4 Stories of Living with Multiple Sclerosis -

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National MS Society

National MS Society

Күн бұрын

Пікірлер: 257
@sundaisycake3372
@sundaisycake3372 11 ай бұрын
We need a cure.
@1999zrx1100
@1999zrx1100 2 ай бұрын
I’ve had MS for 30 years, I was only diagnosed 8 years ago, still walking but not far. It’s hard to be positive some days and everyone unless they have it don’t understand how tough it is. We are definitely warriors. I’m in my late 60’s and several friends are dealing with much worse health issues so I’m feeling grateful for my situation. Eat well and get lots of rest, it’s going to be alright. 🙏
@deborahkaba4573
@deborahkaba4573 2 жыл бұрын
25 years now for me. 26 years old to 51 now. It’s been a roller coaster. I live and love my very best everyday. That’s what I do.
@jaysongreenwood8754
@jaysongreenwood8754 Жыл бұрын
God bless you
@naturallydope6971
@naturallydope6971 Жыл бұрын
🧡🧡
@ifunanyaofoegbu695
@ifunanyaofoegbu695 Жыл бұрын
Hello , my friend has ms , please is it possible to connect with you looking for a support group
@nataliawitek6765
@nataliawitek6765 9 ай бұрын
Thank you so much! As a 24 year old girly who just started diagnosis this makes me feel so much stronger inside
@deborahkaba4573
@deborahkaba4573 9 ай бұрын
⁠@@nataliawitek6765 Yes! Consider MS our unwanted friend. Surround yourself with unconditional love and support. Start a high efficacy drug that you’re comfortable with. And live your very best life. Like I said before MS is a roller coaster but you got this Mama. My very best to you!🧡
@naturallydope6971
@naturallydope6971 Жыл бұрын
I have been diagnosed with multiple sclerosis last week. I need to see this because it gives me hope.
@mikem2474
@mikem2474 Жыл бұрын
I'm sorry to hear that , I hope you doing well and I'm sure you going to be stronger than the MS . My wife just got it and I'm doing everything to make her feel beter . I made a lot of research to understand it and how to deal with it , keep up the good feelings and god bless you
@heatherdaigle822
@heatherdaigle822 8 ай бұрын
I was diagnosed in February
@Timextimex11
@Timextimex11 7 ай бұрын
I am Sorry about that. However, there is a medical student in Dar es Salaam, Tanzania that I wish you connect with. She is so inspirational and she was diagnosed with MS in 2017. Dropped out of collage. Went through all the pain and all that cometh with MS. However, last year she went back to collage and she is doing well. I wish all MS patients to talk to her. I will be most happy to connect you to her.
@teddycharles6463
@teddycharles6463 2 ай бұрын
Help me out with that,i am an MS patient too
@404RACER4
@404RACER4 Жыл бұрын
I was diagnosed in 2020 also ... It's a real battle everyday .. I was humbled real quick .. Never take anything for granted .. I will never give up or quit ! And I will never lose hope .. I am a MS Warrior !! May God Bless you all ..
@phoenixmackenzie01
@phoenixmackenzie01 Жыл бұрын
My wife was diagnosed today….. naturally it brought me here. I’m a guy who doesn’t show his emotions in fear of having my wife lose hope; but I can tell you now in absolute honestly…… I’ve never been more afraid in my life.
@chap97
@chap97 7 ай бұрын
Hows it going now?
@Invited2theBBQ
@Invited2theBBQ 7 ай бұрын
Lucky wife. No one wants to believe anything is wrong with me. Best advice I can say is listen to her. 😊
@phoenixmackenzie01
@phoenixmackenzie01 7 ай бұрын
@@chap97 she is having her transfusions every 6 months (next one in June) AND we’ve just found out we’re pregnant with our first child 😁
@phoenixmackenzie01
@phoenixmackenzie01 7 ай бұрын
@@Invited2theBBQ thank you x That means a lot
@ShootYourRadio
@ShootYourRadio 6 ай бұрын
​@@phoenixmackenzie01 how is your wife and you all doing? Is her treatment treating her well? I myself am starting my own MS journey. Not sure what to expect.
@LOVEHAWKSTAR
@LOVEHAWKSTAR 6 ай бұрын
Fuck M.S. I've been fighting for the last 10 years and I use a cane but I will not give up fighting. God bless you all, and you're not alone. ❤
@ambermorales4525
@ambermorales4525 Жыл бұрын
Was diagnosed a month ago.. it's wonderful to have some answers... now where to go!! I am strong!! I will be ok!! I'm scared!!!I have ms!! You won't define me!!
@ShootYourRadio
@ShootYourRadio 6 ай бұрын
I hope you are doing well. I was diagnosed earlier this year. I met with my MS specialist in a few weeks. I guess the journey begins for both of us. Stay strong. We are definitely not alone.
@IslandKai_
@IslandKai_ Жыл бұрын
I got diagnosed in the year I graduated high school which was 2017 and I didn’t really looked at my life the same anymore. All of the feelings that was explained in this video was a nice breath taker because I’m knowing I’m not the only one dealing with this tragedy. Friends and family would look at me differently and try to show sympathy but I know it’s not pure as if a person didn’t have anything wrong with them. It’s a really tough battle and I want to say to all my MS fighters that we can do it and we should not let MS control our life.
@Clipzzyy3407
@Clipzzyy3407 Жыл бұрын
I got diagnosed in 2020. I collapsed at work and could barely lift my leg. 3 years later, I’m walking with a noticeable limp and chronic pain in my right foot and legs. I constantly trip over my feet. My legs freeze up at any giving moment. This shit sucks man. Truly the worst thing that’s ever happened to myself. But with GOD I will be ok. We will be ok. Keep positive energy, thoughts and prayers with you at all times. This is a tough battle. God bless.
@Dasani_water_drinker
@Dasani_water_drinker Жыл бұрын
go paleo- avoid 🐷and 🦐🦞 any crustaceans. Diet free from fake food, starch, sugar and bad fats will give you relief with long periods of remission in between attacks. I know this from personal experience. Food is a huge trigger for most of the symptoms.
@Invited2theBBQ
@Invited2theBBQ 7 ай бұрын
The first joke I was able to laugh at was “I’m not drunk. I just have MS.
@LOVEHAWKSTAR
@LOVEHAWKSTAR 6 ай бұрын
😅 I felt this.❤
@strider3743
@strider3743 2 жыл бұрын
I was diagnosedin 2018 as me and my wife were just months away from the birth of our first child! legions on my spine and spotting on the brain! I have never talked much about this disease but im a warrior and I have MS, MS doesn't have me! I will strive to live the best life i can!
@ShootYourRadio
@ShootYourRadio 6 ай бұрын
I hope you and your family are doing well. I was diagnosed earlier this year and just about to meet with my MS specialist early next month. Definitely a scary journey to be starting.
@asuganoir6951
@asuganoir6951 Жыл бұрын
I was diagnosed in 2021, it has been very rough but mostly mild in comparison, and I am so thankful I can still walk. I do however, struggle with the fear that one day I am going to wake up and be unable to walk. This video really hit hard, when the lady was talking about waking up without being able to feel her leg, that nearly made me cry, because is a terrifying thing.
@mary-vy3mo
@mary-vy3mo Жыл бұрын
just get hsct so you don't become spms...
@johannaechiverri6849
@johannaechiverri6849 Жыл бұрын
I was diagnosed when I was 13.I have relapsing remitting MS. Lately, been struggling with spasms, tingling sensations in leg, generalized fatigue as well as cognitive decline. I cannot easily remember things and recent memories.💔 and whats more heartbreaking is surrounded by people who cannot understand my symptoms.
@alexandertolmatskiy1
@alexandertolmatskiy1 Жыл бұрын
It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on KZbin, I finally got cured of my Multiple Sclerosis with his herbs med and I can tell how great my health has turned out so far. Thank you 🙏 ❤️
@dragonfire3727
@dragonfire3727 Жыл бұрын
Sorry to hear that can you walk without help?
@johannaechiverri6849
@johannaechiverri6849 Жыл бұрын
@@dragonfire3727 hello there. Month of June was very hard and painful to walk with spasms during 3 am always, it lasted for a month. But then by July I was referred to a cardiologist with other concerns not related to MS. Symptoms of MS is like pseudorelapse. You can feel it then goes a way, not psychological for me since im not feeling any anxiety just cant control it. For 2 weeks I walked with assistance walking like an 80 year old. 😂
@Jay-vr9ir
@Jay-vr9ir 4 ай бұрын
Hello 7 years ago at work I became every dizzy , I spoke to a fellow worker and he told me my retina was opening and closing rapidly .It passed so I went back to work , ever since then I have been light headed from time to tome , but nothing serious. Sometimes I have a difficult time getting words out or remember a name , but , I always have been bad with names . I checked on the symptoms of MS and it mentioned if some people have had a back injury , it may cause MS , I slipped a disc 8 years ago .I do not have headaches , so I think I may have MS ,I can live with what is happening to me now I just don't want it to get any worse.
@paulamucinga118
@paulamucinga118 5 ай бұрын
I was diagnosed five years ago, and with more than twelve lesions in my brain Jesus has kept me walking and by HIS power in all honesty my cognitive function is getting better. God can make anything possible. Even my doctor marvels at my progress let alone people when I tell them I have MS.
@riyapatel9669
@riyapatel9669 2 ай бұрын
i feel ive MS ive so many dreams which im not able to complete due to this i live in hell i just want that god never give this hell to anyone stay connected with good lifestyle will definitely help you ....
@cherylgroh6667
@cherylgroh6667 2 жыл бұрын
We are all warriors living with this horrible disease 😢 I am one of the Warriors I also have MS living it for 4 1/2 years it’s been very rough for me I’ll be honest it’s even rougher because I’m a single mother with a seven-year-old son and I am terrified because I live alone and I don’t know when another MS attack will happen and he my son is only seven he can only do so much he doesn’t really understand and grass How horrible this is but he understands it in his little way he understands when mommy doesn’t feel good mommy can’t do very much he tries to help in his own little way but it breaks my heart to see his little face knowing he can’t do anything to make me better and I hate it 😢 Do not know how much longer will I be able to live by myself with my son well the only way I could say it we’ll see what this new year comes and I’ll see what happens so wish me luck!!!!
@mariamalamiri26
@mariamalamiri26 Жыл бұрын
Stay away from negative thoughts anxiety it’s make things worse
@quetzali8654
@quetzali8654 Жыл бұрын
Talk to a psychologist that’s going to help you feel better.
@Dasani_water_drinker
@Dasani_water_drinker Жыл бұрын
go paleo- avoid 🐷and 🦐🦞 any crustaceans. Diet free from fake food, starch, sugar and bad fats will give you relief with long periods of remission in between attacks. I know this from personal experience. Food is a huge trigger for most of the symptoms.
@ChronicallyClementyne
@ChronicallyClementyne 2 жыл бұрын
Perfectly capturing the symptoms we experience in a creative, nuanced way. Taking stories of hopelessness and finding the positive. That's what we warriors gotta do 🧡 I have MS but MS doesn't have me. Through this illness I've met some of the most incredible people and I'm very lucky and grateful for that at least
@Amandajshere
@Amandajshere 2 жыл бұрын
I am disabled and strong ❤ there is nothing to be ashamed of. You can fight but don’t push yourself too hard.
@angels.world.YT.
@angels.world.YT. Жыл бұрын
I got diagnosed in 2020 and it was the biggest fear finding out I had MS. It’s still hard for me and I feel depressed all the time. It’s really hard for us and we keep moving and we are warrior’s.
@IslandKai_
@IslandKai_ Жыл бұрын
I feel that way too and I really want to be in a group with people that deal with this
@SuperBlokus
@SuperBlokus Жыл бұрын
Hey, I was myself diagnosed late in 2022, getting good care and care and hope everyone get same help
@JanetWark
@JanetWark Жыл бұрын
What Specifically Does the MS Society in the United States do for YOU or HELP YOU IN ANY WAY? I LIVE IN ILLINOIS. IN 2020 WE IN IL RAISED 21 Million Dollars. Wow & Wow. WHERE DOES ALL THE $$$ GO EACH DAY.MONTH/YEAR/ HOPE FOR A CURE WHEN IS THE MS SOCIETY HELPING ANY OF US?????????????????????? TIMES UP, TIME FOR A CHANGE IN 2023!!!!!!
Жыл бұрын
What medication are you taking and is it affordable?
@naturallydope6971
@naturallydope6971 Жыл бұрын
Yes we are!
@MizLaur
@MizLaur 9 ай бұрын
My Mum has MS. I have MS. My sister has symptoms. I’ve had numbness in my leg and arm…but they still moved. I’ve been rendered limping in numbness…but they still moved. I’m. Still. MOVING. (And, yes, being the primary caregiver for my Mum helps. Can’t lay about when needs must be met. Still…)
@faridaeldegwy3766
@faridaeldegwy3766 2 жыл бұрын
I've never been more grateful to be in pain again ! ❤️ wow
@R-skl
@R-skl 7 ай бұрын
multiple sclerosis for almost 10 years, it seems to me that simple exercises slow down its development, I am an example of this obvious. This is why the channel on KZbin started
@BenLeitch
@BenLeitch 2 жыл бұрын
I can identify with so much of this
@ScROOgyLOc2
@ScROOgyLOc2 2 жыл бұрын
Very inspiring. We are MS STRONG 💪🏾 & MS WARRIORS 🧡. We will overcome. No quit in us. Faith over Fear. Have a great day. #INSPIRED
@trose202
@trose202 2 жыл бұрын
That part💪
@kyisjarogers8853
@kyisjarogers8853 2 жыл бұрын
💪🏾 AMEN!!! 🧡
@naturallydope6971
@naturallydope6971 Жыл бұрын
🧡🧡🧡
@KristinBennett
@KristinBennett 2 жыл бұрын
You all in the video did an awesome job...and you are definitely warriors!!! I was diagnosed in 2001, am not taking DMDs, and so far I am pretty ok...Hugs to all of you!!!
@andreamichelle2454
@andreamichelle2454 Жыл бұрын
It’s nice to know you’re not alone, that someone else is experiencing something similar to you even though you never would wish it upon anyone. For so long I thought I was lazy cause I couldn’t do what everyone else did. It’s like having a young soul with an old body.
@townsendvictoria1853
@townsendvictoria1853 Жыл бұрын
I recommend you to Dr Okolo herbal medicine formula which can you cure you
@table-toprolls4469
@table-toprolls4469 9 ай бұрын
I was diagnosed in 2021 without actually being told i had it (they had told me my sight issue was purely Psychosomatic and that i didnt have anything to worry about), the hospital didnt actually tell me until last year. I went through a whole 2 years going through Relapses like Optical Neuritis and even to this day, I'm going through difficulty walking, memory issues, and hand-eye Co-ordination problems. I wish i could tell people that are just finding out that they have this, That it's going to get better but i dont know anymore... All i can say is: This Disease doesn't define you, it doesn't make you any less of a person (In fact, in a weird way, it makes you stronger.) Never stop fighting, one day (hopefully in the near future) they'll find a cure but even if they don't, that's okay, just focus on doing stuff you want to do, be the person you wanted to be before you found out about this disease.
@landracriswell437
@landracriswell437 Жыл бұрын
I have been diagnosed with MS! I have to wait 11 weeks until I get to be seen by a Neurologist 😮. I watch videos and trying to get information on MS… I’m tired and have brain fog!!! Good luck 🍀 to us all 🧡🧡. Orange-MS support
@Dasani_water_drinker
@Dasani_water_drinker Жыл бұрын
Do paleo and avoid pork and crustaceans- eat good fats. Food is a trigger for most of the symptoms. I know from personal experience
@bryanmaes9255
@bryanmaes9255 3 ай бұрын
I just got diagnosed this weekend. I haven’t told anyone yet.
@newyorkdiva3
@newyorkdiva3 2 жыл бұрын
Thanks foe helping people understand
@angeljones7371
@angeljones7371 4 ай бұрын
I’m so tired. I’ve been ignored. I sucked it up and kept moving thinking rest would help. I’ve tried everything. Diagnosed with fibromyalgia. Told it’s all in my head. Now I can barely walk vision loss can’t pick my kids up slurred speech and I don’t even drink. I had bulging disc 10 yrs ago and was told they can’t do anything.
@Itsme1.
@Itsme1. 2 жыл бұрын
I’m 22 and i have MS for 5 months now, i want to be strong enough to live my normal life I don’t want to think about my future but sometimes I can’t ! I have health anxiety and I diagnosed myself after a long trip googling my symptoms that i have MS in September 2019 I went to 2 doctors and told them about my fear no one believed me for 2 years until i had a strong attack that turned out i was always right now I can’t believe anyone, I’m stuck alone !
@firestorm2123
@firestorm2123 2 жыл бұрын
Do you have muscle twitching
@Itsme1.
@Itsme1. 2 жыл бұрын
@@firestorm2123 yes i do ! it was one of my first symptoms even tho my left leg is still twitching
@firestorm2123
@firestorm2123 2 жыл бұрын
@@Itsme1. where was your twitches at
@Itsme1.
@Itsme1. 2 жыл бұрын
@@firestorm2123 I remember it was under my hand! I search about it it’s call “Balm” yup
@Itsme1.
@Itsme1. 2 жыл бұрын
@@chris1960 this came on time ! I loved your mom my mom don’t talk about it at all she always wants me to act like i have nothing, my mom don’t actually know what MS is and she doesn’t want to know ! God bless you and your family. You made me happy thank u 🤍
@peacemaker5648
@peacemaker5648 10 күн бұрын
I was diagnosed Aug 2024. I realized why I forgot things I just put down. One day I had a flair up, but they brushed it off like muscle spasms. But it got so bad that they thought I had a stroke because one side of my body when numb. They found two lesions on my brain. I couldn't move my fingers and both my feet went numb and tingly. If you have these symptoms, I hope you catch it soon. I am only 38 years old and now learning about it.
@justinlansdale
@justinlansdale 2 жыл бұрын
unbelievable production. thank you for this.
@justinthebodyshopking5974
@justinthebodyshopking5974 8 ай бұрын
I just got diagnosed a month ago so it’s all new to me rt now but these videos help
@swenzor
@swenzor 9 ай бұрын
I don't feel strong, I feel more like a burden. I cannot travel as I want as I struggle with my bladder and walking, I'm stuck in a monthly hospital visit to get Tyrabri that I personally do not feel is working but my neurologist just says "well, least it's not getting worse". While I wish to have Lemtrada but no neurologist in the entirety of the country is comfortable to administer it. I cannot see the world as my paycheck is not for me, it's for medications which if I stop, stops my body. The only reason I have a job is that I managed to get one before I were diagnosed and now they're kinda stuck with me and I with them, we hate each other but I don't feel another company wants to hire a fatigued waste of space. I'm not living a life anymore, I'm working to stay alive for another day where rent and medications drains my paycheck all while prices go up on everything but my paycheck is reduced since the company needed to save money and I were an easy target to destroy.. I hate this disease and I struggle to see the point of life anymore.
@bkn9111
@bkn9111 2 жыл бұрын
Stay strong everybody 💪 love from Poland
@joanpenn72
@joanpenn72 9 ай бұрын
I'm so sorry. I feel everything. I know all. I don't matter to anyone anymore. They left me behind in life.
@Meetcaveman
@Meetcaveman 12 күн бұрын
My wife was diagnosed with MS recently and spent 5 days in the hospital. She's out now and doing better but still not great and I'm really worried for her. I hope with medicine and treatment she'll be ok.
@BriannahHoward
@BriannahHoward Жыл бұрын
I’m 15 and was diagnosed with MS and bone marrow edema ❤
@nicoleholley7049
@nicoleholley7049 2 жыл бұрын
Why people can't understand when you're tired?
@MsJ32
@MsJ32 2 жыл бұрын
It surely isn't a "normal" tired. That being said I don't think they know what this kind of tired is.
@gregoikonomakou136
@gregoikonomakou136 2 жыл бұрын
Because they confuse it with common tiredness, but is not... The "correct" word to use is fatigue... It is completely different.. Is like the body is a machine that has an "on-off" button.. At least for me. We have to explain it until they understand. I know that this not easy every time, but it helps... Autoimmune fatigue is the most invisible symptom and it s hard...
@KianaG1280
@KianaG1280 2 жыл бұрын
I have MS and fatigue isn't a symptom for me but the nerve pain in my feet, legs, and shoulder is so annoying.
@angelicayt5808
@angelicayt5808 2 жыл бұрын
When I’m at school, I always drink water so sometimes I may use the bathroom to frequently but my teachers just think that I try to miss class whenever I ask to go use the restroom
@ROCKELGIRLS
@ROCKELGIRLS 2 жыл бұрын
Yessss..
@katyb.3520
@katyb.3520 Жыл бұрын
I appreciate the video. I work for a specialty pharmacy and this really put a picture to the medications I’m solving problems for and scheduling to ensure they’re delivered to a patient on time. ❤
@MishWoon
@MishWoon 2 жыл бұрын
I totally understand all of these people 🙂
@Burnmaster10
@Burnmaster10 Жыл бұрын
I was diagnosed in 2021 with PPMS. It is called a snowflake disease for a reason, everyone is affected differently. Walking around you would think I'm normal until I talk long enough. My brain is overprocessing and I slur. Quickly I realized I couldn't do what I did before. I was an on the road 3D Graphic Artist Trainer for Broadcasting in particular. Things I could normally do in seconds now takes days...or weeks. Luckily I have a supportive wife, MS webinar meetings, the Mighty website, National MS website, and still can't find work. Scary, but glad for support and staying positive!
@wawjr1
@wawjr1 Жыл бұрын
I obviously do not know you but I felt this. I was Dx on Jan. 1 2012. I was 18. Keep your head up. Eat and live clean. Surround yourself with love. I wish you the best.
@dragonfire3727
@dragonfire3727 Жыл бұрын
​@@wawjr1can you still walk and write
@CourtneyHorvath-ke8du
@CourtneyHorvath-ke8du Ай бұрын
26 years rrms
@patrickjordan5055
@patrickjordan5055 2 жыл бұрын
Very informative and helpful thanks..
@angelar.2088
@angelar.2088 2 жыл бұрын
I’m slipping through the cracks but will be tested for this 😢
@arsisfruritch9740
@arsisfruritch9740 10 ай бұрын
I was self-employed and lived alone and didn't care what was happening to me but in the beginning with couldn't feel my legs and hands. A lot of pain in my body in different spots. losing my vision. Tingling in my ears. Confusion and fatigue, sometimes worse and may better. Somrtimes can't do simple task followed by loosing everything I had. My home, car, business, employees. Phone, ... And no family or friend. Nothing left. Currently struggling to survive but I gave up. All I can gather the wisdome to think in about I don't know if there is any source I can get help?! I relized that just people was connected to me because of my previous condition and they don't getting touch with me anymore. Went to forest for 4 months now but meditation couldn't make be better. I guess my immune system out of order not listening to me somehow just fight my own body. That's one crazy immune system. 😂. I believe in miracle.
@amandaleahspears
@amandaleahspears 2 жыл бұрын
I'm pretty sure I have ms but no diagnosis yet. They'll probably wait until it's progressed to an undeniable point
@ReallyJustAnotherDay
@ReallyJustAnotherDay 19 күн бұрын
It's been 2 years, how are you, were you right in your gut feeling? Hoping you were completely wrong. 🙏🏼
@amandaleahspears
@amandaleahspears 16 күн бұрын
@ReallyJustAnotherDay I'm ok. Neuropathy is still progressing. Can't afford a spinal tap and no diagnosis. But I'm ok in that I have my medicine and family 🧡 thank you for asking.
@deedee9002
@deedee9002 Жыл бұрын
I was recently diagnosed with ms and i’m only 26. We’re always tired, memory loss, can’t sleep, i have liaisons on my brain and spine, i can’t have children, multiple mris, cant walk for long or stand and they still don’t know anything about this illness
@danialmorphy4213
@danialmorphy4213 Жыл бұрын
👈Herpes has been one of the most significant virus in the US now, and its spreading really fast, and the government are only producing medical drugs that can suppress it but rather keep on eliminating the African herbal doctors who were able to discover a way to completely cure the virus..I'm delighted to be finally cured of herpes 2 after i applied Herbal treatment I received from dr Ogbebor herbal centre whom I found here on KZbin ,for just two week🏳️
@kalkeshdevraj
@kalkeshdevraj Жыл бұрын
@It’sme hello dear in India we deal with those whose symptoms came under the autoimmune disorders.. We have a Natural process of heali g and since last 8 years we have been helping people fight the diseases like diabetes, MS, Cardiac diseases and Cancer.. We have Natural remedies and thw treatment is prakalpic nutron chikitsa... We know how leaves heal a body u can connect with us.
@SolankiNayan95
@SolankiNayan95 Жыл бұрын
​@@kalkeshdevrajhow can we connect with u?
@kjellvb1979
@kjellvb1979 2 жыл бұрын
The way this world is makes it very tough to have hope with this disease. Even my own father can't seem to understand why i struggle financially. There aren't enough resources, I have experienced being homeless because I am sick with a chronic disease, and its just a bullshit system that we have. too many suffer because we put money over people.
@Ana.Nomadic.Insights
@Ana.Nomadic.Insights 3 ай бұрын
I’m crying now because I have a lot of emotions, but also because I strongly believe the cure is close
@grifter_alert
@grifter_alert 2 ай бұрын
There good at gaslighting
@Ana.Nomadic.Insights
@Ana.Nomadic.Insights 2 ай бұрын
@@grifter_alert What do you mean?
@janeca10
@janeca10 2 жыл бұрын
Uau, that is breathtaking! I am sending lots of love from Brazil. You´re all the same as you´ve always been. There is no such a thing that can change the inner beauty inside of yourselves. * For the new diagnosed people living with MS, find a neurologist to trust, because they have annual meetings where neurologist from across the planet discuss the new and current imuno modifiers and ways to best treat MS. Also take a health lifestyle, exercise, music, art, friends, that is all very possible. Science is working really hard to bring the news everyone wants. So keep it up! MS treatments have evolved so much in the last decade. Please take good care of yourselves, lots of love xxxx
@mary-vy3mo
@mary-vy3mo Жыл бұрын
yes..but the best is hsct and yet people can not get it done.
@butterfly2052
@butterfly2052 Жыл бұрын
I really do agree with everyone because what you have shared with us all is so true. I found out 8 years ago But it really is different for all of us but I appreciate the opportunity to share with others that understand me because I can't tell anyone else I don't speak with old friends some family because they only see the old me and if I can't remember but I do remember the past but if I can't speak clearly I don't speak thank you all
@rebeccarussell9618
@rebeccarussell9618 2 жыл бұрын
hello i have been stuggling with epesods numness tingling..cralling..burning sensaitions..i feel nurve pain when i get hot that makes me feel like im cold..i have trijemanralja in my face ..intention tremmer..and crippiling tiredness..vison problems..my cognitive function has got so bad..that im sluring my words..feel like im falling apart..i was dignosed..with fibro and me after a clear mri about ten years ago..i have loss of feeling in my finder tips and feet.and i feel like i have water driping on me.i have had to leave work..its steatly getting worse now ..i dont think it fits fibro..great video ..just because people cant see it dosnt mean that your fine..my huband works nights and then says im so tired u dont understand . i do i have all this and 2 and a 5 year old...i just want to be the mum i thought i would be
@Jules.AM242
@Jules.AM242 2 жыл бұрын
Thank you for this!!!
@macsam8778
@macsam8778 2 жыл бұрын
In my experience, I can relate to feeling pain and loving it!!
@macsam8778
@macsam8778 2 жыл бұрын
The pain was necessary for me to know, I can feel, so loved it!
@Србомбоница86
@Србомбоница86 2 жыл бұрын
@@macsam8778 nah ,I hate pain
@macsam8778
@macsam8778 2 жыл бұрын
@@Србомбоница86 In most situations I would live pain free as well, but, if it tells me my body parts are still there, I welcome it! I understand what you're saying. Stay strong!
@consumerdebtchitchat
@consumerdebtchitchat 2 жыл бұрын
You guys are so wonderful for sharing this. I have relatives with it and I really don't understand it well. I appreciate you taking the time to educate us. Prayers. Though I know that seems so useless. But I put it out there for you guys. Thank you!!!!
@notafraidtodebate2772
@notafraidtodebate2772 2 жыл бұрын
Praying for them all I was once lost with Ms but Avonex blessed me to live my life
@lillyrocks2011
@lillyrocks2011 2 жыл бұрын
Hope a cure can be found. Each time there are more people with this disease. :-(
@youknowtherules8888
@youknowtherules8888 2 жыл бұрын
Not cure, but prevention maybe possible. Studies showing that a vaccine for EBV may prevent MS from developing.
@youknowtherules8888
@youknowtherules8888 2 жыл бұрын
Is the EBV virus hides in your B cells. The B cells can be found in your nerves. In the brain and spine. When EBV reactivates it triggers an immune response.
@steffpelletier3400
@steffpelletier3400 Жыл бұрын
Is there a way we can be a part of this? I would like to share my story 🧡 MS warriors unite!
@Garpot
@Garpot 2 жыл бұрын
Thank you fellow WARRIORS! 🧡
@luzacevedo1794
@luzacevedo1794 3 ай бұрын
Beautiful video ;-;..
@brendakreuzer9498
@brendakreuzer9498 3 ай бұрын
I’m pretty sure I have it. I saw a neurologist who diagnosed me with Idiopathic Peripheral Neuropathy in from my toes up to my knees in both legs and from my finger tips to my elbows in both arms but she never ordered a CAT scan. Now my eyes are doing weird stuff.
@officialrupam1269
@officialrupam1269 2 жыл бұрын
I was an international student on Canada. I was diagnosed with MS and transvermilitus in 2021 december. They say that now I am okay but in future I can get the attack. I get shocks in my feet a lot. My legs and feet are numb, I have a foot drop which is not going. I can't walk properly. I have anxiety issues and depression. This all makes me so weak. It feels like there is no meaning of life anymore. My mom is a single parent, I wanted to do so much for her but now I am just a baggage. When will the symptoms go? When these shocks will go? When will I be able to walk properly? When this numbness will go? This depression, anxiety! I don't have any answer. M just stuckk.
@lillyrocks2011
@lillyrocks2011 2 жыл бұрын
Hi,how are you? I'm scared. But the worse is having symptoms without knowing what is it. I wanted to go to Canada but I don't know if I ever could achieve that. :-(((
@kalkeshdevraj
@kalkeshdevraj Жыл бұрын
@official rupam hello dear in India we deal with those whose symptoms came under the autoimmune disorders.. We have a Natural process of heali g and since last 8 years we have been helping people fight the diseases like diabetes, MS, Cardiac diseases and Cancer.. We have Natural remedies and thw treatment is prakalpic nutron chikitsa... We know how leaves heal a body u can connect with us.
@rabbit22o
@rabbit22o 2 жыл бұрын
Understand the pain and frustration of it all.
@sherristevens3972
@sherristevens3972 Жыл бұрын
Was the 3rd to be DXed in my family. It sux. 👍 Amen
@Invited2theBBQ
@Invited2theBBQ 7 ай бұрын
I’m crying I’ve been suffering alone since 2014
@MsJ32
@MsJ32 2 жыл бұрын
Wow...I never heard anyone say what I felt in this situation. I have been so afraid of the future of my RRMS that I couldn't live in the "NOW". I almost turned away someone that I really care about because of that fear
@boostmobile5326
@boostmobile5326 Жыл бұрын
What caused your MS and is acupuncture therapy good for MS and what are the medicines prescription for MS.
@fay-amieaspen6046
@fay-amieaspen6046 Жыл бұрын
There's some similar symptoms between Fibromyalgia & MS.
@marlahopkins9627
@marlahopkins9627 2 жыл бұрын
Hello everyone I can understand Marti I woke this morning with this same thing. Unable to bend my leg thinking the same thing.is this forever. Got tot to bend a Lil but it bend t9 walk. I’m so scared because I know if you don’t use it you will lose it. Currently I went from being full-time working 40 hours a week to being part-time working maybe 16 hours a week I moved to a different state and it’s taking a toll on my body. I do have a family member that was diagnosed with MS and he is bedridden he’s unable to do things for himself and I can’t help but to think of that situation I’m not ready for that...
@LeeBeaVelvet
@LeeBeaVelvet 2 жыл бұрын
Well said everyone.
@husaimendoza7189
@husaimendoza7189 Жыл бұрын
I have muscle twitches all day this months, went to doctors check blood came out fine , i notice yesterday at night see light turning halo like .. maybe i was just tired . I also have ptsd and axintey and depression, saw some videos saying axintey can also cause this .
@duggywild
@duggywild 2 жыл бұрын
Great video. Has anyone ever had burning hands (particular the tips) as part of their symptoms?
@lillyrocks2011
@lillyrocks2011 2 жыл бұрын
Hi! That can be a symptom. Do you have other symptoms?
@duggywild
@duggywild 2 жыл бұрын
@@lillyrocks2011 ​ @LillyRocks Yes but I thought it started with the horrible burning fingertips which no doctor I saw could explain. After other symptoms slowly emerged my family doctor and now rheumatologist fear its MS. Hindsight 3 years ago had terrible pain in feet that never went away which also could not be explained. Had multiple xrays and blood tests for everything but nothing showed up. Tried different meds for immune problems but nothing worked. Now realize its the muscles tightening causing the pain and burning. I now have most symptoms of MS and have a MRI for my head next week. Thanks for the reply.
@youknowtherules8888
@youknowtherules8888 2 жыл бұрын
@@duggywild Try the Gupta program to calm your immune system. You could also try wim hof with cold exposure to relive the pain
@ysmn4667
@ysmn4667 Жыл бұрын
Did they diagnose it?
@DariahJaffar
@DariahJaffar Жыл бұрын
Please make MS MEDICINE! i need it!😢
@nationalmssociety
@nationalmssociety Жыл бұрын
www.nationalmssociety.org/Treating-MS
@naitzel84
@naitzel84 Жыл бұрын
What got me here is that i was diagnosed today with ms after a lot of regressions specialists and so on. My head is spinning with so many questions. Is there someone out there whose been through the same today yesterday etc to guide me or at least give me some comfort in the sense im not gonna be immobile or im gonna make it etc? Thanks for ur time
@yilanzeper7267
@yilanzeper7267 Жыл бұрын
Hello Leo, I got diagnosed around 2 weeks ago. Lost sight on left eye almost 2 months ago and well, here we are. Not easy to assimilate at all, right? We're going to make it Leo, one day at a time. Can't guide you as I'm a newbie haha but what I can tell you is please stay close to your loved ones, it makes a world of difference. If you have the chance, look for professionals who can support you and guide you, and ask them as much as you can, at least that's what I've been doing. Greetings from Mexico.
@naitzel84
@naitzel84 Жыл бұрын
@@yilanzeper7267 thanks so much for the support fellow newbie 🙂 do u ever feel lonely? Most of the days i ve not only being unstable mentally, i ve been feeling like the loneliest creature on earth i know it doesn't make sense but that's how i ve been feeling. I have also been having breathing problems and bowel problems unfortunately this last month. How are u coping with everything yourself? I hope u are doing great. Greetings from cyprus (an island in the Mediterranean)
@MaryMary-of2um
@MaryMary-of2um Жыл бұрын
@naitzel84 I understand how you feel when you have a life transition it is hard I do not have family close I realized my job was my safety net when that stopped the loneliness kicked in having a good support system is crucial
@franceszapata951
@franceszapata951 2 жыл бұрын
Please talk about the rebound effect of Gilenya. Your MS can become worse if stop using Gilenya and decide to do a wash out period. No wash out period should be done because it is a sequestering drug (it doesn't kill B cells, it sequesters them). Please spread this information. Mayzent, Zeposia, and Gilenya all work the same way.
@badcuzimpeachey
@badcuzimpeachey Жыл бұрын
I got diagnosed in 2019 😢.
@chuckdavinci9044
@chuckdavinci9044 Жыл бұрын
What happened to the MS navigators? Any time I have tried it says they're not currently available but they're happy to take more donations?
@timothywood400
@timothywood400 2 жыл бұрын
I've had ms for 10 years and didn't know lol I kinda knew because of google but never really cared until I woke up blind in one eye. On that not I went to doctors and a few hospitals for them to say there is nothing wrong with me come back if it gets worse. Uhhh I've got one eye how will I get back if I'm completely blind lol so I went to Sydney eye hospital and stayed for a few days they done some tests and mri. So I found out I've got it and that's okay I'm cool with that I've already had 4 legions or what ever on the brain 🧠 but no permanent injury. Now we are working out a plan the professor said I'll need a shot in the neck every so often to keep them at bay so I get 1 day off a month yewww keep on keeping on peeps
@timothywood400
@timothywood400 2 жыл бұрын
Ps my eye came good in a few days with some steroid treatment I can see clearly now the clouds are gone
@justinlansdale
@justinlansdale 2 жыл бұрын
lmao shred on brother! 🤘🏼
@KoalaBeer.
@KoalaBeer. Жыл бұрын
I have numbness feet , sometimes double vision. All bloods are ok I’m worried now I got this. Do I need an MRI? So lesions are the definitive answer to ms. Year later I’m still trying find a cause. Should I get a brain MRI or full body .
@hellomynameis5520
@hellomynameis5520 Жыл бұрын
Hi, thanks for your story. I have been having symptoms for 1-2 years. Off and on. Recently I had a brain, c spine, thoracic, lumbar and sacral MRI spine. Scanned with 1.5 Tesla without contrast. All came back normal with no evidence of lesions of demyelination. My dad has MS. I wonder if the scan was strong enough or if something was missed or if this is all in my head now? Thanks
@cbailey009
@cbailey009 5 ай бұрын
my doctors think that I have MS. I have to wait mouths to get the tests done to find out. I'm trying not to be but I'm scared. It explains so much about how my life has been. its been getting worse and the idea that I have to accept that ill never be independent I'll never be able to support myself is humiliating I cant even handle a full shift at work anymore. I've spent most of my life being blamed for my symptoms. for being lazy and selfish. I don't know what I'm more afraid of getting the diagnosis or not getting it and have everything people said about me being true.
@palookesworld
@palookesworld Жыл бұрын
Hello! I would like to play this video during church. Are we free to use this video or do we need a license?
@bloodyhetza
@bloodyhetza Жыл бұрын
Hi guys, I am wondering... Since ms' symptoms could be very vague... have you ever just felt like some tingling around a specific area of your body? My fiancee started with schotoma two months ago, but specialists couldn't determine if it was ms or not (yes she got an mri). She is currently on immune supressors but today just started this feeling like a tingling around the eye (which had the first problem).
@vivianholloway422
@vivianholloway422 2 жыл бұрын
I have no pain with my MS
@mynewnormals
@mynewnormals 2 жыл бұрын
Nicole want you are right today just be ready for tomorrow it may be better!
@alexislara9035
@alexislara9035 2 жыл бұрын
When I was 2 I had bone marrow transplant and the chemotherapy messed up one of my veins from eye to brain that's what the doctor's said, and since I was young sometimes i feel dizzy and start seeing colors revolving and my eyes follow the revolving colors , feels like a seizure sometimes , when im working out in the sun,heat it happens more often also when i get too tired ,I don't know what's this thing I suffer from is called anyone knows ? Or feels the same ?
@emskell777
@emskell777 3 ай бұрын
I have no emotion and idk why, I got my MRI results today and Dr told me I had MS I need another MRI for my spine 😢i wish I knew how I got this :/
@jessicawoods3690
@jessicawoods3690 Жыл бұрын
Jesus Heals, Jesus Saves, Jesus Delivers!
@mukhtorjontukhtamirzayev9547
@mukhtorjontukhtamirzayev9547 Жыл бұрын
Who is Jesus?
@Sbannmarie298
@Sbannmarie298 Жыл бұрын
Those lip rings are scary.
@monalisacarey5438
@monalisacarey5438 Жыл бұрын
Hello. While having MS while eating does your lip go numb,does inside of your mouth get hot,does the tip of your ears get hot & tingling does it make you not sleep at night & chest pain daily
@argentinarodriguez4170
@argentinarodriguez4170 Жыл бұрын
I have the MS Hug 24/7. The only time I don't feel is when I sit or lie down.
@SharrynToms
@SharrynToms Жыл бұрын
Yes
@mychinapig
@mychinapig Жыл бұрын
Yes the tip of my young has gotten better,but now I can't lick my lips
@RavenRui01
@RavenRui01 3 ай бұрын
multiple sclerosis can cause auditory processing disorder?
@jamesmatheson9624
@jamesmatheson9624 4 ай бұрын
We should all invest to make a robot suit people can wear so the robot suits exercises for us You should see the robots they have It doesn't make sense people haven't made a robot suit we can wear that exercises for us Every bit of pain is related to a lack of exercise because muscle control pain Let's invest together to make robot suits people can wear that exercises for us
@sundaisycake3372
@sundaisycake3372 10 ай бұрын
Please find me a cure.
@carmenbalan2188
@carmenbalan2188 8 ай бұрын
Omega 3 and Moringa
@JanetWark
@JanetWark Жыл бұрын
WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.
@pippa707
@pippa707 Жыл бұрын
I need help need some sporting groups
@rebirthofthecool5619
@rebirthofthecool5619 8 ай бұрын
Depressing dramatisation
@lynettehickman2223
@lynettehickman2223 11 ай бұрын
Why they have to make the music and vibe so scary and overwhelming omg
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