A Pained Life From CRPS / Where Do I Go From Here - RSDSA

[@mamamode1312]

I've been Enduring life for nearly 30 years. I just found this video randomly, today.

[@nikoluv2186]

Thank you 😢! God Bless. I'm trying to live again...its a slow start. But I will never stop because I want to be happy again!

[@SanS-gu6ti]

best presentation!

[@foreverfree5333]

As a caregiver to a spouse who has serious CRPS, and became an amputee because of it...We have suffered excrutionately for 4 years... I am sure there are varying degrees out there, but his is probably one one of the worst. There are no words that can describe how I personally have felt about not being able to relieve his physical pain nor my personal emotional pain, night after night and day after day while mourning our inability to regain the future we dreamed of creating when marrying just 3 years prior to this happening. He cannot function, is bed-ridden, and suffers every waking moment. How is anyone supposed to do anything but endure a life like this? We are lucky if he doesn't destroy something in a day for the pain and anger it incurrs. No one can truly understand this.

[@nikoluv2186]

He is grieving...and it sounds like he is in stage 2, Anger. I'm sorry this disease has effected your dreams...! You have to find happiness...think positive and take care of yourself too!! Emotionally and Mentally

[@joehart9830]

Wow. I too have CRPS and Kiari malformation that required brain surgery. I admire you for the strength it must take to stay as positive as are. I know CRPS effects us all in different ways and I’m sure that our kiari/surgery have it differences too…. But I am trying happy to see you keeping your head up through it. It gives me a little more motivation to keep trying to claw my why out of my own personal hell. Keep up the great word

[@annetteedel8110]

I am so sorry that you have this monster. My son also has It and I worry about him constantly. I will pray you. That is all that I can do.

[@nikoluv2186]

You can do it!!! 😉

[@paulabillanes5084]

One of the most difficult things about this disease is losing your friends.

[@RSDSA]

We hear this often. Take a look at our list of Support Groups here: rsds.org/find-a-support-group-near-you

[@mamamode1312]

@@RSDSA the other hardest thing is loosing yourself.

[@TheDimachaerus]

So I take it Advanced Pathways didn't help?

[@paulabillanes5084]

@@TheDimachaerus No, it did not. I am so disappointed ☹️

[@TheDimachaerus]

@@paulabillanes5084 I sent you a friend invite.

[@smcremix8791]

does using an ice pack help a little with CRPS in the shoulder?

[@nikoluv2186]

No

[@MsBrowniepuff]

Try lidocaine, heat, cbd oil. Stay blessed