🩸A Diagnosis & A Game Plan

[@rosennahickman6511]

I did not realize I had celiacs disease until my late 50’s and one of my symptoms was anemia. Gluten is such a trigger for autoimmune diseases. I wish more people realized this. Best wishes on your search for health. ❤️

[@prettybirdbeenlpeacock6592]

1st thing I thought of. That’s how they started to look into my brothers eventual diagnosis of Celiac disease. He was suffering “pica”. Eating ice constantly. That’s a sign of anemia. Then they decided to do a really deep dive into his intestines.

[@deeseiffer]

@@prettybirdbeenlpeacock6592 I ate ice for years. I was anemic from Hashimoto's (another autoimmune). They ruled out Celiac (my niece is Celiac) for me, but I still can't eat gluten. Just had a completely miserable day yesterday because I ate something I didn't realize had flour in the sauce.

[@martiriggs2003]

My sister was diagnosed with Celiac at age 68, but for at least 10 years her dr was treating each of her symptoms as individual problems, one was anemia. She had almost every symptom on the list and I can not understand how her dr missed the big picture. As for myself, after eating keto and low carb for several years I have developed a sensitivity to wheat/gluten where it causes ear problems. My sister had a rash that she was treated with methotrexate, giving her diarrhea for over a year. She was completely misdiagnosed.

[@KH-vp4ni]

yes and celiac is cross contamination too not just straight up eating gluten so a lot of people don't get better eating gf but that's vc of cross contamination

[@rosennahickman6511]

@@KH-vp4ni Absolutely!! It took me so long to learn that for my daughter without internet in the 80’s!

[@haleyjulian2659]

My mom was diagnosed with lupus in her 30s with crippling joint pain and suffered for 4 years. She was able to go into remission with a clean diet, and has been in remission for 25+ years. I have no doubt that whatever the final issue is, you will overcome it.

[@shirleycastle5170]

When a person has been sick for so long you think you feel fine until you get on the right track and you feel way better you realize how awful you did feel. You just get used to feeling a certain way and you get on with it. I'm pleased for you that you and your doctor are on the same page, you will soon start to feel like a million bucks. Good on ya!

[@michelesteward5170]

So true. I suffered for years, but didn't know how bad off I was till I started feeling better👍I have autoimmune Sjogrens Syndrome (which is Lupus like including the face "masking")

[@organicfireorganicfire1236]

@@michelesteward5170 look into Andreas moritz liver flush

[@denisec6577]

You are a Super Hero, accomplishing all the things that you do, while experiencing extreme chronic fatigue at the same time. I can’t even imagine what you will be able to do when you recover your health!

[@olderpennsylvanian-op2368]

So glad you have gotten some answers and believing with you that the infusion makes all the difference and everything stabilizes. On Livestrong site they have eggs in a list of foods that can inhibit iron absorption and that was a shock for me that it was first on their list. "One boiled egg can reduce iron absorption by as much as 28 percent" We eat a lot of egg and egg products on keto/ketovore and it made me wonder. Best wishes for full restoration!

[@loispride6201]

I am 70 and was diagnosed with Lupus when I was 32. My outward symptoms have been mild and I took prednisone along with Plaquenil for many years. No kidney involvement. I have also been researching and trying to live a healthy lifestyle for many years. We do the best we can with what we know and understand. It's okay cause nothing we do will be 100%.

[@lauriecarlson4672]

Very true! Nothing will be 100%, unfortunately. I suffer from a very rare neurological muscle disease called Stiff Person Syndrome. It's a longgggg haul to live with this on a daily basis! I will admit the warmer weather helps to keep my muscles feeling better rather than the cold weather, and yet I continue to live here in Michigan with longggg winters! Ughhhhh! I am realizing more and more a warmer climate to live in would be VERY helpful for me living the rest of my life with this disease! Too bad ALL my relatives and children are here, though. It would kill me to move away from them! However, if I could feel better on a daily basis, it would be worth it! Dr Berry says once you have a neurological disease, the chances of reversing it are about impossible. I WISH we had known about Keto/Ketover/Carnivore DECADES ago! My first symptoms did start in childhood, as I look back, but no one would ever have guessed it was Stiff Person Syndrome. It causes the central nervous system in my body to go haywire and my muscles body-wide spasm out of control. I will have GREAT days, especially in the summer, then I do something STUPID such as wash the two cars we have as I did yesterday, and today I am paying dearly!!! HATE that part! However, in the same breath, I 'was' bed bound and fought to get up and out! HUGE success there with the proper medications to help me along! No, there is no way to avoid the medications, but thankfully they are such older medications that no one makes money on them, including Big Pharma! For that, I am grateful!!!

[@theketovillagee]

I have lupus .. This was my entire reason for doing strict gluten free, strict keto way of life ❤️. I hope you can find your happy spot with the help of your doctor and get it all managed.. Sending hugs.. It’s a lot to digest at first … Typing this from ketocon ❤️

[@vickif1419]

In 2018, before keto, I was diagnosed with anemia and had to have an infusion. I could barely walk across the room without hanging on to the wall. I think my level was 5... They actually did one infusion and I had to go back the next week for a 2nd one. That was in December. In January, I started keto. I can't believe how much energy I have now! It's really amazing that I could live feeling so awful 😞 I get tested every year and have not needed another infusion since. I'm praying for you 💕

[@loispride6201]

Be kind to yourself and continue your journey with a happy life. I wish you well.

[@doggoneme3863]

I sure hope your feeling better quicker than 6 weeks. Prayers for you and your family. Glad you got the tests and now off to a good start for healing.

[@Veronica_V_VSG]

I’m going through the exact same thing. I’ve had iron infusions for the couple of years. I’ve been thinking of carnivore but been lazy. I think it’s time for the change. Thank you for keeping us posted.

[@lauriecarlson4672]

Congrats on really digging into your own blood test results and getting the idea you are where you're at and being able to have an OPEN Dr who really listens to you! THAT is GOLDEN!!!! And few and far between to come by!!! I am STILL looking for a GOOD doctor who is willing to be open and dig deeper along with me! I'm VERY happy you have found an answer and hopefully, things will get better for you!!! WE NEED YOU!!! Lol!! Seriously, YOU are brilliant!!! And you have a wonderful spirit!!! I so enjoy ALL your videos, cooking, Wellness Wednesdays, daily farm life and so many more!!!!! YOU have really influenced my life with the bread recipes as well as others and in understanding how different ingredients work well together or not! WOW!!!!!! Thank YOU!!! Here is to healing!!!!!

[@ameliacarey3315]

I have had 2 iron infusions. My hemoglobin was 7.9 (very low) and iron was low. I am diagnosed with crohns. I also had to do an occult blood test and it came back positive. I'm doing better now. I hope every get better for you.

[@randyhalvorson3060]

Hang in there. My daughter has sjogrens and lupus. Her liver is affected now but her liver specialist told her no meds for now because she has a very healthy lifestyle. I’ve had lupus for years and have infusions for it. Luckily now there are 2 FDA drugs for it when none existed until 2011. But, more and more doctors are talking about lifestyle first with us and there’s a wealth of information available that didn’t exist when I was first diagnosed. I love your Channel, keep up the good work.

[@karenh5985]

Keeping you in my prayers. The iron infusion will definitely help. If, “IF”you have lupus I pray God directs your path each day to better health. 🙏 My niece has had lupus for many years. She’s running marathons and doing great.

[@judybeckner6559]

I will keep you in my prayers. ❤️🙏

[@sarahthomson8183]

I so feel for you. I've been dealing with major health stuff the past year and struggling to get a proper diagnosis. You're doing a phenomenal job at keeping yourself healthy. Thank you for sharing this. ❤️

[@tamitarekolayan9918]

I’ve had Lupus for 30+ years now. Because of my keto lifestyle I’ve been able to stay in remission for long periods of time. Before keto I was bedridden and became legally disabled. I always wondered if your rash was autoimmune in nature. If you have any questions please DM me. Best of luck! 💙

[@robbielouise]

I have been anemic all my adult life,I am 73 now. Doctors always said I must be bleeding internally, um really all these years doc? So, I finally asked my doctor to send me to a hematologist. I was diagnosed with thalassemia, an inherited blood disorder. My blood cells are so tiny it looks like I am anemic when actually I have too much iron. So, because it makes me immune compromised, it explains when I catch a cold they last for weeks.

[@lz7594]

I was diagnosed with the same thing, I ate liver at least 3 times a week and within less than 2 months I was back to normal levels.

[@censoredeveryday3320]

What kind of liver?

[@prettybirdbeenlpeacock6592]

My mom ate beef liver. We all had to eat it when she cooked it and it nearly made me vomit as a kid! I went to bed on the veggies and fruit that went along with the liver.

[@a.macdonald4877]

It's the copper....Morley Robbins has discussed in interviews that no one is ever deficient in iron(there is always plenty of iron stored in the tissues) your just not able to utilize it due to a malabsorption issue...About 90% of copper in the blood is bound to ceruloplasmin, with the rest bound to albumin and amino acids. Ceruloplasmin oxidizes (removes an electron from) iron absorbed from the gut and stored in the tissues so that it can be transported by transferrin (the iron transport protein) and eventually used to form new red blood cells. Less copper means less ceruloplasmin, which means iron can’t get shuttled where it needs to go to make hemoglobin..

[@jbob1548]

@@a.macdonald4877 So how do we unbind the copper/make the copper usable?

[@lz7594]

@@censoredeveryday3320 usually I go for veal liver which is always milk fed in my country (Qatar) and sometimes I do lamb which is almost always grass fed everywhere in the world unlike beef. I rarely do beef liver at all.

[@cindydemanche3839]

Hi Nili! Hang in there, my oldest sister had severe low iron for years, had gotten iron infusions over the years. Now she takes iron supplements and is doing quite well!!

[@kennethshimabukuro6]

Praying for you. Hope your treatment goes well and that soon you will have a clean bill of health!

[@colleenkenney7146]

Also explore Pernicious Anemia. My daughter-in-law has it and was misdiagnosed for years. She doesn’t absorb B12 through food and has to get injections. She already suffered nerve damage.

[@Courage10.18]

Praying for discernment for both you and your doctor. Actually your whole family. Your determination to be your healthiest will serve you well. Please please have grace and compassion for yourself for what you “missed”, which I think is not really true. You haven’t known something wasn’t right and you have been doing all the things. Do you have any idea how HUGE that is? You are a great partner to your doctor. I’m sure she wishes more of her patients were like you. You and your family are precious. I always look forward to spending time with you and learning from you. You have taught me so much about investigating my own health (3 year 9 month stroke survivor)

[@IndigoNili]

🤗❤️🤗

[@Lauraj36]

Stay positive. I'm glad you are getting information. Prayers.

[@syndimail]

I asked on the previous post about your GFR levels. My mom started out exactly where you are. She went from iron pills, to iron infusions, then blood transfusions, to bone biopsy, to completed kidney failure all within a 2 year time span. All of her doctors were not paying attention to all of her levels including GFR levels, therefore she was not correctly diagnosed with Myeloma (cancer) until it was too late. If you catch this EARLY, there is a good chance of recovery. She did not catch it early enough and passed away last August. If my bad experience can help anyone, I wanted to at least share to better your odds.

[@deeseiffer]

I'm so sorry you lost your mom.

[@nancy9478]

Myeloma is hard to diagnose, my father in law had mutiple myeloma. It was so hard. You have my sympathy.

[@susanvanduyn2811]

Nili, thank you for sharing your journey. You can tell by the comments you are helping others.

[@Beachheals]

So glad you have a path to follow! And Dr Berg recently did a video on low copper being associated with low iron that may be interesting to you🥰

[@thewellfedhuman3043]

I love your doctor. Sounds like a solid POC!

[@meletiawike3766]

I thought the same thing

[@zman3463]

I'm having my first iron infusion now. Take it one step at a time! ❤

[@edgardodelgadolebron]

Be well 🥰🙌🏻

[@dorriejunior4426]

Retrospectively everything is always clear. Lots of the symptoms of anemia are nebulous and can be symptoms of many other things. Don't beat yourself up. Lord knows your life is hetic enough. Be peaceful and well...know this too shall pass and you will do what you need to do to be well. Read about discoid lupus which is limited to the skin.

[@DonnaIzzy02]

You should really look into Morley Robbins. He speaks of anemia..and what to do. Morley is definitely eye opening and you can learn a lot about iron and what to do. Best of luck on your journey..and keep us up to date! Wishing you all the best!

[@lisaketo-mimi8]

Sending you prayers ❤️🙏🏻

[@heathy1364]

Hi Indigo, my name is Tanya and I love your channel. When I heard your story about your test results, I almost fell over. I have been keto for almost 3 years and lost 30 pounds which was a little too much so I have gained back 10. I mostly felt better until I started having extreme fatigue and other symptoms; I was never eating as much protein as you but my ferritin came back as 2 (Alert low) and low somewhat low Red blood cell count and a few others; I also had the ANA + result just like you. Anyway, I was diagnosed with Iron Deficiency Anemia and had 3 Iron infusions 1 week apart each. They weren't bad but I didn't feel better and the nurse explained that it takes 4 weeks after the three infusions to start feeling better. Then I went back after those 4 weeks and my levels were up in the normal range but the doctor said it could come back so I see him again (a hematologist) in late August. I am older than you, but I could also have lupus; so they are checking me for that. I have increased my meat intake with chicken and fish mostly. I am not a big red meat eater, but now I try to do red meat one time per week at least. We will see what happens. I got a supplement too, but am going to look at the one you have. I hope you get better soon and thought it was odd that we have the same test results.

[@BartonKashmer]

We all have our own tunnel vision...in everything we do...work, life, family, friends...it's ok to have that tunnel vision, but recognize when people try to pull you out of that tunnel vision!

[@wealthychickens]

I started following you when you were doing THM. I had been searching for many years to find something that would help me with the many symptoms I was experiencing. I thought THM might do it but it didn’t. Not too long after that I was finally diagnosed with an autoimmune disease and started the Autoimmune Protocol (AIP). It has changed my life. Still tweaking my eating but I have my life back. It’s amazing.

[@karenbelonoha8853]

Praying for you Nili🙏🏻🤗

[@srezzy1326]

Please don’t beat yourself up, like you said. There are millions of us with health issues. Myself with autoimmune, biotoxic mold illness,etc. I feel like death 4 days a week, my good days I just feel like shit! LOL, so used to feeling awful....I joke if I started to feel well I might need to check myself into the hospital, cause something isn’t right! Very sad really. 😥 Godspeed on your iron levels, praying no lupus for you.

[@jupitergirl9276]

Maybe 2nd/3rd opinions with Ken Berry and /or Dr Boz for next steps? Your situation reminds me of the Jack Palance character from City Slickers….what’s that ONE things. Only you will know. 😀. You’re a great role model!

[@myheadofhair]

Being anemic tends to be all too common these days. I was anemic as well and I wasn't absorbing iron well, I fixed my gut health and started eating liver about 2 ounces a day for a little less than a few months. No longer anemic.

[@risasklutteredkitchen1293]

Thanks for the medical update. I hope it isn’t Lupus. I’ll keep my fingers crossed for you.I have also had some symptoms of iron deficiency over the last few months. I started to take iron tablets and they seem to be helping with some of the symptoms. I may go and get my tests done too, as my husband has been bothering me about that for awhile. It may get to the bottom of some of my symptoms.

[@MyCarnivoreKitchen]

I’m glad you found a doctor is investigating and helping you. Definitely don’t beat yourself up. I was diagnosed with lupus over 4 years ago after years of being diagnosed as an aging woman. If you want to talk about the lupus symptoms, feel free to message me. I have a lot of symptoms that I never would have guessed related to the lupus in anyway.

[@lauriecarlson4672]

I HATE how doctors blow us off because we are women! That IS what they do! Their favorite thing to say is, 'it's all in our head'! Grrrrrrrrrr!!! Well, in my case as in your case, it was NOT all in my head! The initial doctors who treated me for the extremely rare neurological muscle disease I have called Stiff Person Syndrome BANNED ME from EVER seeing ONE of their doctors out of any of their offices, and they practically are the entire community of Primary Care Physicians!!!! They thought I was medication seeking and making up ALL my symptoms! Yeah, like I would 'want' to be stuck in bed or in the wheelchair I needed to get around??? HA!!!! Far from it! That makes me so angry when I look back at that time of trying to figure out what was wrong with myself! Now I am so HAPPY I took the bull by the horns and did a TON of research and went to a specialist for a diagnosis of what I really did think it was! NOT ALL the other diseases those bad doctors tried to diagnose me with! NONE of the symptoms ever touched on the severity of the muscle spasms I had, which was crazy! The specialist KNEW just by looking at me as he walked into the room exactly what I had that was wrong! Thank goodness I did ALL the work I did to figure things out on my own, or at least get to the point where I felt ALL my symptoms matched completely with that disease! I NEVER said a word to the specialist of what I 'thought' was wrong . . . I let HIM decide what was wrong! I was right! So I take life day by day. That's all we can do! A HAPPY day by day!!!!

[@MyCarnivoreKitchen]

@@lauriecarlson4672 Exactly! They are so quick to dismiss us and it’s even more offensive when it’s coming from a female doctor. I was told I was fine and that my symptoms were psychological. It wasn’t until I went to ER with eyes swollen shut, four different types of rash on my face and struggling to breathe that they finally started investigating. I’m sorry you’re having to deal with all of that but relieved you have a diagnosis and treatment plan.

[@judyduran2306]

If anyone can conquer this, it's you! I have great faith that you are soon going to be feeling better than ever! Since I'm also taking Athletic Greens, I'm curious what the doctor thought about this supplement? All the best.

[@viannehiggins8610]

Sending "good vibes" and prayers your way

[@tinathomas2395]

Sorry to hear you are having issues. I was originally diagnosed with Lupus SLE, but since eating lower carb, it was changed to mixed connective tissue disorder. Was told I no longer have enough inflammation for Lupus, but I am still working to get my numbers back in the normal range.

[@joelyisdoingherbest]

This is eye-opening. My iron was also really low and Dr. Cywes put me on iron. It’s up and “normal” but not great. We’re keeping me on it for now. Thanks for sharing this!

[@kendramccabe1054]

Autoimmune disease/inflammation, low iron are all part of my health journey. I've had iron infusions. Although I see an Internal Medicine Dr and endocrinologist, I really have to be an advocate for my own well being. Thank you for sharing - I feel better prepared to use the correct terminology to communicate my needs with my health professionals. Best wishes!

[@eagercrafter_9014]

I'm so sorry that this, but I am glad that you are finally getting some answers. And do not feel bad, we are not doctors and even the doctors do not always know. We all go through these types of issues much too often.

[@pulserogers]

I feel like you are telling my story. I am literally going thru all of this right now too.

[@HollyAZ]

Best of luck figuring all this out. Thank you for sharing and teaching us how being educated and advocating for yourself is so important.

[@sandy-mr5gj]

keep us informed, wishing you the best outcome!!!

[@crochet18burple]

My mom has this, about 4 years ago had to take her to doctor as she was feeling rough. Her blood was 3.2. They called an ambulance and she required 2 units of blood and an iron infusion. She takes iron twice a day and no problems since. Stay on top of this

[@synergyb3926]

I’m very happy that you are going to get an infusion. Your doctor is right about it taking a long time to increase ferritin using supplements. Starting at 7, it took over a year to get into a normal range - not even talking optimal. Thanks for the update!

[@CarnivoreLeo]

My daughter also diagnosed with anemia this week. I think she also is getting an iron infusion. She was always cold and tired. Praying all goes well for you.

[@maryholt3340]

My husband had to get iron infusions several times because of his low iron levels too! They really helped him! Dr thinks his hiatal hernia bleeding caused this? Praying the infusion makes a big difference for you! ❤️

[@articowl2]

I’m so glad you have a diagnosis. Both my sister and I have had iron infusions and we both felt so much better. I’m sure you will too. I’m happy you have a plan. 😊

[@starfire8221]

Happy you have a Diagnosis so you can work on healing it.

[@charlotteforrester3118]

I had to have an iron infusion. The infusion itself is nothing to worry about. Once I had mine it was about three weeks before I started to feel better. I hope that you have great success with it. ❤️❤️❤️

[@ilovstodance]

hope well with your health Indigo

[@silvermoon3486]

Very interesting 🤔. Nice 👍🏼 to know all this. I have issues u have. Need more test 😊❤️☝️

[@amandak1471]

I have been binge watching all you videos and came across this one. I wanted to share my experience as it may help you and many others suffering with SIBO and Iron Deficiency Anemia. I have had iron def for 10+ years and have had to get yearly iron transfusion because of it. Fast forward 10 years later and after I got sick of going in yearly for transfusions (hair falling out, headaches, blur vision, foggy brain) I started doing my own research/biohacking ( I got sick of doctors not knowing the answers or telling me it was because of all my abdominal surgeries) and found that constant SIBO overgrowth also plays a role in eating your minerals. After a year of adding supplements to my diet ( I get my labs drawn month to track my iron, ferritin, b12) and I was able to keep my numbers elevated I knew I was on the right track. I take a Methylated form of b12 liquid once weekly (big dose) to start which did keep my numbers where they are suppose to be however, I also came across more research that says you could also be low in Vit A and copper. I have since taken these supplements and have not needed Iron transfusion in 3 years. I share my story to help others not have to go through the same hell I've been through in regards to this.

[@prettybirdbeenlpeacock6592]

Thanks so much for sharing this latest hiccup. I’m so glad that you are being able to get this taken care of with the iron. Now you need to push to see why this has happened, especially in light of prior low ferritin levels.

[@alansawesomeketoworld4612]

Hope everything works out for you. It's amazing to me still how little we know about the human body still.

[@karenhoff5548]

Sounds like you have a good doctor. It will be interesting to see how you feel in 8-12 weeks from getting the infusion. I know you’ll keep us all updated. Have a good weekend with the family. 😘

[@deeseiffer]

I feel for you. I had anemia for decades because I have Hashimoto's (autoimmune version of hypothyroidism). It made my cycles super heavy. I'm 64 now, so menopause solved that problem. ;-) Before menopause, I took hormones to control my cycle. During M I started thyroid meds. After losing 70 pounds on Keto last year, we're starting over figuring out the correct dosage of thyroid meds. Fatigue will be a way of life for a while until my body adjusts to ever lower dosages. I hope you get everything you hope for from your diagnosis and treatment.

[@rebageorgiadis3861]

I apologise in advance if I am out of line here. I was looking into buying some of the Athletic Greens. Then I read a review where they state that soy is one of the base ingredients. I guess all of the shakes have to be based on something. However, in light of your recent vids, I remembered something about soy and iron absorption. From a .gov website: The soy products tested in this study have a pronounced inhibitory effect on the absorption of nonheme iron. Just thought you'd want to look into this. hope that you feel better after your infusion and going forward.

[@jbob1548]

Thanks for sharing Nili! Hopefully you can get the infusion soon.

[@stacyhackney6100]

Feel better

[@lavellnutrition]

I had symptoms since I was a toddler and it took 57 years for me to get a diagnosis. Don't beat yourself up. Just keep searching and researching....you're smart and you'll find the answers you're looking for. Do you see a Functional Medicine Practitioner?

[@hanlinc1]

Following up on my own labs as I had some (few) low readings. I wanted to cover them and want to have my doctors approval on taking Iodine and help out with my sleep issues. Grateful for you and all you have shared, Praying for you with all my ❤️ . Love your beautiful family!!! 😍

[@jbob1548]

Sleep issues recommendation?

[@hanlinc1]

@jBob after having third child and visiting the chiropractor, telling them I couldn't seem to get my energy back and not sleeping well. They offered me a bottle of iodine and to see if I felt better in a month and if not have my iron checked. I ended up trying melatonin and it helped for a while but has stopped. Being low on iron(folate) can cause a lot of problems including sleep and so much more.

[@denitam917]

Thanks for taking us on your journey. I'm curious to see how you feel after the infusion (after the six weeks). I wish you all the best in your health!!

[@irishpixierose]

Glad you are getting answers. You mentioned a list of things you wanted to be tested for. Is that in addition to things your doctor wants to test? Glad to hear you keep on top of your health and share your insights with your doctor.

[@nancylemieux8058]

What does your doctor think about the MTHFR gene mutation...is she treating that too? ANA positive may be just a false test due to other things going on possibly? Your positive attitude will see you through because you are determined to strive for good health! Keep on it!! Prayers for a good Iron treatment for you!! 🙏

[@justpassinthru]

blessing that you're already carnivore 💜

[@valerieherrington3124]

I have Crohn's disease and have to get iron I fusions because of lack of absorption issue. One thing that lets me know I am low is to crave eating ice. Some of my ifusions take 7 hours. Hope all works out great for you.

[@jillmerriott9694]

My dad had iron infusions, it takes a couple of hours to do but it was an easy procedure 💜

[@lindaa1367]

Don't beat yourself up......remember your disclaimer.....you are not a doctor, or a health care provider! You had now way of knowing this!

[@TracyKMainwaring]

I just watched your video from 2 days prior and thinking you have great skin but quite the pinkness and actually wondered if you had Lupus. Nocturnal bathroom trips! I need to check out that product you mention! Wow!

[@TracyKMainwaring]

I don't think I see it in the video description

[@TracyKMainwaring]

Found the website... but there's so much to choose from. Can you share which you use?

[@wanderingwhitley6746]

Have you looked into fungal/mycotoxin issues in health? I lived in the PDX area for years and my daughter was always sick, low iron and other issues. We moved away to the tropics a few years ago and she wasn't so sick here. After working with a homeopath and doing alot of my own research, seems her issues are mycotoxin related. I have realized that most of my life long health related issues are black mold and candida issues. I'd look into that if i were you.... Lupus could very well be a fungal "disease". The PNW is full of old moldy homes and it's an issue most don't know about.

[@kimberlyfrank8729]

I had ferritin that low around 10 years ago and also received iron infusions. I've since resolved it by treating SIBO and low HCl, as well as eating mostly beef (ketovore). I've had hashimoto's since my early 20's which caused the IBS, but I have since discovered a genetic disease which causes systemic inflammation and autoimmune antibodies. I spend a lot of time troubleshooting my own chronic health symptoms and love doing it for friends as well (I find reading medical journals fun), so please let me know if you'd like some help working through your symptoms!

[@NavyWife]

Did your Doctor also test your levels for your other vitamins and minerals? When I found out that I was Anemic I was also diagnosed with being deficient in B12 and Vitamin D. Monthly B12 injections did not increase my levels, but taking a 2500mg Sublingual B12 tablet that I ordered from Amazon increased my levels quickly. Best of luck to you.

[@asielb]

Maybe reach out to Kristie Davis that has the You Tube channel. She gets Iron infusions for years. Always helps to compare notes.

[@maryflynn1951]

What are these lab test called, I've never had this kind of bloodwork, I'm 71 and I have psoriasis of the toenails.

[@vintagegirlsforever]

I've had low iron low idonine and anemia most of my life.. carnivore helps alot and the carnivore grass fed beef organs.. and i take the infusions as well.. but me..because of no gall bladder etc I don't up take as much as I should so that's why I do both.. I've taken the infusions since age 3.. I'm glad they make them now..last longer than going monthly.. I don't knw if i will ever knw what it feels like to work w a normal ...reading.. but any way hope you will get some deeper answers...and a great doctor.. and that you start feeling better. I hate feeling like death..warmed over.

[@helpingyou3773]

Hold on, a previous video stated your iron & ferritin counts were so low and has been for years, yet the doctor(s) didn't help the situation back then? Don't be upset for not knowing what was going on. That was for the "educated" doctor to flag and correct. long ago. And that's why I don't fully trust healthcare. I'll figure it out myself. Eventually, I have taken care of my gluten and stomach issues by "accident" by researching myself. Now I can eat almost anything, compared to when I was under a doctor's care and she gave up trying to find the answer. 🎓🎓 Keep your intuition at high alert no matter what.

[@cjojay]

Personal question but if you have heavy menses, that could be a cause, and a reason why women are at higher risk for iron deficiency anemia than men.

[@jennywagner2448]

always better to know than not know because now you can deal with it... you didn't mention if your doctor had any idea about the mechanism by which your body doesn't metabolize or make use of all the excellent iron in your diet? it's funny how sometimes we don't even know we're not feeling well until we feel so much better which you will no doubt experience very soon!!!

[@hollyhock3945]

My husband had to get an iron infusion. It was A-MAZ-ING to watch his skin get color within 15 minutes of starting it.

[@Terri_in_Cali]

I had 2 units of blood then infusions, then went to supplements and a B-12 shot every month. I had iron deficient anemia and if I’ve been doing this since diagnosed 8 yrs ago. When I lower my supplements my iron starts trending downwards. They were at 7 and now holding at 14.

[@CreativeHomescaping]

I hope the iron infusion works for you. Symptom creep can definitely cause us to not see the issues we’re experiencing.

[@amie8014]

I have iron deficiency anemia too. Ferritin is 5. 😬 it’s an uphill battle trying to remedy this problem.

[@a.macdonald4877]

Hi Nili...are you familiar with Carnivore Yogi(Sarah Kleiner)? she did a two part video series with Morley Robbins and in this he talks about the problems with anemia...I really suggest these videos, very eye opening.(the Ferritin test only tests iron in the blood, not the tissues) to test the iron stored in the tissues it is a invasive tissue biopsy. The problem is a malabsorption issue caused by low copper levels which are needed to use the stored copper

[@a.macdonald4877]

PLEASE< PLEASE look into this before getting a Iron Infusion

[@a.macdonald4877]

I know people whose health worsened after an iron infusion...Morley Robbins has discussed in interviews that no one is ever deficient in iron(there is always plenty of iron stored in the tissues) your just not able to utilize it due to a malabsorption issue...About 90% of copper in the blood is bound to ceruloplasmin, with the rest bound to albumin and amino acids. Ceruloplasmin oxidizes (removes an electron from) iron absorbed from the gut and stored in the tissues so that it can be transported by transferrin (the iron transport protein) and eventually used to form new red blood cells. Less copper means less ceruloplasmin, which means iron can’t get shuttled where it needs to go to make hemoglobin..

[@stephaniesimmons0723]

I tried to find the interview you are speaking about but couldn’t. I’m also anemic and would like to watch. If you don’t mind could you please share the link? Thanks!

[@a.macdonald4877]

@@stephaniesimmons0723 kzbin.info/www/bejne/p33IXmaAg9BmirM

[@a.macdonald4877]

@@stephaniesimmons0723 there are two parts one in September & one in October kzbin.info/www/bejne/r6queICrl82afrs

[@cack121]

I know this may sound silly. But did you get your blood work done during or shortly after your period? There is actually a such thing as period induced anemia. My doc took my blood work and my numbers were so extremely low that they wanted me to get infusion as well. I was so thankful that I declined. When I saw my OBGYN and told him, he redid my blood work mid-cycle and low and behold my levels were fine. He put me on a regimen of double dose iron supplements while menstruating and normal dose when not. Now that menopause has hit and I no longer have a period, I dont have to take iron at all. May be worth a second blood test

[@Spuentecful]

👋🏼 hey I have heard that BAackstrap Molasses is a great alternative to pills and such.

[@jenniferyoung7542]

Which Relyte supplement did you use to stop having to go to the bathroom in the middle of the night?

[@IndigoNili]

Just their basic re-lyte electrolyte mix. There are lots of flavors and they're all good! Here's my electrolyte video where I share more of my story: kzbin.info/www/bejne/op2cnIKwr7KmjqM and here's a link to the re-lyte electrolytes: redmond.life/products/re-lyte-electrolyte-mix?afmc=w8

[@ginch6448]

As women, (sorry for any male person here), we go along and figure we are tired because we are taking care of a house full, or the cold and damp, or the whatever. We forget, we need care as well. I know that you work very hard to keep your body running clean, but with Lupus, you are severely outguned. Lupus, the disease with 1000 faces. Low iron can be checked by you quickly. Pull down your lower eyelid...is it a nice red, or sickly pale color? Look at the gums of your bottom teeth...same question. If either is pale, your iron is in the way too low end. How do I know this? I have the clotting disorder from Lupus that sometimes I clot correctly and sometimes I bleed excessively. This is a bit of a pain during a blood draw. Sometimes the bleeding from the needle stops when it should, and sometimes I need to re-bandage the needle site a few times over 48 hours. I was diagnosed with this little gem about 20 years ago. Not to worry. People have at least 40 years with Lupus, and longer if you take the right steps. Also, I feel your doctor is too cautious. You should feel a difference in about a week. When your body slows down the iron party, *more iron, body has a big party). Give it a week and you will feel fantastic. Love your channel by the way. You also have lovely children.

[@markczarny7088]

Re cently in hospital i was infused with Cosmofer but hdd to stop infusion after turning flushed and having crippling bone pain around the hips n pelvis any o e else suffer the same symptoms. Iwas later on ward given ferrinject on ward but still had the pain but nowhere near the level of Cos,ofer.

[@KJB0001]

coffee blocks the absorption of iron, btw. As do MANY other foods!

[@hermonorossco7988]

My insurance wouldn’t cover the infusions. I was supposed to get a series of 5 infusions. But apparently insurance doesn’t thing iron deficient anemia is dangerous. My iron is 2 and hemoglobin 6.5. It’s no wonder I have chest pains and crazy symptoms