11 months of long COVID and I still can't read or walk

An update on my life. I caught COVID-19 in January 2022 and then again in June, and it’s been a rough ride.
Grouped timestamps and links below the fold ↓
Watch my last update which covers my long COVID experiences from January to May - • I can't read anymore -...
0:00 Intro
Symptoms:
1:47 Fatigue and weakness
3:43 Walking stick
5:42 Travel without assistance
8:10 Travel with assistance
9:49 Severe fatigue episodes
19:45 Vision problems
22:20 Malaise and other symptoms
Medical assistance:
23:37 Long COVID clinic
25:15 Mental health support
27:43 PoTS and Cardiologists
www.nhs.uk/conditions/postura...
31:28 Neurologists
37:51 MRI complications
magnetfinge.rs
Work and money:
39:32 Work capability
40:25 Finances
42:08 Personal Independence Payment
www.gov.uk/pip
44:19 Reflections
🏡 chareads.com/
📚 / charlotte-dann
🌟 / charlotte_dann

[@thorinoakenshield5601]

A rheumatologist laughed at me when I told him I’m unable to walk without assistance by 1 in the afternoon. USA doctor gaslighting is rampant. Thank you for sharing and making our world a smaller place to live.

[@irineojason]

I wasn’t able to get out of bed until 1 pm.

[@dkasper3267]

I am so sorry, yes US doctors have been bullied and brainwashed. From preventing covid treatment that really helps, to long covid treatment to vaccine injured being completely ignored in some cases. It has been so scary and sad.

[@nomebear]

I'm a big, muscular, strapping guy, and I can't get any of my friends to take my long haul COVID seriously. So, I avoid the "needy" ones, literally cutting a population of people out of my life. I've learned to say "no", pace myself, and give myself permission to zone out. I tell myself the it's not "forever".

[@starstuff5958]

US gaslighting is rampant...you bet it is. I have not one Dr that will say the words long term covid. They skirt around it, I feel totally abandoned and betrayed by the medical 'profession' and the symptoms continue to change my life for the worse.

[@aprildecarlo1505]

Unfortunately this is too common in US. I found it so infuriating & degrading. Don’t accept it. Find a better doctor if you can.

[@elizabethstranger3122]

I'm so sorry to hear this :( ♡ I have severe ME for over two years now, it all sounds all too familier. I hope you'll be able to recover ♡ I wish you the best. It isn't fair that the medical world has neglected patients with post viral syndromes for so many decades, now they are seeing the huse consequences with long covid after the pandemic, and its so sad that we are all the ones who are paying the price for their neglect

[@paulah.9415]

I try to hard to suppress the old habit of cynicism. Maybe 75% better at age 60? Thin, healthy, somewhat athletic prior to this. No pre-existing conditions. I am comforted to know that the corrupt health research priorities, shortcuts, assumptions and sometimes straight up lies are similarly present in the UK. It allows me to still have faith in progress for the U.S., knowing that we aren't the only Western country in which politicians/funding is based on what are basically bribes with another name, lobbying purchasing the politicians. My long covid seems to be so similar to ME that maybe that's what it really is, just caused by a newer virus. It has be completely disabling, involving horrible GI pain, inability to stand without holding on to walls and doorframes, and bone tired fatigue. And that was after four months of full blown dementia, thus the word "brain fog" really gets under my skin. I had a milder case after the wild virus, but after the original Omicron, I've been so extremely sick that for the first half of this year I couldn't even move across my bed. Just stayed collapsed on the edge, if that gives you any idea. I've followed all protocols. No idea if that is why I went from a person who couldn't walk to largely healed as of very recently, after a year, but my heart goes out to you ME people, so many, no interest by the NIH or pharma. And yet even now, all that research funding is not being allocated. I have no idea if it was diverted, or is just sitting there in red tape limbo, but our top, most brilliant researchers aren't getting a penny. What we need are some investigative journalists to infiltrate the system and discover the cause. That might actually happen. Usually the Washington Post or New York Times eventually gets to the bottom of things like this. To end on a positive note, at the one year mark my immune system normalized and dramatic progress is happening. My "brain fog," landing me in another city one day when I thought I was driving home, went into sudden remission at four months, first symptom to go. I've been super aggressive, going from doctor to doctor for symptomatic relief, spending maybe 1000 hours scouring research documents, and taken every promising supplement. At first I checked each one for liver impact, then started feeling suicidal, so thought WTF, just take it because your life is at risk in the short term.

[@brianna094]

​@@paulah.9415 Bone tired fatigue? How are your Vitamin D levels? You should get bloodwork done. Doctors suck and we all have to be our own advocates. They aren't trained in nutrition either

[@DJPoundPuppy]

The leg thing. The body breaking down including the mouth. I felt that. I experience that post COVID. People around me don't seem to empathize.

[@_melts]

This was incredibly interesting but I'm horrified you're experiencing it first hand. I feel as though covid has almost faded into the background for many but the fact there are still people living with symptoms like this with very little in the way of moving forward is heartbreaking. Stay strong and please keep sharing your experiences ❤️

[@juditkovacs1205]

At one point you ask who this is for, and to that I would say for me: a long time subscriber, and who does not personally know anyone with long Covid. Videos like this are helpful, because someone affected by this can point out things that I would never think of on my own. And I would always rather know from someone who is affected by something (be it chronic illness, disability or any other topic) than to just live in the world with my own assumptions. Because those can be very wrong, even if they are well intentioned. Basically my goal in life is not to be like the people at the airport who were unwilling to help, or the GP that thinks they know better, etc. Thanks for making these videos, they are useful (if you can say that in this circumstance). And I wish you the best in this situation, and hopefully the recovery process as well.

[@fern5717]

And for the people who are going through similar situations; who need to know they are not alone! Long Covid is such an invisible illness because the people who have it aren't going to work, or school, or really much of anywhere. They're at home. Any visibility is a positive thing, especially in encouraging the medical community to research it more and to prioritize developing treatments. My version of long Covid presents a bit differently, but having videos like these is a MAJOR source of comfort. Thank you.

[@paulah.9415]

I'm so grateful for you. To try to tell someone what this is, it sounds like we are either crazy or seeking attention. I suspect that like me others learn to say very little. And we are hidden away, in bed for months and sometime years in bed. If only the media would clearly describe what this is. That they don't breaks my heart. In the meantime, there is a stigma which we can't overcome.

[@paulah.9415]

May I make a suggestion? There are some people who post frequently here who I know I resonate with. I've shared my contact info and made real friends, most by texting, yet there are others who I talk to on the phone. Most of us are lonely, scared, and many have totally lost hope. Been there. This is not only an invisible disease. It one compounded by stigma, isolation and little hope for a cure in the near future. I find that just listening to another person's story helps both of us.

[@tallykaczynski3257]

Right there with you girl! 62 and it’s been 2 years and 8 months. That first 18 months was he**, getting better very slowly. The worst symptoms have been severe pain and that horrible fatigue that just comes over me suddenly. I can read a page or two now, was an avid reader. Hopefully there’s an end to this soon, for all of us.

[@stevegcq]

Spike protein induced micro clotting and autoimmune disease, particularly after a booster, is real and devastating.

[@Elysian777]

Most of the worst sufferers of LC are from the original virus, pre- vaccine. btw- do you know what viral spike protein is and what it does?@@stevegcq

[@antigony8178]

Thanks for sharing - I'm so sorry to hear about your long Covid. It sounds completely debilitating and I can imagine how difficult everyday life must be. That's great that you got your 4 months salary and that you have emotional, as well as, physical support. I hope your new medication works and that you make a swift recovery.

[@PandaEyes47]

Thank you for making this (and your last) video. It's so brave! I'm almost 3 years into my journey with long covid and unfortunately your path sounds similar to mine. I have more nureological symptoms and no vision problems, but I also have only experienced the paralysis-fatigue only a handful of times. Either way, I'm sorry you have had to experience this awful reality. I agree with your mentality in this video, you try to be as positive as you can cause otherwise life would just be a depressing shithole. The only thing I would say is - let yourself feel the pain and grief too. I didn't for such a long time, pretending I was positive to everyone and myself constantly, and then it all bubbled over and I had a crash because of all of my buried emotions 😅. Sending so much love.

[@tnan123]

That sounds like a really tough situation. I'm really sorry. I admire how positive you sound about it all at times and it sounds like there is some progress with your healthcare team. Really interesting and unique story and I'm hoping it works out. Hope you get to run again!

[@Chareads]

Thank you!

[@siboniso4420]

@@Chareads Get Nattokinase or Fermented Japanese soybean. It will break down the spike protein

[@PS-oc7nw]

As many other people I also could not walk for months after covid. No one exactly knew why. After a few months of severe infection with the worst symptoms ever coming from everywhere in my body I also started after a month of sickness slowly excersizing, simple yoga, stretching, small walks through my apartment daily as much as I could and after a few months I thought the infection was gone and only fatigue was left. I was wrong. After slowly getting back to my normal routine I suddenly lost the ability to walk and leg pain also heaviness from infection started all over. There were days were I could normally walk and most days were I would start walking and suddenly lose all ability to walk standing on the street or shop or whereever I was. This on and off lasted months! It was horrible. Doctors then (beginning of 2021) knew nothing, couldn't help or give answers, no rehabiliation. Long covid was unknown then and doctors would say ot only concerns ICU patients. I ruled out blood clots in my legs every month and other than that rested as much as possible. This symptom can probably occur due to muscle damage from the virus. I started supplementing vitamins and rested after months it stopped however with this virus mutating my biggest fear is that will happen all over again. Thank you for sharing your experience and I sincerly hope all is well for you now.

[@stevegcq]

Excellent comment, except for cause of symptoms. Perhaps consider the presentations of Naomi Wolf.

[@stevegcq]

Use her name and the words, 'Pfizer documents', to get some answers.

[@JenTheEllis1]

I'm so sorry you're going through this. Thankful that you have shared your experiences as hard as they have been. I don't know anyone in my life with long or chronic fatigue and has been very beneficial for me to learn. I'm thankful you have Brian to support you and I hope you continue to get better ❤

[@5000NATE]

You're dealing with post of viral fatigue part of chronic fatigue syndrome. Getting better after 11 months but you're good we're here together thank you.

[@fatemebaghaei1242]

I'm realy sorry for what happened to you and I'm sorry you got covid for the third time. I hope it doesn't make things worse for you and you'll recover faster and faster. I know you are very strong and you'll handle every obstacle. keep us updated about your health and situations. hope you will run again faster than ever.

[@RavenNiffler]

31 years old and so glad I found this video, your symptoms are all so similar to mine!

[@weirdsciencetv4999]

You are describing the woes of an invisible disability. I have one as well, not long covid, but chronic pain. Because I do not look disabled, people laugh off my need for accommodation as well. Also, it was an extreme struggle, not just in daily living, but in having family understand or even acquiring or maintaining disability benefits.

[@Chareads]

I really feel you, having an invisible disability can be so much more isolating, the increased need for self-advocacy and dealing with medical gaslighting is exhausting. I hope your family is on-side now and you get the accomodations you need 🫂

[@weirdsciencetv4999]

@@Chareads thanks for the well wishes! Sadly even after 10 years only my father in law understands, but only after developing episodes of chronic pain. Also, my disability insurer sent private investigators to kick me off disability following the death of my wife in 2019. They knew I lacked familial support and would have to take on more. So they filmed me playing with my kids, used it to kick me off disability, claimed I was a fraud. It doesn’t matter if just playing with my kids for 30 minutes meant I was wrecked and bed ridden for hours afterwards. It took a year to get back. 6 months for an “appeal window”, 6 months to get a hearing. In that time me and my kids had become homeless and were living in the family van for two weeks before my disability benefits were reinstated. They still send PIs, I have to watch over my back constantly now. The thing is, there’s no winning for me. If I do the necessary and take care of my three young kids, then I am a malingerer in the eyes of everyone-just faking to get the “easy life”, live on the dole. If I don’t do the necessary I am a bad father. I would say many people with invisible disabilities face same types of no-win scenarios. Glad you have a supportive, understanding partner through all this. It really makes all the difference.

[@Chareads]

God that is terrible, I'm so sorry you're stuck in that Catch-22, trying to take care of your kids and manage your pain. Insurers can be so cruel. Wishing the best for your family.

[@weirdsciencetv4999]

@@Chareads well thanks, but it’s more just a warning that people with invisible disability are at extremely high risk. That risk can be mitigated quite a bit if you have a supportive network. But 20% of people infected by covid go on to have some level of lasting disability. The government should be warning people to limit the number of times infected by covid. There is no strong correlation with vaccination status, severity of illness or anything else. The biggest risk factor is number of times infected. 20% chance first time, 36% chance second time, 3rd 49%, 4th 59%, 5th 67% and it just goes up from there. I just want to warn others that life will be a constant struggle following a invisible disability and to avoid it all costs. Insurance wont cover treatment, disability pension will be a struggle to acquire and maintain, friends and fam won’t quite understand. Most govts have abandoned any mitigation or protective measures, so I would advise anyone reading this to wear a mask, still take precautions, if only to avoid long covid.

[@mcars100]

@@ChareadsCan you do another update please.

[@little.prince]

Thank you so much for the update, and for staying so strong. I hope you recover, and quick. You got this.

[@Chareads]

Thank you!

[@CoynieReads]

That airport story is horrifying, I’m so so sorry that happened to you! ❤ Wishing all the best for you!!

[@kellyschroeder7437]

Love your books and bookcase 👊. Got Covid end of May 2022. Feel weakness, wobbliness, fatigue, trembles and shakes, sob, brain fog big time, dizzy, klutzy ….. God Bless 💞💙🙏🏻🙏🏻🙏🏻👊😊

[@beatinglongcovid]

Thanks for sharing your story! Wishing you all the best and get better soon.

[@dsandman272]

Brace yourself lady I been going at it 3 years tried everything under the sun nothing works!!! I’ve had times where I feel improved and then I get a common cold or flu and bam back to square one extremely sick

[@KeiraAndGeo]

Thank you so much for sharing your story! wish you all the best x

[@sangathya007]

more power to you...wishing you a speedy recovery :)

[@cecilesurier2977]

Thank you for sharing! I'm 8 months in and we share a lot of the same symptoms. Hope you're doing better or at the very least not worse. Sending you love from France

[@vanmasterflash7153]

That sucks. I believe you! When it happened to me I had panic attacks and extreme anxiety and all the doctors and nurses treated me like a junkie and I don't do any drugs or alcohol. I don't even do caffeine!!!

[@DJPoundPuppy]

Er doctors can be awful that way.

[@pangurban]

Stem cells!! My father has the same symptoms and I started researching a lot, I saw studies on stem cells and asked him to ask his doctor about it. They started doing stem cell treatments on him and the pain and fatigue has diminished!!

[@thorinoakenshield5601]

Long term water fasting at the refeeding stage produce new stem cells… and it’s free!

[@DJPoundPuppy]

Sounds quite expensive!

[@banzaileah]

Wish I could do that 😭

[@detectivewiggles]

The best advice for anyone with LC is to listen to people who have had MECFS for decades. Post-viral illnesses have more in common than not, regardless of the triggering pathogen. As someone who's had MECFS and MCAS for 34 years--my entire life--I am SO TIRED of seeing people who've been sick for 3 years or less being presented as the experts. When I go on Twitter, all I see is the newly-disabled insisting that those of us who have had this stuff for decades can't possibly know what we're talking about. We've been studying for decades what you've been studying for a couple years. It's VITAL that people who are new to being chronically ill understand that CAPITALIST MEDICINE WILL NOT SAVE YOU. Spoiler: You have two SEPARATE immune systems. I bet you never knew that! Medicine doesn't talk about the second one, the innate immune system, because it's so incredibly complex that it reveals just how little capitalist medicine understands the human body. Don't believe capitalist-sponsored medical research, because it's ALL DONE entirely outside of an understanding of the innate immune system. Why does that matter? Because the innate immune system is the most important organ in ALL POST-VIRAL ILLNESS. The IIS is so _incredibly_ complex that it defies research. The basis of scientific research is to isolate ONE variable. But since the IIS literally responds to every single thing you encounter, ingest, or even think, it's ABSOLUTELY IMPOSSIBLE to isolate one variable to study it. You would have to be a literal god to have enough control over people's IIS to isolate one variable, and even then, _no one would agree to participate in the trial_ because you would have to control EVERY TINY DETAIL of people's lives, and they would be miserable. To heal, learn all you can about the IIS. Do everything you can to limit inflammation. Medicine won't help you there. The medical environment itself is inherently counterproductive to studying IIS dysfunction, because the medical environment is chocked full of allergens and inflammatory triggers that further dysregulate the IIS.

[@nomebear]

It was three experiences with anaphylaxis shock that clued me in on the fact that I was dealing with MCAS issues. It wasn't my g.p. who suggested the change in diet, but information gleaned from the Internet on treating MS and/MCAS with diet, supplements, and managing physical activity. Dysfunctional mitochondria, endothelial, terms I'd never heard of before became my focus. For the better part of it, I hover between 93% and a bit higher in recovery, but it's tenuous, not much leeway in diet.

[@janedoe6704]

This is a problem with many psych studies as well. Doctors refuse to acknowledge this.

[@aniket33591]

​@@nomebearhave u tried taking antihistamines?

[@shonaghsoutar5966]

Vaccine damage I would say

[@ebaldwin-charles9804]

Where do I find reliable information on IIS? Can you give some helpful tips on how to cope with autoimmune issues? I have zip all energy to do any research.

[@lauriehussey-lt8gx]

We have the same story! Got Covid exactly when you did both times, symptoms same. 😢 you’re not alone.

[@siboniso4420]

Get Nattokinase, it's made from Japanese Fermented soybean. It will break down the spike protein

[@haiderrahim4371]

charlotte, sending you nothing but love, more power to you.

[@ariannefowler455]

This sounds exactly what my friend is going through. I'm so sorry you've been experiencing this.

[@ChrisDailyReading]

I wish you all the best. I thought it was a very interesting video, you are very clear in telling your story

[@kellyschroeder7437]

Thank you for validating the weakness w walking thing etc. 💞👊

[@paulah.9415]

I am in the same shape you are. Have you thought of getting a small walker with a seat? My legs start shaking, and when the happens, I must sit down immediately or I collapse.

[@nursemain3174]

Char I hope you get better soon 💖💖

[@ankihelgor8491]

Who This is for? Meee!!! Thank you for sharing. I too was getting better after my initial Covid-infection, but then omicron hit me and now I’m worse than before

[@enzolezana6468]

I didn't know you till today that I watched one of your book reviews which I was interested in and was really helpful by the way. So wanted to say thank you and hope you get well very soon ❤️

[@Chareads]

Thank you ❤️

[@robotnic]

It sounds like you’re handling things really well. Sorry to hear it continues to be such a struggle, but it’s heartening to hear you’re getting a good amount of support, advocating for yourself, and seeing specialists. I hope the treatments you have in the pipeline will help.

[@1book1review]

Thanks for sharing and fingers crossed the meds will work.

[@bumblebootwiddletoes5185]

I feel your pain, although I can read and walk (albeit with your same difficulties). Covid should never have entered our bodies... 🤦‍♂️🤦‍♂️🤦‍♂️ I feel like I've aged a decade or two... The fatigue is unbearable. I wish I wasn't single!

[@shivanshna7618]

Sorry to hear i hope you get back up at 100% soon

[@Chareads]

Thank you

[@Chareads]

I've just tested positive again! The disabling cycle continues and I'm terrified what this one will bring

[@adamread2980]

Sorry to hear you've caught it again... take care... thanks for the share... lots of useful information.

[@PandaEyes47]

I'm so sorry :( hope it doesn't irritate your usual symptoms too much

[@paulah.9415]

I am truly sorry. That is absolutely my worst fear. I had LC, but milder after a March 2020 infection. It was the original omicron that disabled me.

[@paulah.9415]

Just checking to see how you are after your recent infection. I truly hope you fared better than me.

[@Chareads]

Thankfully my baseline fatigue levels and pain haven't changed from this one, but I have been having more fatigue episodes. I think overall I'm averaging out at about the same as pre-#3 but it's more erratic throughout the day.

[@bumblebootwiddletoes5185]

Ask your neurologist or GP about vagus nerve stimulation. Look it up - people with long covid are improving with it!

[@Dreamingofthedesert17]

I think we must be around the same age, so it's shocking and sad to hear you talk about it and I can't even imagine what it's like to be living through it. I really hope you can get some semblance of your old self back.

[@Chareads]

Thanks. I'm 29 and it feels crap to be cut down when I feel like I'm on the cusp of a bunch of milestones (like my friends are all getting married and having kids) but I think it would probably feel like that at any age. I'm resolved to get fit and hit those milestones but they might be a few years behind the plan.

[@jerrygao458]

Hi Chareads, sorry to hear about your suffering. I am a long covid patient from New Zealand. I have the very similar symptoms like you, plus GI issues. Tomorrow I will have an appointment with my neurologist, hopefully can get some help. Did you try antihistamine diet before?

[@Chareads]

In the summer I used antihistamines for hay fever and didn't see any improvement in my fatigue but I hear they help a lot of people. Best of luck for your neurology appointment!

[@fj103]

All the bests to you

[@scottkingsbury6166]

Hi Charlotte, Sounds like you have been through so much. It is now possible to conduct a live interview with the brain in real time to eradicate viral infections in 24-48 hours. The brain is fearless, forthright and precise at killing viral, bacterial and parasitic infections, doing so at the speed of light.

[@MadmanGoneMad2012]

Just happy seeing you again. Slick thumbnail.

[@Chareads]

☺️

[@soulpowerful]

I’m so sorry you’ve been suffering. Have they tested you for POTS?

[@jennieguinevere]

Sending big big love 💜 as an ME/CFS patient with POTS/inappropriate sinus tachycardia etc, I take propranolol which is a LIFESAVER for the heart rate nonsense and fatigue stemming from that, so they may try you on that. I also really struggled with sertraline and didn’t feel any benefit, my best SSRI was fluoxetine but I’m now on a combo of amitriptyline and citalopram which is levelling me out almost perfectly. If you run out of SSRIs they can also try you on an SNRI, probably duloxetine, which I’ve heard a lot of people have had benefit from. Hoping there’s some improvements soon and you can be as well as possible ✨

[@Chareads]

Thank you! This is super useful information. Do you find that the propranolol works immediately or do you need to build it up for you to see the effects? I have some left over from public speaking and might try it out for a bit, I've heard other good things about it helping with fatigue

[@jennieguinevere]

@@Chareads I think the propranolol works immediately for the acute stuff, so you'll likely see a decrease in heart rate/POTS symptoms right away, but usually it takes a higher dose longer term to get the real consistent fatigue benefits. I'm on 40mg at the minute so definitely don't worry if the starting dose of like 10mg isn't having much effect at the start

[@Bibi-19]

Watching you now and ALARM BELLS went off as soon as you mentioned Magnets in your fingers. OMG the first thing you must do is get them out n healed ASAP😘 I’ve got similar symptoms since Covid Pneumonia & hospitalised in January / February. Huge difficulty walking fatigue, consequently I’m growing roots on my sofa, for a year now. Not written or reached out to clubs FB on line stuff before. My life is 100% changed, like yours. I’m very creative and like you grateful & thankful for ALL the things I CAN do. So much more to say and here’s my email if you need to reach out. I’ll then also tell you of my story. KYB and May the Force be with us 🙏🏼😘👍🏼🤞🏼BiBi x

[@carlasampson6129]

Thank you.

[@lostwanderingprince]

At the beginning of the year I was reading a good number of books for myself digging deep into classic literature (I just started reading for about 2yrs now), then I had to stop because of my mental state. It feels like I'm not going to read the right thing and something bad is going to happen even tho I try that my action will not lead me to this or even the other outside factors, I can't totally trust my senses and myself now. But in the end of October, I can't resist and I resume even tho I'm not in the right mind. Now I'm paying the price and I'm reading while being paranoid. Reading thinking I'm reading unofficially and something bad is going to happen. So I just wish right now that my fears are wrong and I'm going to be okay. I wish we are all going to do what we love while being healthy as possible mentally and physically.

[@Chareads]

Gosh that sounds really difficult. I'd urge you to talk to a doctor about this and see if they can help.

[@kellyschroeder7437]

Like the “no rhyme or reason” - that’s my experience w symptoms in LC 💞🙏🏻🙏🏻🙏🏻💞👊

[@traiandanciu8139]

May be acetylcysteine can decrease blood viscousity?

[@GoferGirl]

Long Covid and Covid Vaccine Injuries are so similar! The spike protein is cardiotoxic. I'm curious if you've been vaxxed. Might be wise to avoid boosters. So terribly sorry to hear you're going through this and praying for more research and treatments.

[@djquick]

How are you now?

[@montanagal6958]

I couldn't walk after the flu shot and was told it was Covid...high dose alpha omega fish oil caps helped, think it was brain inflammation from something in the shot...I was laughed at too... Best wishes!

[@gwilkins4617]

Chronic fatigue syndrome been around for decades..

[@aprilmay11111]

Please look into CIRS syndrome..I've had similar issues and it was all caused by this chronic inflammation syndrome caused by biotoxins in the body. mine got extremely worse after getting Covid and I'm still having symptoms but Ive just read that there is a protol for it to help get back to normal. Mine was caused by living in a water damaged house with mold in the bedroom. Best wishes to getting better!! 🤞✨this has only been discovered since 1996 so it's still unknown in many places of the world. I'm still in the works of finding a CIRS practitioner in my area.

[@Bloodyninenightangel]

I have lyme and was living in a basement that would flood. Always searching how to get to be feeling as good as I can now. Life is short and complicated -simple test of going into a really old/moldy building really opens your eyes

[@Dedaskitchen]

There are some glasses you can get for the visually impaired. They actually “read aloud “ whatever print you are looking at. Perhaps those would help? I think there is a camera attached to them.

[@LTPottenger]

Some 72-96 h fasts can help a great deal. Some benefits of doing occasional extended fasting: High blood pressure is lowered to normal levels very quickly while fasting. Fasting restores NAD+ to healthy levels. Vitamin D plasma levels are increased as fasting improves metabolic health, and vitamin D in turn increases autophagy. Fasting stimulates phagocytosis, the ingestion of bacteria, plaques and viruses by the immune system. It will also remove any 'foreign material' like spikes that are not supposed to be there. Whether natural or unnatural in origin.. Fibrosis/scarring is reversed over time. Fasting increases nitric oxide release. Blood clotting is reduced and blood clots and arterial plaque are reabsorbed into the body. Reflexes and short term memory are increased. Fasts from 36-96 h increase metabolic rate due to norepinephrine release! After 72 hours or more fasted, your body recycles up to 1/3 of all immune bodies, rejuvenating your entire immune system. This helps prevent the onset of new autoimmune conditions, which develop through a leaky gut and damaged immune system. Fasting can help with MS, Depression, BPD, Autism and seizures. Thymus is regenerated, which suppresses aging and renews the immune system. The thymus also plays a vital role in fighting cancer. Blood sugar and insulin are lowered when fasting, allowing white blood cells to move more freely throughout the body and do their job. Weight loss from daily caloric restriction has 1/4 to 1/3 of the weight lost as lean tissue while many studies show fat loss from 36 h fasts without losing any lean tissue! The obese will lose extra tissue like loose skin while fasting, but the skinny or frail will have increased growth hormone release than the obese, which helps to make more lean tissue and reduce frailness. The hunger hormone ghrelin also lowers with extended fasting and rises from dieting. When you move out of MTOR your body shuts down the building blocks of the cell required for viruses to replicate. What breaks a fast? Anything with protein or carbohydrates in it will break a fast. Most teas and herbs are OK. Most supplements and meds will either break ketosis directly or contain a filler that will. Many meds are dangerous to take while fasting. Does fasting lower testosterone? No, it raises it when the fast is broken by increasing lutenizing hormone. Fasting also increases insulin sensitivity, which helps with muscle building. Fasts of 36-96 will not affect short term female fertility or affect menstrual cycle. They also may increase long term fertility, especially in women with PCOS. Fasting reduces pain and anxiety by stimulating the endocannabinoid system in a similar way to CBD oil. Fasting very quickly reduces leptin resistance, which impairs immune function. One day of fasting can cut your leptin levels in half and gets your immune system working properly again! Stomach acid is reduced over time while fasting and can allow for the healing of treatment resistant ulcers. Some patients may need continued acid reduction medication while fasting. Does the body preferentially prefer glucose as a fuel? No. Except for brief periods of very intense exercise, your body mainly burns fats in the form of free fatty acids. Your brain also prefers to burn ketones at a rate of around 2.5 to 1 when they are available in equal quantity to glucose. Fasting stimulates the AMPK complex and activates autophagy. Autophagy (literally self eating) will cause cells to recycle foreign matter such as viruses and kill cancerous and senescent cells Lowering insulin via fasting virtually eliminates chronic inflammation in the body. It increases mitochondrial function and repairs mitichondrial DNA, leading to improved ATP production and oxygen efficiency. Increased mitochondrial function also has the added benefit of increasing your metabolism, fighting infection and cancer prevention! Fasting releases BDNF and NGF in the blood which stimulates new nerve and brain cell growth. This can help a great deal with diseases like MS, peripheral neuropathy and Alzheimers. When not in ketosis, the brain can only burn carbohydrate, which produces a great deal of damaging ROS the brain has to deal with. Fasting also increases telomere length, negating some of the effects of aging at a cellular level. When you fast, this stimulates apoptosis in senescent or genetically damaged cells, destroying them. Senescent cells are responsible for many of the effects of aging and are a root cause of the development of cancer. A fasting mimicking diet for 3-5 days in a row also provides many of the same benefits as water fasting. Exogenous ketones can aid with fasting, making it easier in healthy people and allowing some people with specific issues to fast in spite of them without worrying as much about hypoglycemia. Children, pregnant or nursing women should not fast for periods longer than 16 hours. People with pancreatic tumors or certain forms of hypoglycemia generally cannot fast at all. Type 1 diabetics can also fast but it is more complicated and should be approached with caution as it could lead to ketoacidosis. If you experience extreme symptoms of some kind, especially dizziness or tremors, then simply break the fast and seek advice. Resources: www.ncbi.nlm.nih.gov/pmc/articles/PMC5783752/ www.ncbi.nlm.nih.gov/pmc/articles/PMC6141719/ www.ncbi.nlm.nih.gov/pmc/articles/PMC7607739/ www.ncbi.nlm.nih.gov/pmc/articles/PMC3017674/ pubmed.ncbi.nlm.nih.gov/23408502/ pubmed.ncbi.nlm.nih.gov/20921964/ www.sciencedirect.com/science/article/pii/S0005272806000223 pubmed.ncbi.nlm.nih.gov/6859089/ www.ncbi.nlm.nih.gov/pubmed/10232622 www.clinicaltrials.gov/ct2/show/NCT04375657 pubmed.ncbi.nlm.nih.gov/31877297/ n.neurology.org/content/88/16_Supplement/P3.090 pubmed.ncbi.nlm.nih.gov/31890243/ pubmed.ncbi.nlm.nih.gov/2518860/ pubmed.ncbi.nlm.nih.gov/29727683/ www.ncbi.nlm.nih.gov/pmc/articles/PMC8470960/ pubmed.ncbi.nlm.nih.gov/25909219/ www.cell.com/molecular-cell/fulltext/S1097-2765(18)30605-1?_returnURL=https%3A%2F%2Flinkinghub.elsevier.com%2Fretrieve%2Fpii%2FS1097276518306051%3Fshowall%3Dtrue pubmed.ncbi.nlm.nih.gov/28235195/ www.ncbi.nlm.nih.gov/pmc/articles/PMC2815756/ www.nia.nih.gov/news/research-intermittent-fasting-shows-health-benefits medicalxpress.com/news/2022-10-treatment-pulmonary-fibrosis-focus-telomeres.html www.ncbi.nlm.nih.gov/pubmed/10859646 academic.oup.com/ajcn/article/81/1/69/4607679 www.amjmedsci.org/article/S0002-9629%2815%2900027-0/fulltext www.ncbi.nlm.nih.gov/pubmed/24905167 www.health.harvard.edu/heart-health/abundance-of-fructose-not-good-for-the-liver-heart www.ncbi.nlm.nih.gov/pmc/articles/PMC7093158/ clinical.diabetesjournals.org/content/36/3/217 www.ncbi.nlm.nih.gov/pubmed/23876457 www.ncbi.nlm.nih.gov/pmc/articles/PMC6407435/ pubmed.ncbi.nlm.nih.gov/15522942/ europepmc.org/article/MED/22402737?javascript_support=no onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2265.2005.02288.x www.nejm.org/doi/full/10.1056/NEJMoa012908 www.collective-evolution.com/2017/05/16/study-shows-how-fasting-for-3-days-can-regenerate-your-entire-immune-system/ pubmed.ncbi.nlm.nih.gov/7714088/ www.cell.com/cell/fulltext/S0092-8674(19)30849-9 pubmed.ncbi.nlm.nih.gov/27569118/ www.sciencedirect.com/science/article/pii/S1931312809002832 www.ncbi.nlm.nih.gov/pmc/articles/PMC1413655/ www.ncbi.nlm.nih.gov/pmc/articles/PMC5783752/ www.arcjournals.org/pdfs/ijrsb/v3-i11/7.pdf www.ncbi.nlm.nih.gov/pubmed/25686106 pubmed.ncbi.nlm.nih.gov/21410865/ www.ncbi.nlm.nih.gov/gene/25712 pubmed.ncbi.nlm.nih.gov/23707514/ faseb.onlinelibrary.wiley.com/doi/abs/10.1096/fasebj.2019.33.1_supplement.819.10 www.biorxiv.org/node/93305.full www.ncbi.nlm.nih.gov/pmc/articles/PMC5895342/ www.ncbi.nlm.nih.gov/pmc/articles/PMC6526871/ www.cell.com/cell-metabolism/abstract/S1550-4131(15)00224-7 repository.upenn.edu/cgi/viewcontent.cgi?article=1537&context=edissertations www.ncbi.nlm.nih.gov/pmc/articles/PMC1779438/ www.nejm.org/doi/full/10.1056/NEJMc2001176 pubmed.ncbi.nlm.nih.gov/20102774/ This list compiled over years of research by the user known as Pottenger's Human on youtube but feel free to copy and paste this anywhere you like, no accreditation needed! My channel will always contain an updated version of this list of fasting benefits on the community tab. I also have playlists on fasting and health topics.

[@dickriggles942]

I'm not even sure if what I have is long covid, but I've gotten COVID three times, never tested positive, but have had the same awful reactions and recovery periods. A week or two of rest honestly helps me recover the most. If I was a zero percent around Thanksgiving, motion sickness, frequent urination, fatigue, a week and a half later, I was at about 50-60% recovered. A week later, 75-85%. I still feel like garbage and can't really work, but it's better. I can, but it's going to be brutal. The time span of infection to recovery has been like 2 months to as long as 6 months one time. I am in education and had a couple sick kids in my classes. They were sick the entire time I had them, 2-3 months. I'm not kidding. Like usually, you see a kid sick a few days and then they're good. August, they were wearing masks, sniffling, getting tissues. OCTOBER, doing the SAME DAMN THING!!! November, pretty sure they were still bad because they were cleaning out my tissues One of them got me sick to boot. None of the kids around her really got what she got. I don't know, some people just are susceptible. I do understand what other people are dealing with and it's awful. My dad probably almost died from it. Looking at the couple months he was having serious health problems, a lot is adding up when it comes to my own struggles. Best of luck to you.

[@beverly2247]

Jesús is the Answer! Literally. Read ALL Jesus' Words in "red" print Bible (it's really blue..). Have you considered keeping Hot Herbal Tea brewing all day in your classroom? Drink a cup or so every hour. Chamomile Dandelion Lemon Mints are all Good. Also, cut onions in half. Place them around your house (bedroom, living room) and in your classroom. If they turn black, replace. They are absorbing bacteria, pathogens. Old Farmers back in the day did this to keep from catching flu. God truly Bless you!

[@patrickcollins4462]

Is that "long covid" or a vaccine injury? Would it be wise to measure IgG4 levels?

[@scops2169]

A WALKING STICK IS SUCH A GOOD IDEA!!! I’ve just gone and bought one. Going travelling to Paris soon with a long term autoimmune condition. Hoping a stick will be helpful. Thanks for the tip!!!

[@Chareads]

I'm so glad you found that helpful!! It takes a couple of days to get used to walking with, my tips are to not put too much pressure on it (my hands really hurt when I started because I put a lot of weight through my arms) and swap arms every now and then if you can. You'll take Paris by storm!

[@scops2169]

@@Chareads thanks for the tips! Genuinely so helpful. X

[@aprildecarlo1505]

Felt so weird about trying the walking stick but PT insisted & wow what a difference. But some days I can barely move even with the assistance.

[@usernametentwo]

UPDATE!! PLS!!

[@sihamwh]

Clicked on your channel hopping you’d have a 2023 best of and was saddened to see this. Didnt know about covid leeving people with this type of long term effect. Hope you are doing better now. Ps: People with a disability have to sit at the back of the plan not to block and delay disembarkation.

[@gedcaeneus4628]

I’m sorry you’re suffering. I believe that is real. I do not believe your explanation. Not because I think you’re lying but bc you don’t seem to know what you’re talking about. But that doesn’t mean you don’t deserve the best care… whatever that is. I don’t agree with you about … much… but I genuinely wish you well and if it’s not an offense I offer a prayer.

[@justindankert7725]

What is your alternative explanation?

[@emergentform1188]

How many boosters did you have? That might be the answer to the riddle of "long covid". Spike protein induced micro clotting and autoimmune disease is real and devastating.

[@montanagal6958]

no one wants to hear this but these shots are making folks sick (hospital RN)

[@emergentform1188]

@@montanagal6958 Those who were tricked into taking the experimental injections falsely labeled "vaccines" are having a tough time accepting reality. Thank you for your comment!

[@Turtledove2009]

There are millions of people with Long Covid who got sick before vaccines were available. Not to say that the vaccines weren't damaging for some but FAR MORE got Long Covid from the actual disease.

[@ebaldwin-charles9804]

Which long Covid FB group are you a member of? Which are any good?

[@RoninClips333]

I hope you are doing well ❤ Want to see another video review 📚

[@NoirL.A.]

WHAT ZODIAC SIGN ARE YOU?

[@privatethoughts3798]

I have noticed massive improvements only when I have a cold and temperature. I don't take pills but let my body shake until it passes. Has anyone else noticed improvements after the temperature?

[@beverly2247]

Prayer, Read Gospel Words of Jesus, Use ACV, use lemon and baking soda, Meditate, Rest. Just lay down and rest. Sleep even if it's only 1 or 2 hours at a time. Strive to only think Positive thoughts. Anything negative, including other people's negativity excuse yourself and move away from them. Literally, leave the phones & tv and computer off for 3 days and 18 feet away from your body and eyes brain. A faraday cage or oven or microwave oven or wrap in aluminum foil. Use Emergency foil (mylar) blankets when in bed. Lighting from outdoors at night also is an issue. Breathe. Eat lots of carrots, preferably put cooked carrots in blender and drink as a juice or eat as a soup. Military pilots used to do this to increase blood oxygen. Works! God. BLess you!

[@gloh5422]

When you have a temp it is the body trying to clean out. Temp is only bad if too high and should be monitored. Fasting will help too. Stay hydrated.

[@tripurasundari7749]

Thanks for sharing. I just rediscovered adaptogens, intelligent plants, they help you the way you need it. Ashvaganda is one of them. They are so soft, one can't do anything wrong with them. I also had the idea with a walking stick and it feels so good to know that it's there to help me.

[@kellyschroeder7437]

So hard to ask for help

[@pc24681]

I have been very blessed and fortunate not to never get Covid because I don’t be exposed by too many people 🙏🏽

[@ciuffoarancione8929]

Did you get shot before covid?

[@DJMetzler337]

Did you have an MRI done? I’m sorry if you included that. I suffer from brain fog so I miss certain things.

[@Chareads]

I haven't yet - my neurologist wants me to have one but I have metal in my body which is complicating things, I need to have that taken out before they will allow me to have the MRI.

[@chrisplowman]

You mention dark mode being easier for you to read. Hopefully your doctor has already suggested this but there are lots of coloured overlays you can put over monitors and books that help with various forms of visual stress. My partner is a teacher and uses them for kids with all types of issues.

[@Chareads]

Oh that's a great idea! I hadn't thought of that. I guess ADHD aids would probably help me, I'll look into it. Thank you!

[@aprildecarlo1505]

Helps me

[@seawanderer8371]

Did you take the jabs that were supposed to protect you?

[@siboniso4420]

@Chareads Get Nattokinase or Fermented Japanese soybean 🙏🏾🙏🏾

[@irineojason]

I can relate with the walking. It’s scary.

[@irineojason]

Have you tried anti inflammatory or steroids!

[@EvangelicalCypriot]

Have you completed a organic acids test through a naturopath?

[@Chareads]

No I haven't. I haven't seen any studies or evidence that nutrition/ supplements help long COVID recovery so I'm sticking with what the doctors and clinics say is best.

[@user-gt2pn4vt4j]

@@Chareads feel free to completely ignore this advice from a complete stranger but I have found Ginkgo Biloba to help me an awful lot.

[@ebaldwin-charles9804]

Hi. How have you gone about getting people to recognise you have a problem. Because I don’t feel like anyone believes me and although I can walk I am not me and I go from feeling ok to not being able to function… where do I start getting proper help??

[@JoanneWhitlock]

That’s interesting re the meds that were suggested and that they are normally used for epilepsy. Dr Chris Palmer is talking a lot lately re Keto diet and that being created for epilepsy 100 years ago and the doctors I follow online re CFS all say keto or paleo (ie low carb). I’ve been ill - off work Ill - for 14 months now. Got PIP recently although not as high as you are hoping for, and this was after an appeal. Got blue badge though and that has helped. Am attempting to set up my own KZbin channel and have a system in place re work that is streamlined. Not yet figured that out!

[@indigopisces]

I’m sorry to hear this! Wondering, did you take the vax?

[@bladesofmen]

You should get a 4d scan and see what it's done to your lungs

[@ImaWitness2]

Have anyone of you all ever taken the shots prior to contracting covid?

[@LoveJadeyAlwayz]

Nope. Got covid before vaccines were offered.

[@DJPoundPuppy]

My friend is triple vaxxed before COVID but still has symptoms of long COVID

[@LupiciaCooper]

One of my best friends did , she contracted COVID for the second time after her booster and this time was way worse than her first time before been vaxxed , she ended up hospitalized for weeks to a point doctors thought she wasn’t going to make it.

[@jamesreyer1174]

Keep it up. It's hard but we have help fom are main people and friends use your kain for balances if you can .sorry and hope you get better. Be strong.and be happy.😂❤

[@ElisabettaAgostini]

Hey, I know it sounds crazy but it may actually be PTSD! I had a different problem but I couldn’t free myself of it until it became enormous. I couldn’t eat with my partner or friends. I could t ho out with my friends, I couldn’t change my routine, taking transportation, going for pic nics or in many other places. I couldn’t even stand for long periods of time. And then I was advised to do some work with a psychologist and the latest thing was anti depressant for anxiety. They made me feel so much worse and scared that I was taking anti depressant. After 5 days I stopped taking them because my anxiety rose up to the infinite level and I phoned my mum (in my home country) and I was finally honest and told her how I’ve been feeling for the past 2 years. She made me feel so much better as she know me and she said to let go. To act like I’m healthy and healed because I am and it’s only fears without base and I’m causing myself to be sick all the time. Well, she and the scare from the anti depressant finally made me get back my fighting spirit and from the day after I was a new person. Totally healed and happy! Going out for walks, enjoy all the things that I usually cannot do, going out my house and just be really happy as I was before. It’s really most on our mind to not let things happen and to fight them. It does a lot. I started accepting and resigning that shameful things would happen in some instances and as soon as it would happen once I would make it happen all the times afterwards. Luckily I found my spirit back. ❤ hope you find yours and fight the fact that you’ll feel tired. Just don’t think about it and say to yourself that you’re back to normal, like you were. And really believe it. If you get panicky or feel that you’re about to fall on the same patterns you can use BALANCE which is an amazing meditation app that saved my life. Whenever I’m getting stressed I pop a meditation and I feel totally restored and confident. It’s my lifesaver and the best thing that my psychologist gave me. Now of course I don’t need meds or therapy because since I told myself that I’m healed I couldn’t act any different than an healthy person would :)

[@jaynebailey]

You do not mention if you had the vac it's important to know

[@jpperth3507]

I think this book might help. Just try...seriously try to read, Andre Schwarz-Bart " The Last of the Just ". I feel like you may find a strength in reading it. Let me know...

[@jenniferw1595]

How are you doing now?

[@Chareads]

About the same to be honest. Up and down between days, but today my legs couldn't support the weight of my body at all 😔 I like to think I'm slowly improving, but who knows

[@sunnyromano6862]

Have you looked into brain retraining? I am doing DNRS and they have had a lot of success with long covid. There are a lot of videos on KZbin of people recovering from long covid using various methods of brain retraining.

[@Chareads]

Since my cognitive issues stem from overstimulation rather than underperformance, my neurologist said that there are no exercises I can do to help because my brain is already overdoing it, if that makes sense. Glad it's helping you though!

[@I_am_Spartacus]

Just found your story,,,, and it appears its been a while since you've uploaded, so I hope you're well.. I'm coming out of my LC, but I do have similar neuro issues to you.. I've just been referred to a neurologist finally after begging to see one for the last 6mths....what I can tell you about my 14mth journey is this... LC highly dysregulates your autonomic systems and I believe its through viral persistence. Covid was engineered to attack the ACE2 receptors in the body, and these are abundant in 3 areas... your lungs, brainstem and your gut... they are also found in most organs but not in huge amounts... the neuro symptoms we are experiencing I believe are down to brainstem dysregulation from a low grade infection. Women seem to be affected by LC more than men, so I'd be curious to know if women had more ACE2 receptors then men... but in my case, all the weird crazy stuff is correcting itself and disappearing. I hope you're better soon, keep the faith and rest. If anything, adding fermented foods by the bucket load into my diet really changed everything for me....also look at Thiamine and Niacin. Good luck!

[@stevegcq]

Excellent comment, except for cause of symptoms. Perhaps consider the presentations of

[@stevegcq]

Ed Dowd. His data makes conclusions irrefutable.

[@Turtledove2009]

Covid was not engineered.

[@usernametentwo]

engineered xD

[@kp968]

Try ALCAR - acetyl-carnitine and CoQ10

[@jaynebailey]

You laugh through this I am so angry because of this you should stop going out rest girl rest

[@IngridRichter-uv1dw]

How are you doing now? Please post your art! I’m a reader/artist/teacher in need of inspiration. Please be well 🤍

[@danielasuncion9991]

Wow. That's alarming. Perhaps, you should buy your own wheelchair, when in places like an airport or busy public place. Better to have your own. Also, there are special chairs made for use in bathtub, so that you can sit while enjoying the soothing, hot shower. Such a seat is sold in pharmacies that sell devices for home use.

[@m.k.johnson2752]

This sounds like a gazing seizure

[@rudyiraheta80]

upload 13 months

[@tallykaczynski3257]

Also, I’m getting a cane! If you can do it, I can do it! 😊

[@sunnymagnuson1809]

I think you were misdiagnosed