LIVING WITH LEWY BODY DEMENTIA EP.14 | IT'S GETTING ROUGH AND ONE ON ONE CAREGIVER TALK

[@nicolestroh1581]

It feels odd to ‘like’ this video but I do it because my heart goes out to you and I know it helps support your channel. Let’s call it a prayer…hit the like to give a prayer to this couple and others like it. Hugs and prayers. 🥰🙏😘

[@kathycampbell1977]

We just had to take financial control away from my mother due to her advancing dementia. It was very difficult and sad. I can't imagine how much harder it must be with your husband. Thinking of you both....kathy from Pennsylvania

[@brendanewton3531]

I was thinking how there needs to be a care button on KZbin.

[@cathymadsen2930]

Every time I like one of these videos I see it as a dollar to Leslie ... 😊

[@marthatibken7146]

@Cathy Madsen what a odd remark unless you have been a care giver you have no clue about having to watch them suffer in so much awful pain.

[@nicolestroh1581]

@@marthatibken7146 I think what she meant was she understands that ‘liking’ videos is what prompts KZbins algorithm to know that Leslie is doing well and likes also equal pay. So if you like videos it helps with the KZbinrs compensation, just like watching the commercials all the way til the end or clicking on them, or subscribing to the ‘channel’. I don’t think she meant any harm in her comment just that she ‘likes’ the videos to ‘help’ Leslie as this is a mode of compensation to Leslie and her family which I assure you is helpful now that she is Jason’s full time caregiver. It’s along the lines of what I was saying. It’s weird to ‘like’ a video that is clearly about someone’s pain and heartache but you do it because you know ‘liking’ equals compensation and support in KZbin’s world. I don’t ‘like’ anything about the content of this video….it’s heartbreaking…but I know it’s KZbin’s way of supporting a Leslie and Jason so fine…I’ll ‘like’ the video. I care…most all us do…I agree that a ‘care’ button might be more appropriate in this instance cut it’s not an option. God bless us all and Happy Holidays. Love your friends and family. 🙏

[@darrellspicer4401]

My wife has dementia. She is between stages four and five. She is the sweetest person you could ever meet. My heart hurts for you guys. Hang in there, God will help us through this. I haven’t really broke down and cried yet but I know it’s coming. We’ve been sweethearts for almost sixty years. I was 13 and she was 12 when we started going “steady”. I’m so blessed to have her in my life. She doesn’t deserve this and nether does your husband. Thanks for sharing your life with us. We need to hear how he’s doing. ❤️

[@deirdremorris9234]

Goodness! Praying you both have grace for this time.

[@suzanneburns2931]

My husband had dementia , which ended up being fast moving , but that still of course involves long enough to exhaust anyone , I think it had been going on long before his diagnoses , but got lost in other health issues like heart attacks (9) and a heart transplant , followed by a small stroke and numerous medication issues . All those things blurred my ability to discern one thing from the other . We were young when it all started , I was 42 and he was 47 , things in total covered a long span of time , as he passed at 71 and I was 66 . That was 5 years ago , God bless all of you caregivers and your breaking hearts , yes the tears will come , bless your hearts .

[@patriciaflood506]

One of the worst days of my life was when John looked me and I knew he didn’t recognize me anymore. It broke my heart. He not only was my husband of 50 years but my best friend all those years. My heart , love and prayers are here for you and Jason.

[@lindaduffy5370]

🥰🥰🥰

[@michele21auntiem]

My husband still recognizes me but i know that day is coming. Whst is hard for me right now is the awful things he says to me. He has no one else to get mad at.

[@NiNitosix]

@@michele21auntiem my FIL (passed 2 years ago) and my Dad both accused mom and MIL of affairs. It has been hard for them. God bless everyone who is going through this. This has just hit home. 😢

[@michele21auntiem]

@@NiNitosix Thank you. He isnt suspicious about men but very angry when i try to help him. 😥

[@linnsoltwedel]

❤❤❤

[@cherylmaune137]

I hope among the thousands of supportive comments you’ve received for this video, you see this one and find it helpful. My husband was diagnosed with early onset Alzheimer’s 3 years ago. Since that time, my mantra has become “adapt and pivot”. Something that worked great for us yesterday, no longer works the next day. I realize that the only behavior I can change is my own in how I adapt to the daily changes in my spouse. Specifically, the uncontrollable spending behavior. One thing you may consider is opening a secondary account that has limited funds in it for Jason. Replace his debit card with the new one and just tell him that you have new cards. He will still have some spending freedom but your main account will be protected. May God bless you in this journey. Thank you for sharing your story. (And I love your decorating ideas and tutorials) Merry Christmas!

[@brendalee163]

You are a shining example of a loving Christian wife. Blessings and strength to you and your family.

[@kayekaye7930]

I agree with you! What a wonderful comment...

[@GM-xj2ez]

As a caregiver, I so appreciate your sharing your journey. So very brave of you both. Give grace to both of yourself of Jason. All of us our pulling for you. Sending you LOVE and very highest thoughts and best energy! 😍😍😍

[@pengle]

You should never feel you have to apologize for the realness of your situation

[@theaross8288]

My husband, age 66, died of LBD in March. It is a very difficult disease and my heart goes out to you and others dealing with it. Being part of a support group was so helpful. While it didn’t change what we were dealing with, It did help me to put some things in perspective. Hallucinations, accusations, loss of every day skills, loss of safety awareness, movement issues are just some of the challenges. Loosing our loved one while at the same time having them in our life (ambiguous loss) is super painful. Leslie, I’m thankful that God is giving you grace to walk alongside Jason through this difficult journey. God sustained us and I pray He will continue to do so for you as well.

[@suek7086]

Hugs for you.

[@debbieswartzentruber9900]

You said this so very beatifully...🥰

[@janbailey5850]

Oh sweetie 😢. Don’t worry and don’t put him through something that is obviously heartbreaking. It’s so different that just Dementia,where our loved one doesn’t realize anything most of the time. Jason knows he is worsening and I wanted to give him a hug through the screen when he spoke of the fireplace situation. He so deserves his privacy and dignity at this point. You can just update us however you want or choose. Let the time he has be quiet,peaceful and loved. We love you both so very much and are always here for you as Jason’s caregiver, he’s lucky to have you 🤗😘Hugs and kisses

[@debrahayes5802]

My father in law had Lewy Body Dementia and my heart goes out to you both. The service you’re doing for others is commendable, though, because we had no idea at all what this disease was or how it progresses. Your honesty is admirable. Just know that far more viewers are pulling for you and support you than the few (sometimes more vocal unfortunately) judgmental viewers. Merry Christmas! May Christ’s love fill your home this season! ❤️

[@ashleybergstrom8934]

Amen

[@trudycaffall1402]

Amen

[@capecaz663]

Beautiful, Deb.

[@Chipper6032]

Yes it is.

[@karensuek1]

My mom had LBD. Its horribly hard to watch the changes that take place.

[@paulah317]

I lost my husband to LBD in October 2020. He was 63. It was a 5 year walk through the dementia and while very stressful I still say it was a privilege and honor to be my husband's care partner. He eventually forgot who I was but I always knew him and thus that gave me strength to face each day. My true strength came from the Holy Spirit and my faith in Christ. My prayers are with you both, Leslie and Jason.

[@lynngordon147]

I lost my husband in August after an 8 year decline in Lewy Body dementia. My physician started monitoring my health and my eldest son actually became very “parental” towards me. My entire focus was on my husband’s declining health and I neglected my own. There were two people directly dealing with dementia. My dear husband and myself. There are so many highs and lows, happiness and depression in living with dementia. Leslie and Jason you two show so much strength and courage in dealing with this disease and I thank you for sharing your journey with us.

[@madonnaprevite2704]

Very well stated. Your situation reminded me of a beautiful couple that I knew for several years. In their case the husband was the wife's caregiver as she slipped further into dementia. Unfortunately, the strain and worry became too much for the husband and he had a massive stroke and passed away while the wife had no idea that he was gone. (She walked around the house all night while he lay on the floor.) I wish he had accepted more help so that he could have survived. Thank God for your doctor and son who saw that your health was also suffering. Dementia definitely affects more than just the patient. Thanks for sharing!

[@nurserobbi781]

Leslie you are so strong. I know it is hard. Don't think of it so much as mothering but as nurses sometimes we have to drive the boat and I see you more as nurse caregiver than mother with Jason. Somewhere inside Jason he loves and appreciates that he can trust his care to you.we all care reach out and also to your support group and your own health team.

[@marykelley5182]

Please heed these messages of advice. Get more help from others if you can as you do need to stay healthy too. 😍😍🙏🙏

[@kimmalarkey1458]

Oh Leslie and Jason, you are both so real and my heart goes out to you both. I have started the caregiving journey and would love some more of that type of sharing from you regarding that role.

[@suek7086]

I traveled that road with my late husband, as well. Hugs.

[@angeladavis6425]

My husband had Parkinson's and progressed to dementia. It is really hard to see a brilliant man deteriorate to the point of loosing the concept of cause and effect. He never got mean but several months before he passed he quit calling me by name. I never questioned him about it because I didn't want to acknowledge he had forgotten who I was. Right before he died he started calling me by name again. This is my first Christmas without him. I recently had to sign my first birthday card love grandma instead of love grandma and grandpa

[@linnsoltwedel]

This was the hardest episode so far to watch.. This being hard for him was very rough to watch.. I am so sorry that you guys are going thru this..

[@stokely418]

Linn Soltwedel: It was hard for me to watch also. I feel so bad for both of them for having to deal with this terrible disease.😢

[@ashleybergstrom8934]

@@stokely418 I feel the same, teared up, cannot imagine.

[@nicolestroh1581]

Indeed. For me as well. Leslie does such a good job at putting on her happy face and being chipper that even when things are hard she just makes it hard to realize it almost. God bless her and wherever she gets all her strength from. I hope I’m as strong as she is if I ever have to go through something with my spouse similar.

[@tommiearbeau808]

I agree.

[@kimelliott7262]

I feel deeply for you both. It's unimaginable what you guys are going through. You definitely must be helping others going through similar aspects very amazing to give such intimate and private details to your lives

[@sharonperkins7251]

I heard one wife that dealt with this with her husband call it a living grief and I've never forgot that. ❤🙏

[@CandyHolladay]

bingo.

[@maria183]

Perfectly said, because your spouse becomes someone you don't know anymore.

[@lineprestkvrn9014]

As a Nurse who spent many fulltime workyears with caring for pasients with different forms of dementia, I cannot stress hard enough how important it is that You also care for YOU. I have seen too many times how spouses run themselves to the ground trying to be their significant others' 24/7 caregiver. Take time to care for Yourself so that You get rested and stay healthy. That gets more and more important as his health deteriorates. Lots of love from Norway. ♥ 🇧🇻

[@dorothylabarge6340]

So true. Take time for yourself!!!

[@crystalwhaley2363]

Prayers for you both during this difficult journey. My heart goes out to you both.

[@laurajeffcoat4731]

Definitely a must , you have to put yourself first. I know it sounds wrong but it's the truth. At the end of this you will understand. Try to find extra help if possible so you can deflate and have a little extra time for a pedicure manicure massage just the little things that will help you relax and be able to cope easier. This is so hard to say but if you don't take care of yourself no one else will. 🤗💓💕💞

[@momajugy1]

But how do we pay for help?

[@laurajeffcoat4731]

@@momajugy1 sometimes home health care can help or family and friends even if you can only take a bubble bath. I wasn't saying to do this all the time. Just that we have to take care of ourselves also. 🌹🤗🌹

[@karensuek1]

My moms hallucinations from LBD were so sad. Yet seemed so believable. She wld sometimes cry because she told me she was starting to not be able to tell if things were real or a hallucination. Broke my heart.

[@Cecilia-fc3sg]

My heart breaks for you both. I'm so glad tho that Jason spoke up and said on camera how he felt. It shows the suddenness of how things can change abruptly. And his wishes absolutely come 1st. Leslie, you both have my prayers.

[@ashleybergstrom8934]

Agree, I felt the same.

[@erikawile7782]

Must be hard for him to put himself out there for everyone to see when he knows that he is getting worse. Part of it may be a pride thing for him which I understand.

[@Mcpell4]

To have someone put into words what I felt when I was going through this with my husband helps me in ways you can't know. Thank you so much for that .The hardest part for me was watching my extremely capable husband lose his independence over time as I took on a motherly instead of wifely role in his life. It was heartbreaking to me to feel as if I was taking his independence from him. Guilt, guilt and more guilt. I lost my husband of 49 wonderful years in August of 2021. I pray for you both daily.

[@rightwrong6626]

Sorry for your loss. I have my dearest friend/sister with the same diagnosis and I am so sad what is happening, it has really progressed in the last 2 months. My friend for 44 years. She doesn't always know who I am.

[@amyhenningsgard8618]

@@rightwrong6626 I’m so sorry for you and your dear sister ❤️

[@amyhenningsgard8618]

God bless you.🌹

[@judithkoveleskie7476]

I viewed this a 4 am, having been up since 2 with caregiving issues. You are blessing me so much with these videos. LBD is the strangest disease and my heart goes out to you both, because you are so young.

[@rightwrong6626]

@@amyhenningsgard8618 thank you so much. God bless. We humans take our health for granted, then when we are sick that's all we think about!

[@melaniebrown4737]

When my dad was alive with Lewy Body Dementia I got a special debit card for him from Chase bank where I transferred money onto it for him and he was only allowed to spend what was on it and if he went over, the charge would be denied. It was so helpful because we were having the same problem with his spending. My prayers go out to you guys during this time. I know how difficult it is 💕

[@cindyc2701]

Unless you've been a caregiver, you have NO idea how difficult it is. God's blessings to you. My heart hurts for both you and Jason. 💜🙏

[@rogerokelley]

@A Charming Abode I also have Lewy Body Dementia and no one knows what goes on in our mind. Jason, my Veteran 🇺🇸Brother stay strong!! Yes, and our "admirable caregivers" need so much prayer🙏🏻

[@daisyy99]

Roger, how kind of you to write. My late husband was the best ever. Caring and loving. His Parkinson's and hallucinations were very challenging.

[@kaykasper8770]

Thank you Roger for your service. Thank you for sharing with us. Maybe start writing down what you feel and think and keep a journal as long as you are able. God be with you. I’m praying for healing because He can.

[@plantsbythemoon9049]

Roger, thank you for serving our country and encouraging Jason. God bless you both.

[@ditteydot]

Roger, thank you for your service. May the Lord hold you in the palm of His hand as you navigate this journey.

[@rogerokelley]

Thank you 🙏🏻🙏🏻

[@daisyy99]

I feel for you and Jason. He was enjoying dinner and cooking, eating when something switched off. He was sounding frustrated and he didn't want to talk about how negative he was feeling. He sounds like he is over with sharing publicly. We caregivers know what's coming, and our loved one can have the ups and downs of good hours and bad hours. You were caught off guard. Jason was being honest. We care for you all.

[@popping-popcorn]

I wonder if it would be better to say that he "couldn't" take about his feelings. I think he's just as frustrated at not being about to communicate well and we were able to see how fast it really changes. This was just a snippet of the day, but "normal" now sadly I'm guessing. Sending all my love and prayers for you both. It's not the "real" Jason we saw, and we know that. Try not to take it personal dear girl, he will always love you, even when he's growling at you *hugs*

[@pam164]

Must be so hard seeing Jason's personality changing when you have been together for a long time, he is your best friend.

[@andreamanning5672]

Leslie and Jason, my heart breaks for you both. I am walking alongside my husband of 40 years in this horrible dementia journey. Leslie, I am also an RN who retired to care for my husband. When you talked about how hard it is when you can no longer be in denial because it’s in front of your face 24/7. It’s so hard to lose your life partner when they are still here…all of the responsibilities fall onto the caregiving spouse and it’s overwhelming. Keep leaning on Jesus…He’s got us! ✝️💜

[@AngelaStazknee]

Recently something happened in our family, and I had to stay in a hotel room far from home - I checked in after midnight and felt so alone. Then, using my phone, I went to your channel and played every video - just hearing Leslie’s voice, so cheerful, calmed me down and helped me fall asleep. It’s not even about decorating- it’s just you Leslie! Sending love & respect your way!

[@dawnsykes9171]

Just to let you know. I’ve had to escape as well, because of violence in my home. My husbands temper has gotten worse as he gets older. Which makes me think he has a form of dementia. Anywho, I have a favorite hotel that I go to when life gets unbearable at home. Just wanted you to know, you’re not the only one. ❤

[@ACharmingAbode]

That is just the sweetest 🥰❤️ thank you, truly.

[@AngelaStazknee]

@@dawnsykes9171 - I was not escaping, my husband was in an accident & I had traveled to the hospital where it happened. I’m sorry though that you have had to escape, I hope things get better for you soon. 💕

[@MsLilacLover1]

@@dawnsykes9171 hopefully you can get him to see a Neurologist, it could be many things.

[@patdewey6345]

Remember that meds can sometimes need adjusting to handle the changes Jason is going through. And you must take full charge of your finances. You would not have let him drive while impaired. You should not let him use credit cards while impaired. You have to protect your financial future and his. You are really doing a beautiful job as his caregiver. I am very sorry you both are suffering.

[@shelldub7258]

Leslie, you are such a beautiful soul. By documenting this journey, you are helping so many people. My Dad had Lewy Body. He would get very violent. My poor Mom dealt with so much. We eventually had to put him in a nursing home. It is a long journey that nobody should have to take. Please know that you are so appreciated and loved by people you haven’t even met. I wish your family peace and joy this holiday season. ❤

[@DiscernmentNow]

Exactly! Extremely TOUGH journey!

[@trudylord8842]

❤

[@Noneyun]

Superhuman strength and no warning signs of violent outbursts resulted in a co-worker having a torn rotator cuff. The potential for injuries is frightening.

[@DiscernmentNow]

@@Noneyun 😫😢💙🙏

[@DiscernmentNow]

@@Noneyun absolutely! It's frightening!

[@lillyrose3545]

I know the second part of the video was for the caregivers, but really it is a gift for everyone because you are bringing awareness to this! Any of us who can’t relate today might have it coming yet in our futures so really it is relevant to everyone! You are such a gift, Leslie. I really hope that when I have to go through my own trials in life that I could have even a tenth as much grace as you have.

[@elizabethcallihan9971]

Amen

[@nancydrugan6137]

I am not experiencing what you're going through, Leslie, but I really appreciate your sharing things from your vantage point as a care giver. You are doing a great service to all of us who watch your journey. We are pulling for you! We are supporting you Spiritually as well as emotionally. God's Blessings to you and Jason!

[@74Rockme]

I Don't know now how anyone thinks they have a right to judge how you handle this. My heart goes out to you both and I'm praying for you!❤

[@dabailey1000]

Leslie and Jason. I think this was the first time we have seen how this is truly affecting you both, and I couldn’t stop the tears. Words aren’t enough but they are all I have. Bless you and Jason. ❤️❤️❤️

[@jenniferhart8733]

I felt exactly the same seeing this.

[@angietiller2332]

This was the first video I honestly could relate to. It’s hard not fun.

[@laurenelisabethdooley6451]

My Mom and I were my Fathers caregiver when he was diagnosed with early unset Alzheimer’s at 56 years old. It’s one of the hardest things to go through and no one will understand that unless they have gone through it them selves. You are handling it with such grace and I think you are doing an amazing job. 💜

[@pamelapainter7350]

Oh Leslie, my sister in Christ, I watched this with tears in my eyes, and with my heart breaking for you and Jason. Thank you for being so open about what you're going through, and for giving us a tiny glimpse into what you have to deal with every day. I now know how better to pray for you both. I see a woman who is leaning on the Lord moment by moment for strength and wisdom, and a woman who loves and honors her husband in the most difficult of situations. God bless you and Jason in the days ahead. ✝️🙏❤️

[@christinecaveness7362]

Well said.

[@deborahgoldsborough2214]

Yes, thank you.

[@plantsbythemoon9049]

Yes, will pray also.

[@katherinez9654]

My heart is so full of gratitude for you both. 6 months after my husband and I got married I started taking care of his grandma that had Alzheimer’s. She lived with my single mother in law for about 5 years and had started wandering. We made the decision to sell my mother in laws home and have a duplex built so that I could take care of her during the day. It got pretty hard on us all and we decided to put her into a nursing facility come September 1st. She died August 27th. Then my mother in law married a really nice man after 18 years of being single. He wound up with Parkinson’s and Lewy Body. It got to the point that he would forget about his walker and wound up falling and hitting his head and had 16 staples put in his head. We decided that it was time to look for a facility. He was such a kind man before, and he became such a different person. We made sure to visit 3 or 4 times a week and I always baked for his side of the memory care center. It was such a relief for my mother in law to be able to be his wife again. She was his mother here at home. She has stage 4 breast cancer and her oncologist insisted on her finding him a place so that she wasn’t under such stress. He died right before Covid hit and we were so relieved for him to close his eyes and go to sleep for a short time. John 5:28 Ps 37: 9-11, 29

[@lisas1484]

You’ve had a long & difficult caregiving journey. My husband and I cared for my sister who had ALS until her death in 2012. My husband now has LBD. The promises from the scriptures you sited can’t come soon enough. But we know we are very close! This one keeps me going: Isaiah 40:28-31 (NWT) 🤗

[@leek7987]

I wish someone, willing to honestly share, had been around when my friend's husband was going through what Jason is. You probably have no idea how many people you are helping by allowing them into your life. None of this can be easy for either you, Jason and family; your transparency shows that. I wish I could give you a big hug, it is truly heartbreaking. Christian love and prayers to you.

[@tgeetoo9451]

Yes!❤

[@imloco22]

It is totally a weird disease. My father died from it and even the Drs didn’t know it was LBD. The paranoia and hallucinations were really hard to deal with. But the worst times were when he would have a moment of utter clarity and start crying because he realized what had been happening. I was almost grateful when it consumed him again. Better he didn’t know. I wish you well and I’m glad you have support.

[@Oceanlee261]

I have taken care of people with dementia.. I think the hardest thing to do is not take things personally.. he is no longer himself.. you are grieving him.. I wish I could give you a big hug... keep those support groups up love... ❣️

[@ashleybergstrom8934]

Your comment Melissa brought tears to my eyes. Yes, grieving him. So well said.

[@mzgri]

What a kind, thoughtful and true perspective you have shared with Leslie. I remember when my mom died after suffering five years with a stroke that resulted in her losing all body functions as if she had Lou Gehrig's disease. When she passed away, I felt guilty for not crying as when my father died suddenly from a blood clot. But then a true friend told me, "please don't feel bad for not crying as when your father died, for you cried for five long years during your mother's illness". This was so true. My heart goes out to you Leslie, your husband and family.

[@susanf8136]

Your videos are such a help for those of us who are caregivers for a loved one. My husband is 84 and I am 66. He does not have dementia but, since a bout of Covid in 2020, he struggles with some memory loss. His issues are more with mobility and the helpless feeling of not being able to do what he used to and having to rely on me to do so much more. Having cared for my Dad I understand the time when the self centered aspect will increase. Dealing with my own health issues can be exhausting but I love him dearly and we will get through this together. My heart and thoughts go with you.

[@annmartin5988]

Leslie, if I looked up what "grace and dignity" was, you would appear!!! Bless you, and Jason, through this journey.

[@AbbyDabby612]

Leslie, I’ve been sitting here trying to think of the best comment to write and I continue to struggle. My sisters and I just lost our mother. Dementia was one of the key things she was going through. Her age and her type of dementia different than Jason but as I watch/listen to you, my head nods as I continue to always think, “if we had only known much earlier than we did”. I don’t know the purpose behind my comment other than to just let you know the appreciation I have for you and all that you are doing and going through. I lift my prayers for you and your family and my heart truly feels for you quite often. Many types of prayer will continue to be lifted. 🤍

[@stargalaxyuniverse761]

What’s so important is that he was able to say what he needed, and you, of course, respected that. Hugs to you both.

[@TWalters65]

There's just so much I wanna say to you! I haven't read all the comments, so somebody has probably already said what I'm about to say. If that's the case, let this be confirmation. 1. You're doing a FANTASTIC job in caring for your husband 👏🏾 and I commend you!! 2. What helps me when my Mom (diagnosed with Alzheimer’s) is having a "temper tantrum" is to see it as the disease and not her. I make sure she has what she needs, I tell her how much I love her, even though she may not believe me. I tell her that I'm so sorry this is happening. Then I stand my ground and try my very best not to take any reactions or acting out personal just as I would with a child. I don't allow myself to feel bad or guilty about it because as the caregiver, sometimes you have to be the "bad guy" so to speak. I still make sure she eats and bathes and takes her meds or whatever else she needs even when she's mad at me. After a few hours or sometimes a whole day, two at the most, she eventually forgets or comes around and we're okay again. 3. It's okay to acknowledge and allow yourself to feel heartbroken because you aren't living the life that you had planned on at this point in time. I have grieved (and still do sometimes) the fact that my Mom isn't the Mama we knew just 4 or 5 yrs ago. She was happy, funny, outgoing, loving, independent, supportive, giving, caring, brave, studious and just so awesome. I know I'm biased, but my Mama was THE BEST Mama EVER!! She gave her 3 daughters her all as a single parent. My dream was for her to move in with me and we would travel to so many places together after she retired. Not happening. Our roles are reversed and it sucks for me. When the Mama I knew 4-5 yrs ago shows up, I stop whatever I'm doing and I'm present in the moment with her because those are the most precious times and they don't come often. Lastly, we can’t do any of this without the grace and power of God. I have a reminder on my phone every morning to pray and ask for guidance and strength from Holy Spirit in dealing with Mama throughout the day. I don't get it right every single time, but I do my very best to care for and love my Mama the way she did for me until she couldn't anymore. I'm praying for you Honey! You're a phenomenal woman!❤️💕

[@Judy-wv4mx]

The worst part of dementia is knowing that 'things will never get better'. I'm sending prayers for you and Jason. I know what you're going through. ❤❤❤❤

[@Lori_in_CT]

My mother had Lewy Body Dementia. I watched her disappear over two years. My Dad and I cared for her at home with the help of a local hospital’s palliative care program. My poor Dad was washing sheets and we didn’t own a washing machine. I told him to just throw them out and I would buy new ones. He was 83 and a trooper. My Mom died in May of 2011. I didn’t cry. I was crying for the two years prior. It took a toll on both of us. But I would do it all over in a heartbeat. I was my Dad’s caregiver until he died in January of 2021. He was sound of mind but his heart failed him. I miss them both terribly but I’m learning to take my life back.

[@susanstaton1963]

My husband has vascular dementia and this is the first time I’ve heard someone talk about how their LOWD has become “self-involved” (for lack of a better phrase) and how their world view becomes very narrow. Also the switch from spouse to “mothering”. Thank you for being so incredible open honest and vulnerable

[@kaykasper8770]

I cared for my mom when she had vascular dementia/alzheimers. I had no one to learn from so I taught myself. I learned that you have to change the subject to something funny or happy. They get stuck easily in negative things. You have permission to lie…they don’t need to know they asked you something or told you something a million times. Each time you get ready to say “ you told me that” bite your tongue. It will frustrate them and they will get stuck in that maddening circle and only be able to think about how they can’t remember anymore. Keep things light. Keep them happy. Say funny things. When they remember something, go along with that and enjoy the moment. Most of all, they don’t need to know anything negative. Nothing. They deserve to just have happy funny moments… I’ll be praying for you and hoping this journey will leave you with happy memories of the fun you had enjoying your husband as he leaves you. I’m so glad I was able to help my mom. It was hard then, but I have so many happy funny memories of her in her last few months to cherish. God bless you.

[@AisforAlibi1]

@@kaykasper8770 It was hard for my sister to accept that you couldn't "reason" with my mother anymore. If my mom thought she was at a bus stop and would ask what time the bus was coming, my sister would try to tell her they were at home and nowhere near a bus stop which would lead to an argument. I had to tell her to go along with the bus stop thing and just say, oh, it will be her soon or it will be here at 4PM. Then ask my mom where the bus was taking her and have a conversation about that.

[@ladypaz]

Oh, I can relate on many levels. 💔❤️‍🩹

[@jeanineacree6355]

I became my mom's mom.

[@teijaflink2226]

@@kaykasper8770 Such great advice. I realise that it may mean that you may never be able to have actual deeper conversations with the person but no need to stress them, give them anxiety and make unhappy. So better to to just go along or try to lead the conversation into something happy. It's absolutely devestating to see a person with dementia sad, confused, desperate and broken, so keep them happy as much as you can and avoid things that make them distressed.

[@nruegner]

I am so grateful that you and Jason are willing to share this journey. One of my sisters had dementia, another sister is taking care of her along with my nephew. He tries so hard to make sure his mom makes decisions for herself. He wants her to have her dignity for as long as she can. I salute the caregivers. While I see occasionally how things are, I am not the one that has is 24/7. Those people that say you are being motherly have no business saying anything. You are doing a great job. Hang in there. Hugs!!!

[@Gramsofboys]

I don’t know what to say, Leslie. When things look “ok” on the outside, that is the true cruelty of this disease. I’m crying with you, not as a caregiver but as a wife. I wish I could box up a giant hug to send to you. Thank you for sharing your journey…good days and bad. You’re an inspiration to so many, I’m sure. Prayers for you both as you are living your lives through every stage. ❤

[@geraldineross5168]

Everything your saying is exactly what I am going through with my husband who is in stage four Alzheimer’s Dementia. We have been married 55 wonderful years. My husband is no longer my husband he is my two year old spoiled son, I miss him as my partner in life. I can not believe how narcissistic he has become he only thinks of himself. He was never like that before his disease. God is walking me through this painful experience, watching My husband die a little bit each day is devastating.

[@mariathompson9409]

Oh Leslie, we are strangers, but my heart goes out to you and Jason. Thank you for the updates. Thank you, Jason, for your patience. Your love story is wonderful and you are a blessing to each other and your followers. Much love and prayers from Texas. ❤

[@erm1317]

I have worked in Senior Living for 25 plus years. And I have to say that you are doing a TREMENDOUS job with everything you and your husband are going through. Honestly I have been in awe. Forget anyone writing anything negative because they don’t have a clue. You will never regret what you are doing for your husband and family, just know that. Also know you need time away for yourself as well. I hope you have others you can turn to for that ❤

[@leslieoscarson3089]

My mother died of Alzheimer’s 12 years ago and a friend of mine has just had his brother diagnosed with Lewy Body Dementia. I found your words so true and I am grateful that you have that support group to relate to. There were no support groups for us and the family, except for my daughter snd her family, deserted mom in the last 8 years of her life. (They just couldn’t stand to see her that way was their excuse…) The thing that stood out to me was the woman saying you sound like his mother… and I say “Madame, you are exactly right!” You will be his mother for the rest of your time together. That is just a fact. I became my mother’s mother. Not the most comfortable situation but that was what needed to happen. If trying to keep her safe at 3:00 AM as she left the house and went from neighbor to neighbor asking if anyone had seen her cat. Being awakened at 3:30 by the police walking in your house and waking you up because your mother has “escaped again”. The guilt of this is overwhelming. My mother has been gone 12 years and I still spend too much time thinking of just what a failure I was. But you are doing a good job, a job you never signed up for, a job you would rather not do, and a job that you are the only one who can give him the care he needs and who will not desert him. Stay brave and carry on…and keep your sense of humor - it will save your life…

[@lauradavis4848]

You were not a failure, in any way shape or form. You were exactly what your mama needed. You took on the job as caregiver, and it's an extremely hard job to take on. I worked almost 20 yrs in nursing, working with dementia and alzehimers patients is one of the most difficult jobs out there. You cannot be awake 24/7 as one person to watch them. And wandering is part of the disease. I also did volunteer k9 missing person's search and rescue. The amount of walk away dementia patients I looked for was very very high. The family would always blame themselves. I would always say, you are not a machine and cannot be with them all the time, it happens. We do what we can do. I lost both my grandmothers to alzehimers and its such a hard disease to handle for caregivers and I can't imagine being the person suffering with it. My mom's mom was the sweetest person, and she would frustrate us at times, but she was much easier to take care of VS my dad's mom. His mom wasn't ever really a nice person, and she became terrible to handle and we had to put her into a memory care locked unit. It wad rough, but it was the right thing to do for her. I'm so sorry you lost your mom. I lost mine 6 yrs ago today to colon cancer and it's very hard. I'm praying for you.

[@vherbster1]

You are the epitome of grace and dignity, Leslie. Even in the hard times the joy, that can only be realized in Christ, is present in your lives. I pray that God will continue to provide strength and small miracles each day for you and Jason.

[@willowswhispers577]

I have been in the medical field for 30+yrs. I have worked with Adults with many different disabilities and Adults with developmental disabilities. It is a very hard job in many many ways but it’s also very rewarding job. You are a very caring, understanding, loving and patient wife. When it’s a spouse taking care of another spouse it is challenging. As you stated your not just his wife.

[@kiwi4707]

It breaks my heart seeing Jason not happy, he’s such an awesome guy. We’re not feeling his pain and anguish as he is declining. Jason is fully aware of what’s happening to his mind and body which isn’t an easy task. Prayers are with you all 🙏💖💕🥰

[@pjrhrb]

My heart goes out to you, I am a care giver for my husband who has Parkinson’s. He is developing dementia also. I have been watching you since you started sharing your journey. You are helping so many people by your honesty and transparency. Sending you love and hugs.

[@linnsoltwedel]

I know its not something you might find comport in today, but know that you guys are doing amazing things buy sharing this reality, because its sadly what it is, and so many feel shame that they have this condition, and they shouldn't. You guys are moving mountains by sharing this and people learning about it.

[@lindawright7531]

Everything you r saying I AM GOING THRU IT. AND YES I HAVE TO TAKE CARE OF EVERYTHING.

[@gailfelker5005]

But what I see, more than how hard this is, is a woman determined to enjoy her husband as long as possible. You are an inspiration!

[@lattymom1]

I don't know if you know this but watching you go through this with dignity, honesty and encouragement gives others hope. Hugs from Northern Canada.

[@bernicetolbert9686]

I understand when you say you find yourself in more of a mother mode because of how Jason act. It is hard when it’s your spouse. You all are in my prayers. 🙏🏾❤️

[@lynngraham7952]

I'm sitting here with tears , you and Jason are so brave. Showing your lives while dealing with this disease is so brave. You are not alone as you can tell by all the comments of the many fans and followers you have.

[@Secular-Serenity]

I’m a caregiver and know how difficult it is being a logical person while living with a completely illogical person. I feel your pain, frustration and loneliness. 💜

[@kaykasper8770]

You don’t have to be logical with them. You just have to make their illogical moments happy ones. Change the subject. Tell a joke. Make them laugh. Never tell them anything negative and never tell them they already said that. If you try to remain logical, you will be frustrated by their thought process. Just go with it. You don’t have to tell the truth. You just need to make them happy…

[@sallysampson628]

My heart goes out to you both! My late Dad suffered with vascular dementia for years and I helped to care for him as my mum was elderly and struggled with his temper, illogical behaviour and it’s clear we didn’t have the ‘understanding’ of this disease or outside support. In your talk at end of this video you mentioned finances and my Dad refused to listen to my mum and purchased (in his case alcohol and he would bet on horses) he was secretive but obviously mum was in charge of the money so he’d get so enraged it was so scary. In the early days/years of dementia you believe they’re just being very awkward then you think what’s going on and I tried to find logical reasons for his behaviour before his diagnosis. Even now after many years since he passed I am filled with guilt for not realising sooner he was very ill. I should have found support for my Mum and myself but didn’t know how. We weren’t offered that support but think it was due to my mum wanting to be private and in her day you got on with it yourself. So Leslie is 150% correct in saying you need support from where ever you can get it because it’s too much for a spouse or young adult child to take on. I wish I’d known then what I know now and I’ve learned so much from this channel. I feel so very sad for Jason and for Leslie and wish there would be a significant breakthrough in prevention and treatment of all types of dementia because it’s beyond cruel. Love to you both!! 🥰🙅‍♀️🙅‍♀️

[@Sukisgranny]

My husband died with LBD in 2021 and the most difficult time was determining when it was time for him to leave home and enter. Say Nursing Home. He started getting up in the night and wandering away from home. Once I found him outside the front door, where he had fallen, all bloodied and unable to get up. Another time the neighbors across the street phoned me to say he was sitting by the road, half naked and didn't know where he lived. He also began to physically fight me and he was much larger and stronger than me. He tried to break my arm once, during one of his temper tantrum. I kept him at home probably a year longer than I should have . God bless you in your journey!

[@Sukisgranny]

🎂

[@deborahsnyder3289]

Leslie, your Caregiver Chat is SOOOO relevant. Trust, the sense of "mothering", being a "detective"...etc... Oh my word, this sounds like our life!!! My husband has BvFTD with possibly others. Bless you Leslie!!! I understand!!! Because I LIVE it daily.

[@ACharmingAbode]

Sending you big hugs ❤️

[@kimkelly9046]

Prayers going up for you

[@susangreif9869]

I’m so sorry. Hod be with you.

[@Julia-pv9ho]

Spot on - this change of role is so difficult… you want to give them as much autonomy as possible but have to be so vigilant for their and your safety. Juggling how to manage this myself at the moment. All thanks and power to you for sharing what many of us are thinking.

[@lindabaker4038]

Precious Leslie, you are an angel. I admire and respect you so much. The love and tenderness you have for Jason are the definition of grace and dignity. What a wonderful role model you are. It is an honor to support your channel. You've taught me so much about compassion and trust in God. Both you and Jason are awesome. So many are praying for you. We hurt with you. The positive ripple effect of your honesty and openness with your viewers just cannot be measured. God bless you and give you wisdom every moment.

[@livealittlekauai]

I so agree, may God Bless you both

[@Annietoo]

Dearest Leslie, I was fortunate to find your channel recently and have gone back to watch all the prior ones. You are such an inspiration to me. My husband is suffering with early Alzheimer’s and on my difficult days I’ve looked to you with your cheerful attitude and the way you are with Jason to uplift me and try to be the same way. I don’t always succeed. The other day I had a real meltdown from the insults and badgering I was getting. I can’t seem to stop taking things personally, even though I know he doesn’t mean to be mean and it’s the disease. Please don’t stop doing your videos. I really need them. Bless you and your sweet Jason. ❤️🙏🙏

[@maxwell2149]

I just want to thank you and Jason. The two of you helped us so much in our LBD journey. When our own family couldn’t understand what was happening we knew we weren’t alone in this journey. Unfortunately my husband passed away in Oct. l’m praying for you and Jason through this rollercoaster ride. You are an inspiration. ❤

[@yolandamorales7526]

I agree

[@deborakendrick1667]

Heavenly Father, Easy the journey.

[@nicolaardley9825]

I think you are an incredibly special person to be able to be so open about your struggles in having a partner with such a challenging illness. I am a support worker who has cared for many dementia clients over the years. Having been in a relationship with someone with Huntingtons disease (another very cruel illness) I can totally relate to how you are feeling. It is the hardest thing in the world to watch the person that you love transform before your very eyes, become totally irrational at times and turn you into the enemy. Knowledge is power and carries you thru a lot of the difficulties however it is absolutely heartwrenching when you have to live thru it. I send you all the positive energy in the world. You are a true inspiration and although you don't think so are handling your situation with the utmost dignity and grace. You are a delight to watch (now speaking of your interior vlogs) and have on several occasions brightened my day. Where there is no sunshine be the sunshine........this quote certainly applies to you my friend. May God bless u always

[@ladypeach7569]

Dear Leslie, I just want you to know that I am praying 🙏🏻 for you and Jason. I’m literally crying for both of y’all. You and Jason’s relationship reminds me of me and my husbands. We were 16 years old and got married at 18 and are now 49 and 50 years old. We too are best friends. You are truly an Angel and are so precious! I’m sorry you and Jason are going through this. We never know what life holds for us,but we know who holds our Future! God bless you and your beautiful family! Thank you for all of your wonderful content. 💕🤗💐🙏🏻

[@reneloper9074]

We see a cheerful Jason, I am sure people think it can't be that bad. They don't see the pain of watching a strong man suddenly become angry for no apparent reason. Thank you for being so respectful to his needs. The Lord has blessed with a loving heart . Please take care of yourself and know you are loved.💗💗💗

[@margaretpaul778]

My heart hours out to you. My brother had dementia and he had spells of being mad n throwing things. He passed away 3 years ago and we all miss him so much. Stay strong big hugs and prayers😢❤

[@ronadoyle3158]

My heart and my prayers go out to the two of you. My husband and I truly each other's best friends. You know how the saying goes" I married my spouse for thier body."? Well I married my husband for his brain. He is so smart and mindful. I love the conversations we have. He has 2 masters degrees (History & Teaching gen ed for elementary & history for high school) (bachelor's degree for anthropology and 3 credits shy for a minor in art). He's so creative and he's always thinking of fun things for us to do together. So I can only imagine losing all that. Just how very beyond tough it is.❤️(Hugs).

[@ElizabethDohertyThomas]

You are truly in a hellscape and being so generous with sharing your experiences and wisdom. 😪

[@marthachastain210]

Leslie, my heart is breaking for the two of you! You have a family here on You Tube and you have the love and support that you both need during this difficult time. You don’t know how many people you are touching who need you, whom may be going through the same thing and don’t know where to turn. Thank you for your willingness to be open. You are not alone! I’m praying for you both for strength, endurance and peace during these difficult days.

[@wendythomas4930]

Thank you for sharing this so openly. Nobody can judge. We do NOT know unless we are going through it ourselves.

[@Pinkcouture111]

My grandmother was diagnosed with LB in her last few years of life and looking back I can remember how she had changed and started acting like a different person years before her diagnosis. I wish we had known earlier and gotten more help for her

[@kathymandy39]

Thank you for sharing these extremely private and difficult aspects of your life and love. We're 72 years old and in the beginning of memory loss for both of us. You remind me to keep love, respect, and compassion in the forefront of our interactions. We watched both of our parents struggle and react so negatively as they aged, and we both vowed not to do that. But without positive role models, it's difficult sometimes. You and Jason have a beautiful relationship. My prayers are with you through this journey no one chooses. And you do it with such dignity and grace.

[@KarenGreene51]

My name is Karen, I’m 71 and in the beginning stage of this journey. Instead of being angry I pray I can hold on to my positive attitude and try to ride this journey for as long as possible. My dad passed with Alz. My mother with Parkinson’s dementia with Lewybody. I took care of my mother for 2 years and watched her slowly deteriorate. As they say we’re gone before we’re gone. Hang in there the both of you.

[@kimkelly9046]

@@KarenGreene51 prayers going up for you

[@JeepGirl941]

@@KarenGreene51 saying prayers for you too! (((HUG)))

[@daisyy99]

@@KarenGreene51 You write very eloquently Karen. Yes, your intellect and self awareness helps now. I hope you have a loved one or kind friend with you on your journey.

[@SCsweettea]

This truly is a real video. I took care of my dad, and the anger became so hard to deal with. Those who havent experienced this have no idea what a toll it takes on the caregiver, as you almost begin feeling like the enemy. In the end he didnt even know me. I so hope your sweet husband can find peace, but with you by his side, i know he is getting the best care possible. The only advice i have is to try not to feel bad about anything you are doing. Its obvious you are doing all you can to keep him safe, and give him joy and love. The other thing is to check out his veterans benefits for temp care takers so you can get a break. You have to get some timevoff now and again from this stage forward. Some alone time to regroup and refresh. Hugs to you both. Its a terrible disease. Especially as he is so young and obviously an adorable man when feeling himself. Have a great Christma! Hugs, judy

[@BrendaKnoll]

Exactly the anger is very hard to deal with but also my husband is 6' tall 300 lbs and strong, I worry about the anger outbursts in the future. I worry about if it were to get physical (which has never happened) I would not be able to care for him if that happened, then what? Just worry alot about the future

[@shoshanaeri8035]

@@BrendaKnoll sounds so tough

[@BrendaKnoll]

Sometimes, thanks for reaching out.

[@SCsweettea]

@@BrendaKnoll that was my worry too. My dad shoved an old man on a walker down. He began the night wandering too. He blamed me for everything. I know it was the disease, but it was incredible pressure. I felt so unloved. Eventually i had to place him in a secure alzheimers unit, for both his safety, and mine. It was such a hard decision. He ended up bonding with an old lady in there, and they became a great comfort to each other. They held hands during th day and his life found some peace. Mine too. Bless you in this terrible journey. My one piece of advice is you cant do this alone. You need breaks, you need places that he can have daycare, or aids to come in and help. Sadly, resources are very few and far between. It will take a lot of phone calls and talking to social workers at a hospital, to get some answers. I hope others post resources on this feed that can help caregivers. Money is a big issue. Its like no one in power thinks about the cost of all this. Good luck sweet lady, and my love and respect and prayers for you both go out to you!

[@BrendaKnoll]

@@SCsweettea thank you

[@dragonflyoracle4679]

I lost my husband to cancer. We had some of the same challenges. Telling him he could not drive anymore. The whole money thing. He was buying tons of stuff off Amazon, every month. Luckily he lost his card. After he passed away, I found his card in one of his pockets. It did effect his mind as well. I know about the temper tantrums. But having to tell him he couldn’t do certain things any more and feeling like I was taking them away from him was awful. My heart goes out to the both of you, but mostly to you, because at some point, he just won’t remember.

[@liaciba6388]

Oooooo sweet heart!God bless your we love you!

[@debbieb7414]

I am riding along with you Leslie. My partner is probably in stage 4 or 5. Hallucinations are constant right now. When he is in another room for anytime I find myself checking on him to make sure he isn’t doing something he shouldn’t. It is like watching a child.

[@PaigeSmiles86]

Thank you for sharing this video. My husband and I are going through this journey. Just seeing that we are not alone...it means a lot!! Prayers for you and your family!!

[@littlemissshihtzu]

Please tell Jason that he is held in high regard by our little family. And of course, so are you dear Leslie! I started a KZbin channel about the rescue dog we adopted after my mom’s diagnosis as a means to help us all cope with the sorrow that was weighing over our family and even though my channel is mostly about our one-eyed Shih Tzu, I have talked about my mom’s illness more and more as of late. I was her caregiver up until just recently. She is now in a long-term care home. I wanted her to stay with us for much longer than she did but she suffered a rapid decline in October that sadly changed everything. We have heavy hearts going into this holiday season, but we are trying so hard to keep our chins up. Your honesty and candidness deserves praise and compassion, certainly NOT judgement! Hugs and prayers to you and Jason! xx

[@mjarboesdf]

Leslie, you remind me so much of my auntie Esa. The way you carry yourself, your so gentle and kind, sweet, caring and loving and not one time have I ever seen you have a temper or mad. Just like my aunt, even when her only daughter was a H addict. She went through literally hell and back, raised her 2 grand babies for a few years while working full time being a social worker to mentally disabled children and teens. So, she works as a care giver as well. Her daughter, my cousin by the grace of God, recovered and has been clean for years now. You are just such a strong women, you help so many people! I wish the world could see your videos. You and your husband deserve the world! Keep up the amazing work, I know its sad and hard at times but, I hope you know you have so many people here when you need us! My Nana just passed last year of Parkinsons disease and of course dementia came along with the horrible disease. She hallucinated, got stressed out easily, but never got angry not once and never forgot who her husband, 4 kids and all of her grandkids and great grand babies were! She was are matriarch, the glue that held are family together and its so hard seing my mom visit her grave every single day since she passed, but it gives her comfort visiting and especially decorating her headstone. We know she is in a better place and at peace. Im happy to see that you have amazing family, friends and neighbors as well! Its such a blessing when you have a loved one suffering from such a horrible disease! Thank you for sharing and please always keep posting! I know the videos help you with stress and make you happy. Please just Ignore and skip over the nasty trolls that try to put in their two lil cents when they have no idea what so ever or have lived with or cared for someone with such a terrible disease! We adore and love you so much! 💗🤍💗

[@em......]

As soon as I saw Jason in the Hello Fresh ad I knew things had gone downhill and I felt so sad. I looked after my mother for 9 years alone. I finally got her to a doctor in 2019 and by then I was so exhausted that I almost stopped existing (I nearly walked in front of a car, on purpose. It was a fleeting moment, but it scared me). She died in 2020 and I have not been the same since. I am still exhausted and I can barely leave the house. I was lucky that my mum didn't have access to her finances. I had to delete her facebook as she was posting inappropriate things. Life is hard looking after someone with dementia and you are blessed to have a support network. sending many hugs from Australia.

[@beachysands4036]

Please take care of yourself. Sending prayers your way.

[@sharonhansen8010]

Em I understand completely what you are going through, my mother had dementia and I was her sole caretaker, for the first few years. I was trying to hold down a job and care for her. She started to become a “ wanderer” and I no longer was able to care for her as she would leave the house and not know where she was or where she lived. She would tell people I was keeping her a prisoner and she did not know who I was. People who do not understand this awful disease used to judge me and ask me how I could place my mother in a care facility. It was a 24/7 commitment to keep her safe. I know the feelings you are going through and my heart breaks for you.

[@kimkelly9046]

@@sharonhansen8010 God bless you. You Mom was lucky to have you

[@em......]

@@sharonhansen8010 hugs 🤗

[@em......]

@@beachysands4036 thank you ❤️

[@cherryrichley1935]

Sending you love and thank you

[@sammyrichardson7305]

Thank you Jason for letting us know how you feel and the feelings you are having. My thoughts are with you both. sending you love, strength and rest from the U.K. I believe I know how difficult it must be to produce you’re videos so I am thanking you both from the bottom of my heart. Please do not take any negative comments to heart or give them any thought, you are doing a great job and when did the word or act of Mother become a bad thing. We all,see the care and love you give and I also see the pain and heartbreak. Look after yourselves as well as Jason x

[@lindafrost9813]

My beloved mother died at 82 from this …. It was an 8 yr struggle and I was glad when she got home to Jesus and was all better ! 😢 I thank you for your posts helping others … prayers for you both as you go on this journey 🙏🙏🙏🙏🙏🙏

[@vickisturgill4792]

I cannot even imagine what this is like day to day. Prayers for you and Jason

[@cathelowry2296]

Praying for you and Jason. Breaks my heart. I am my husbands care giver. The VA has provided us with home health and supplies. Grateful for that part. You are strong. Your faith is encouraging. It's nice to know I'm in this boat alone, but there are other boats in this lake with us. I thank God for your channel

[@lanaritter9410]

I am a nurse and have cared for many with dementia and have also done private duty in family homes. I don’t remember any of them that would have wanted to be on cyber around the nation. I felt his heart when he said he didn’t want to air his issues in front of everyone!😢😢 I do feel your heartbreak as care giver, it weighs down physically, emotionally even spiritually. You are in my prayers! You need to be aware of your safety!

[@sandramigacz1766]

I completely understand the concept of being the mother. I have a dad with dementia. I’m no longer the daughter, I’m now the parent. ❤

[@joanmilano5302]

I cared for my dad, and watching that decline is heartbreaking. I remember the day my dad looked at me and I realized that "the light was on, but no one was home"... it scared me, and it was then that I knew that life would never be the same. I wish you patience and understanding for this next chapter. We are all praying for both of you. You are amazing!

[@jayneetrudell422]

someone should come up with an app that someone with dementia can use to 'purchase' stuff, but they really aren't. It's the ability to go thru the motion with the consequences.

[@robinduke3184]

Oh girl, my heart breaks for you both. You should never, ever have to deal with ignorant remarks or judgment. I see your openness to share such hard moments as a ministry. You have such a positive and pleasant personality, it’s easy for us that watch to miss the incredibly hard situations you are going through. I haven’t gone through anything like what y’all are going through, so I don’t even know the words to say. I just hope it helps to know that I’m praying for y’all. 💛

[@Shell04937]

I love this, it's awesome hello fresh has enabled Jason to keep cooking. As a Nurse I truly believe that patients who felt they had a purpose and could do something they loved pre dementia were less agitated. 💜

[@doodlebug4022]

Leslie, God has his arms wrapped around both of you. We will keep you and Jason in our hearts and prayers.

[@seastarma]

You two are lovely, individually and together. While I am sad that you are dealing with this heartbreaking disease, what a gift of understanding you give to others by sharing your experience with us all -- both the experience of dealing with this disease and the experience of facing it with love and everyday courage. No judgment here -- Jason, you are so strong and honest! And your wife loves you so much and so well

[@susane4078]

I’m a retired RN whose own grandma was diagnosed with Alzheimer’s. Her son and his wife did their best for years until they were worn out and she was then cared for by professionals at a wonderful facility. Extremely difficult decision!! Please make sure that you are being kind to yourself!! You and Jason are in my thoughts and definitely in my prayers! ♥️

[@judym2676]

I’ve added you, Jason and your family, and others living this life, to my prayers every night. Thanks to both of you for sharing your story.

[@ItsKelsiesLife]

I love you mom and dad ❤

[@trinarenae8625]

So much respect for you & Jason… praying for you both 🙏❤️