84. CFS / CVS - Dr. Byron Hyde

(For English description, see below)
In dit college behandelt Dr. Byron Hyde de volgende vragen/onderwerpen:
0.13 Wat is CVS?
2.34 Waarom moeten de termen ME en CVS worden gescheiden?
5.24 Wat is SEID?
7.52 ME; myalgische encefalopathie of encephalomyelitis?
Disclaimer: Deze video bevat geen diagnostische of therapeutische informatie over uw eigen medische situatie. Dit kan nooit ter vervanging dienen van een persoonlijk consult. De eventueel door de spreker genoemde medicijnen noemt hij op eigen verantwoordelijkheid. Leg vragen, klachten of symptomen tijdig voor aan uw behandelend arts. (Lees meer op www.wetenschapvoorpatienten.com)
English:
In this webinar Dr. Byron Hyde talks about:
0.13 What is CFS?
2.34 Why separate CFS from the term ME/CFS?
5.24 What is SEID?
7.52 ME; myalgic encephalopathy or encephalomyelitis?
Disclaimer: This video does not contain any diagnostic or therapeutic information about your own medical condition. It can never replace a personal consult. Names and trademarks of drugs and application(s) of the same which the speaker may refer to, are referred to at his/her own responsibility. Notify your attending doctor in time about any question, complaint or symptom you might have.

[@erikjohnson4275]

As an Incline Village survivor and original prototype for Holmes CFS, I can vouch for this. Dr. Hyde speaks the truth. This is EXACTLY how it happened, and why the syndrome has the dumb name.

[@rosacelabi]

Thank you so much, doctor. What you say here makes so much sense. Even the "good" doctors don't seem to thoroughly explore my case. I read all the articles and often seem to know more about the latest research than they do.

[@christinacooper5627]

Why isn’t the whole world listening to this!! The answer is greed!! I am an RN struck down by what I later found out is ME. On 12/24/09 I got the flu while working full-time and living in Carlsbad, California. I was very healthy, routinely bicycling 200 miles a week for fun! I kept telling the doctors there’s something wrong with my legs- they feel so heavy I can barely lift them and I suffer terrible pain mostly there, but over my body. I literally said it feels like I have Parkinson’s my brain tells my legs to move, but the response is delayed! I also had severe photophobia, A sore throat that lasted for eight years and brain fog so severe I couldn’t even read or follow a television program along with a multitude of other symptoms! Not one single doc could tell me what was wrong! It took two years of my own research to discover a condition called ME and I literally shouted out loud-“ oh my god, that sounds exactly like what happened to me!“ I remain homebound to this day getting from the bed to the recliner still struggling with pain and brain fog though not as severe as it was initially!

[@ryanneilcarr]

Yeah its enteroviruses

[@ryanneilcarr]

Yeah they cause rhombencephalitis, limbic encephalitis, meningoencephalitis, encephalomyelitis, meningoencephalomyelitis.

[@JudyNunya]

You get to listen in English folks despite the initial impression

[@ryanneilcarr]

Hes done nothing but good. Whilst CFS (ME/CFS) researchers nothing but harm.

[@erikjohnson4275]

Everyone on Earth thinks they get to say "what CFS is" All to the exclusion of actually looking into it. In short, the entire medical and research professions are utterly insane.

[@erikjohnson4275]

Dr Hyde "almost" made the cut. He outlined how people were failing to come back to get the facts. But fell short. He didn't do it either. So close, no cigar.

[@MP-uo6qd]

@@erikjohnson4275 Well said. You are a hero. From the UK

[@erikjohnson4275]

@@MP-uo6qd The injustice of what the medical profession has done is unbearable. I can scarcely believe that patients have not united to overthrow the architects of medical malevolence.

[@ryanneilcarr]

CFS was based on a disease in which they didnt know what it was (its a "definition based" on a mix of EBV and EV symptoms) but knew a proportion had reactivated EBV. If you have your brainstem cracked in by an enterovirus you have had enteroviral rhombencephalitis usually. If you had encephalomyelitis by an enterovirus you have M.E.. Its very straight forward. CFS is misdiagnosed or undiagnosed illnesses. CFS then became related to the PVFS after EBV online. Its not related to M.E.. There is no such disease as ME/CFS, MEcfs or CFS/ME or SEID for that fact.

[@erikjohnson4275]

@@ryanneilcarr Your information is not accurate. The CDC's hypothesis for a spreading phenomenon of chronic mononucleosis was a mutant form of EBV. As told in Osler's Web, the CDC was forced to abandon "CEBV Syndrome" when Dr Paul Cheney demonstrated that EBV wasn't inherent or even present in the Lake Tahoe Mystery Illness. Necessitating a replacement syndrome which did not incriminate EBV. The CDC allowed people to remain in confusion by failing to make this clear.

[@dirkkatz172]

edereen kan genezen van CVS als ze hun microgolfoven buiten gooien, tenminste als het echte CVS is. Dus niet alleen vermoeidheid, ook: slechte vertering,slecht slapen met nachtmerries, depressie,zere keel, spierpijnen,...na 3 maanden weg

[@StartFromScratch1]

@Dirk Katz oh please ! I dont even HAVE a microwave and I got ME 6 yrs ago, from a stomach bug, not a microwave! listen to what hyde is saying here instead of spreading fairy tales.

[@ryanneilcarr]

@@StartFromScratch1 yes thats M.E.