Adolescent Severe Scoliosis Curve Reduction: Kaley's Story

[@tanydany5040]

In 1979 I was diagnosed with severe scoliosis. I wore the Boston brace for several years, barbaric and it didn’t help. I was also placed in the Milwaukee brace for part of the time. By 1981 I had a 75 degree curve and I was devastated. Neither braces had been enough to stop the curve, and I was referred by my Dr. to have surgery. In 1981, Honolulu Hawaii, Shriners hospital is where I was at for my surgery. I had my lower back fused, the last four discs are fused, and I had a 14” Harrington rod placed in my back. I was in the hospital for a month, part of the time I was in traction and couldn’t move. I checked into the hospital and spent my 14th birthday at the hospital! A whole month of being away from my family and friends! I only had one follow up appointment, I waited six months to get my cast off! That was the end of wearing braces for me!! I guess the surgery was a success! I went into the hospital 5’5, and one month later I was 5’8, my curve was 45* I grew 3” in one month!! The only thing my Dr told me was not to get into a car wreck!! I didn’t have a car wreck until 2004! Then I was rear - ended at 45 mph! That was the end of my career! Until that time I worked juvenile corrections! I didn’t ever want to consider myself disabled, or disadvantaged! I tried my best to hide my differences and I was happy to work!! I didn’t want anybody’s empathy or a special pass to sit down!! Until this day, I have had severe PTSD from the trauma of the hospitals and Dr.’s. I could write a book on the tragic events that transpired in the hospital, that caused me so much distrust in Dr.’s But I survived ~ and I am here to share my experience with whomever reads this. Most of my younger adult life went unaffected. It was after my car wreck that my life took a devastating turn. 17 years of losing my ability to walk, or stand. Sitting is better, or laying down, but it’s not better for long. At my last MRI, they discovered that my curve is getting worse. It’s 63*, so it’s went from the 45* after surgery, to back to 63*. It’s been almost 40 years! I am 53 and I am nowhere near the health of my youth. Looking down the road of options for me ~ I don’t have any options. Managing my pain and trying to find a purpose again. I can’t really say there’s a silver lining in my story ~ except for the fact I survived the surgery and wasn’t paralyzed, and I was able to work almost 20 years after my surgery! I guess that’s my silver lining! Be well and thank you for letting me share my story with you.

[@ScoliosisReductionCenter]

Thank you for the sharing

[@eltocayo87]

Wow I want to thank you for sharing your story. My daughter is 12 years old and will be going into surgery this month on the 25th of May. She has 45 curvature and I am hoping she can have the most normal childhood. Hope you find purpose in your life, much love from Austin Texas.

[@garylagrazon8695]

Hi Doc, my daughter has scoliosis findings. Do you have an office/clinic here in the Philippines? Thank you.

[@ScoliosisReductionCenter]

Although our clinic is based in Celebration, FL, Dr. Nalda provides assistance to patients from all over the globe. If you are interested in scheduling a consultation with him, we can arrange a phone appointment. Dr. Nalda holds the highest level of certification as a CLEAR-certified Senior Fellow, having obtained one of his scoliosis-specific certifications from the CLEAR Scoliosis Institute, which is an indication of his exceptional expertise. However, if you prefer to locate a specialist in your area, you can explore their website at clear-institute.org/.

[@anjan349]

Sir, my daughter 13 years old observed with scoliosis with 53degrees im from India.. Please any solution sir

[@ScoliosisReductionCenter]

Hello You can learn more about our approach here: www.scoliosisreductioncenter.com/treatment-approach.

[@BigmanBigmoney]

I have scoliosi serous one am in pain every day but I don't have money to do surgery am dying of pain I live in Italy

[@ScoliosisReductionCenter]

While our clinic is located in Celebration, FL, Dr. Nalda helps patients from all around the world. If you’d like to schedule a consultation with him, we can absolutely do that over the phone.