LIVING WITH LEWY BODY DEMENTIA | OUR SECRET JOURNEY Ep.1

[@ACharmingAbode]

You never know what someone is going through. Be kind always. ♥️

[@janenefelter4056]

Hey!! As a mother of three Aspergers Autism sons...I can relate and recommend you study about autism. LBD is similar in affect, by compromised damage versus DNA, and the struggles with temperament and lack of s/t memory, to that of Autistics!! Best wishes and blessings!!

[@nicolarollinson4381]

❤

[@nicolarollinson4381]

Everyone helped his neighbor, And said to his sister and brother, “Be of good courage!” Isaiah 41:6 NKJV ❤💪🏽 You can do this...Because there is love in the midst ❤

[@rosegledhill2018]

Kindness and compassion is the best medicine

[@medrawilliamspm8362]

@@nicolarollinson4381 ui

[@sunshsophprd.0565]

PEOPLE! BE KIND WITH THIS WOMAN...PLEASE...SHE HAS A LOT TO DEAL WITH ....THAT MAN WITH THAT LBD IS THE LOVE OF HER LIFE.

[@sharonshoop495]

My heart aches for you. My husband died 13 years ago at 66 years old from Lewy Body. I took care of him until the day he died and I HAVE NO REGRETS!!!!!!! Blessings to you!!

[@issystar96]

May i ask how long he lived after diagnosis? My ex, whom I share 2 young kids with, was just diagnosed

[@ItsKelsiesLife]

I’m so proud that both of you are my parents ❤️ mom, you’re the most caring soul and dad’s got the best partner in life. Dad, you’re the best daddio in the whole world and I’ll always love you no matter what! I’m so proud to be your guys’ daughter. I hope you decide to document more of dads journey. So Pitt State Huh?

[@emmascott6839]

You should be proud... how brave to share something so personal, always watch your channel kelsie. It's so lovely they have people to turn to... yourself included, god bless them. Truly your mum is a angel I know personally how difficult watching a loved one decline is xx

[@nicolarollinson4381]

💜❤💚🔥🧡

[@eeustmenahohw7844]

Gold

[@newportjente]

❤❤❤❤

[@babs3343]

Start living your life. Both of you,

[@bobscott7253]

I just lost my bride of 50+ years on October 12th. She developed Parkinsons disease about 17 years ago. Unfortunately, 80% of those with PD develop Lewy Body dementia, which she had for the last 3 1/2 years. Most people think dementia is forgetting names and faces, but there’s a whole range of moods and character changes, which present huge challenges. As a spouse taking care of your loved one can have huge challenges and frustrations, realize your wife or husband doesn’t mean the things they may say that may be hurtful. That’s not who they are, that’s not in their heart. Rather, it’s the dementia that has created the defiance, accusations, and combativeness of this sick and twisted disease. I prayed everyday that the Lord would keep me healthy for her, and that He would give me the strength and endurance to complete the journey we faced, and He did just that. I commend this young couple for their willingness to go through this challenge together. Leaning on the Lord and their love for each other, will get them through this challenging journey. However, patience and understanding will be required to help curb the frustrations.

[@verngib9041]

Many moons ago Jason was my commander! Im sorry you and your family are going through this challenge. I wish you and your family well and will be praying for your family as you go through this storm! You are very brave! As you learn about the condition, Keep documenting and help others who may be experiencing the same type of symptoms!

[@sevenrahman1833]

Im 36 & have acute dementia my IQ is 172....It's hard to watch myself deteriorate but it's God's plan so I can't and refuse to complain....God bless your family

[@bodhimarkprinz8001]

I love the fact that you included us, the world, into your lives and shared something so intimate and personnel with us. I still am crying because your husband knows he has you there for support and caring and he knows for now that he won't be alone. I am a doctor, OB/ Neonatology, with Doctors Without Borders and served 11 years in Africa ( all provinces ) and had symptoms of MS on and off while there. I talked to a lot of the doctors there and we all had the theory that I had MS. After a sabbatical in Israel, I talked with a cousin who is a specialist in autoimmune diseases and he felt I should be tested and try and narrow down the possibilities. While home I had to go to New York for budget meetings and the power went out that day. I had to walk down the stairs as I was having difficulties because of double vision and no color in the right eye ( optic neuritis ) I fell. I woke up in Beth Israel Hospital having stitches placed in scalp. Didn't know where I was and after 5 hours of testing from MRIs and spinal taps and blood work and neurological exams, it was determined I had MS. I went home and talked with the wife and we both wept. What are we going to do? My life's work will eventually take a turn and I am so perplexed. I am a believer in Yeshua ( Jesus Christ ) as a Messianic Jew and so I became so depressed. I went on another tour to Asia now and I literally tried to commit suicide. I was so ashamed to have to tell my wife because she is a believer too and I did not want her to know I was totally in despair. Eventually, on subsequent trips I received paperwork from her that she couldn't deal with a disease that would eventually cause me to lose function with dexterity and cognitive impairment, so she divorced me. After 28 years of marriage, she left. I was devastated. Now I am all alone and have no one to hold my hand through this disease and the turns in the road and end of life. I have GOD and HE will never leave me nor forsake me. But we are physical and need physical touch and beings to be with. So I pray every day that HE send someone to me to be a part of the journey. I am so happy you shared your story and to see you guys laugh and share the fun times together. But I know it isn't all roses and smiles especially as he progresses with the disease. Especially for you now a caregiver as well as a wife. But my hat is off to you for staying the wave and riding out the storm so to speak and giving your husband the very fact of having someone close and caring to make life a little simpler and happy for both. Thank you so much for your story. Bless you and Shalom- Dr. Bodhi Mark Prinz.

[@rebeccalaird4508]

He’s brilliant. More of HIM.

[@ACharmingAbode]

He's pretty great!!! Thanks for watching! 😊💜

[@brandiewhite2550]

Praying for comfort, strength, patience, and healing in Jesus name! Amen!

[@bwj999]

He (still) has a good sense of humor which will get you through anything and he is obviously quite with it. Thank you for your service and good for you for your bravery here - true American heroes.

[@shelton1567]

Thank you for being a NICU nurse. You are one of God’s angels on earth. I am sorry that you and your husband are having to walk this difficult journey.

[@mmmmlllljohn]

What a sweet man and sweet couple. His intelligence is still evident and his sense of humour. Will be praying for you. Just subscribed. ❤️🇨🇦

[@tsmathews61]

I lost my sweet sister to this horrid disease. Prayers are going up for you and your husband. My heart is breaking for you while watching this. May GOD be your strength and fortress as you go through this. GOD BLESS YOU!!

[@vkmccable]

I'm a retired nurse. Love your gentle, sense of humor. God Bless you. I will keep you in my prayers.

[@autumnskye5882]

You two are amazing. I took care of my grandma and it was the hardest thing I’ve ever been through. Caregivers need to take care of themselves as well. My grandma been gone 20 yrs and I’m still tired. But I’d do it again even when she got so mean. It’s a heartbreaking disease. ❤️

[@TheFiown]

Empathy can also be a curse in life. I wish that I didn't feel other people's emotions as much.

[@carolfarago2372]

Lost my husband three yrs ago, he fought but lost. I went from wife into caregiver... It's very difficult. God Bless you

[@lindapelle8738]

A big thank you to Jason from all of us for being so brave and serving our country. Who knows where we would be without service members like Jason willing to sacrifice for our country.🦋🌈

[@laurie4275]

I would very much like you to continue this documentation. My mother has entered dementia and she feels so frustrated and humiliated. We hurt for her, and are so frustrated ourselves. We feel very unequipped for helping her through this. Thank you, Jason, for being willing to share your Journey with the viewing public. I realize this is an intensly personal matter. You're very gracious and brave to be willing to help others with this.

[@lilyrose2909]

Jason, you are an inspiration to all of us who love and care for people who are afflicted with dementia. Thank you for sharing your story. Remember you are ALWAYS loved.

[@bwaredaphog]

I am so sorry to hear this...you have me in tears,. You are so brave, open, honest and have so much love in your heart. Thank you to you both for sharing this! And thank you, Jason for your service!

[@serenagomez3864]

Thank you! My husband had 2 strokes 3 months ago and is exhibiting some of what you have mentioned. He is 71 and I am 70. "I can do all things through Him who strengthens me". Will keep you both in mind and heart!!🤗

[@darcymalarchik7711]

Thank you for sharing your story. My husband is a 38-year-old combat veteran with similar issues, and also a crazy-high IQ! So much of what you are sharing resonates with us. We appreciate the grace, love, and empathy - and the sense of humor! - with which your share your story. We are coming to terms with how to live with this now, after my husband’s head injuries, and you guys are a great example. Thank you - you help us to know we are not alone.

[@kdawson8981]

I feel like this woman works full time, double shifts with little to no pay. What an angel she is to take care of her husband. ❤️ 17:03

[@gschaaf713]

I can feel the pain in your struggle. He is lucky you love him so much.

[@valeriehunter3795]

Just found your channel. Our Mom was diagnosed a couple of years ago but I can look back and think of signs at least 6 years back. The sleep issues, tremors, leaving the stove on... Yesterday was a good day, last night was NOT good. One sister now lives with them and other sister and myself live in same neighborhood. Takes a village to raise a child. Same for dementia.

[@stephaniebrown1938]

Your video is beautiful and so very sad. I'm so sorry about your struggles. My heart is with you. I am 40 and a single momma of 4 amazing children. I also have dementia. It's so tragic isn't it.. heartbreaking and cruel really. I try my hardest to focus on the positives and always keep my sense of humor. You're a wonderful couple and I pray for so much healing and blessings for you. Thank you for sharing your story. ❤

[@TheSumom1]

My mom has dementia which seems to be progressing . I see the person she was and find understanding of what her life has become . Always take heart that the love we share can get us through anything .

[@melanie4926]

What a beautiful couple, inside and out! Thank-you for sharing your experience with social media. I know it's going to be a fight but the VA should award benefits to financially support you.

[@debbiewiands1822]

Such sweet people. Blessings.

[@ACharmingAbode]

Thank you!! 😊

[@Trendlespin]

You touch my heart, you are true warriors. Blessings to your beautiful souls.

[@karami8844]

My dad just died last week from Parkinson’s and Dementia, the journey was the same as yours. He was 60 years old when diagnosed with PD and died at 67. The dementia was just so aggressive, he became nonverbal in just 2 years after being diagnosed with the dementia. My mom and I took care of him to the very end. I miss him so much. I can’t talk about my dad and his disease without breaking down and crying, even when he was alive.😭😢💔

[@vickiwaller9073]

I’m new to your channel so I’m just now seeing this video. I totally feel for you. My husband was diagnosed with MSA (Multiple System Atrophy) at the age of 50. I had to leave my job to become his full time caregiver. It wasn’t easy. Sadly he passed away 6 years ago at the age of 55. I know its a completely different disease but God Bless you both. Thank you so much for sharing your journey. I know it will be helpful to you. Just remember you are both very strong and courageous. Keep your faith. Prayers for you. ❤️

[@ACharmingAbode]

I"M so sorry to hear about your husband. Thank you for sharing with me. Thank you for the prayers, we really appreciate it! Welcome to my channel💜

[@smarterandwiser3407]

So sorry to hear this. LBD is especially nasty because of all the fluctuations. You spend your life on a roller coaster. I can highly recommend Pat Snyder (LBD specific) and Teepa Snow (all dementias) videos. There will come a point where you feel like you're going stark raving mad and are totally alone. Theses forums really help. Wishing you the best.

[@maryobrien6834]

I took care of my Dad until his death. He was very appreciative for his favorite foods. He thot I was 16 (I was 60) so I called him Daddio as I did then and he called me his darling daughter as he did. We had fun. I hid the guns. He was like a 3 year old. I got a lady to. Come in n give him a shower and do his clothes. He was seeing animals in the house and thot I had parties each night when he was in bed. God bless all of us.

[@memeboyer5380]

Jason has the best personality

[@anniehamilton2524]

Thank you for being so brave, open and honest. Chronic disease is very tough. My ex husband has MS and it has sadly I taken so much away from all of us. Good luck and take care

[@weepingwillows21]

Oh.... Listen, you're very brave for telling us, and it's ok to feel sad. I hope you're both doing okay. Lots of love.

[@Pamela-Lynne]

I'm a new subscriber as of today. You and Jason are such a beautiful couple, inside & out. Please tell Jason Thank you for his service 💙❤️💙❤️

[@ACharmingAbode]

Thank you! Will do!💜💜

[@jeannineterese1037]

You’re beautiful & classy! Thanks for sharing something so personal. The love you have radiates thru the screen.

[@josyjump]

I've never heard of this type of dementia..I'm grateful to you for sharing your experiences..it teaches people, however difficult it is for you guys. Bless you and your family xx

[@anneramsey6403]

My uncle had an accident in Thailand. He, as well as lots of other injuries, had an undetected head injury. He also had lewy body dementia. My heart goes out to you. X

[@ACharmingAbode]

I"m so sorry to hear about your uncle. Thank you for sharing that with me. I appreciate your kind words ❤ thank you so much for watching!

[@rnupnorthbrrrsm6123]

Well you have had me bawling and laughing ! My heart just aches for you both, such a horrible thing to face at such a young age. You two seem to be strong and are facing this together, I pray for Gods guidance, strength, courage and peace for each of you and your family !!! Blessings

[@kimcarter6214]

Bless you both. Two years ago we got the diagnosis that our mom has vascular dementia. It is so hard watching your loved one decline. Thank you so much for this video and I would love to see more. Watching this has helped me more than I can express. Thank you so much and God bless you and your family.

[@nonono-rf7ox]

Thank you, you don't know how many of us are encouraged and getting renewed hope from this♥

[@jessycassidy4325]

I worked in memory care for many many years (9+ years). I would not trade those years for anything. I am only at 2:23 and already tearing up with you. Your love and care is amazing. I am so glad that your husband has you for support. Too often people with dementia just get left in facilities. You be a hot mess, let those tears come and go. And who cares if people don't like how you broke the news? You and your husband seem to have made the best choice you could and that was best for you two. Neither of you need the extra stress of telling each individual person in person. You do you. I can already tell you will be a great advocate for your husband. Ps. So glad I found you channel today! (Thanksgiving 2020 in the U.S.).

[@tlhoward5655]

It takes compassion for others and courage to share your journey. Thank you.

[@HindsFam1]

Thank you for sharing your story. My family walked this difficult road as well. Praying for your family. ❤️

[@ACharmingAbode]

Thank you Dana, that means so much!

[@leeking8405]

God bless you both! I held my father as he died from DLB three nights ago. We had the best neurologist in the US but he couldn’t outrun it. I’m so sorry for you. This disease is ALS meets Alzheimer’s with a touch of Schizophrenia. But it can be managed for some time. Start Carbidopa Levodopa as soon as possible for the Parkinsonism symptoms that will occur. He will freeze, blood pressure won’t regulate and standing/walking will become difficult. These Parkinson’s drugs will help! Delusions will get bad (usually they will include you as another woman or your house as an alternate)...Capgras Syndrome. It’s normal and benign. Seroquel will help at that time. Do NOT go with Nuplazid. If you have questions I’d love to help. I do HR so it’s my nature and my Dad was a GOOD Police Officer. [e-mail] if you need more info. M rooting for you both and your whole family. For what it’s worth, my Dad passed peacefully...nothing like what I’ve read. Morphine, oxygen and Ativan are the winning combo. Seriously wishing you 20+ years of life.

[@ACharmingAbode]

Thank you so much for the wealth of information you provided! We truly appreciate it! 💜

[@mauramcferran2612]

She is gonna need lot of help and support xo God bless both of you xo

[@sydniecampbell4324]

Coming over from your daughters page! She is a gem. You guys should be so proud. I will be adding you guys to my prayer.

[@ACharmingAbode]

Thank you so much for your support!

[@samanthatodd7100]

I laughed, I cried, still crying.. still giggling about the auctions. Jason saying hes "lazy". Such a good insight on what people with this horrible disease go through. Jason, you better keep cooking or your going to get fish sticks and mac and cheese from Leslie. Much love to you both! ❤ Also, you have amazing neighbors! ❤

[@ACharmingAbode]

If he’s really lucky he will get my sloppy joes😂 Thank you always for all your love and support ♥️

[@yvonnejenkinson9460]

This has touched my heart ❤️ so much I too am my husband’s care Giver we have been married for 42 years he was diagnosed with Alzheimer’s and vascular dementia in june 2020 and life is certainly not the same but different , I gave up my job to take care of him , and like you I am taking it one day at a time . We can do this 💪🏻 xxx

[@cynthiam1381]

Yes you are a nurse, please remember that your his wife as well , hopefully you can get respite care for him as well 🙏❤❤❤

[@debihuddleston7829]

Thank you for being so strong and sharing. I had to share this with my co-worker - his dad lost his battle with Dewy Body Dementia last week. Thank you and may your faith get you both through this journey.

[@ACharmingAbode]

Thank you so much for watching!

[@riodesign3]

Thank you for your honesty and kindness! My mom was recently diagnosed with LBD. She's 73. It was a big shock for all in the family.

[@ACharmingAbode]

I’m so sorry to hear about your Mom! Sending you prayers! ❤️🙏🏼

[@shannoneddins204]

You are so brave. I am proud of you for sharing your story. Thank you for your service and for your willingness time still serve those of us that are facing this horrible illness with LBD. Many prayers and love your way!

[@danielbaladad5959]

He is so lucky to have you. Good luck

[@dawnbozykowski1306]

I’m not sure why this was on my newsfeed but watched and fell in love with you both. Subscribed. You are a beautiful couple and you were put together for a reason. God bless the both of you.

[@joannegilmour3774]

Unfortunately, swallowing problems can happen with lewy body dementia ,parkinsons ( my father in law had it) to the point that all his liquids had to be thickened. You both did such an excellent job in describing everything. All the best to you both

[@amynadine9669]

Both of your spirits and souls are lovely. Sending hugs. Never give up hope. ♥️

[@TwinsationalRS]

Nothing but Blessings and prayers coming your way🥰 Shonda and I were both nurses then I changed to radiology after 20 years... and both started out as CNAs....we TOTALLY understand. We salute your bravery and courage and will humbly go along this journey and support you two through your videos❤️

[@ACharmingAbode]

Hello fellow nurses! :) Thank you so much for your support, I truly appreciate it! It's nice to have others who understand where I am coming from!

[@marileejoan]

I’ve just started listening, but had to pause to comment because I’m so touched by this story and your honesty!

[@ACharmingAbode]

Thank you so much! 💜😊

[@deniselaumeier9848]

Just lost my mother Friday to this horrible disease. She also had Alzheimers. We were fortunate enough that she still knew who we were till the end.

[@sharonpence6919]

God bless you in this journey, you are so sweet, love you two together

[@freedomfitness8720]

I love decorating and I have patients w/L.B. so please keep going with this. Your gifts are blessings as you know, but I hope you can get into a support group for caregivers. People like us tend to GIVE so much but to the point of pure exhaustion.

[@bfreeinjesus2323]

Your story so touched my heart! Thank you for sharing your story with the world. I just stopped by to encourage you to stay strong and know that Jesus Christ truly loves you, Jason and your entire family! My prayers go up for you and Jason!

[@ACharmingAbode]

Thank you so much!😊

[@KayeCarterTV]

I have a family member that has this... thank you for sharing sweet gal. Sending hugs, prayers and kindness. 💕👍🏼🙏🏼

[@sarahnegus1]

Oh, Leslie. I am so sorry for this diagnosis and the hard times you are all enduring. I’m proud of you for sharing and you are both so brave. Stay strong and do your very best. Mistakes will happen and that is okay. Please take time for yourself and be sure to talk to people. It will help.

[@bobbiemooser7417]

Bless you both for sharing your journey. This is such a difficult time and my heart goes out to you. ❤️❤️❤️

[@sherrymacaroni5916]

Prayers for you both... sincere prayers.

[@suelragusa9380]

Yes my husband does the throat clearing growling all the time. I learned to overlook it. He also wakes us constantly with a choking sensation. He says sometimes he feels he can’t breathe and sometimes he says he feels a choking sensation. He’s even woke up a few times and asked me if I had my hand on his face throat or neck and both my hands were holding his hand in between us. It’s kinda scary to me that he would feel that way. Yes it’s scary to feel like a wife and a caregiver and the manic episodes are the absolute worst. Days and nights without sleeping, with him being agitated and aggressive. Seroquel has been a life saver.

[@ACharmingAbode]

Jason has been choking on his food so much lately. It causes him to throw up and sometimes can last for hours! He also has times where he can't sleep and will stay up, and then times where he sleeps for 14 hours and still doesn't want to get up! For the most part, I have his moods controlled with medication, so that is very helpful! His new thing is the muscle rigidity he has in his right hand and arm. I feel so bad for him because its painful! We have an appointment coming up, so hopefully we can see what we can do about that. As a nurse myself, I agree with you that it is scary to be both wife and caregiver, but I"m thankful for my nursing skills to help me with what is to come. I"m here if you ever need to talk! 💜

[@donnavaughn9409]

This seems to go w/ very intelligent people

[@tiinahamalainen4071]

I’ve got LBD so this was great. Thank you!

[@ACharmingAbode]

Hope you are doing well! ❤️

[@tiinahamalainen4071]

Up and down but videos like yours help a lot. Please carry on. And best regards to you both!

[@Kennabeth07]

I had to go back and watch your journey from the beginning. First, Jason thank you for your service. I appreciate all our men and women who serve in the military. I am very thankful for our freedom because of all who are and have served, so thank you!♥️ My husband is retired army with 60% disability from injuries sustained during his service. Nothing like what you both are going through. Know God has now laid you on my heart to pray for you, to be an intercessor on your behalf. I can’t imagine or even can begin to relate with what you are going through but God can and does and will walk every step with you. Thinking of you both, you are amazing people, good people! Love and prayers always!

[@ellawilliams1014]

It is so good that your husband realizes what is going on and can talk about it. My husband thinks there is nothing wrong with him and that the doctors are wrong.

[@ACharmingAbode]

Ella Williams Jason use to be like that, but then it became way to obvious! At first I would point out what he was doing. Sometimes he would hate that, but now he appreciates it. I’m so sorry you are going through this! Hugs 🤗

[@royaldame6492]

I feel ya on that one

[@jenkingsbury2508]

My thoughts and prayers are with you all as you continue down this uncertain road. I've known Jason for a lifetime, school and my sister married in to the Weiser family. My heart breaks for you but I admire your choice to share the journey.

[@paulahawes8694]

Bless your family. I can only imagine what your husband is feeling. You and your children have a hard road to follow. May the God of Love and Compassion wrap his arms around you all. You all are in my prayers.🙏🏻💜

[@margaretmikell6326]

So sorry to hear this. You are all in my prayers 🙏🏻🙏🏻🙏🏻

[@laurenmeyers9772]

You are so strong and amazing ❤️ I’m so proud of you for sharing your journey

[@kimlewis7221]

Leslie, I am so sorry for this diagnosis. I loved seeing Jason in your video. Do not regret this decision on publishing this one it is good for all of us to not only see what you face in your day to day but also like you said that it may help someone that might be going through similar circumstances. I pray that your channel takes off at a rapid pace and gives you what you need to be able to be together full time. I know that God's plans are higher than our plans so I can't wait to see what He does for you. God bless you both. And Jason has given a new name to the 'bell' -"Hit the ring-a-ding-ding" that made me laugh!

[@ACharmingAbode]

Thank you so much! This comment made me smile :) I'm also curious what God has in store for us? I trust him with my whole heart and know he is walking this path with us. Thank you for your support, it's truly appreciated!

[@gurlgotstyle]

You guys are so adorable together! So many parts of this video made me smile

[@rosemariepodwoski7410]

No one so far has committed on the meanness. The name calling, the swearing, the destroying stuff, the fighting against your helping them. It's hard night after night even day after day.

[@jadesea562]

"If i could tell the world just one thing, it would be... that we're all ok. And not to worry, because worry is wasteful and useless in times like these. I won't be made useless. I won't be idled with despair. I'll gather myself around my faith, as it's the light that darkness most fears."

[@lizziandlewy8803]

First time watching and I'm blown away. You are an incredible couple, you really are! Listening to and watching you both is very inspiring. Keep smiling those gorgeous smiles and be kind to yourselves, always! 💞 ✌

[@pamowen3452]

God bless you honey from one nurse to another

[@leroyjohnsonsr8481]

This very helpful, as my husband just found that he has this , thanks it helps to know what is ahead of us.

[@betsytodd4475]

I happened across this by accident & I'm so very glad I did. You will probably never know how many strangers you have helped. A dearly loved family member of mine had a TBI 15 years ago. He recovered enough to continue with his life as it was before with only some minor deficits, or so we thought.Over the last 2-3 years, we have seen a lot of cognitive decline, especially in the last 6 months. Sound familiar? His neurologist diagnosed him with LBD just 2 months ago. Thank you, thank you, thank you for sharing this with us. I'll come back later & share the things we have seen that match your experiences. You are not alone. Just seeing how much love there is between you is good for my soul. ❤❤❤

[@ACharmingAbode]

It's comments like this, that make me so happy we decided to film this! It's just crazy what similar situations we are all in. I would love to hear how your journey is going and I'm always here if you need someone to talk to! Thank you for sharing with me. Sending big hugs! 💜

[@Calderimarauder1]

Thank you so much for sharing your life with us.

[@mimisdinatale]

Thank you. That was very interesting. My friend was diagnosed with that last year, but I’m not around her often enough (especially with COVID - I’m 72 and live alone, so I have been reluctant to venture to her son’s house till a few months ago) to see changes. Learning from you might help me be more empathetic. 😷. Goodness, I didn’t realize how long ago this one was posted. I will look for your newer ones.

[@margaretnorris8066]

You and jason are in our hearts and prayers. Please keep us updated. Hugs

[@kathielittlefield1795]

My aunt had Lewy body... I’m sorry you are going through this. God Bless

[@ahsanbulbul8512]

Don't lose hope sis! Keep faith in God..... Your support means too much for him. Wish he'll get well soon.

[@brindynichols7921]

Thank you so much for sharing your heart, your story and your life with us. You two have each other and the love between you is admirable. Prayers to both of you and many blessings on this journey!

[@katieskottage8251]

Love you guys so much! Such a blessing to have you in our lives. SO many good memories. You guys have always been there for me and we are here for you!!

[@HannahMS1813]

Thank you for being so brave and putting your story out there! I hope you have a wonderful trip overseas and enjoy living in the day. I’ll be praying for strength for you and your family ❤️

[@ACharmingAbode]

Thank you so much!!

[@janharness9195]

Leslie, I'm one of your NICU Love and Hugs volunteers. My sister Eva just went through this with her husband; he was in his early 60s when diagnosed. He got both an atypical Alzheimer's diagnosis and a Lewy Body diagnosis, so ... not sure. But much of what you're describing here matches what Eva dealt with. I'd be glad to connect you with her, if you ever want to talk to someone who can truly empathize with your situation. Meanwhile, I'm sending you hugs and keeping your whole beautiful family in my prayers.

[@ACharmingAbode]

Hi Jan! Thank you for sharing what your sister dealt with. Let's connect at work for sure! Thank you so much for the prayers, that means a lot!

[@nelidarubio1474]

He’s so cute and young. I wish the best for you guys! Good luck!!!

[@jacih1034]

Been watching your channel today about decorating and came across this beautiful video. It takes a strong partner to keep life going as normal as possible. There is so much love, admiration between the two of you. My hubby helps me with my MS. We keep it real but find humor in everyday situations. It is comforting to know he is there for me.Thank you to your husband for his service. Blessings on you both.

[@jiraakarasena6031]

Stong person like you will sail to victory! Keep your chin up and love him through the waves you sail together to the end! My heart will be with you!