Adult with Autism | Problems & Solutions to Understanding Autism | 46

[@janinemills6732]

Love your intro! I rely on it being the same every time, it's comforting 😊

[@AdultwithAutism]

I wouldn't have a clue on how to say 'hello' without it anymore 👍🏻

[@nancycarroll9501]

Brilliant!!!! This is an amazing idea! Research the older people with autism and find out what they have learned. Thank you Paul. And your opening is perfect and comfortable. It sets the table for whatever you are presenting. Einstein was brilliant and looked for the simple in the complex.

[@AdultwithAutism]

Thanks Nancy. I just don't understand why our voice isn't important in understanding Autism. Don't study me, talk to me instead 👍🏻

[@turtleanton6539]

Very nice. Children teens ypyng adults adults and elderly all should have our say😊

[@msb8612]

Brilliant, absolutely BRILLIANT! You need to get into advocacy, for all of us oldies. (And please, never change your into, or your extro) …you keep smiling, Paul 😄

[@jasonclarke7422]

Hi Paul, I continue to keep paying all my taxes after my diagnosis and it is just take take take, and I have not been offered any help whatsoever which really pee’s me off, I have not ever taken money off the government, I don’t have any kids and here I am someone with a disability paying for everyone else. Rant over 😡

[@AdultwithAutism]

Trust me, I feel that annoyance.

[@whitneymason406]

My son is nonspeaking, autistic and has high support needs. He has food sensitivities to dairy, soy, and gluten. Insurance doesn't cover the special foods he needs and they definitely don't cover supplements. He goes to speech and OT. The gas for traveling to and from therapy and doctor's appointments really adds up too. My mom helps us out financially but I worry about when she's gone how we will manage. Yes, I completely agree autism absolutely makes people rich, and often not the people who need and deserve it...

[@AdultwithAutism]

It isn't good. It's great you have someone to assist, but terrible that it isn't more accessible. People potentially being put at a disadvantage because they can't afford the assistance they need. It just isn't fair.

[@turtleanton6539]

​@@AdultwithAutism life is far from fair sadly

[@seanmcdonald4686]

⁠@@turtleanton6539Sometimes when people say “life is far from fair” I hear them say “life was never meant to be fair, so get over it and stop expecting anything at all to ever be easy.” I honestly don’t know if that’s what people want me to hear or not.

[@AdultwithAutism]

We can only do our best with what we've got. No one will knock on the door with a better offer. But sometimes we can do without the reminder that it's not easy!

[@PacificNWGrl]

First off, I love your intro!!! It is so calming and makes me feel like I have a friend. When you said no, with the hand movements, it made me laugh. Don’t listen to these clowns.

[@AdultwithAutism]

Never liked clowns!

[@infraredsprouts2073]

I have always been sceptical of the money making side of autism as with all pharma, to the point I couldn't convince myself to get a private diagnosis because I had paid for it, I know personally at the back of my mind I would have been constantly thinking was it biased in any way, as I can't see many people recommending a consultant who didn't diagnose in their favour, so I waited an extra 2 years to get a NHS diagnosis, now I can't say I feel any better for it but I have had reasonable follow up with the NHS and my own Doctor and have a little comfort that they didn't have any particular monetary gains, this being said I am in my 50s and guess I am far more suspicious than I was 30 years back.

[@AdultwithAutism]

Fair enough. Even with my private diagnosis, it wasn't something I could arrange without a GP referral. Just wish I could have gotten 1% of the aftercare side as I still haven't, and refuse to spend more money. I don't get one penny is assistance, yet life costs me more with having Autism. The joys.

[@motorcyclehair]

Paul makes them best “random videos” as he calls it. How dare they ask you to change your intro, it makes me feel good, safe and glad to be open & here you talk. Paul use the law of attraction to stop attracting such a “treasure trove” of trolls that love correcting or criticizing you lol.

[@AdultwithAutism]

Haha, unfortunately I can't help but attract people on occasion, who feel the need to tell me what to do...even though they've never put themselves out there to be openly criticised like I have. It's that thought that makes it much easier to ignore them 👍🏻

[@armandrioux3660]

You have an IMMENSE talent for oral communication!!! You are a mentally and intellectually VERY STRONG dude!!! This «chapter» was my favourite one of the about ten I have watched so far. The world needs YOU! And I'm part of this needy world. You make me grow and feel better.

[@AdultwithAutism]

I appreciate your kind words.

[@SestraVixen]

I can't believe that mouse study was even suggested to be related to autism. If you've ever read The Celestine Prophecy, it's prob one of the best books that'll make you consider humanity's evolution. I could absolutely see autism being a step in evolution. Btw, assessment on Monday. Wish me luck! (that I don't just run out of there and I'm able to actually remember enough of my childhood) Thanks for your videos & them pushing me to really look into this seriously.

[@AdultwithAutism]

Glad they help. I didn't remember much of my childhood either, and still don't. I'm very much a computer in the regard of 'if I don't use it, I lose it'. So my mind files it away somewhere that I can't find myself, instead it takes someone to prompt with a similar story to make it appear again.

[@SestraVixen]

@@AdultwithAutism prompts are what reminded me of things of never thought of as being related to autism, or thought everyone did some form of it.

[@DJ-Daz]

@@SestraVixen I'm curious, I have finally been accepted for an assessment, though I have no idea when, possibly a couple of years yet. But I noticed your avatar and you ride a motorcycle. How do you feel when you ride? The reason I ask is, when I ride all the noise just disappears, all the stress and anxiety vanishes and I feel peace. Sure it's there on the periphery, but I can ignore it. Do you feel the same?

[@TheLastEgg08]

I don’t see it as a step as much as a required state in the world. Same for Adhders. If you look into it, a lot of savants and who revolutionized our world are autistic people. In its own nature autism is less social than neurotypicality, in nature we’d be done for if we weren’t for socializing. The restrictions of autism could really hurt you in a nature setup. ADHD for sure makes up for the lacks of autism and autism does the same for ADHD. I just see it as each one has its own place, autism, audhd, adhd, ocd. Think of it as the matrix, whenever it needs the next step it gives you an autistic child, when it needs revolutionizing it gives you adhders and when everything is nice it gives you neurotipicality. Because as much as neurotipicals are annoying lol, their way of having the “general” empathy really helps in a lot of areas and their flexibility while being cautious also keeps the world going. REALLY oversimplified but I hope that my point isn’t seen as dismissing, rude or misunderstood.

[@jlppjo]

TRUTH BOMB took my breath away...and it hit me hard "We wear battle scars...my face isn't my face. All these laughter lines are fake from fake laughing for people trying to blend into a society." Your words poetically resonate with heartbreaking accuracy. Thank you for showing me the light so I can again recognize my self.

[@Marc-lx1qj]

Paul just want to thank you for the channel mate. My / our autism is a mirror image and it's been reassuring and a help. Step back and enjoy life and be proud you've made a difference ti at least one. Cheers

[@AdultwithAutism]

Thanks Marc, it's all I wanted to do 👍🏻

[@Marc-lx1qj]

👍

[@dannydowns601]

Hi paul great video perhaps there's a strong point to this going back to human evolution when it evolved,our dna genetic fult line occurred thounds of year's ago which made us different because like all forms of evolution they will go wrong,its just a theory but I'm so glad I've found someone with autism who speaks the truth and being honest I enjoy your pervious videos because it relates to my autism most of the time it's like we always seem tested by society my struggles are traumatic but your doing a great job by being brave about such a sensitive and personal thing our autism

[@AdultwithAutism]

Thanks Danny, glad you enjoy them when you do 👍🏻

[@myselfme767]

It's 34. 😀 Love your videos, they're very helpfull.

[@AdultwithAutism]

Thanks Gerry 👍🏻

[@motorcyclehair]

Paul's the best!

[@AdultwithAutism]

👍🏻

[@bryanmerton5153]

Excellent video Paul. The intro is great glad you are not changing it. Your ideas make so much sense. Learning from adult autistic people so struggles we faced can be looked into and changed. Also how we have adapted to things to coexist with the with the NT population.

[@AdultwithAutism]

Thanks Bryan. I just think with factual evidence, it removes guess work that doesn't seem to bare fruit. Still plenty of young Autsitic people hitting adulthood and still not having helpful direction, so something isn't working.

[@vik5648]

I like your intro. I know what to expect. It is always the same. I usually end up repeating it like a parrot. I am glad you are standing your ground here. I suggest the person watches another KZbin channel

[@AdultwithAutism]

Exactly Victoria. When I don't like something, I move on...I'm not rude enough to expect people to change on my account.

[@JeanetteInANutshell]

It certainly did make complete sense and actually left me feeling quite emotional as a person who has suffered adversity and has internalised so much over 5 decades in order to survive but has left me damaged. The way you phrase things is spot on and I am learning so much watching your videos. They are helping me with how to articulate my experiences, feelings and emotions as I go through the NHS diagnosis which as you suggest is fundamentally outdated and flawed. 😢

[@AdultwithAutism]

I'm glad the videos are useful. The NHS routes are unfortunately lagging and need vast improvement. I'd love to offer a route for that, but the idea of listening to Autistic people seems incomprehensible to them 👍🏻

[@JeanetteInANutshell]

What I'm trying to say from my experience so far is that I agree we need autistic people designing and implementing these assessments as soon as possible.

[@Kelly-fh9qi]

Hello Paul. Excellent video! I too, was brought up in the age before computers and all that. I think your idea about listening and engaging with other autistic adults to better understand ourselves is spot on. Have you considered starting a forum or some kind of platform that would allow your idea to bloom?

[@AdultwithAutism]

I don't. I tried Autistic Communities and they were very toxic. I've not much time for anything else really.

[@Kelly-fh9qi]

@@AdultwithAutism Yes, starting your own autistic talk space does sound like a time consuming thing to do. Your videos are a great platform for thought and talk. Thanks for putting out great content.

[@AdultwithAutism]

You're welcome 👍🏻

[@GemmasJourneyGrace]

Hey Paul thank you so much for inspiring me to do a video I felt it was important to speak up and raise the issue as you did ! Have a amazing weekend my friend

[@AdultwithAutism]

No worries Gemma, glad it inspired you. Hope your weekend goes well too.

[@heedmydemands]

Ha I love that, just saying no, u won't change the intro. Nice

[@AdultwithAutism]

Yep. Not happening 👍🏻

[@heedmydemands]

@@AdultwithAutism I'm a people pleaser so it's heroic to me

[@AdultwithAutism]

I like to please people too, not disrespectful ones though 👍🏻

[@heedmydemands]

@@AdultwithAutism it's healthy to draw the line somewhere, I don't have the line drawn correctly at this point and I can sure tell it's off

[@AdultwithAutism]

It's taken a while to find the right point for the line, but it's okay now...I think!

[@rebecca.medicineeagle]

Hi Paul, thanks for posting another great video. I always look forward to hearing about what you’ve been up to and about your opinions on all topics. In regards to children’s services - you are so correct. There are far more programs and resources for the younger generations then there are for adults. I believe the reasoning behind that is to help young patients identify and correct challenging behaviors before they reach adulthood, where challenging behaviors have far more consequences. It’s like the old adage, ‘you cannot teach an old dog new tricks.’ By early to middle adulthood, it is practically impossible to correct behaviors that are ingrained in us, however youthful brains are quite pliable. I wish you lived here in the States, as their are many services for adults and special accommodations are the norm, not the exception. I’m super into genetics, and I received both a clinical and genetic diagnosis that is unbelievably accurate. Researchers have now confidently identified 70 genes that are definitely connected to an autistic phenotype. What’s even more interesting is that certain genes can contribute to a specific expression, such as aggression, or light sensitivity, or hyperactivity. Would you ever be interested in a genetic screening to help identify specifically which genetic variants you have? That is called ‘Precision Medicine’ - or addressing and tailoring your services and medical care to specifically what you need. 🌷

[@AdultwithAutism]

Hi Rebecca, I think I didn't explain myself properly in the video if it came across like that. What I meant for starting with older generations is so that it can help younger generations, but more accurately as they will have genuine comparable data rather than guess work. If it gave older Autistic people a voice, that voice is better than trying to guess from different studies which contradict consistently. I can tell people all the things that are of concern, why they are, and ways I have found to manage. If they reached out to us and listened, it would help so much more than running a test on a mouse as I gave for the example. The problem with the research no matter what it is, is the fact there is ALWAYS another piece of research to debunk it, just as the one with the mice. So it is 'guess work' if it cannot be conclusive, and that is why it frustrates me as it's just a forever money spinning machine, and Autistic people are the real test subjects. It is good to hear there is a lot of support for adults in the US, and actually surprising as people always tell me how they are very behind in Autism diagnosis, how professionals are not fully trained in Autism, how insurance doesn't cover Autism, and how it can impact in courts should couples spilt up and there are children involved. You are definitely the first person to say there are positives! So it is good to hear there is help for adults as there isn't here unless you need high levels of assistance already. I would be very interested in doing the genetic screening thing, and we have similar things here that let you know if you have intolerances to foods, prone to certain disease etc...and it is that bit that worries me. If I saw something scary on there, I would worry about it for the rest of my days!! 😂

[@airari24]

Hi Rebecca. I'm not Paul, but I do live in the US and would like to know what adult services you know of, since myself and everyone I have come across (including online) are at a loss on what to do as an autistic adult.

[@dus10dnd]

Thumbs up for keeping your intro. EDIT: Getting to your point. Yeah, nothing is changing. I decided... I am picking up smoking a pipe. I chill with a Sherlock Holmes sort of life. I drink a little whiskey and just try to chill before the week. Then, I try to manage my week... and enjoy what I can while moving the ball forward on what I prioritize. Week-to-week... I don't make much progress... but maybe it moves a hair.

[@motorcyclehair]

I was told by an autistic therapist who's the daughter of someone huge in the autistic community. I was told, if I wanted to get involved to help autistic non-profits....I need this $6k post-grad certificate. Really annoying, considering it took me 17yrs on/off to earn my degree. She could've offered gaining exp by working in the non-profit....I've read statistics that 25% autistics graduate HS, and 1/4 of that graduate college. If that's true, that.s .0625 of people who work so hard for just their bachelor's degree. I'm the same, I was 12 when car phones & aol was coming out. I'm SO GLAD, my childhood didn't start with tech. I'm tech called an xennial--in between gen x & millenial.

[@AdultwithAutism]

Haha, I had AOL too. I still have that woman's voice burnt into my head when she said 'you have email' every single time you logged in 😂

[@yelodoggie]

I love your intro. I find it soothing.

[@AdultwithAutism]

Thank you

[@shonamuir5190]

I'll be looking forward to your ( life story) when you're older. From your earliest memory, to date. Whenever that may be. Might just be the best book I'll ever read. Every thought about it Paul?

[@GemmasJourneyGrace]

Hey Paul hoping you and little George are well ? Another well done and explained video you have inspired me to record my own version of this topic I’m going to make mine Autism Expert v Non Autism Expert | Who are the Autism Experts I agree strongly with everything that you have said !!

[@AdultwithAutism]

Hi Gemma. Me and George are fine thanks. George is having the male implant this week as he's a different dog at the minute. So that will be interesting!

[@motorcyclehair]

Love this, as always love the intro. I believe we are discriminated against as a minority/different culture. I too am glad I'm autistic. There's like 60% left handed autistic...would you call left-handed a disability. I believe we are a form of human evolution & I don't care what anyone says...I think we're better.....but being gaslighted by being "squashed" told we're disabled. I do believe they should put non-speaking/intellectual autistics at the side of the spectrum in a different category...I guess we have the levels. I know this will prob get flack. But, with my autism, I have a bigger brain & more neurons....my brain is f-ing awesome. The other side of the hyper-connectivity is anxiety, social disinterest, sometimes emotional dysregulation, overload/shutdowns. I do believe we're better & it's like any minority that threatens----gaslight their reality & therefore these evolved humans will not be a threat. Hahah, you just mentioned the evolution thing---great minds lol. We just need our own city/country mate, I would love to 100% be around only autistics. There are a category of annoying/rude autistics that don't seem to have adhd or learning issues (dyslexia, etc)...they are well-meaning....but, I even like being around them over an allistic person. This is where I'm at in my life. I get tired of not speaking the same language...it's exhausting.

[@AdultwithAutism]

Haha, I've got to admit when I've spent time around other Autistic people, I've had a better experience. Not everytime, but it's certainly more on the side of Autism than not. We have good points, we have bad points, just like everyone else. It's that they see it as a disability, I get that as I try harder so people won't put me at a disadvantage by default. I shouldn't have to, but need to because of the mindset or others. And I agree, there needs to be a clear definition at certain points for Autism, as its far too vast. It's like referring to the US as one place, and not realising how different it can be when you look st it closely!

[@The-elephant-In-the-room76]

I haven't been assessed for autism, but I've got it. And the question is Why are we born with it? my personal opinion is it's evolution. Non-autistic people are reckless. without being disrespectful. They rush into everything. They buy things which are useless. Wasteful. (They're destroying the planet) I won't go on. When something evolves and becomes strong, it grows. when some evolves and becomes weak and dies, (evolution). People with ASD are more cautious They didn't rush into risky things Some people with ASD have high IQs or high Intelligence. They are the next step in evolution because they are much more advanced without destroying the planet. I don't really know how to explain that well, but I think you get the gist.

[@AdultwithAutism]

I believe this too, which is also why I believe they won't let Autistic people govern Autism. It's also why they consistently try to find ways of suppressing it rather than accepting it. And I suppose also why they never reach out to Autistic adults to understand Autism who can provide clear and direct answers, and instead attempt to 'figure it out' in unborn babies and toddlers who cannot speak to them.

[@kirstygascoyne178]

I actually thought this just recently! ..I just think that maybe some environmental factors pushed the gene too extreme which led to low functioning dependant types. Possible. Same with adhd possibly. Thankyou for your insights! Makes me feel less alone whenever I listen 😁

[@kirstygascoyne178]

I should stop commenting before the video is complete!

[@kirstygascoyne178]

The work forse? Adhd for action and autistic for labour forse? Random thought.

[@kirstygascoyne178]

If anyone realised the money opertunity, wouldn't that be the people running highest positions? Ìts sad but I think their probably autistic..humans have proven what power and dominance does to the way we perceive the ones below us. Nazi view of jews is usual example and that prison guard experiment..so its not because their autistic, its a hIf anyone realised the money opertunity, wouldn't that be the people running highest positions? Ìts sad but I think their probably autistic..humans have proven what power and dominance does to the way we perceive the ones below us. Nazi view of jews is a usual example and that prison guard experiment..and its not because their autistic, its just a human trait..apparently. I need to stop joining dots🙄😬

[@Petertwohig1948]

Good on you mate. Time for people to get uncomfortable about a few thing, come to grips with their discomfort, then experience the loveliness of acceptance, if not understanding. Or am I just fucked in the head?

[@AdultwithAutism]

You're not mate. We need hard times to appreciate the good. Otherwise we've nothing to appreciate at all!

[@DianeCecala]

Wow, so true! $$$, so sad!

[@AdultwithAutism]

👍🏻

[@renovareuk]

employment tribunals help those with a disability to have a better tomorrow than today, not for money but for change!

[@AdultwithAutism]

They can do, it's just a shame it has to reach the point where you have to force people via legal routes. People should want the best for others.

[@renovareuk]

@@AdultwithAutism The Equality and Human Rights Commission does state that when the duty to make reasonable adjustments arises an employer is under a positive and proactive duty to take steps to remove or reduce or prevent the obstacles an employee is faced with (4).10 Sept 2018 THIS IS THE MOST POWERFUL WORDS TO CHANGE YOUR LIFE FOR THE BETTER

[@AdultwithAutism]

True. But changes must also be reasonable. The term reasonable changes per person. That's the struggle I have faced with previous employers.

[@renovareuk]

@@AdultwithAutism please read the pdf document I have emailed you tonight as if it's reasonable to you and it makes sense then ask. The problem is not yours the legal duty it is with the people that you ask to state why your request is unreasonable. Think of it as you wish apon a star and see if the wish comes true! It's for others to say it is not unreasonable! It's very hard for them to say it's unreasonable unless it costs a fortune! Believe in the process as the law is with us for 12 years! Use the law to open as many doors as you want embrace reasonable adjustments and ask and keep asking in writing over and over until all doors open!

[@AdultwithAutism]

It's a good document for those who need it 👍🏻

[@karenw8722]

👏💜

[@AdultwithAutism]

👍🏻

[@turtleanton6539]

😊😊😊😊😊🎉

[@AdultwithAutism]

👍🏻

[@turtleanton6539]

Genetics is a big part i think

[@AdultwithAutism]

👍🏻

[@brianmeen2158]

Genetics plays a big part in pretty much everything - behavior, mood, outlook, intelligence, athleticism, mental illness etc etc. you just better hope your parents had the right genes