4 Years of MOGAD - Scott's Story #14

[@horatiu2003]

Had a longitudinal myelitis after my COVID vaccine, positive anti-mog. Didn't have any symptoms for 3 years, but recently I had an MRI just to check, and found a small lession and no symptoms. Took suppresive corticosteroids just in case. Thank you for your channel, makes me feel less alone with this disease. Keep up the amazing work!

[@jfjejkejf]

I'm glad to hear news about you again. Congratulations on all the good things that are happening to you. Good luck in your new project!

[@MyMyelitis]

Thank you! You too!

[@dewilong1517]

Hi I’ve been diagnosed with two lesions at C2-5 with myelitis now on a routine mri there is a shadow in my cord near the lesions I’ve had two blood tests anti mog and NMO waiting for the results I really like your videos and also inspired by them however waiting for results is not easy how can I contact you directly Thanks DEWI

[@dilnadivakaran5187]

First of all, thanks for making this video regarding your experience. This is really helpful to those who also face this same situation. My sister-in-law (25 years old) was also diagnosed with MOGAD disease in July 2023. And she is currently taking medicine, mycophenolate mofetil (an immune suppressant). Now she is planning to have a baby, but her doctor advises that it is not safe to get pregnant during this treatment. And she was also worried that if she got pregnant in the future, the same condition would occur to the baby.

[@MyMyelitis]

Hi, I think I responded to your message on Instagram. Hopefully your sister in law has found a resolution

[@supersunshinex3]

Congratulations Scott!!

[@MyMyelitis]

Thank you!

[@raghuram.nraghu8549]

Congrats brother ❤ on your CA

[@__alfonso__R]

Glad to here you recover well.... I was diagnosed last year on the 3 December 😢happend suddenly.. Was hospitalised for 21days after intensive steroids treatment.I was completely paralysed for waste down for about 10days. But my body reacts good on the treatment and it saved me. Currently coping well and everyday is, still a, challenge. Still struggle with my bladder bt also managed to control it now. I would like to know what type off supplements do you take. Cause I am struggle hugely with nerve damage. Which cause mainly shock waves in my body promptly on my right side,from my torso to my legs. Hope 2 hear from nd keep well.. Do belive we can and will beat this🙏

[@chyondas245]

I want to know if this MOGAD, problem will continue forever or will be fixed. I am a MOGAD patient.... Please help .

[@austinjohnson7746]

keep on keeping on brother congrats

[@MyMyelitis]

Thank you, I hope you’re doing well

[@msandvsg]

Thank you for being so open and honest💙, congratulations on your new qualifications 👨🏻‍🎓🧡

[@MyMyelitis]

Thank you so much! I’m glad you enjoyed it

[@han5emn00r]

U can do it!!!

[@MyMyelitis]

Thank you for the support!

[@Skinner716]

Was hospitalized for 6 days for this and had multiple tests done and it was found in my blood. I’ve done IVIG treatments this past week and my eyesight is beginning to come back

[@chixbleau7321]

How is IVIG working for you?

[@102rohanunde3]

Hii bro my father had optic nurities in right eye blurry vision and doctor said mog positive and they give IPCA MMF 500 ( immunosuppression) is good for long time and is any chance in future got attack ?

[@haktaninam4409]

Hello, I have just been diagnosed with mogad. Methylprednisolone and plasma exchange were performed as attack treatment and I recovered. I was told that I will be treated with rituximab afterwards, but I am afraid because it is a chemotherapy drug. Has anyone seen any side effects after this drug?

[@Harsh-z9c]

Please help aal medicine azaron mmf and ivig fail should I try tocilizumab mog + optic neuritis

[@MyMyelitis]

I’ve heard of to tocilizumab working for some people. It could be worth a try if the others have failed

[@xp_bv]

Hello my friend how are you? I have been positive for Mog for a year. I am from Iraq and I am 18 years old. The ratio is 1:1000. Is this disease chronic?

[@AZEZ1_PLATFORM]

تتكلم عربي؟

[@Gravesfam]

I tested positive a week ago and was told today I had mogad. I started my first day of oral steroids today. Legs are really weak. Arms are weak and my vision is really blurry. I have mri scans in 3 weeks to check my spine.

[@MyMyelitis]

Sorry to hear about your diagnosis. I hope the oral steroids can clear some of it up. The side effects are not ideal but it tends to do a great job in reducing inflammation

[@Gravesfam]

@@MyMyelitis thank you. What kind of side effects do you usually notice?

[@Harsh-z9c]

Hello bro my mog titer is 1:10 ( positive) what is its mean?

[@MyMyelitis]

Hello. A 1:10 titre is a weak positive providing it was done using a cell based assay

[@manishYadav-nd3ij]

It is dangerous for people weak positive

[@Harsh-z9c]

Thanks brother ❤

[@Ane127]

Get a homeopath.

[@MyMyelitis]

What type of homeopath do you suggest?