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[@VintageRayne]

Oh sweet girl. 💔 I truly appreciate your vulnerability. I genuinely feel less alone & better prepared. For my own needs as well as to how to best help someone else, if the need ever arises. Much love & spoons! 🥄🤍🦓

[@ArloTheDancer]

My hands lock up during episodes, they are very tight and painful. ( the episodes aren’t seizures) I can’t imagine the mental and physical stress on your body. You’re not alone, your viewers, mom, and Autumn are all here for you. Ofc Simon as well! 😊

[@MsLoma1212]

Lindsay, your family is amazing! What a great team effort 👏👏👏

[@CaseyJackson447]

I had a traumatic experience with seizures back at the start of 2020 due to a toxic relationship I had 30+ seizures all in a span of 24hrs went to the ER had a lot more and I remember coming out of one seizure with my hip subluxated exhaustion all over my body and pain all down my body from my head to my feet and the worst part was I could feel the seizures happening it was horrible. So you are so right EDS and Seizures don’t mix well at all. Stay safe ❤thanks for spreading positivity and awareness

[@cathytestagrossa6198]

Sorry you have to struggle with seizures along with your other illnesses. Autumn n Simon are so great at trying to help you. Thank you for sharing. Lindsay you're a very special person. Hope you're feeling better now.❤

[@worm7879]

Gosh, I remember what it was like to have seizures this bad. I'm sending you good vibes! I'm glad you have your fiance and service dog are there to help you!

[@natashak3387]

I am so very sorry my friend. Know that you aren't alone in this fight and in my thoughts and prayers. I had Sepsis a few years ago and was going in and out of consciousness and my cat kept kicking me to keep me alive until I was taken to the emergency room. I wouldn't be here if it weren't for my cat. Take care! Love and hugs from Florida!

[@tammydavis770]

I have Temporal Lobe Seizures. When I have one, I cannot respond. I literally almost set my apartment on fire one time because I put my son's bottles on to clean, and my neighbor had to almost beat the door down. Sending you lots of love and good thoughts. I absolutely love your fiancé. She is so amazing with how she cares for you.

[@thegracklepeck]

That looks so painful and difficult. Hang in there Lindsay ❤

[@ElliesChronicLife]

You’re so strong Lindsay. Keep going ❤

[@firstlast-js5yw]

Sending much love and hugs❤

[@cathie-aussiegirl6547]

Such a helpful video, thank you for sharing. I hope today is a good day sweetie ❤

[@karly_ongrowth]

Love you and your family Lindsay. I've never actually had a seizure (that I'm aware) but apparently i am at a higher risk of having them due to my medical conditions. Thank you for being you 🥲🙏🏻❤🥄🥄❤🌼

[@Sonia.manitius0305]

Thank you for this insight! I hope you are okay! Simon and Autumn are amazing! You are so strong by the way! Have a great evening :) Sending all of my spoons :) 💙🩵💙🩵🥄🥄💜💜🧠🧠

[@teg-dirb]

Thank you for sharing. 💚

[@LydiannaBella]

The hand locking looked so freakin painful. I had it locked exactly like this for three days after a cortisone shot gone wrong ! 😑 it was awful

[@herseychcocolateloveyou6418]

Oh no you ok ✅ support your sister 👩 I will support you always ❤❤❤❤

[@caseyslifewithcp3727]

I have dystonia as well, it's so painful. But I don't have seizures.

[@shadowfax0240]

@@caseyslifewithcp3727 there’s a common nausea medication that gives me dystonia and it is such a painful reaction to have! I kept getting episodes for 2 days after just one dose of the med and it was terrible. I’m sorry you get dystonia, it is truly an awful time :(

[@caseyslifewithcp3727]

@@shadowfax0240 it is it's very painful

[@anoukhuizeling6990]

Hey i was wondering if you have ever tried the ketogenic diet. It is verry effective in treating medication resistant epilepsy. Also nutricia has a feeding tube formula called ketocal that can reduce the number of seizures you have. I dont know if this is an option for you but maybe you can ask your dockter about it.

[@keithhutchins8803]

FND

[@fulviodessi359]

salve principessa da oggi ti osservero,' nei prossimi video ti spieghero' alcune cose per aiutarti in qualche modo i lave you

[@francescagiughese9781]

Devi fare la respirazione diaframmatica

[@caseyslifewithcp3727]

Why didn't you call the ambulance if it was 15 minutes? Are you okay now?

[@sky-hv4zo]

I take a 1,000mg keppra/levetiracatem and a 600mg oxcarbazepine morning and night for seizures it also helps with anxiety depression etc

[@keithhutchins8803]

FND