, thinning hair/hair loss, fatigue all the time, loss of muscle strength, lack of energy, trouble sleeping, heart palpitations, joint pain, skin issues, etc. The problem for the doctors is Hormone Replacement is not an exact science as every human body is different in how it uses hormones and acclimates to the imbalances, so it takes too much time and effort on their part to treat them. It’s not as easy as writing out a script and sending the patient on their way. It’s a rabbit hole that many doctors refuse to go down. There’s also the stigma of hormone imbalance being just a “woman’s problem”! You know the “Oh she’s going through menopause, wink, wink” treatment as the doctor humors the woman patient, because of embedded medical and societal misinformation, assuming the real aches, real pains, real heart palpitations, real bone weakness, real muscle spasms, etc which the female patient presents with are just in HER mind. So then the doctor prescribes an anti-depressant or a pain medication to placate HER until she gets “through menopause” instead of doing any further testing for autoimmune diseases or considers hormone replacement therapy as an avenue to wellness. In the mean time the symptoms start causing irreversible damage to bone’s, joints, muscles, eyes, etc as the doctors refuse to do any further testing. The same is true with vitamins, most of the population especially in the USA, because of our inadequate diet of mostly processed foods, are deficient of Vitamin D and that deficiency presents itself in your body as very real and painful physical symptoms such as getting illnesses and infections more often, hair loss, feeling tired/fatigued, lower back pain, wounds that heal slowly after injury or a surgery, feelings of depression or sadness, muscle pain, bone pain, muscle weakness, tingly sensations in your hands or feet, increased sensitivity to pain, muscle twitches or tremors, muscle spasms, etc. The vitamin D levels are very important to monitor and studies have shown that in most cases folks who are deficient must take doses of 5000IU to 10000IU a day for a few months to bring themselves up to a healthy level, and in many cases seeing their symptoms disappear. What I’m trying to say is if your Lupus tests are negative, than get your hormone levels and vitamin levels checked, because many of your symptoms could also fall under hormonal imbalances and/or Vitamin D deficiency. It’s worth a try.

[@dougaldarcy6463]

I have lupus, and it affects my kidneys, brain lungs and skin. I would go to the hospital feeling awful and they'd say I was trying to get attention. Id have these seizures, and eventually an autoimmune specialist picked it up and after intensive treatment although maintained to some extent I still have severe outbreaks. But let me tell you its better to know, having ppl belittle you is very upsetting, and makes your condition worse.

[@susancoombes]

The belittling is the loneliest feeling in the world especially when it comes from people who are supposed to care. I hope you get the help you need.

[@dwelanesepelle6842]

Great info sometimes am in so much pain but I hate telling others because they wouldn’t understand, but eating a little better can help

[@sistakia33]

I blew up like a balloon but then I would call the doctor for an appointment only for the swelling to go down by the time I actually got to see him. So the doctor made me go see a Psychiatrist. It took the Psychiatrist to make my doctor see me again! So he finally said, "The next time this happens don't make an appointment, just come see me." I did and he finally believed me. I got a referral to see a Rheumatologist who noticed all the other doctors I was seeing for complaints that when they were put all together (several miscarriages, mouth ulcers, swollen joints, GERDs, Raynaud's Phenomenon, balance issues, and swelling. Later I got the facial scars. I also had RA and Vasculitis but they were diagnosed earlier. Thank goodness the Rheumatologist specialized in treating Lupus or who knows how long I would have suffered without help!

[@lindajakub624]

What kind of help do you get?

[@sistakia33]

@@lindajakub624 I see a Rheumatologist and together we are trying different types of treatments. But unfortunately it seems I either have a severe reaction or no reaction to anything but Prednisone.

[@maryjanepate4359]

A rheumatologist is the doctor you need to see, to get an accurate diagnosis. They also treat you for this disease.

[@sweetcharlemaigne2335]

Am in functional medicine. Years ago lost a close friend to lupus. However, I also know several who were pretty much on their death beds but completely cured simply by addressing candida overload and changing their diets. Avoid steroids as they feed candida which then allows proteins - the catalyst behind all autoimmune issues - to permeate the gut lining and enter one's system. You must identify the protein attacking your body in your food whether that's lectin, gluten, casein, legumes, etc through a 21 day diet restricting all proteins and reintroduce. If you took the covid jab you have your work cut out for you as it is full of proteins that make autoimmune disorders far worse. Find a good Functional Medicine doctor as most conventionally trained ones are clueless and merely treat symptoms by throwing pills at it. Lupus is all diet related.

[@amarshmuseconcepta6197]

💥🎯💥 Thanking you

[@barbarajspannaus]

Thank you for your comments. It takes energy and discipline to eat a proper diet, not to mention the higher expense. I'm attempting to remove sugar and refined foods. When I reduce sugar, my body doesn't ache as much. The allergens that Spring has brought are taking a serious toll. But I know that things will change for the better and that God doesn't waste our suffering. I'm sad to think that so many in this world are suffering. This world is not our home. Hang in there!

[@juliaarambula3153]

This is great! How do you identify the protein?

[@sweetcharlemaigne2335]

@@juliaarambula3153 through an elimination diet. I would encourage you to work with someone experienced and has the philosophy of root cause in Functional Medicine.

[@sydneyhowell9921]

I just wanted to pop in and say that a lot of lupus patients live full lives with proper diagnosis and treatment. Not everyone is so lucky, and of course people can degrade and eventually pass from the disease. I am not commenting to invalidate that. I’m 22 and was just diagnosed this year and whenever I try to learn more about lupus I see so many comments of fear and pain and it scares me that patients with more manageable lupus symptoms don’t seem to be in the chat. Lupus can really suck, but it’s also not always a death sentence. At any rate, I hope everyone’s symptoms get better soon❤

[@VENUS.SE7EN]

Seeing others with lupus who have lived with it for decades makes me question why my grandmother did not live long after getting diagnosed. She was 46 when she died in 1996, and I believe she was diagnosed approximately two years before-maybe less. I was only four and have few memories of her. 😔

[@verreal]

I'm really sorry about that. I would just say, without knowing more details, the simple answer could be that since lupus attacks your own body, it could target the kidneys, heart, vascular system in the brain specifically, the joints. So the effects could vary widely in different patients. The most dangerous cases usually target the kidneys. The kidney targeting lupus usually starts younger also, so it might have been your grandmother's case. And at that time, they knew even less about how to manage it. Of course, your brain is kind of important, but those effects are rarer.

[@stormysworld1242]

Lupus attacks each of us differently! I wasn’t diagnosed until 2002, but have had lupus all of my life according to medical history, symptoms and genetic studies. I know my mother was in her mid 40’s when they were testing her for lupus, but she died of lung cancer before they could determine if she had lupus. I am so sorry for our loss, and questions!

[@abbey428]

I'm sorry to hear this. We all have very different challenges with Lupus. I was actually diagnosed with Antiphospholipid Syndrome first. Doctors didn't tell me I could have a stroke or heart attack. Just worried about me getting and staying pregnant. I had several blood clots after my son was born and did some research. Turns out I had to thin my blood or die. I slowly began to realize that my condition stemmed from SLE. All of the symptoms were there plus a few more. Since I've managed my own care I've felt a lot better. Sad that doctors only have an incentive to keep you on pharmaceutical drugs instead of getting to the root cause. Living with Lupus is possible if you reduce the inflammation. Saved my life.

[@VENUS.SE7EN]

@@verreal According to other loved ones, my grandmother had a constant cough. It was nonstop. Near the end, she was intubated and developed pneumonia. She was gone soon after. I wish I had known more details, too.

[@VENUS.SE7EN]

@@abbey428 Wow. Thank you for sharing your experience.

[@mamatried925]

dr berg is on another level!! thank goodness! i’m also interested in the best sleep positions. i’ve read that left side sleeping is good for your heart…

[@marydavis8132]

Yes, I sure do find this video very helpful for me... Very Very helpful. Thank You for sharing your video.

[@shawntaecolter4326]

My wife had Lupus and fibromyalgia and severe seizures she was the sweetest woman 🌹 she passed away last year environmental heat stress two months after a kidney surgery. If you're spouse has Lupus do whatever you can to help without being asked and don't take it personal if you're spouse doesn't feel like doing something shower your spouse with lots of Love hugs and kisses and be there for them every single step of the way.

[@debyarger3084]

What's hard is that all your symptoms you've listed are also symptoms of Rheumatoid arthritis. Both are hard to diagnose due them being autoimmune issues. I've lived with RA sense the age of 15. Lupus was considered also.

[@verreal]

Absolutely true.

[@Donna-cc1kt]

Similarities are just that. The problem is negligent doctor.

[@mariehardman9260]

RA is the result of lupus. Lupus comes first usually, followed by RA

[@suziecarr1566]

I have recently been diagnosed with rheumatoid arthritis and I can say I have almost all the symptoms listed here. Even kidney problems that seems like it comes and goes. What is the difference between the two and who can check it out. My rheumatologist?

[@murielorsborn3510]

My heart goes out too you all suffering from Lupus disease I pray that your symptoms will improve to give you some relief from pain I will pray for you all each day and ask God too bless you and hopefully find a cure love and best wishes from the United Kingdom our Lady of Fatima clothe you in her mantle ❤🌹🙏

[@lillyrocks2011]

Check too for Scleroderma, it's similar to Lupus but worse and different at the same time. It can be accompanied with lupus and/or Sjorgens. I was misdiagnosed with Lupus. I don't understand why doctors find so hard to take most of the patients seriously. I hope pharmaceuticals invest more in Scleroderma ❤🙏🏼 to get medicines and probably stop that horrible disease. 🙏🏼🌞

[@amarshmuseconcepta6197]

How did you get a diagnosis & is the a certain blood test I've had shongrens for 33 years 63 now but it been a battle the last 10 with all the above mentioned My Dr's in the UK aren't interested and only for the grace of God & my own wits I would be a goner ❤️&🙏 to all who read this 👊The show must go on until *we* are *called

[@LR-yu3mx]

I had it all my life. As a child whenever we went to another town. Or away from home, I got a severe.tummy upset. Now I know my immune system stacks the unknown water

[@wildrosecece]

How many people in the comments eat processed sugar which is in all of our foods that are store bought? What if you stopped eating anything with sugar in it, instead eat meats and normal fats and good vegetables?

[@jeffwatson151]

Thats stupid advice because meat hurt the kidneys and produce urea and other by products that have to tax the kidneys just to get rid of the canivore paleo diet is the dumbest thing to suggest to a lupus patient you're a prime example of how the internet can be so dangerous with bad information lupus hurts your heart and kidneys and you suggest a person go carnivore Iagree 100% about the excess sugar and all

[@Lynnda86]

I was diagnosed with SLE back in 2002, but recently started seeing a new Rheumatologist. She told me I never had SLE and it's "JUST" CFS/ ME and Fibromyalgia. I already had over 52 DIFFERENT diagnoses...the last thing I needed was 2 mew ones. I mean SERIOUSLY?! Just fix it! I don't care what it's called! 🙄😬

[@milagrolevy6806]

I have all of these symptoms. Yet 4 years ago, when said symptoms started I was diagnosed with Sjogren's Syndrome but not Lupus. There is a family history of autoimmune diseases with my great-grandmother, and mother, both diagnosed with RA.

[@gloriacarreon8787]

eat kosher daily it helps

[@MsMookalate]

Thank you. So I’m getting a full work up because of family medical issues along with my own

[@beybslifeintheus494]

God bless everyone

[@tracyjohnson5023]

There's a reason lupus is known as the great imitator. For most rheumatologists to diagnose lupus you must have a positive ANA test. 98-99% of people with lupus have a positive test. But your test can be positive and it be something other than lupus of course. Secondly, your sed rate (inflammation in body) will be elevated usually far beyond normal. Then it will be your C reactive protein test will be elevated. This test can also indicate cancer, diabetes and other things too. Your RA (rheumatoid factor) can be negative or positive. Neither result is a lupus indicator, but positive can indicate rheumatoid arthritis. The Standard rheumatoid panel testing includes all of the above tests. Lastly, you must have other signs of lupus such as body rash, butterfly rash on face, severe fatigue and some sort of organ involvement. 40% or more lupus people have kidney issues. For me personally, it's lungs and heart. The organs lupus targets are heart, lungs, kidneys, brain and skin. For most of us it's 1-2 of those. This is all for systemic lupus. Discoid lupus ONLY effects the skin and any other symptoms are pretty mild. There are so many autoimmune diseases that have overlapping symptoms that lupus can be difficult to diagnose. MS and lupus have some overlaps but MS is easier to diagnose as docs can see it with brain scan. Some other diseases are scleroderma, Sjögren's syndrome, rheumatoid arthritis. Some people with lupus have secondary auto immune diseases like those mentioned above. There's a growing trend that I HATE where doctors are diagnosing people as having lupus when they don't. Apparently it's "trendy" now to have lupus. So some doctors will misdiagnose instead of doing the work to find out what's really going on. If you have systemic lupus, it will usually progress, especially if you are not on the right meds. There is no cure, but it can be managed to a degree. The sucky thing is that it adapts and med cocktail will work for awhile then doesn't. For anyone trying to get a diagnosis of what the hell is wrong with me, I cannot stress enough, go somewhere like a university hospital. That's what I did. Saw a rheumatologist, a neurologist, endocrinologist a ton of tests all day. But that's what needs to happen to find out what you have. It took me 2 years of running around to local docs before my primary said I'm just sending you to Vanderbilt. Best decision I could've made. Do some research and find out what's the closest to you. Travel if you have too. Mayo Clinic will find out what you have. MS is diagnosed by neuro, thyroid by endo and lupus by rheumy.

[@janicebrown3804]

Thanks

[@Letsgo365]

Thank you! Sincerely appreciate you sharing your knowledge and experiences.

[@sharondowns3606]

It's not lupus it's a reaction from all the poisons in our air water and food.

[@deecee901]

My ana 1:60 i have lupus diagnosis..

[@deecee901]

Most other labs are normal soooo.not nessasarily true. If one presents with those labs its easy. I suffered 10 years till diagnosis.

[@dawnagamble1549]

I JUST HAPPENED TO CLICK ON HERE CAUSE IM TRYING TO FIND OUT WHAT IS WRONG WITH ME. WOULD YOU BELIEVE I HAVE ALL OF THESE SYMPTOMS BUT ONE? WOW!!!!IM SHOCKED BUT GREATFUL FOR THIS VIDEO...THANK YOU!

[@ArmySoldiersLady]

I was tested over a year ago for Lupus since autoimmune disorders run in my family and I have some myself. However the bloodwork came back negative. Oddly enough, none of my symptoms can be explained. Dry eye, dry mouth, fatigue, dizziness going up/down steps, and most recently, asthma like symptoms when doing Cardio. I’ve never had arms so I don’t know. I’m extremely active and work out daily. I wish understood what’s going on in my body. Thank you for sharing this info

[@nitahamilton4270]

I have lupus and Dr keeps being tested for it but continues to come negative

[@lisar655]

Sjogrens?

[@starrynight2218]

I was diagnosed at 22 with lupus but I’m always on the border so other doctors don’t think it’s that but I have all of the 10 signs you mentioned.

[@chrispeppers8895]

My daughter throws a positive every other test. However, she has been seen at UC SanFrancisco and Stanford and has been diagnosed with Rheumatoid and psoriatic arthritis, a blood clotting disorder, 3 types of psoriasis, and has had her pancrease attacked and 3 frontal lobe strokes. She had her first issues in her early 20s and was in her 30s before a diagnosis. They say it’s something sim😮ilar to Lupus but not exact. She is now in her mid 40s. Sucks.

[@christinasmith6390]

I am going through this exact same issue.’every single sign of effect is surely showing and felt within my body. They keep sending me to different doctors, Specialists,’bloodwork after bloodwork.’ I’m exhausted already. 15’years has totally tore Me apart.

[@denisemiller9296]

get a 2nd opinion

[@debraemig417]

Similar to Lupus, but not? That's terrible! What kind of doctors don't keep going UNTIL they get a correct diagnosis?

[@ShalomShalom-d5c]

Do a parasite, fungal & yeast cleanse. Watch Dr Eric Berg

[@wanda9405]

I have mild health issues. I looked at your lupus symptoms. Thank God, my symptoms don't match up to Lupus !!! 👍 👍 👍

[@clarahaywood9961]

I also have Lupus let’s all pray for each other

[@laurierencehausen-garcia606]

This was very interesting and I do have a lot of the symptoms but every time thyroid is checked they say it’s fine

[@jimbear8888]

My blood tests showed that my thyroid was okay. It was not. Labs don't always get it right. My doctor says that I was subclinical, meaning it doesn't always show. Do your research. There's a book called" Stop the thyroid madness", please get it and read it. God bless you!🙏♥️

[@nancysloan3731]

One doctor said I had it, one didn't. It's hard to diagnose. The second doctor did testing. He said no lupus. I don't know who to believe.

[@muchlove1111]

Unless, you are having a flare up, it will not show up. High Altitude, stress, infection fatigue will cause a flare up .. DON'T GIVE UP . I'm fourth or fifth generation..God bless..

[@nedraunique_mindset222]

I've had (2) doctors say the same thing I do, and (1) doctor actually told me I don't. I had all of these symptoms, and flare-ups before throughout the years, but my primary care physician I see won't put it on my patient chart/paperwork...I was diagnosed at the age of 22 in North Carolina, and I'm 39 now and I'm back in my home town of Buffalo New York but I've had it for years which I'm not understanding so who know🤷🏽

[@muchlove1111]

Lupus mimicks other diseases..don't give up .

[@nancysloan3731]

@@muchlove1111 I gave up Leanna since I am dealing with multiple health crises in my family and inner circle.

[@schanychamemphis1327]

it took 2 and a half years to see if i had ms.

[@siviepoovalingam2565]

I have just been diagnosed with lupus at the age of 70. May have had it longer but just went to doctors and dermatologists and carried on. Thankfully my Gp sent me to a physician and i did blood work and now i am being treated. 😅

[@Her_shey_bar]

I was diagnosed with Lupus in 2015 and I was sick with digestive issues being the worst. I was in and out the hospital all the time and extreme fatigue. Fast forward, I charged my diet. I stop eating meats except fish. I started taking sea moss ( I male my own) I also started juicing and eating sour sop that is known for helping with inflammation. I also left my umhealed relationship!!! He was a pain in the A** I swear sometimes dealing with him gave me Lupus🤣🤣. I know changing one diet is hard for some but try doing it slowly removing process food one at a time. I was rushed to the hospital because my throat closed up so I went cold turkey on the food, that scare the crap out of me.

[@shannonparker1]

Love your comment! Pain in the ass relationships can definitely give you Lupus 🤣🤣🤣. That cracked me up but so true. I have Lupus too and changing my diet changed everything! The doctors have no solutions only pills that will slowly kill you. Food is everything! ❤️ ❤️ ❤️

[@dazzlingpumppouches]

Yes they can definitely make your health conditions worst

[@pattyh1039]

I think I ve had it for 40 years . I ve over that time slowly changed my eating habits . I think it s helped tremendously . I d like to get tested .

[@niawatkins]

I have lupus. I was diagnosed 15 years ago.The only symptom I have is lack of energy. I was diagnosed after a 3 month long upper respiratory infection.

[@oceansams5886]

I was diagnosed with sle in 1987. I used to have thick hair, but now it's very thin. Also have night sweats, dry itchy skin, insomnia or sleep for 14 to 16 hours, and restless legs. I could go on and on about all the others things that go on in my body.im 70 years old now and tired of lupus. ( I stay tired all the time). God bless you all who have lupus.