Almost 14 Years Since Diagnosed with Ulcerative Colitis Update and Tips

[@nabillahalogan8805]

I've been reading so many articles, watching videos, joining facebook groups. But by far, this is the most comforting information's video to watch. Thank you.

[@ihaveuc]

Thx again 🙏

[@nabillahalogan8805]

Hello. I've just got diagnosed this february. My mind has been a mess ever since then. Can I ask a view questions? did you get any surgery done? Have you ever been on remission? What food that you usually eat?

[@ihaveuc]

Hi, thx for your message. I have not had any surgeries. I know many UCers who have. You can read their stories on the site here: www.ihaveuc.com/category/colon-surgery/post-surgery/ As for remission, yes I have several multi year periods of remission. As for foods, I’d suggest you watch my videos here and the shorts videos in particular. I post many of my meals directly here on KZbin for people like you to watch to get ideas of what I’m up to. I hope that helps you, Adam

[@nabillahalogan8805]

@@ihaveuc I watched your food's video yesterday, it's so helpful to me. I'm waiting for your next video soon. Thank you for posting them. Also thank you for the link 🙏🥳

[@Neuterlab]

Its been 15 years now. Do you get minor flare ups from time to time Adam (in the last 12 months)?

[@ihaveuc]

Strange you should ask, I actually had a quick out of nowhere flare up in early July right after returning from a vacation (felt great all along ). Real happy to have jumped on budesonide granules right away. And after 2 days of that was back to no more flare. Tapered for 19 days and now med free a month again. Hadn’t had a flare like that since 2020 February… was weird.

[@Neuterlab]

@@ihaveuc thanks for taking ur time replying. I hope u feel better soon! i was symtom free for 3 and a half years, then dec 2022 i had a flare on and off until march 2023. Was put on prednisone 25mg and was fine the next day until i weaned off in may 16th 2023. Now to this day, i started having minor symptoms again with blood :( My dr never mentioned budesonide. I will have a colonoscopy in two weeks. I started taking s. Boulardi again and hopefully this should alleviate symptoms before i go for colonoscopy.

[@Gmoney-ri9zg]

Can you send me more information on that diet please 🙏

[@RetroCody]

Same. I’m in the same boat. Had a horrible flare up a year ago and I’m still not normal.

[@ihaveuc]

Great document here: med.stanford.edu/content/dam/sm/gastroenterology/documents/IBD/CarbDiet%20PDF%20final.pdf Is a nice high level file from Stanford that you might like. There are also links to other resources within it

[@catherinetorgerson5111]

Elaine Gottchall has a book called The Specfic Carbohydrate Diet. You can get it on Amazon. I have been under remission using this diet for 17 years. Some day the diet is hard. I reframe my thinking. What I put in my body is an investment in my long term health. In all that time I have had two set backs. I run 5k’s and hike and am very health and active. This SCD diet has made the difference. It never hurts to try it for 30 days. Cheers!

[@RetroCody]

How quickly did you see results with the Specific Carb Diet?

[@ihaveuc]

Hey Cody, it has been a long time since I started but definitely after 4-5 days I saw noticeable positive changes and after 2 weeks it was even better and if memory serves me well, a month afterwards I was feeling like my life was so much different. But it was hard, I was so very sick and had lost tons of weight, strength and mentally I was a mess from such a long run with severe symptoms. Also you should remember, I was weaning of/tapering off prednisone when I started the SCD diet the first time. I did get off the steroids and then continued with the diet successfully

[@RetroCody]

@@ihaveuc thanks man. I had a horrible flare up last July and it didn’t end until end of September. But I’ve had this smoldering burn since and food just doesn’t sit too well.

[@catherinetorgerson5111]

My story mirrored Adam. I was very unwell. I was told to take prednisone and referred to a surgeon. I was skeletal. I was hitting the emergency hospital as a result. A Canadian doctor told me about the SCD Diet. I had nothing to loose. I saw results in the first month. Energy returning, less blood loss, by body pain was improving. Fast forward to today. I have not been able to graduate off of the SCD Diet. But my life is full and happy. I did not need to see the surgeon. I work closely with my gut doctor. And today Seattle Children’s Hospital uses SCD Diet as a therapeutic treatment for children. I can still camp and hike and plan gatherings. I wish the same outcome for you.

[@catherinetorgerson5111]

I was violently ill. I can’t say I had immediate results. It took a long time to get that BAD. I knew I saw improvement (with labs and writing my symptoms every day) by one month. I had the guidance of a doctor. By three months my team and I knew I was turning around. 6 months I was back to active life. By 1 year I was cautiously optimistic and “normal”. I have not left the SCD. Never will. 😁