Рет қаралды 197
During Rocket Pharma’s Rare Disease Day 2020 event, 28-year-old Allie Jones shares an excerpt from the book she’s in the process of writing called “Structured Love” about her story living with Fanconi Anemia (FA).
Allie discusses the diagnosis process as a young child and her experience as the first person in the world with FA to survive two bone marrow transplants.