2 Minute Mechanisms: omaveloxolone

  Рет қаралды 5,421

Friedreich's Ataxia Research Alliance

Friedreich's Ataxia Research Alliance

Жыл бұрын

FARA's Mission is to marshal and focus the resources and relationships needed to cure Friedreich's Ataxia (FA) by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.
Friedreich’s Ataxia is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's Ataxia.
Subscribe to FARA's KZbin channel / fara1998
Follow FARA on Facebook / curefa
Follow FARA on Instagram / curefa_org

Пікірлер: 20
@paulalopezgalindo6332
@paulalopezgalindo6332 Жыл бұрын
Hi I'm 24, I have AF and u am from Spain. My dream is be curate from ataxia. And you fara are my heroes. I'm whishing omevaloxone too
@AmaanKhan-ju9vn
@AmaanKhan-ju9vn 4 ай бұрын
Hi I'm also suffering from freidrich ataxia
@partyushgamers3742
@partyushgamers3742 2 ай бұрын
Dose it work I mean this treatment 😊
@zakwood3094
@zakwood3094 11 ай бұрын
i have fa, but am not great with the science of it. This really helps thanks
@chandler_h
@chandler_h Жыл бұрын
Hi I have FA and I think it's kinda fun. This seems pretty legit. Looking forward to trying this. Thanks, FARA! See you at the RideAtaxia in Florida :)
@partyushgamers3742
@partyushgamers3742 2 ай бұрын
Have u tried this treatment and does it work?
@user-mh2nu3ph7f
@user-mh2nu3ph7f 9 күн бұрын
Hi, I am Sakib Hossain Hridoy. I have FA, and i am from Bangladesh. suffering form FA last two years. Please help me who to i get omaveloxolone.
@giuseppe006
@giuseppe006 8 ай бұрын
There is talk around about safety for the cardiac side, but are there any benefits? I think so, because if the mitochondria work better, they will do so everywhere and if there is a neurological benefit there must also be a cardiac benefit, right?
@UmaShankar-fy2fw
@UmaShankar-fy2fw Жыл бұрын
Hi I'm suffering from FA since three years waiting for omaveloxolone.....I'm from India Please help me
@gowrishankar1367
@gowrishankar1367 Жыл бұрын
Iam also suffering from frda... Iam too waiting for this
@bishnugiri5665
@bishnugiri5665 Жыл бұрын
My both children are diagnosed with FA.. Omaveloxolon has been a great hope for me😭 did you guys get any further updates??
@gowrishankar1367
@gowrishankar1367 Жыл бұрын
@@bishnugiri5665 yeah it costs more than 2.5 lack dollers
@gowrishankar1367
@gowrishankar1367 Жыл бұрын
Per annum
@bishnugiri5665
@bishnugiri5665 Жыл бұрын
@@gowrishankar1367 that's way more higher price, isn't it🥺 Are you having this treatment?
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