MOG Antibody Disease (MOGAD) & Fatigue - Ignition Survey #2 RESULTS!

[@WiLdTiger1951]

Interesting information. I have fatigue so intense i barely have the ability to do the minimal activities to maintain life. I have been diagnosed with Myasthenia gravis long ago. I noticed the treatments are the same. Is there a connection? Have you heard of Rystiggo treatments? I've been referred to have it. I can't find anyone who's had or are involved in having it. I have a hard time sleeping but can't stay awake either. It's good you are getting this information out. It is sad you don't have more views.

[@MyMyelitis]

Thank you for your comment. I haven’t heard of any connection between MOGAD and Myasthenia Gravis. Rystiggo is the brand name for Rozanolixizumab, (often shortened to Rozimab). I heard about it being trialed in Myasthenia Gravis when I was researching to make a video about the clinical trial of the treatment in MOGAD in 2022. You can find the video about it here - kzbin.info/www/bejne/Z2LRn4Ckdq6pY6M I’m glad you found the information useful. MOGAD is still an emerging condition but a lot more people are being diagnosed so I’m expecting the views to grow over time.

[@littlevoice214]

Thank you so much for the info!

[@MyMyelitis]

Thank you for your comment! I’m glad you enjoyed the video :)

[@patgambino1420]

I have mog antibody disease and had transverse myelitis optica. i would like to chat with people about this. i am in canada.

[@MyMyelitis]

Have you checked out some of the support groups for MOGAD? Mymyelitis will also be launching a community very soon too!

[@patgambino1420]

I would like to join it. Thanks

[@itzAnkitpandey]

Hey Scott how to manage fear from anti mog ,are you too thinking about your mogad

[@MyMyelitis]

Hey Ankit, I do think about it but I think I have good plans if another attack was to happen so I don’t worry about it. Make sure you know what to look out for and have a plan if it happens. If you are prepared then I think you will worry about it less. I might make a video about this in the future!

[@itzAnkitpandey]

@@MyMyelitis ok Scott thanks

[@jismisajan1046]

Hii sir

[@MyMyelitis]

Hi Jismisajan1046!