Symptoms: Pain abdomen, Neurological, Dark urine (port wine), ±Hyponatremia Diagnosis: Send Urine for Porphyrins, family history, Swedish countries
@ICUSocialWorker3 жыл бұрын
I have AIP another common thing. I have my attacks during my period or After my period. Was fine during pregnancy but after pregnancy attacks got worse
@melodysmind11655 жыл бұрын
The Carmenator Channel actually has Porphyria Hereditary CoProPorphyria
@hrimatidasi2 жыл бұрын
AIP is very bad. I have it and so do most of my family members
@tubeysr2 жыл бұрын
Sorry to hear about that. Can you tell how and when you all got diagnosed? What treatments are you taking? Which country you basically belong to? TIA. Be well
@hrimatidasi2 жыл бұрын
@@tubeysr we are a family of 10 siblings (5girls+5boys). Our father is from Germany 🇩🇪 and our mother hails from Italy 🇮🇹. We were diagnosed for AIP, after one of our sisters had a severe attack with not only pain but also paralysis. It was probably triggered by medications she received during a hospital stay.