All About Infantile Spasms | Shaun Hussain, MD | UCLAMDChat

[@brianward6168]

As a future pediatrician, I am nervous about these can't miss diagnoses and have a very intern-level impulse to overcall esoteric diseases. The way Dr. Hussain contextualized the epidemiology was very helpful and gave me useful information, not just numbers. I will certainly aim for this clarity in my future presentations.

[@triciajoseph1635]

I was searching for someone who’s child had this syndrome that was treated and has been successfully cured, unfortunately I didn’t find any but I am here to give hope that my baby.... now 8 years was diagnosed with IS at 3mths and the treatment given at that time was prednisolone which she was on until she 3years. She is did the last EEG at 3yrs and it was perfect after being abnormal for years. However I have a tip for all parents with babies that suffer from this please give them omega 3 from fish oils it really helps and I believe it played a major role in the treatment of my daughter.... I can testify to that. Hope this helps and may God continue to give you strength in this trying time

[@amenahammad350]

TRICIA JOSEPH which brand of omega 3 did you use?

[@anushkapadukka1704]

Can we give omega 3 for 6 month baby

[@karishmapathan729]

My baby was suffering West syndrome pls tell...pls give ur number or email please pls pls.

[@aqeelanaeem7498]

I'll try definitely I'm mother and my son is infantile spasms patient but doctor didn't tell me about Omega 3 I'll bring and start it inshallah plz pray for my son. He is 4 years old but can't sit. Can't talk event can't eat properly

[@springbutterfly5300]

@@aqeelanaeem7498 hi, I hope your son is doing well, I think healthy food is very important , avoid any kind of Canned food also therapy helps so much.

[@MuhammadKhan-di5ul]

Hello Doc Thanks for the detailed video first. I’m a Doctor myself. My nephew was diagnosed with infantile spasm (West Syndrome). We tried different anticonvulsants but didn’t worked. Finally we start using Vigabatrin and he responded to that. He is using it since last one month and spasm are gone. So, I’m here to comment. If any of the other medications didn’t worked . Do try this one. Every patient respond to different medications. So, with everyone best of luck. And hope everyone’s kids get well soon. Much love .

[@aqeelanaeem7498]

But respected doctor this medicine is rare In Pakistan .. but still I had managed but my doctor said spasms are controlled since last year so there is no need to change it .. if spasms came back we will consider sabril tablet which is actually for West syndrome.. what should I do

[@Noneofurbuzinez]

I just noticed IS in my daughter and I’m literally going to have a break down so just pray for me

[@infamousnova]

@@Noneofurbuzinez prayed for you

[@xeonhyper]

@@aqeelanaeem7498 Vigabatrin is available in Pakistan with the name of Vlep tablet

[@AbdulManakkhan]

​@@Noneofurbuzinez kia apka baby recover hwa?

[@makennamurphy9691]

To reassure the loved ones here: I had infantile spasms back in 1986 - now I'm 34 and doing just fine.

[@cris030587]

Makenna Murphy did you go through treatment?

[@assimadiaby153]

Thank you for your commentary❤️

[@aqeelanaeem7498]

Dear how ever you are please tell me I'm in pain my son is a West syndrome patient first he was diagnosed infantile spasms .. now he is almost 4 years old but can't sit .. not able to talk even he lose his sense of chew .. I'm in Pakistan .. my doctor give him lumark , topjin and epival .. but not recommend sabril which is exactly for infantile spasms ... I'm a mother I can't instead I have to accept what doctors suggested .. what should I do plzz do let me inform how are you now what was ur medication at time of spasms .. can u help me out

[@springbutterfly5300]

Hi, very glad to hear such good news like what you said, please what is the reason behind you had IS? .thank you

[@factsunknown2255]

Hii am Medicine

[@abcd95489]

that video of such beautiful kid at start made me cry, God want us to find him, that is the only reason he put us in this hard times.

[@princehoz3990]

God is then very sadistic in my opinion if he only does this as way to find him

[@brighterdayjenn8579]

ACTH worked almost immediately for my son's spasms/seizures. He's spasms/seizures started as a small twitch that were overlooked. When laying down he would have episodes that looked like he was doing crunches, bending/pulling his legs up to his stomach, with his right arm raising and head tilting back/up, all in one motion. Then a few days later his spasms involved the crunches, head tilt back etc, but now eyes rolling up to the right. While in the hospital (4 weeks 1st time) everyday different types of medications were being tried and none of them worked. Instead of being able to regulate his seizures, different types were being added to his episodes. It became impossible for him to set up even with assistance and had to place pillows/padding on anything around him. His head drops became more and more aggressive. I begin to get bruises around my face and a few pump knots to go along with my black eye. I just didn't know when I was going to get head-butted from a seizure. He begins to be more in seizure states then not. This is when I found out that not all seizures have movements or show signs, other then what the monitor shows (scribble) and it will only get worst for him. They told me will never have a chance at a normal life if we don't find a medications to work. Finally the panel of doctors decided to try ACTH, they only go to it after everything else has been done and if it doesn't work then they don't know. Each shot i gave him costed $60,000, one shot a day for 8 week's. With- in 3 days he was seizure free and that was 8 years ago and still no seizures. I did not have to pay the cost for the medication, thankfully.

[@gabrielahowell8313]

How is he doing now?

[@brighterdayjenn8579]

@@gabrielahowell8313 great. That week was the last of the seizures. The monitor showed some seizure activity when he sleeps. He sometimes jolts like he is having a nightmare but it doesn't seem to bother him at all. The doctor's said in layman's terms that some seizures are so deep in the brain there is nothing that can be done. But as long as they're not effectiving him just watch from time to time. He is behind when it comes to schooling. He has difficulties with letters and remembering what they are but when it comes to explaining things he is an absorber for sure. They did inform me because of the infant seizures that he had 70 percent chance to develope autism and be on the spectrum. I couldn't be happier with the results. It was a risk but there was nothing else to try and if this did not work he would have been bed bound most of the time. No it would have been alot of the time because his seizures were becoming 24/7. His doctor in her 20 years never seen brain activity like that. I'm still cautious about flashing lights at times but noticeable seizures that hinder him have been zero since. So thankful for Cincinnati Childrens Hospital.

[@nadiashirazi3925]

Hoz Ur son know after 8 yrs. Did he have development delays. Know he in independent

[@brighterdayjenn8579]

@@nadiashirazi3925 He does have learning disabilities when it comes to reading and writing but is able to follow conversation and communicate when spoken to.

[@nadiashirazi3925]

Is he normal know. I mean developing normally

[@yvesmekouta4110]

Nous avons énormément besoin de vous et de ces vidéos édifiants

[@sheereen1984]

Thank you for this informative video and presentation

[@kiranshehzadi6419]

Listen surah rehman by Qari Abdul basit(without translation)for 7 days 3 times a day.After listening take a half glass of water close eyes say Allah thrice in heart and drink water in three sips.Inshallah it will cure your child.

[@vyshu.111]

Sir my baby was suffer with infantal spajms started 4th month now he is 4years still contnue using lot of medicine s but not control Perdnisol acth sabril vlprin lonozop Lacoste... Present using vlprin lonzop.... But daily it comes 2 or 3times...its curebl or not... I am from India...please.. 100pecent cureble medicine... For these children...

[@abdullahaktas9365]

Thank you for this video. It's very informative.

[@zoyazoi2388]

Jo Jo Muslim Bhai behn dekh rahe ho. Mera comment. Bus ALLAH par yaqeen rakhe ar ilaj jari rakhe. Baqi koi doctor Zindagi ar seht nhi de sakta ye sab krne wali zaat ALLAH ki he. Mera ALLAH Kisi b Jan ko inski taqat se ziyda taklif ni deta.

[@ibissuau9800]

thank you for this video.

[@danishmodern55]

Have you explored any of Dr. Ray Peats work /advise on Progesterone for this ?

[@ujwalujith5025]

My son name is ujith he is suffering from infantile spasm of seizures he is 3 years old. Seizures started 9 months old, we are started treatment in rainbow children's hospital in Hyderabad. but my son no response. ACTH- no response Valproate,levipil- no response Biotin and B long- no response Perampanel- no response Sabril- ok Vigabatrin- ok Omnacortil started

[@va-runvlogs2233]

Hw he is now?Can he able to talk ??

[@ujwalujith5025]

@@va-runvlogs2233 No

[@aartichawla3960]

Give me your content nob plz my son also same problem and i don't understand what am doing

[@vigneshwari6320]

My son same problem tamilnadu please treatment bangalore Nimans hospital same tablet no improvement eppo danvanthri ayrevedha first oneday 30times daily eppo 5times daily full recovery agala please treatment reply

[@ujwalujith5025]

@@vigneshwari6320 I don't understand what are you telling

[@faizanabbasi2970]

hello dr my baby is diagnosed with infantile spasms .. nothing work whether it is ACTH SABRIL VALPORIC ACID REVOTRIL HITOP ..

[@vyshu.111]

Sir I want cure and normal kid... Like pls sir please save me lot of parent s suffer with their children s mentally...

[@chennaiborn]

Please research Ketogenic diet

[@monicahwangechi8081]

Did it work for you?

[@nadiashirazi3925]

Insufficiently treated means??

[@alebachewmisgana6015]

hi doctor,am from africa,my baby now 3yrs old,who had signs of IS when he was 6mo old,but miss diagnosed as colic. at 2 years age one pediatnuerologist evaluated him and he prescribed prednisolone but seizure not controlled...and then sodium valporate....then pyridoxine..still seizure persisted.after few months he intiated clonazepam on top of valporate.....the seizure decreases but not fully.The baby can not speak and he cant eat by his fingers(hands).doctor what shall i do? pls help me......no vigabatrin or ACTH in our country.Blessings

[@infamousnova]

What ended up being the solution

[@damariceagutu4804]

This Africa is killing us, mine is now 4 yrs am from Kenya and you?

[@monicahwangechi8081]

@@damariceagutu4804 i'm kenyan too. what hospital did you go to?

[@damariceagutu4804]

@@monicahwangechi8081 was in Kitale, but currently he is on epilim

[@damariceagutu4804]

How is the progress of the baby please

[@arhamali4050]

Thanks you Dr Hussain for posting l am from Pakistan and my daughter wo is 3 year's old suffering from infantile spams problem as per neuropdiatric advance we are giving him medicine as vigabatrin sabril and my daughter spams are not stopped yet could you please me through which we can stop spams please help me

[@zabeeshah3124]

Hows your baby now

[@anilkumar-ft7pu]

How can mind Development

[@rachelmann4299]

My child did this as a baby and was still doing it up to about five with the put in the hands above her head and put her head down a little bit for a few seconds and then glazed look on her face for a few seconds afterwards we have seen a A paediatrician that specialises in epilepsy but obviously was not aware of The symptoms have anything to do epilepsy so we just brushed it off she seven now she puts her hands up to her face now tenses for a few seconds sometimes looks a bit glazed sometimes goes back to what she was doing as if nothings happened should I take her back to the GP and bring it to there attention again. We also have other issues with her could this have played a part in them

[@lizbethmcewan]

Rachel Mann take her! And tell your doctor her symptoms!

[@nazishtasawar6275]

Hye , this video is really very informative, my daughter was diagnosed with infantile spasm at the age of 2 years and then within a week i started giving her lerace on the advice of her doctor, it takes one month to stop, it works to control her spasm after that once in 8 month only for 2 second she had it again. My question to the doctor is that is lerace good for her, actually now she is 2.8 years old but she seems like autistic child like no eye contact, no social interaction, no self eating . She is crawling at this age she can't walk yet. Plz reply

[@simrankhan7694]

Plz tell me how's ur bby now...mri beti ko v ho gya...mai bht tension me hu

[@nadiashirazi3925]

anyone had relapse of infantile spasms or other type in of seizures

[@yvesmekouta4110]

Comme vous le constatez dans le profil nous sommes une couple camerounais et notre enfant est atteint du syndrome de west on parle de spasmes infantiles depuis un an nous sommes perdus nous ne comprenons rien c'est en regardant dans le net que je comprends un peu de quoi il est question

[@miryasinjafiry2792]

How can i take help from Shuan hussain.Can any body help me in treatment of my daughter as she has infatile spasm with Acc.After 45 days of her birth spasm started but not controlled yet as she is taking valprin and other drugs as well.for one month we gave him Acth and now from one month we are giving him briviact 50 mg but spasm did not controlled

[@aqeelanaeem7498]

May Allah bless your daughter I'm a mother my son is a patient of infantile spasms since the time of birth now he is 4 years old almost seizure are stopped since last June but he is not able to hold his neck properly can't sit not even eat properly

[@aqeelanaeem7498]

Help me my son is. Patient of infantile spasms he is almost 4 years old I'm in Pakistan so our doctor suggested him lumark topjin and epival .. MRI done 3 Times that was not ok

[@nadiashirazi3925]

Assalamualaikum sister

[@nadiashirazi3925]

Once u hear Dr sharafat Ali videos in KZbin. Maa baap k ghusl k pani se bacche k bimariyan khatam hojati hai. Aap ye Karke dekhiye inshallah apka baccha thik hoga

[@nadiashirazi3925]

Sister u read surah araf for 41 days without any gap continuously inshallah ilur son will sit and walk . It's a very powerful wazifa damm it on olive oil daily and massage with that oil on neck hand legs whole body

[@aqeelanaeem7498]

@@nadiashirazi3925 wasalm ok I'll try

[@aqeelanaeem7498]

@@nadiashirazi3925 inshallah I will start it very soon thanks for your concern but plz keep my son in ur prayers u need prayer inshallah one day he might be able to sit bc of some one prayers

[@dineshnikumbh3270]

Thank you Dr Hussain for posting this, I am from india and My son who is 10 month old suffering from infantile spams problem. As per neuropediatric advice we are giving him medicine as Vulparine, sybrile and ACTH from last 2 months but still my son spams are not stopped yet. could you please me on this or suggest medicine or method through which we can stop spams.

[@UCLAHealth]

Thank U for your message, Dinesh. While we are not able to provide medical advice online, we can refer you to Dr. Shaun Hussain's profile. You can reach out to his office to schedule a consultation. www.uclahealth.org/shaun-hussain

[@shrawandasvaishnav1779]

Where are you from india....i have same problem with my son

[@pravinsingh2087]

@@shrawandasvaishnav1779 hii vaishnav how was your son now??

[@educationforall3028]

My nephew has same problem What about ur son now? I'm form jaipur rajasthan

[@dineshnikumbh3270]

@@shrawandasvaishnav1779 he is 5 year old now.. since last 1 year his spams converted to GCTS problems I found one good ayurvedic doctor hoping for best now.. no results in alopathy

[@alebachewmisgana6015]

its heartbreaking my child miss diagnosed as infantile colic and not treated for IS for 18months.Now every treatment failed(predinsolone then valporate then pyridoxine then clonazepam.what shall i do Doctor?

[@alebachewmisgana6015]

@@gordythecat no on ACTH medication in our country

[@alebachewmisgana6015]

And he took high dose of prednisolone but after one and half from the onset of seizure......he misdiagnosed as infantile colic....so depressing,so heart breaking

[@zabeeshah3124]

Hi Everyone my 7 month baby girl suffering from infantile spasms please guide me what should i do I am from pakistan lahore

[@ranaehtishammanj3841]

How is she now?

[@michaelgalvin6491]

Probably no one here to answer questions?

[@rupsdbb]

For my kid Clonazepam worked

[@dumindakumara4852]

How about your kids now dear

[@rupsdbb]

@@dumindakumara4852 Now's he's fully cured.

[@nadiashirazi3925]

What was the cause of infantile spasm for Ur kid

[@rupsdbb]

@@nadiashirazi3925 His EEG was normal. Cause was unknown

[@nadiashirazi3925]

Luckily he had idiopathic spasms. May God bless him. How many yes old he is

[@larissaguzman3520]

Hi my daughter is two months old and started having these seizures. At the moment we are at CHLA getting her some treatment. At 33 weeks pregnant they found cysts in her brain. Once she was born we did some ultrasound but no mri because she did not show any signs of abnormalities. Now 2 months in, she has about 4 seizures a day, they last about 5-6 minutes, she does have breaks in between like the first video you showed.

[@madmax6871]

My daughter had a cyst on her brain when I was pregnant too. She started having infantile spa Sam’s at 3 months old, she’s 15 now. She wheelchair bound with 3-4 seizures a day.

[@venki-mj6ky]

Hi Doctor, my 8-month-old daughter is displaying symptoms such as stiffening of her upper body, resembling aggressive gestures. An EEG has been conducted, and the impression indicates Generalized Spike & Wave Epileptiform activity. Our pediatrician has prescribed Sodium Valproate syrup, 2ml twice a day. However, I have a few doubts that I would like to clarify, and you seem to be the right doctor for advice. I am interested in booking an appointment and forwarding you the reports. Please, Doctor, kindly assist me.

[@ranaehtishammanj3841]

Bump

[@worldaround6520]

Thanks a lot sir, I am a medical student from India. I am very thankful to you for your presentation as a doctor I think I should practise rare diseases.

[@वीरू-ह4त]

Sir West syndrome se bacha thik ho bhi jata h ya nhi

[@anilkumar-ft7pu]

Aap kha se ho sir, kya aap se mil sakte h?

[@worldaround6520]

Anil Kumar ji ap kahan se hain.

[@anilkumar-ft7pu]

Rajsthan, churu District, sardarpura

[@anilkumar-ft7pu]

Contact no

[@healthylifewithahmedkhan4193]

my daughter is 8month old. Doctor prescribe tab phenobarbital syp valproate syp ginkago bilibo But seizure not control. Please advise

[@rohitmahoday138]

@Amogh creations sir vegabtrin is 500 mg in future side effect posible or not . 4 month baby how to treat with this medicin

[@morganfreeman9106]

My daughter is 9 months old and just diagnosed with this. It’s so scary.

[@golamyousuf6379]

Hello, How is your baby now??? is she ok?

[@asifahassan7730]

How is she now

[@katfureh3399]

I have a client 1 year 11months who gets spasm in lower limbs (they straighten and stiffen every 3 mins)...and abdomen x 4 months. They have instesfied in last 2 weeks. Cud it be connected to IS?!!!

[@b.ahunov1639]

Thank you for this very informative presentation!!!

[@aprilmorales7524]

What about cbd oil

[@itskuhulifestyle8949]

My daughter is just three month and suffering from is plz help me ...plzzzzzzz how can i treat her ...she is my only child ....plz helppppppp🙏🙏🙏🙏

[@latoyadaniel8226]

Contact Dr Omar on youtube for special meds/cure for epilepsy. He got great and helpful meds to help get rid of any type of seizures/epilepsy. He also got cure/meds for Infantile Spasms Thank you

[@abhuwhite8738]

Where are you from

[@venkybly]

Tq 👍🏼👍🏼

[@jagpreetkaur9092]

Hi Doctor My baby boy is 44 days old. From last 5-6 days he jerks his waist outwards while falling asleep or while breast feeding. This jerk movement sometimes happen for one time and some times it happens in series of 20-25 jerks with pause of few seconds. The jerk is like hiccup and lasts for 1 second only. Is this infantile spasm ? I have videos of baby could you please tell me where i can share those videos with you. Thanks.

[@asifahassan7730]

How is your boy now

[@chrisc2882]

what about cbd?

[@amandabrown3002]

my daughter has infantile spasms she is almost 3 years old. She cant hold her head up or do anything bc of how bad her spasms are.

[@naziayasmin5098]

amanda brown plz can u tell me about your daughter she is ok now how much treatment you did i mean how long and how effected

[@noorfatima9505]

My Baby boy is 9month and facing infantile spasms disease he also deals with delayed mile stone does he cure I miss worry 😭😭 nine months old no neck control

[@mohammadnawaz4471]

My baby is 7 and not much head control.

[@mohammadnawaz4471]

How is he right. Now

[@TariqKhan-ng2xn]

Jazakallaho khaira

[@roshellpeart4123]

wish i could get some help for my son he his 13 now but it all started at 6 months old he started sreaming in his sleep and his handing doing like the baby in the video . Took in to the hospital they told me they saw nothing wrong with him i stayed in the ER for hours until he had a attack the doctors take him then they call other doctors they admitted him ran some test then sad his intestine was twisted thats y he was crying and acting like that ,got some baralgne for pain . take him home he was crying every minute they one night i herd a strange sound he was in his crib sleeping his eyes i could only see the white of it his body was shaking hard take him to the ER again . he was admitted again test was done he strated vomiting through his nose now nothing was staying down they did more test . he was seen by every specialist that was at the hospital . he was sent home with pain meds again by this time his eyes stared to get crossed they say he was blind and deaf did hearing test nothing was wrong with his earing. they sent him for his eyes to be tested nothing was wrong with his eyes. he was three yrs old by then the eye doctor sent him to the brain doctor she was the doctor that told me what was wrong with him he was on valporic acid , then they change it she said infantile spams are hard to detect and even harder to treat . hes on topamax 75 mg twice per day and tegretal 75 mg twice per day and his sezures are still out of control we live in jamaica and its very hard to have a child with several types of illnesses i cant work my number is 18765373624 would love some help or advice its mentally and phyiscally stressing and very expensive to buy all his stuff every month .

[@eternalhope4060]

thanks,s but i got just question , once the corticoid have been begun , and the patien respond to this with desapear of hypsarythma the first 15 days , how long time we maintin and keep this therapy.

[@HauntedNightFall]

my son was diagnose with infantile spasms when he was 5 months old ... i was told repeadedly it will.go away hes fine... now hes diagnosed autistic since he wasnt treated ams he is non verbal amd struggles amd hes 4yo now