A Rough Day with POTS (4/22/17)

[@SakuraStardust]

Youre lucky to have people around to support you with your POTs, and that you can even do normal things like go shopping without collapsing. I have been struggling with POTS since 2007, and my symptoms are becoming worse no matter what I do. I cannot drive, or even get out of bed a lot of the time, and my family constantly tells me they dont believe me because I "look fine". I remember having to sit down at Disneyland because I was about to faint, and while my mom and uncle where in a gift shop, my aunt started yelling at me and calling me "lazy" and "pathetic" because she believed I was making up POTs as a "copout" to get out of driving or doing things. That was 7 years ago, and they still roll their eyes at me when I cant get out of bed. I just hope my symptoms eventually become more tolerable and I can be more active.

[@Marblesun71]

"I would've just threw her down the stairs like a crash test dummy." ~ Janiece 2017 proving she is an amazing friend 😂😭

[@kauigirl808]

Saddened and miss her. But I'm glad the channel is still up. Helps and inspires others with chronic illnesses. You are truly missed. ❤

[@silverlining1973]

I’m having a really rough day. And even harder time staying positive. I came back here because she’s always cheered me up & inspired me to find joy in the little things. I’ve been so cranky, I’m getting on my own nerves lol

[@kauigirl808]

@@silverlining1973 What's going on my friend?

[@silverlining1973]

kauigirl808 I had to do a Holter Heart Monitor test. To test me for POTS. I have PTSD/C-PTSD & the whole experience was very triggering for me. & I’ve had a *ton* off appointments lately. And some personal stuff going on. I’ve been running on borrowed spoons for way too long, in a nutshell. Ty for checking it, I only have 1 friend hundreds of miles away so it really means a lot. Hope you’re having a good day. :)

[@kauigirl808]

@@silverlining1973 Wow that is a lot going on!! I'll be praying for you. ❤❤❤❤❤❤

[@silverlining1973]

kauigirl808 Awe! Thank you! That means so much! 💕 I have a neurologist appointment tomorrow afternoon & am dreading the spoon cost. 💕

[@rachelsolano19]

Judd is so patient with you, Jaquie, its so beautiful to see. I'm so thankful you have such a sweet boyfriend to help you. 🙏🍀

[@ChronicallyJaquie]

Yes is very patient, and he makes me laugh! I am so thankful to have him.

[@mjturner6291]

You are such a comfort to me, I'm having an awful POTS day and have basically just been in bed all day. I struggle with rest days as I'm someone who HAS to be something I just feel guilty. But you make me feel so much better about it and I'm so grateful for your videos, keep on going you gorgeous girl!

[@ChronicallyJaquie]

I am so happy to know I can help you in some way!

[@GeorginasJourney]

Let's Talk Living Oh my gosh this is so relatable! I'm the exact same! I'm having an awful pots day today & so watching videos is about all I can manage atm 🤕 Reading your comment helped me feel less alone in this though, thank you 😊

[@mjturner6291]

Aww yeah I'm with you hun! You are so not alone in this and I hope you rest well today, take as long as you need and remember to be kind to yourself about your rest days

[@poppycopper1]

I felt like I was the only one with multiple chronic illnesses so it's great to see how someone else copes. Thank you I'm learning so much. I felt I had to keep apologising for not feeling up to going out, and no friends understand why I have to rest so much. You're like a breath of air in my life. Xx

[@ChronicallyJaquie]

I am so happy to hear that I am making a positive impact in your life! I am so open about my story so others know they aren't alone. Thank you for letting me know I am reaching that goal, and welcome to our adventures! :)

[@TassieM12]

I loved watching the dogs play! So sweet. I got teary eyed watching you go down the stairs. I can relate so much with my POTS. I just wanted to give you a giant hug! I hope today is better!

[@ChronicallyJaquie]

Thank you, it is nice to know that you totally understand! Yes, today is better. Still a little unsteady but no longer stuck to my walker. :)

[@TassieM12]

Jaquie Blake I'm so glad you're able to be away from your walker a bit! Little blessings :)

[@sublimehonkers]

"Just throw her" Janiece has to be one of my favorite people.

[@stabulouskoda834]

when I have trouble going down my stairs I just go into toddler mode and butt slide down also everyday you wake up with a chronic illness is a victory

[@welchsgum7195]

Same I give up and butt scooch

[@asher4543]

Me too I give up and do a butt scooch down the stairs

[@fickleemu4life401]

This video just popped up today so I watched it and enjoyed it so much! It saddens me you're gone but I love these videos to remember you by. You're such a great example of how to live with chronic illness, managing the physical, emotinal, spiritual. Thank you Jaquie for sharing your life with us. You have been such an inspiration. 😊🥰🤗😇

[@damienhelms3249]

Compression socks do wonders for when you know you're gonna have standing for a long time. I usually get mine off Amazon and they have really cute patterns! You can choose what strenght you want the compression to be at.

[@rachelsolano19]

Thank you for sharing this video Jaquie. You have such strength & courage to not only share your life with the public, but to share the bad & really difficult days also. From one chronic illness sister to another, THANK YOU 💞💞💞

[@ChronicallyJaquie]

Thank you for the support! I want to be open about the good AND the bad because that is the only way to show people what it truly means to live with chronic illness.

[@ItzelWithThePretzel]

I had no idea this disease existed until your video was in my Recommendations section. Thank you for sharing! I learned a lot. I wish you many easy days and lots of love!!

[@ChronicallyJaquie]

I'm thrilled you learned from watching, yay for spreading awareness!

[@ItzelWithThePretzel]

Jaquie Blake Also, a quick question. Does holding your camera cause you to have neck pains? Would something like a selfie stick help with that?

[@jordanclay7038]

the way you and harlow interact makes me so happy

[@ChronicallyJaquie]

Welcome to our adventures, we are happy to have you!

[@jordanclay7038]

[@xr4v3nx66]

Watching you go down the stairs also made me emotional. I don't have it to that extreme, and am pretty good at pretending I don't feel like the town drunkard, but holy cow do I get it. I've been so dizzy lately. Holding on to the wall as I walk down the hall at work. Everything amuck. It's like going through the fun house tunnel with swirly stripes after drinking a couple bottles of wine while on a pool floaty.

[@bikergirlvlogs7362]

Lol so relatable

[@MandieZangora]

I know how rough pots is, even doing 4 bags of IV fluids a week I still get the palpitations, headaches, dizziness, blood pooling, instability etc. What has helped me SO much in the past 4 years of being diagnosed was getting my custom wheelchair 2 1/2 years ago. I have a quickie q7 and I'm getting a smart drive (power assist for manual chairs) and some other parts soon. I'm now able to actually go shopping and go do things with my family that before would end in me on the ground or slumped against a wall. I would definitely recommend at least looking into it at least as a backup for Disney days or trips or things that you know you'll be walking long distances 💖

[@m1ssd1tz]

Oh also, with Costco and sams club, you can go to the website and do a grocery shop and then just go pick it up. I have only done that once. But it was really nice getting that hour of shopping time back. Plus they box it so much nicer when you do it that way.

[@RPauls16]

I was just diagnosed with POTS! These videos are so helpful and so honest! I have been having a learning curve figuring out how to cope and how to live with it! I am so happy for the diagnosis because my doctors couldn't figure out why I was constantly sick!!! So now at least I have an answer. Thankfully mine is fairly minor and having others to share it with is amazing. God Bless you!

[@sarahstuart3245]

Thank you for sharing this. Watching how you two work together is how myself and my partner are. It's so reassuring to see, wish you were fine and had no bad moments ever again but thank you for sharing these bits.

[@kristamarie4163]

Your videos always make my day. Your positivity is so contagious. Thank you for sharing your life with us :)

[@elenamontez9093]

Thank you Jaquie for making this video. It takes a great deal of courage to share your life online, but even more to share the bad days

[@ChronicallyJaquie]

Thank you! I want to show the good AND bad so people see what it truly means to live with a chronic illness.

[@kenziedoss2813]

I appreciate this so much since I have multiple chronic illness as well. I have crohns and people don't understand how it's a disability. I can't even go to college because of my flares and I have inappropriate sinus tacacardia which mean my heart rate spikes to crazy numbers at random time, mainly during sleep. And this shows how daily life is for people like this and makes people understand so I love what you are doing.

[@alexandrascreations3569]

Hey Jaquie! Even though I'm new to the channel, you have given me so much joy. I love watching you guys, especially when I'm not feeling well (POTS). Thank you for being you and I'm excited for the next vlog :)

[@JasmineAlderton]

Wow Harlow sitting and waiting while you threw the ball for Orion was so good. She is such a good girl.

[@clamgrey5901]

The way your boyfriend helps you down the stairs is the same way my boyfriend has to. luckily my house is one story but his isnt. if my symptoms are to bad he will have to help me walk every where (because im stubborn and refuse to stop doing something because im dizzy) its nice to see how you all handle it

[@savannah6349]

Hey, I follow your friend Julian on Instagram and I just noticed that it was you in pictures! So glad I can see/hear what's going on through your videos to better understand! Love all that you do

[@Suki7stars]

Do you use a shower chair? That helped me a LOT!!

[@danellwampler7648]

You are very brave to video this and explaining the definition of disability. I am alway very self conscious when my symptoms flare in public. My perfect date is take out and a movie. I have become more understanding of my husbands need to go out with his friends. After all, he is not disabled. He does not travel without me anymore though. My oldest daughter graduates from college soon so I will stay with her if he does need to travel in the future. I am really fussy on who cares for me. Mostly, because other don't understand the disease process.

[@ThatDutchGurl]

Aren't Harlow and Orion the cutest together!!

[@StefanieRoyMusic]

MyBeautyHack They are sooooooo cute. They play so well together!!

[@rachelsolano19]

I second that!! Their friendship is #goals I think !!!

[@ChronicallyJaquie]

They really love each other! And they share the same mom, so it's a sibling bond! ;)

[@TheRawLife1]

MyBeautyHack he secretly hates Harlow 😂😂

[@susano7587]

LOL Janiece!!!

[@elsas5575]

Judd is awesome

[@kokopuppy57342]

Perfect timing to lift my spirits. I had a migraine today and needed a 5 hour nap even though I had so much to do. It can be so frustrating :/

[@kenzimeyer6981]

Judd is so sweet to take care of you like he does. You two are so adorable! Send pets and love to Harlow and Orion for me ❤️🐶

[@travelswithauntieann2551]

I hear you but others around me don’t. I’ve been diagnosed at 40 w EDS and POTS. Medication did not work for me. I’m going down the natural route. POTS is a curse and I have two small kids. Had to stop working because of this. And screwed for money. I pray that things get better. I can see myself when I look at you x what’s been your treatment plan and where did you get the mask???? And your hair thing? Was lovely to watch xxxx

[@sherylbradley8854]

I just had one of those episodes yesterday while seeing my environmental illness specialist. I had taken sumatriptan for a migraine so my POTS test was inconclusive and I'm taking it again next week without medication to interfere. I just got prescribed CBD oil for the migraines since I think the sumatriptan caused heart problems. The CBD oil worked great so far. Whew.

[@JonathanHernandez-xw7nf]

I’m 12 years old and I have pots to I had to miss my first school dance because I had a very bad parts attack it’s nice to know that I have someone to relate to and who knows what I go through

[@slowedsongsaremyreligion5434]

Johnny Llama I am 13 years old and have it too

[@trashwaterthe7th570]

I'm 16 and I have it too

[@FeralTexan]

I have POTS and Multiple Sclerosis. The MS caused the POTS because of nerve degeneration in my legs. Surprisingly, the POTS is more debilitating than the MS. I was still able to work (Registered Nurse) with the MS. But when the POTS reared it's ugly head, it disabled me. I didn't leave the house for 4 years. I was constantly fainting. And I can't take any of the meds because they will lower my blood pressure even further or they cause other problems. So I just have to deal with it. Increasing my salt intake has helped. I can go places as long as it doesn't involve me walking for more than 10 minutes and there are places to sit. My husband has to do all of the grocery shopping as well as any heavy lifting. Keep your head up. Love from Texas

[@hollyplyler9840]

See i have pots, but I'm usually not quite this disabled by it. Part of it is I weigh twice what you do. I have 100+ lbs of muscle. Another is i can't stop. Anytime i complain I'm told that "I'm not that bad" and forced to do things i know will make me sicker, I lose vision upon standing frequently and my heart rate goes to 180 upon standing.... But no, I'm not that bad....( In reality I've just learned to cope) My family are kind of jerks. I've had to hold down three jobs before because I was passing out on my one hour car ride to college and couldn't get a diagnosis so failed out of college, my parents to teach me a 'lesson' told me I had to work or be kicked out. I don't really remember those years. It's all a kind of blur. I work slept and ate. That's it. oh, and the constant pain too. I went into a kind of remission for 2 years and got a programming degree, but it's still hard. I once called my mom (before diagnosis) complaining of chest pains. I was told 'it was just stress'. My mom still thinks she was a 'great parent'.

[@bekahchu4102]

I'm so surprised I found a youtuber who has Mast Cell Activation Disorder and POTS too :O I have hypermobile EDS, Fibromyalgia, and JIA(assuming I can still call it that although I'm an adult now? Im not thinking right rn so who knows) I'm subscribed to a couple people who have hypermobile EDS too but now I'm subscribed to you too!

[@sunflowersugar]

hi im new to your channel and i just have to say, harlow is the CUTEST THING EVER!!!

[@ChronicallyJaquie]

Thank you! And welcome to our adventures!

[@cellogirl11rw55]

Have you ever tried in-ear acoustic filters? I have SPD with CAPD, and I recently got a pair of them from a local music store. I tried them tonight at a busy restaurant, and, for once in my life, I was able to have a nice dinner with my Mom without getting overloaded. I was also better able to distinguish individual voices as opposed to the roar I usually hear in busy restaraunts. It was quite nice!

[@vitasolano3272]

Yes some days are definitely harder Jaquie! Love seeing Har & Orion.. Love goldens,.... we have our own golden her name is Ella. Great that you guys spend time together and so lovely you had dinner at home ! Great Vlog Jaquie! :) Do what you need to be comfortable :)

[@mackorcle]

Mary from The Frey Life gets a lot of her leggings from WalMart!!!

[@ChronicallyJaquie]

Maybe that is why the person messaged me about it, lol! I love them!

[@mackorcle]

Jaquie Blake And you CANNOT beat that price!!!!

[@Shelbz92]

I love your shirt it's so cute. I do have one question for your port video if you haven't gone over it in it already. Does your bra ever make your port get irritated? Do you ever use the scooter at grocery stores?

[@ChronicallyJaquie]

I do not use the scooter at stores unless I really need to. In my area there are a LOT of elderly people, so they really require them, too. They are in high demand lol. Also, I go over the bra strap question in my video but it is in the advice section. I had my surgeon outline my bra strap so the port was not placed anywhere near it.

[@kimberlyhayes6006]

Chronically Jaquie mine is place directly under my strap but I wear a sports bra so it doesn't irritate it

[@marbledillon]

WalMart here is always a nightmare on the weekend - jammed packed, long lines etc but during the week the place is absolutely DEAD.

[@jillybean6]

I should order those wipes. I probably had the same kind when I was in the hospital so much couple years ago

[@alicecoakley5427]

R. I. P ❤️❤️❤️❤️❤️❤️

[@mathiastoecutter5910]

Compression stockings! They will help a great deal.

[@emmawillis9175]

OMG I had IVIG for 3 years for VERY SEVERE eczema with legit no side effects whatsoever!!! However I went into renal failure (not related) so had to stop all meds… Last was Dupilumab injections which worked fine until now…

[@ebonymarie7016]

i so appreciate this post because i may have this as well. symptoms identical and i keep falling at night too. Going to bring this up with my doctor.

[@angeladao4453]

Omg I never knew you had POTS until now 😅 I have POTS too so I know how it feels and it sucks ilysm❤️

[@sydneyc81]

You've probably seen this product already, but the deodorant I use is Arm and Hammer, and it's made with very few, all natural ingredients. (The main one is baking soda) I prefer it because it uses less chemicals, and the smell doesn't give me a headache like most deodorants do. They sell it everywhere, which is why I assume you've seen it and checked it before. But thought I'd suggest it anyway. ☺️

[@armywife4life78]

Yeah we had to move because of my husbands constant deployments and my constant falling down the stairs. I hope that I can start treatment for my POTS soon.

[@GlenHunt]

Still struggling with seeing myself as normal, just with a bit less in reserve than the average person...and with a few brain parts that operate differently. "Comfortable" is a good target; thanks for the word, Janiece.

[@BeverleyButterfly]

If you have the body shop there they do a natural deodorant. If not I actually don't use a deodorant every day if I'm just around the house.

[@megan4765]

You are so strong! I also have EDS POTSand Gastroperesis. I'm currently on disability but I'm not quite as severe as you. I live in Northern California and the doctors here know nothing about EDS etc, I've been on a two year waiting list for UCSF and get to see them in July. I'm nervous though because I have so many questions and want to explain my symptoms right, any suggestions?? Thank you for being so open 💕

[@beUtyista]

This is my first video I've watched of yours, I literally was diagnosed today with POTS. Mine is not super bad my numbers were as low as they could be but still was POTS. I don't know much about you but have you tried going whole food plant based? It helps a lot with inflammation and allergies and you can start exercising very light when sitting or laying down and eventually you can stand up and maybe do some arm exercises (that's what my doctor is having me do because I love to exercise)- basically building up your body to make your heart pump better

[@TallDiana]

I’ve had weird symptoms for years and two years ago, l started burning everywhere- skin, muscles, joints. I was too weak to walk or sit up. I blacked out upon sitting or standing. I couldn’t get thoughts out often. For a YEAR, doctors told me l was fine , but needed a Psychiatrist. After struggling to find a doctor who would take me seriously, having many tests, and doing lots of research online, l pushed my doctor into doing a set of skin biopsies that revealed l have Non Length Dependent Small Fiber Neuropathy, causing sensory (burning), motor (twitching, cramps), and autonomic symptoms. POTS and this full body Neuropathy often go together. I haven’t been diagnosed with POTS, but my doctors know l have symptoms. Since l deal with them (usually) okay, l haven’t pursued testing. My POTS symptoms have become less severe in the past few months, unless l overheat, which takes me out in minutes! It’s really bothering me that my many Neurologists kept saying weakness doesn’t go with Neuropathy. After your video, l realize weakness goes with POTS! Years before the burning started, l had episodes of extreme weakness and no explanation for them. You talked about showering- l hate them because halfway through, lm struggling to finish, lightheaded and l stagger out to collapse on my bed. I had to go out on a hot day to send away the life l had before- hundreds of Daylilies l grew and sold before l got so sick. Within minutes, my heart was pounding out of my chest and my vision was going dark. As the trucks pulled away, l eyed the driveway, trying to get back to the front door of my house, thinking l would fry if l fell on the burning hot asphalt. Luckily, l made it to a safe spot inside first! Heat causes episodes that take hours to recover from. Your video helped me understand how these things fit with my Neuropathic lllness. Thanks!

[@ashleybrown5883]

I use Toms Deodorant! it is organic and all natural because I get rashes and acne from deodorant

[@christa526]

It is still so shocking that she has passed away due to feeding tube wrapping around her intestines.

[@m1ssd1tz]

there are times that my chemo fatigue kicks my A&& and when that happens I use Peapod to deliver my groceries. Have you tried that?

[@ChronicallyJaquie]

No, but Walmart offers things like a pick up option so I may try that!

[@scarletcook7492]

Your vlogs are really good, I hope you get through the tough times ♥️♥️

[@hannahs3121]

You are such an inspiration, you're courage to keep going even when you feel bad! I have a quick question about service dogs, I have mast cell disease too and suffer with ME/CFS. I think a service dog could really help me in everyday tasks. I live in the UK so I don't think by law I'm allowed to train a service dog myself but I doubt a SAD company would think my chronical illnesses are debilitating enough to qualify for a service dog? Sorry for the long read, does anyone have any advice on getting a service dog in the UK? lots of love 😀

[@hannahs3121]

Another question, sorry if I'm prying but what are Orion's tasks? How does Orion help his owner? Harlow and Orion are super cute together! 😍

[@ChronicallyJaquie]

I am really sorry but I have no idea about UK laws. But, the laws are totally available to the public so if you work hard and do your own research, you can find out if you qualify and how to get a SD in the UK. Orion is medical alert and will also hopefully be mobility. :)

[@ecologist_to_be]

Hannah S You could get a service dog in UK but the waiting list can be years long

[@ecologist_to_be]

Hannah S You can also train your own in UK but hard work I know personally I'm not well enough to care for a dog I have ME too dogaid.org.uk/

[@hannahs3121]

Sarah Smith thank you for your help 😊

[@dsfast2080]

Judd is so sweet to you omg

[@ChronicallyJaquie]

Thank you, he definitely is one of my biggest blessings!

[@1988eleonor]

was your friend wearing ear-plugs at the store? If so, do they work? I have some sort of sensory processing disorder (don't know where it comes from and I don't actually care to know) and I am starting to feel more and more "unconfortable/ confused when in loud environments (plus high.pitched sounds can litteraly make me jump LOL). So I am considering some sort of way to avoid that, even though I won't be confortable with headphones like you wear. Hope you both don't mind me askig! BTW: You and Harlow rock!

[@thekawaiicripple]

I don't mean to answer for Jaquie but I saw her reply to the same question the other day in the comment section and figured I'd save her the energy of replying but she said Janice has some hearing issues where sound causes her a lot of pain so she stuffs tissue in her ear and pretty much always has it in and that it helps a bit

[@welchsgum7195]

Jesus Christ I have one too when any sudden noises happen I yelp and jump and low tones mess with my brain

[@melissasullivan5899]

Jaquie do you wear a medical alert? I was just thinking that could be a life saving item for you.

[@chroniclesofpercyabby5950]

I don't care what anyone else says you and Harlow are SD team goals 🙌🏻

[@fuzzmeisteroooo]

Orion seems to be doing better with pulling on the leash!!!😊

[@ChronicallyJaquie]

He really is!

[@smilingwhilesendinghope2315]

Is there a way to contact you I'm on the higher end of the spectrum and there thinking I might have POTS.

[@chasingthestorms]

I trying to find a good Dr for Dysautonomia now, I hit a heart rate of 164 today, with a 152/88 blood pressure!! I lay down my heart rate drops to 40’s and blood pressures as low as 104/42....it’s so hard to get doctors to get it, as well as the spouse! It’s taken away my career and my hobbies!

[@Antihippie24]

i have this they think and its miserable. been over 100 all day today, even at rest. walked to the gas station and collapsed. i feel for you all, i feel like im a burden on my girlfriend. i was curious, when you eat food, does your heart go faster? like before i eat, ill have a sitting heart rate usually at 75, stand up it goes to 90 to 95, after i eat sitting can reach 90 to 100 beats per minute, standing 120 to 130.... i take beta blockers to control it but like yesterday and today, they dont work, feel winded... im also curious when you have a cold or get sick, does it make your heart rate worse?

[@janorth9986]

love that "puzzle" blanket" and would love to know where you got your mask?

[@Astarism]

Jan Orth the mask is called a vogmask and if you look it up, the official website should show up as well :)

[@Anna-yv2tj]

Hey! I'm new to you channel and I think your amazing! Wondering if you watch The Frey Life? You remind me of her a lot. Your videos are amazing and I hope you are coping well with your health!

[@alexandrasartinsanity]

I still have some unopened tubes of the old formula if you need them.

[@drd6893]

Do you use compression socks or pants? It helps pots Also, salty foods

[@staceymorris8890]

do you freeze the meat until you are ready to use it and then refreeze it? hope today is a good day.

[@flj7]

I'd check out some local farmer's markets/ family farms in your area and see if they sell organs. You could feed Harlow raw and local!

[@OEWNRKandFriends]

I do SARF Diet. Which is what I call ALL raw feeding techniques. But, the SARF Diet I do is all meats, bones, organs; no plants materials added. :)

[@OEWNRKandFriends]

someday, we should ALL get to meet. Zeke would love to be friends with Harlow and Orion, I think :)

[@morganleigh8646]

i too have pots and get infusions through a port. are there any you'd recommend in particular? right now I do high dose vitamin c and peroxide and occasional Myers for my gastroparesis.

[@morganleigh8646]

or not :(

[@luludunn2545]

3:15 you should try either Tom’s deodorant or Native deodorant! I’ve tried both and I love it! Right now I’m using Native deodorant in the scent coconut and omg I love it!

[@cf6517]

Hey I really don't want to come off as rude but based on your light it up blue post and your puzzle piece blanket, I assume you support Autism Speaks. They are not good advocates at all for autistic people and focus more on finding a cure for autism than on helping those with the condition and their family to adjust and have a great life (plus a lot of other bad stuff that I don't want to go into detail about now) You could always google it for more info, but I think you should consider switching to another program that accepts autism as a part of someone rather than something that needs to be cured. Again, no hate, just wanted to be sure you were aware!

[@Hypnopompic_Fox]

this will sound stupid prob, and rude prob but i SWEAR i dont mean it like that. why dont you use babh wipes? (genuine question)

[@cheyennehenry1]

im new to your channel. how many/what disorders and conditions do you have?

[@lilbritt4403]

13:08 that face Judd. Lol

[@servicedogzeki9490]

Can lots make you nauseous I reacently got dignosed and I’ve noticed I get nauseous when my pots flares

[@Hypnopompic_Fox]

yes it can

[@cardenas.l6871]

I'm new but why the mask? Is it because of your POTS? (I have POTS too but I don't have to wear that)

[@esmks_058]

I like your videos and I subscribe I hope you keep doing good 😊

[@vikingclarinet23]

My neurologist thinks I might have POTS and with me if it is 70-79 degrees I can be outside for about 20-25 minutes, if it is 80+ then less then 20 minutes. Edit: I am confirmed to have POTS

[@iyoychloe8286]

I have pots I live in Tampa bay what's your pots Dr name it would really help me so much ty

[@rosemaryportillo1664]

Can you do more videos about pots please.show your pulse and blood pressure monitor .

[@PaigeMarian]

rosemary portillo she unfortunately passed away ❤️

[@rosemaryportillo1664]

@@PaigeMarian omg!!!really???what happened????😥😔😢

[@caitlinsmakeup9132]

rosemary portillo her intestines wrapped around her feeding tube 💔

[@danielledaley1649]

Just found this channel have to say it's very interesting

[@danielledunn7296]

what chronic illnesses does Janiece battle? and is that a heart rate monitor she wears around her neck?

[@jasperhyde2757]

I've recently started watching your videos and I love them! You're so gorgeous and sweet :)

[@belladaylight2132]

about the deodorant: look at the old one and look at what they changed. maybe it's something totally minor. I know the reacting badly to stuff thing and it is super annoying. I am still on the road to figuring out what makes me sick all the time though. Medicine is very different/ not as evolved in austria.

[@KarmaMan82]

Is it posible to have tremors or seizures with pots?

[@FridayFrida]

gorgeous orange shirt! :)

[@forrestdorian1277]

you should try using a natural deodorant, I used to get a red pebbly reaction to deodorant with chemicals

[@ChronicallyJaquie]

Do you have a specific brand in mind? I may try that if the new formula in my deodorant irritates me.

[@forrestdorian1277]

I did actually, I've been using a brand called Schmidt's natural deodorant. it has no aluminium, no propylene glycol and no artificial ingredients. it's helped alot with my skin since I have eczema and just about every other skin sensitivity, also switching to an all natural shampoo really helped, I use Acure, both the shampoo and deodorant can be found at whole foods or bought online

[@ChronicallyJaquie]

Thank you!

[@lottiatbeaniecodesigns4681]

Couldn’t cope shopping with Judd but copes fine on her own!! Are you all buying this shite?? The pooling feet have suddenly cured. Judd home back to dizzy and week... OMG 🤯 the stairs!!! 😂😂😂😂😂😂

[@danielazita7327]

👍🐶❤️🇺🇸

[@VulcanOnWheels]

2:41 How about a natural solution? 3:48 Isn't that a bit of an exaggeration? 12:35 I would see it as adapting.

[@cookiemonster93fly]

What about crystal,it all natural