#124

[@kfulcraft]

This is so encouraging and mind blowing…. And a Christian man. ❤ I feel that only someone with Parkinsons can truly understand the daily challenges and that if even one symptom can be quieted for a moment the relief is huge.

[@americasblessing4166]

I agree . . . If even one!

[@TheSmithsons]

Wow the contrast in Carl’s speech etc is amazing, and all the other benefits

[@nosilverbullet4pd998]

Very impressive Carl, good luck with getting produced and thanks

[@tracygrotefend6362]

I can't help but crying with joy. My partner has been diagnosed with PD. I see hope watching your videos.

[@glennastrickler102]

Please make available ASAP...God bless you Mr. Beech. Thank you Brian and Jessica for your wonderful podcast, helping all patients and caregivers.❤❤❤❤❤ Glenna

[@KSUmcdonald]

Thank you God for this Man and his purpose. Can't wait to try it out!!!!!!!

[@kansasgrandmasstorytime7958]

Just a fraction..I have trouble with shaking, talking, etc.

[@americasblessing4166]

Only God’s spirit within could have ever done this great service to suffering humanity!

[@Cailus3542]

Yowzer. When Carl started explaining the speech problem, struggling to say more than a syllable, I was gobsmacked. That is precisely what has happened to me over the past few months. I thought that was a psychiatric thing isolated to me, not an actual Parkinsonian symptom. French is my second language, which doesn't help matters, but...wow. Hearing another person describe an identical symptom to my own experience...it feels amazing. Validating, even. Beyond that, it does sound psychosomatic, so I absolutely respect Carl for acknowledging that it might be a placebo effect. I fervently hope not, of course. I'm 32, with severe cervical dystonia (along with other fun symptoms), so I have a lifetime of this to get through, and if this actually works, it would be incredible. I'm seeing a specialist in January who will (hopefully) finally diagnose me. After three hospital stays, MRI's, angioscanners, lumbar punctures, genetic testing and every other test that the neurologists have thrown at me, I'm very much ready to move on. My current treatment plan is just about enough, with an apomorphine pump keeping me on inbetween the times when I need to take the other stuff, but it's not the most stylish accessory. I'll be sure to mention Carl's work to the neurologist when I see her!

[@lisaclyburn1501]

God bless you! I was told I need to start thinking about DBS and this discovery brought me to tears today. Thank you for sharing and giving me hope as a young onset Parky ❤❤❤

[@doriscorr334]

26:55 This is unbelievable. Fantastic. I want one. Hope this watch will be soon on the market. I hope the Pharma Industry will not like this. Greeting from Germany

[@tan5846]

You mean you Expect that ‘the big pharma industry will not like this’. I agree with you, and Carl is aware of this, too, as he alluded to during this interview. For this reason I doubly admire this man. Let’s stand together on making this work for the benefit of all. And Mrs. Beech deserves a pair of new jeans!

[@valeriesilvester8603]

I hope this is real and not a dream, I’m crying just thinking about the potential. Thank you so, so much❤️

[@SallyHanssen]

This is amazing! As a Parkinsons patient who has problems with voice and tremor I can't begin to tell you the hope this brings. Happy tears!

[@neilmeehan1114]

It amazing 😂

[@americasblessing4166]

Effective communication is what brightens one’s day. I believe it’s higher on the list than almost anything else.

[@kevinayres9902]

I am really looking forward to getting the device. I believe in the interruption therapy. At night when I lay down on my bed, my legs ache and there is a buzzing like electricity flowing down my legs. I focus on trying to wiggle my ears and the sensations become very muted and go away fairly quickly. Like in a way the heart beat bear we kept in the crib with both our children. Thanks for presenting this idea and podcasting it.

[@AnaAmaya-c7i]

This is an amazing innovation. As a Speech and Language Therapist I am very excited to share with my clients... thank you.

[@thesecretlifeofparkinsons]

Thanks for listening!

[@ramanayak6538]

You have stumbled upon something extraordinary! Mind blowing!! This gives hope to PD patients everywhere.. thank you so very much. Can't wait to try it.

[@Rbeeline]

The Beech Band will be a game changer on so many levels. Great interview! (Pass it on!)

[@malcolmhiltz94]

Great interview, you two! (& excellent work behind the camera, Steve & Melissa!). This is incredibly awesome! I loved seeing the shocked looks while Carl was demonstrating the effectiveness of this product!!

[@chrisbishop4302]

As a now retired professional drummer with Parkinson’s, Drummers have been using the pulse watches as metronomes(eg google Soundbrenner) for years. Love the show by the way. It has been so helpful to me since diagnosed four year ago.

[@markjohnsondrummer3144]

Chris, were you forced to quit drumming due to Parkinson’s symptoms worsening over time?

[@chrisbishop4302]

@@markjohnsondrummer3144 Yes Mark.

[@thesecretlifeofparkinsons]

Thanks!

[@beechband]

We experimented with them in development but we found the style and approach of the resonance and vibration could be refined to be more effective at a very specific hz

[@drharibains]

Congratulations Carl on your innovatory discovery. It shows how much we, as a community, can achieve when working together. If we leave all the work to medics and scientists, we get Levodopa after 200 years. By the way, I am a physician based not too far away in Derby. I too have lost count of the number of times I have been advised to speak slow or not at all. Keep up the good work Jessica and Brian.

[@beechband]

I’m based very near you in Chesterfield

[@drharibains]

@@beechband Yes its a pleasant Derbyshire town. Our football team is more famous . As you go into the next phase of development, please let me know if I can help in any way. Cheers, Hari😉

[@thesecretlifeofparkinsons]

Thanks for tuning in!

[@JeanCattoi]

Amazing discovery! I can’t wait to try it!

[@alexcussons8468]

Keep going , Carl . The world needs to listen to you . Xx

[@VaruniLekamge]

Such great news for us PD patients who feel anxious about what the future holds for us . May God bless your wonderful work and the marketing of this wonderful device ! Please let us know when it is being marketed on line for PD patients outside the UK and the USA

[@RunningWithParkinsons]

I just ran the New York marathon. This is amazing! Imagine instead of upping dosage of meds, having the body not taking on more medication. To have this device pick up and help just a bit. Sign me up! You could go one step further and put it in clothing. Just like the Whoop device.

[@PeachyNanaUK]

I’ve never cried so much at a KZbin video before. Beechy is just an amazing man. He should be recognised in some way. MBE or whatever. But I know that he won’t want this although he’ll be grateful. Sent to this world to help.

[@americasblessing4166]

I cried a lot. I cry again each time I watch 11-year-old Megan see and hear her daddy speak clearly for the first time in her young life. There are no words to express the joy this young girl felt. She was moved to tears of joy …. Amazement!

[@Justbekind-o7u]

I'm in South Africa and so extremely excited 😢🎉

[@kathyrosecrans2738]

Currently watching and you’re talking about tapping to go to sleep…. Lightbulb!!!! Isn’t this what we do when we pat a baby to sleep or pat a child or other person to comfort them in times of distress? We’ve done tapping (patting) for ages for the express means as a way to comfort! We pat/tap because it works!!

[@thesecretlifeofparkinsons]

I honestly never thought if it that way!!! Oh my goodness! What a great way to explain it! I did that all the time with my babies.

[@oldguycanada7734]

Wow! Impressive, can't wait for this. Luckily won't have to wait long as he's also weeks away from launching an app for smart watches! Great show, found your channel a few weeks back, Brian's dead pan stare makes me smile.

[@danpaulson6734]

Unreal! Totally blows my mind!

[@suregrip8853]

Great video, can't wait to try one. There is hope out there. Thanks

[@paulaloegering447]

This would be so awesome! I want one!

[@KSUmcdonald]

What???!!!!!!! This looks Amazing and total game changer!!!!!!!!!!!!!!

[@colmar9493]

I am a retired SLP whose husband has PD. I am very interested in this device and know that there are new vibration devices being used for gait freezing that are very successful. Fascinating how it not only improves fluency but also vocal intensity and articulation. You mentioned how it helped someone with autonomic tachycardia and high BP. My husband has very low BP and bradycardia (fluctuating) so it would be interesting to see if this might help even it out (in addition to the medications he already takes for his PD and low BP). I would love to see Mr Beech provide a CONTINUOUS speech sample while turning the device on and off. Thank you for the fascinating broadcast and congratulations on what appears to be a very helpful device, at least for some people!

[@wowbitz]

Thank you so much for sharing. This is giving hope of a better life to so many people with PD and so much more.... Thank you thank you thank you. 🙏🏼❤️

[@SandraLevene]

How do u lovely people do it. I think it is a wonderful devise .good luck to all of you.l have parkinson in my feet l havea tremor 24 hours a day..l always fall backwards so l cannot wait for it comeout❤

[@brianschlottman9681]

Fantastic interview and an inspiring guest.

[@richardbeere8323]

Great episode I can't wait to try it.

[@PLSRubyforestStudio]

This news is awesome! I have the typical hand tremor, but the thing that is very hard to deal with is clenching, curling dystonia symptoms in my left foot. Have done one Botox injection treatment recently and that did not seem to work on the first session. Fortunately, the dystonia and tremor are dopamine responsive so there is some relief. I have tried off and on using red light therapy, and also a small percussive vibrator on my foot during these episodes. The vibrations seemed to be more helpful to disrupt the signaling. This led me to wondering about specific sound frequencies (Michael Tyrrell--Wholetones follower) or if a sound/tapping method like this device offers would be more on target. It [sounds] very promising! Sadly, I am not eligible for DBS, but one day I would love to turn on a device like this to stop breakout tremors/dystonia in their tracks.

[@MumtazKhan-zq5wr]

Bless you It’s the vibration Cats purring is very healing too My cat choose to stay with people who need her . Who are not feeling well and purr constantly on them. She knows who needs her . She would sit on their lap or chest or hip sometimes head purring. She would sleep with them then move on to other person who needs her. Sometimes she is not with anyone and enjoys the window maybe because nobody needs her at that time . Last two days she was literally on my son’s lap when he was studying, he has autoimmune and was stressed with MOCKS It’s just amazing !!! How can I buy one in the U.K.?

[@juliet-m31]

I just sent this to 4 fellow pwp. Thank you!❤❤❤

[@StaverMarilyn]

I want! Yay! What a Blessing!

[@suemorrison5423]

Amen this is a blessing. ❤

[@suemorrison5423]

I need to add something to what I said about this being a blessing. I was diagnosed a year ago but I know I have had it for years. When I got on to the dopamine it seems like a lot of things went wrong I started shaking more I ended up tripping. I can't walk without a cane or a walker . I've had pneumonia twice and this is all in one year I was diagnosed at the first of January. Granted I'm not young . I'm 74 but I'm definitely going to try the patting to get to sleep the tapping to stop my trimmers hurry and get this made we all need it so bad and I can tell you really need it too. Thank you thank you thank you and many blessings to come to you and your family and people that are working with you and your business .😊

[@LK-jn4uj]

So glad I watched this episode.

[@pramilsirohi867]

Great find for community 😊

[@hollycooper3875]

I've experienced miraculous success as a DBS patient. Yet, sometimes my gait and voice are weaker. Your device may restore me, completely? WOW, I have more hope!!! Keep us all informed to your progress 🥰

[@stephendunn2733]

What a great video Carl, seeing the keyboard behind you I thought you were going to tell us about a music band you'd formed for Parkinson's, a very convincing demonstration! With all the millions going into Parkinson's research it amazes me that no one has come up with this idea already. Having recently been fortunate enough to have StN DBS, it stopped my Dystonia enabling me to walk my daughter down the isle, does the band help relieve your Dystonia? I wish you all the best for your device and the prrospect of it providing a simple non invasive method relief for the millions around the world suffering this condition.

[@lanam3348]

Who else instantly searched “70 bpm music/ metronome” after watching this?!!! I’ve downloaded and playing as I heart bed. Thanking the Lord for this insight and willing vessels to share the info! 🙌✝️❤️🎶

[@beechband]

App with the precise and correct resonance coming soon!

[@lanam3348]

@@beechband Awesomeness! God bless you as you serve Him!

[@starphysio7184]

I’m trying the Haptic app but no discernible result. Then again my symptoms are currently very mild.

[@elsakemps392]

This is so exciting! What a simple tool to give us relief with so many different symptoms! I can’t wait to try it out❤

[@johnpjf]

Thank you for sharing

[@kellyrios5394]

wow thanks so much for this!

[@Pluris-s7o]

I’m ready to get my plane ticket to the UK fantastic news

[@Anatomy_Prof]

This is very interesting..... just some very first thoughts.... thinking out loud.... there may be a connection with the sensory input being provided and reticular formation, basal ganglia, thalamus interaction. Would be good to see this move to some type of study... all the best. keep up the good work all.

[@LK-jn4uj]

“Tapped into some thing!” 🎉

[@laurahobbs1936]

I feel hope and joy.

[@RossAFC]

What a product what a guy amazing.

[@LK-jn4uj]

So exciting!

[@matteagles35]

Beechy you're a legend !

[@beechband]

❤❤❤

[@mkkb495]

Sign me up! I'm in!

[@CraigRichards-d9k]

God bless the beautiful people on this show🙏

[@luaneaustad7654]

What a wonderful young man! I just love him and his excellent idea! It is so exciting to have a grassroots idea come to fruition! In the meantime, I have tried something and I'm wondering if Carl thinks this would work. I downloaded a metronome app called Tack onto my phone and smartwatch. If I set the metronome to 70 beats per minute and then silence it, I can just feel the beats from my phone or from my watch. Thoughts?

[@beechband]

It will work but we’ve found it’s not quite as effective for a few reasons. You will gain a benefit tho. My latest vid shows a smart watch app we’ve developed

[@luaneaustad7654]

Wonderful!❤

[@roberttomasetti3654]

Let us know when it comes to market. Brilliant!

[@debsarno2532]

Amazing!! Put me on the list please…Australia

[@JasonTracyFaithnotbeshaken]

I want to sign up for a preorder? This is phenomenal!

[@pattirossiter1065]

Amazlng!

[@alittlebitshaky]

I’m now rethinking my love of dot drawing. I can sit calmly and draw hundreds of dots. Maybe it’s my tapping therapy???

[@thesecretlifeofparkinsons]

That's interesting! It's possible I guess!

[@stacey1994]

WANT ONE!! 😮

[@MichellePritchard-e1i]

I sure hope they are talking with Apple. It would be awesome to add as one of the health apps on the Apple Watch (biggest selling watch in the world)

[@beechband]

Apps for smart watches coming very soon

[@MichellePritchard-e1i]

This is very exciting. I hope there will be an announcement when this is available. There are a couple of people in our Parkinson’s boxing class (we are in California, USA) that I would love to see how this might work for them (freezing and speech)

[@briancampkin8103]

Wow this is just SO promising. Carl you are da man…I love your intention to reinvest the profits and make this affordable to all. Are you working with Canada on approvals there? Please advise and thank you for all you have done!❤

[@beechband]

It’s our intention to supply globally so we need help for each territory

[@nickgilkerson7055]

I’ve tried the cue 1 for two years but didn’t find it helpful. I returned it for a full refund. I’ve very interested in trying this, obviously. Can I please go on the list for a device 🤞🏻

[@Rainbow-e3k]

This is absolutely amazing I’m undiagnosed with what’s going on with me but I’ve seen one of Carl’s vids before about tapping which helped me walk better 👌 definitely would love one of these there great for people stuck in limbo with a diagnosis with symptoms and being turned away by doctors . I think this is amazing

[@nolajacob5306]

Would love to get this for those of us in Australia. How do we get on his pre-production list?

[@craigcooper9967]

Amazing!

[@waltchalmers8752]

I would love to send Carl a check to help get this band available to PWP. Can you help me with that? Thanks for this wonderful info, Walt Chalmers in Camp Springs, MD, USA

[@robcleminson7062]

This is incredible, I’m also from Essex originally and suffer with similar symptoms. Excited to try this out!

[@piapintus]

God bless you!

[@arupdebbarma4420]

When our vagus nerve damage. We develop Parkinson disease

[@alexcussons8468]

Please please promote Carl and the Beech Band .

[@robster021]

I want (need) one ❤

[@LK-jn4uj]

Wow wow wow! Is this for sale somewhere? I haven’t even gotten to the end of the video and I am sold sold sold for my dad.

[@thesecretlifeofparkinsons]

Not yet...it's getting manufactured soon! (per Carl Beech)

[@SouLightness]

How can we avail from this. Im in Ireland. Lots of dystonia when meds wear off...very painful.

[@maximo1766]

❤❤❤

[@SandraLevene]

Wonderful it

[@magiccharlie]

how is this different than a metronome watch or normal pulse watch?

[@gregorylevy9279]

I'm a Parkinson patient how can I get one please!!!!

[@jenniferhollingsworth4423]

Sign me up!!!!

[@mikeflannery5767]

answering my own question. doing research they are way different.... How can I get The Beech Band

[@thesecretlifeofparkinsons]

They are being manufacturered right now in the UK and Carl is going to look into options in the U.S. Not sure where you are located

[@Karlos-74]

How can I get one ?

[@saraoutwest]

If tapping with your hand doesn’t work does that mean the device won’t either?

[@thesecretlifeofparkinsons]

I don't think so. because when you are tapping yourself, you know you are doing it. While the device is on you just go about your day and hopefully it works when you are not concentrating on it.

[@newworld6474]

how about Canada?

[@AnnetteFanelli]

I want it Today

[@thesecretlifeofparkinsons]

Same!

[@mikeflannery5767]

Is this device the same as the Cala KIQ

[@thesecretlifeofparkinsons]

Not sure.

[@annsones9072]

I want one

[@gregorylevy9279]

I'm in Savannah Ga and have Parkinson need it so bad secret life of Parkinson please reach out to me

[@tj2070]

Gobsmacked !!!

[@pamelabrookfield5766]

I am a Christian with St Barthomley Church Old Whittington Chesterfield

[@roseahmed3228]

Thank you Can you tell me how to Order Your contact info please

[@pamelabrookfield5766]

I have lost my voice please help me I live in Chesterfield England I no longer walk or talk

[@chinko1953]

What's the difference between this device and the Charco Neurotech CUE device and the VILIM ball device?

[@thesecretlifeofparkinsons]

I haven't heard of the Charco Neurotech CUE device but just looked it up. Do you use that device?

[@beechband]

It operates by a different principle and delivery system. No app, fiddly controls or need for blue tooth or smart tech

[@chinko1953]

​​@@thesecretlifeofparkinsons I don't use the charco device because it is not yet offered for sale in the USA and it is very high demand and limited supply on the European continent. But I believe that in theory the band is the same concept as the CUE and has been proven and is actually for sale. I suggest that you interview the charco management to get a better picture of their product and when it will be available in North America.

[@Michael-he7xn]

Huh…