A New Diagnosis With MUMS

[@krysania]

I understand her. I live with MUMS. It will wreck you. Migraines can last for days, weeks and even many many months long. It's terribly unpredictable. The list of symptoms is numerous and if you have the misfortune of seeing the wrong neurologist you get wrecked again with a psychiatric diagnosis. I for one had a medical background and knew the diagnosis didn't match what was going on with me so I continued looking and stumbled across a headache specialist and that was when I finally started getting proper treatment and the correct diagnosis. A great Headache Specialist/Neurologist is a must with this condition. I hope that MUMS will have more research.

[@ShaynaMcNeill-l5u]

I have migraines, MCAS, Sjogren's, POTS, Suspected EDS, Raynaud's, Dermatographia, Methane Sibo, Gerd, MCI, ADHD, Gastroparesis, Neuropathy, Suspected TIA's, and Currently being worked up for Hemiplegic Migraines however I believe this may be more accurate after watching as my migraines and symptoms are more stroke like and epileptic like. Each stage lasts considerably longer, and the symptoms are noticeably more visible. Just had a recent episode that was at airport so caught at TSA of all places in wheelchair, which we requested I just received, I will be sending to Neurologist. It definitely looks so much worse than what it feels like inside my body/head as it's happening. The migraine/body feels like it's never getting a recovery time. Is this how yours feels like? My whole body goes numb/tingly both sides and slowly thaws out, but in video it shows head jerking and fingers twitching at times, but then slowing down towards the end during thaw out. when feelings coming back. Usually get feeling back in hands first. Just wondering if any of this sounds familiar? I guess?

[@Truerealism747]

Does this inc migraine in other parts of the body