SURVIVING BRAIN SURGERY: One Year Later

One year ago, our little girl survived her first brain surgery. It has been an emotional journey, but we celebrated her anniversary!
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Our Family:
Mom -
Alyssa is an awesome mom that has been married to Charles for five years. She is a long time vegetarian and has been vegan for the last 3 years. She is a full time nursing student that daily vlogs in her very limited free time. Alyssa loves listening to music, cleaning and thinks that tacos are the greatest food ever created. She has a hard time sitting still and is always on the go!
Dad -
Charles is a fun loving dad that works in management, plays bass in a band in his free time and loves all things tech related. He has the biggest sweet tooth and you can't keep that guy away from his vegan cookies! Charles is a long time vegetarian that has also been vegan for three years. Charels is a way of saying Charles that Alyssa started a long time ago and it's become a pet name for the whole family.
Big Sis -
Delilah is a sweet and brave little four year old that loves all things princess related, playing outside and playing with mommy! Delilah has a few chronic conditions and has had brain surgery in July 2016. She has Chiari Malformation Type 1.5, Syringomyelia and Craniocervical Instability. She doesn't let anything hold her back and she's so excited to go swimming this summer at last! Delilah is also known as squirrel because when she was a toddler, she used to watch squirrels with her grandparent's dog and the name just stuck.
Little Sis -
Winter is a sweet little (almost) two year old that loves being silly, stealing mommy and daddy's food and sitting on the dog! She adores her big sister and always wants to be by her side! Winter is also known as "Pootie" which is a variation of Winnie the Pooh.
Dog
Penny is a two year old German Shepherd mix that the family adopted in the summer of 2016, right after Delilah's brain surgery. She's a sweet dog, but will do everything she can to protect her little family.
Cats -
Frank and Marley are brothers from the same litter and are a whopping TEN years old! Alyssa got them for free from a farm.
Watch these videos to get to know us better!:
Delilah's Conditions:
Delilah's Brain Surgery Vlog: • SURVIVING BRAIN SURGER...
Post-Op MRI and Results: • POST-OP MRI AND RESULT...
Q&A Videos about Delilah’s Conditions: • Video and • Video
Delilah's Conditions Playlist: • Chiari/Surgery Related...
Winter’s Birth Video: • Video
Vegan Q&A: • Video
Connect With Me!:
IG: alyssapresleyxo
Snapchat alyssapresleyxo
Twitter: alyssapresleyxo
Facebook: alyssaallday
Delilah's Medical Updates Facebook Page: delilahsdancewithchiari
FAQ:
-:-How old is everyone? Alyssa (29) Charlie (33) Delilah (4) Winter (1.5)
-:-What are you going to school for? Nursing
-:-What does Charlie do? Works in management
-:-Why are you vegan? Short answer: animals, health, environment
-:-Who's all vegan? Charlie and I are vegan and the girls are 90% vegan (due to some outside challenges).
-:-What condition does Delilah have? Delilah has Chiari Malformation Type 1.5, Syringomyelia and Craniocervical Instability and had a posterior fossa decompression with duraplasty in July 2016.
-:-Where are the girl’s nicknames from? “Squirrel” is because Delilah enjoyed watching squirrels with her grandparent’s dog and “Pootie” is a variation of “Pooh” for Winnie.
End slate photo is by Kim Kedinger.
New Camera: amzn.to/1WFjxVo
Old Camera: amzn.to/1TRSghTi
Editing Software: amzn.to/1Kudx7c
If you made it this far, comment "PENNY GIRL!"
FTC: Amazon links are affiliate links

[@johridecancer]

Late last year, whilst freaking out about my own upcoming chiari surgery, I found the vlog of Delilah's surgery (and your channel). There I was, a 29yr old grown woman, letting my anxieties and fears about the unknown get the better of me by youtubing ACTUAL surgeries when I came across Delilah. I was immediately struck by her resilience and bravery. I thought "If this sweet little girl can face this thing head on, then surely I can pull myself together and do it too!" It wasn't easy and I've never known pain like it, but, taking inspiration from Delilah, I had the surgery. I am now fully recovered and I've never looked back. So happy "zipperversary" Delilah. I hope one day you might know just how much your story and your bravery has helped others just like you. And thank you Alyssa, for sharing your brave little girl's story with the world. Much love x

[@lpskittycupcakes7499]

Good gracious bless her heart . She's come such a long way

[@marymurphy1030]

God Bless Delilah survived. She and Winnie are adorable. I love you guys. I always watch you when I am having a hard time.

[@caligirlsantaclara786]

Aww the flashbacks made me cry all over again. What a strong brave girl❤️ please hug Delilah for me❤️

[@anabellemorrow3334]

Awwwww she's so cute bless EVERY ONE in you family your all amazing and so sweet

[@AlyssaAllDayVlogs]

Thank you so much!

[@Kymster42]

Wow! One year already? I also celebrate the day I have had my surgeries because it's such a blessing to be alive today. To my fellow Chiari warrior Delilah, you are amazing!!!!

[@AlyssaAllDayVlogs]

+Kymberly Franco 💜💜💜

[@allysondemuri5033]

I cried this whole video. This is one of the worst things that could ever happen to such a wonderful and beautiful family ! I am so proud of how strong Delilah is! She is truly inspiring!!

[@AlyssaAllDayVlogs]

Thank you 💜

[@jennadeniger4041]

This made me teary eyed shes such a brave beautiful little girl 😭❤️

[@thatsbriannarae]

i still can't believe how different and young she looked. I feel like I watched it for the first time again and that it wasn't that long ago. way to go delilah & sending love to winter too! love watching you guys!

[@AlyssaAllDayVlogs]

It's crazy how much she's grown in a year! Thanks for the continued love and support! 💜

[@daniellewelsh2770]

I just found your channel. I'm a mommy of a 3 year old and one on the way. I couldn't handle what you have. She is such a strong little girl! I cried half way through this video. She's such a big and strong girl!

[@alycialish5]

Ugh..the trials life gives us but the strength that keeps you going. Celebrate every day. 💜

[@kimerlyhogan6567]

That HUGE bow in Delilah's hair cracked me up! Good job watching out for the dog! I LOVE LOVE YOU GUYS! Penny too!

[@rosegoodman1126]

I’m very late but I hope Delilah is all healed and feeling better now. Poor thing no one especially her should have to go through something like that❤️

[@sarahrosie1061]

What a big milestone for Delilah! ♥️ she's such a ham, and it cracks me up!

[@AlyssaAllDayVlogs]

She's an incredible actress! I love her! 💜

[@emmamonroe661]

@@AlyssaAllDayVlogs hi

[@deepwaterbluesky]

Was not expecting the flashbacks 😭😭😭 omgggg. Alyssa. The feels.

[@AlyssaAllDayVlogs]

I know, right?!

[@meganmolloy9244]

Linds&Liv same

[@AshleeMC_MODx50]

It's crazy bc my Surgiversary for my Chiari Decompression is August 31. We had the same surgery a little over a month apart. I'm glad Delilah is doing well even if the news in the past hasn't been the best we wanted to hear. She is a true warrior. My "sister" in purple!

[@tamnybloor8387]

So glad swing sets going up girls will love it and it's lovely to see how far Delilah has come 💖

[@djlawlz4041]

It's okay to be scared and upset about the situation. That's such a truamatic thing as a parent and child to endure but you did it and you survived! She survived!

[@AlyssaAllDayVlogs]

Thank you 💜

[@emilyeichman5367]

It's been so long!! She's so happy she's so cute!! She has grown up so much!! ❤️❤️

[@AlyssaAllDayVlogs]

Have you seen Delilah's brain surgery video? kzbin.info/www/bejne/aoDXnHanps6egpI

[@haven0518]

I had the same surgery when I was 4 in August 24th 2011. I'm 11 now and the pain was horrible. I know what you went through honey. Just know that god will be with you and hold your hand all the way through this adventure. -Haven

[@kaylabowers2635]

Happy surgiversary miss Delilah! I get the feels every time I see her surgery video. Alyssa thank you so much for sharing your sweet family with us through these tough times, it has truely made a difference in my life ~hugs~

[@AlyssaAllDayVlogs]

Thank you for supporting us throughout this journey, Kayla! 💜

[@IsabellaMonroe-xy3zf]

Hey you guys are the best love u guys so much

[@sophiephillips2653]

Aww that was so cute I loved the flashbacks it's crazy to see how much she's grown in a year. I loved all the treats you gave her and she deserves it she's been so brave this year with all she's been through and she's such a strong little girl. Also love the swing set in the back I noticed it straight away hopefully you'll be able to get it up this year if the weather is nice for you

[@flannerymonaghan-morrs4740]

When I saw Delia, if I did not know, I would not expect to see such a happy active girl have a condition like chiari...wow.

[@laurelbarklow5520]

What a beautiful tribute to a brave little girl!

[@AlyssaAllDayVlogs]

💜

[@chloeholder13]

Aw God bless your family I can't believe it has been a whole year since her surgery! Delilah is one of the most positive kids I know (or seem like I know) considering what she went through! Keep going strong, but as you know, remember it is okay to be scared and to be upset, but just remember how strong Delilah is and that I, along with many others pray that she gets better every day. I love you guys! 💜 I really wish I could meet you, you really inspire me. Xxxxx

[@djlawlz4041]

I agree. It's okay for her to be scared and upset.

[@AlyssaAllDayVlogs]

Thank you so much! 💜

[@chloeholder13]

AlyssaAllDay your welcome 💜

[@patriciaschuster1371]

I am so pleased for you folks. Happy surgiversary.

[@growlssr]

I'm so glad that you have no dislikes you and your family deserve nothing less! I wish you all the best and hope that the future is bright for Delilah and Winnie 😚😚

[@AlyssaAllDayVlogs]

💜

[@jorjagershon2420]

You've been threw so much in such a short space of time, ly guys 💗💝

[@yepitschirp]

Oh my gosh the girls are soooooo cute!!

[@slimesandglitterrainbows5183]

Delilah is a fighter stay strong I wish I could snap my fingers and all innocent people especially children’s suffering could be over

[@mehreen1998]

I can relate to this. My baby brother underwent a brain surgery last summer and it was a nightmare for all of us. Thank God he's fit and fine now!

[@sarahcrain8083]

Today is August 10, 2018. Twenty six years ago today my son had brain surgery, he was four years old. It's an experience parents never forget. We are blessed.

[@edsawarenesschannel]

You guys have been so strong through this, I know it isn't always easy but you are there for her every step of the way and that's what matters. Thank you for letting us follow your journey.

[@AlyssaAllDayVlogs]

+The Painted Zebra (EDS Awareness) Thank you for following along this whole time. It's been quite a trip, that's for sure. 💜

[@charliekerr8265]

Such a strong little girl and strong parents too u both should be proud of ur selves keeping everything together for ur kids xox

[@ellaogni585]

What a strong girl! Your so brave

[@AlyssaAllDayVlogs]

+Ella Ognibene She is very brave. 💜

[@lilbritt4403]

Winnie is adorable. I remember chasing my older sis around when I was little too

[@miyonnebabers248]

I feel really happy that she made it🎈🎈🎈🎆🎆🎆🎁🎁🎁🎊🎊🎊😊😊😊

[@nusaibaharif4111]

So inspirational little Delilah I have. Tonsil surgery after 3 days and I feel really strong now

[@Sophia-qz9tk]

It been a fast recovery for You Delilah . I know the scared and fear of going in to surgery, I can't imagine Brain Surgery especially when Delilah is 4 years old

[@AlyssaAllDayVlogs]

Yes it has. She still has issues, but she's doing much better!

[@1988eleonor]

which kind of issues does she have? I have Chiari 2 +SB Hydro

[@heatherd.9390]

Oh sweet Delilah - you have done so well at healing up since your surgery, kiddo! You are very brave and strong! Speaking of strong, Alyssa you and Charles impressed me then and still impress me today. I'm sorry your back is so sore. I can certainly empathize with you. My daughter watched this with me and said "that's how scared I am when you go in for spine surgeries, mom". Dang near broke my heart. Anyways, what a fun vlog to watch. You and Charlie crack me up together. I love how he can always make you laugh. Your laugh is contagious, Alyssa. Hang in there Alyssa & Charlie. You are great parents. xo Heather🇨🇦

[@AlyssaAllDayVlogs]

+Heather D. Thank you for your continuous support and sweet comments, Heather. 💜💜

[@LeahTackles]

We love you so much 💗 So glad to have you in our life! Also, never have I ever had a lemon ice, & we have Culver's here lol

[@AlyssaAllDayVlogs]

You have to check it out! They're even lower calorie! 👍🏻

[@jemmasmom1]

I found you when you were trying to get pregnant with Delilah and have continued to watch anytime you have vlogged. Your family is so amazing for everything you've gone through and still held strong. Delilah is going to take every struggle she has and become an amazing and strong woman because she has you and Charles supporting her and encouraging her to be the best she can be.

[@AlyssaAllDayVlogs]

I remember you from way back when. Glad you're still watching! 💜

[@dianejohnstone9181]

Your kids are adorable

[@dianejohnstone9181]

I love you

[@teampopolo64]

She’s so strong!!

[@katherinehirst7777]

This is such an amazing video 💜💜💜💜 I love this but I have to admit I cried my eyes out watching the video watching her go through all the tests but came out with a smile watching her blossom and full of happiness playing making memories.

[@AlyssaAllDayVlogs]

+Katherine Hirst She's a strong little girl! I'm glad you enjoyed the video. 💜

[@katherinehirst7777]

I think you all have the most amazing family 💜 My twin was diagnosed last month with Chiari she is 3 yrs old and we find out this afternoon if her twin has Chiari Malformation your daughter's video gives us hope

[@mojohnson647]

I cried so much 😂 I’m the most emotional person on this planet!

[@joliewalker7717]

I'm so happy for Delilah! She is truly amazing! So what is happening now? Has Delilah's condition gotten better? I feel like I haven't heard a lot about it in a while.

[@AlyssaAllDayVlogs]

I'll have to make an update soon. It has gotten better since I filmed that clip.

[@justaliya5558]

I'm so glad she's okay

[@AlyssaAllDayVlogs]

Me too 💜

[@evavalievva]

She is so cute ❤️

[@nazbelesquivel7594]

my heart fell apart when rendering the flashback where she said her condition got worst

[@leahpark5599]

Woo hoo! One year! You guys are so strong and amazing♥️

[@yepitschirp]

The feels during the flashbacks..

[@rosegoodman1126]

Seriously though 😭

[@sweety3479]

The recap made me cry just as much as the oringal videos did

[@AlyssaAllDayVlogs]

[@tinydancer7426]

can't get over how much the girls have grown - delilah looks so grown up and winter definitely looks like a "kid" no longer a baby - the girls are beautiful - I miss when my son was their ages and all the fun we had - sadly can't have the same kind of fun these days, he'll be 46 in Nov and he has been an "old fart" since he was a little kid (hah-hah) best wishes for the coming year

[@ingridm8361]

😭😭😭💕🙏 you crying in the video and she waking up from surgery broke me...

[@AlyssaAllDayVlogs]

It's been a long and heart breaking journey, but we're still staying positive! 💜

[@stuntman3754]

Im so happy that she is okay when I saw her having surgery i was like will she be okay and i am so happy shes okay. Shes a cute little or big girl 🙂

[@emmytwilight1]

Miss Delilah is such a strong little girl!!! I'm happy she enjoyed her "surgeaversary" day 😉

[@AlyssaAllDayVlogs]

She really is!

[@payton8458]

she’s so cute 🥰 eating that yummy 😋 strawberry 🍓 lemon ice it looks delicious

[@SuperBlackCat1313]

Delilah you are a SUPER STAR.🎉🎉🎉🎉🎉🎉🎉🎉🎈🎈🎈🎈🎈🎈🎈🎈⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️

[@AlyssaAllDayVlogs]

Yes, she is! 💜

[@autumngiannette3705]

WOW love you and your family and vlogs

[@jake8052]

U guys r so brave ❤️

[@georgiarichardson3009]

How are the girls doing sharing a room? And crazy to think how far she has come. I feel like we have become more things going on since surgery but I keep looking at all the things she really has over come since surgery as well. We just need to over come the after part and lose the vent and trach and this Chiari momma will be so much happier.

[@AlyssaAllDayVlogs]

It's been interesting. Hopefully Addie will be off the vent and trach soon. I always think about you and your family.

[@georgiarichardson3009]

Thank you, we decided to have baby number two after four years and are very scared of having another child go threw this but the doctors have assured us anything is possible but we probably wont have another baby with Chiari seeing that we dont have chiari ourselves.

[@amberzapata8190]

happy day Delilah ... and I love the making of the backyard swingsett

[@AlyssaAllDayVlogs]

+Amber Zapata 😊

[@mommabear3916]

I can't believe it has been a year. It does seem like yesterday sometimes. I would have called the police on the jerk who left the dog in the car and how dare they get lippy!

[@lezup]

Happy surgivercery. Continued prayers for good health. Life with Chiari has its ups and downs. My surgery was when I was 19. It was the worst surgery of my life, (because of the eds in my family I have amniotic band syndrome requiring many surgeries. ) I am happy to see you doing so well.

[@AlyssaAllDayVlogs]

I'm sorry to hear that you've had so many surgeries. Thank you for your encouraging and kind comment. 💜

[@lezup]

AlyssaAllDay It took me a long time to accept it as just needing to be part of my life. I will always do my best to support fellow Chiari/ EDS people. I am on Facebook if you ever need to bounce a question off a non medical professional, with 13 years of Chiari experience.

[@megbroonthedrums]

We need to get them to 1 mil!!

[@lilbean.gymnastics0778]

4:28 awwww ☺️

[@destiny1942]

Awwwww so sad. My mom has chiari and didn't find out til she was 35 when she had it and she was born like it. My mom had her surgery on December 10 2015

[@ashleydylan5696]

I know I'm a little late on the comment but I'm so glad the Delilah is okay now💜💜💜💜 BTW Winter and Delilah are both so cute!!!💜💜💜💜

[@natalierobson9382]

Penny Girl! Your family is so cute!

[@ciaraloversforever6299]

She is a very stay gurl 💕💕❤

[@Summernightsprettysights]

Delilah: Its my sugubursary! Me:AWWWWWWW!!!!! She's so cute!!!!!

[@AlyssaAllDayVlogs]

+Lauren Hudgins Thank you!

[@Summernightsprettysights]

AlyssaAllDay You're welcome!

[@Sara-dj6cn]

OMG FIRSTTT I LOVE YOU SO MUCH KEEP DOING YOUR AMAZING VLOGS I ENJOY THEM SO MUCH♡♡♡

[@djlawlz4041]

Their videos are amazing.

[@AlyssaAllDayVlogs]

Thank you so much! 💜

[@teampopolo64]

Yaaaaay!!! ♥️♥️♥️

[@lucybonsack8062]

hope yall are still doing alright. as someone with chiari, i hope all is well.

[@emmamiller1289]

Omg ur kids are adorable💕

[@samanthasea7]

love the music in this vlog!

[@AlyssaAllDayVlogs]

+samanthasea7 Thank you!

[@keric3673]

Please give Delilah a hug for me. Y'all are so strong but at the end of the day, we gotta do what we got to do. I've had to debate getting the same surgery, but I haven't yet. I kinda wish my family had known about it when I was younger because now I google everythingggg about Chiari and SB

[@AlyssaAllDayVlogs]

I still think Chiari isn't the most widely known condition. The good news is that there's more information and research available today!

[@annikashuman1800]

i had hte same thing done to me when i was 5 and i love red robins i have 1.5

[@patmartinez6363]

Delilah is so cute!

[@mrs.potter7700]

I’m crying she’s so brave and I have something similar to delilahs I have becwith wedemn sindrum look it up

[@Alinostar_]

There so cute she’s so big

[@EmmaMonroe-jg7em]

Hey I hope she is doing ok

[@haydensmith697]

Love u guys so much

[@AlyssaAllDayVlogs]

+Hayden Smith 💜💜💜

[@chaneltay7790]

Hello guys. Poor girl. I had surgery last week.

[@chloebell4115]

Aww that was so sad

[@lipton87]

Hey Alyssa, has Delilah had DNA testing??? I know that sometimes with these more rare disorders doctors get focused on what they know about the patient rather than looking deeper...I have Ehlers Danlos Syndrome and am currently awaiting my MRI results to see if I have Chiari Malformation, I've just recently come to find out that they are what my neurologist called "sister disorders", and that anyone with Chiari should be tested for EDS and anyone with EDS should be tested for Chiari....this is only being told to me after getting my EDS diagnosis YEARS ago. I dunno why I'm only now receiving this information and why I'm only now being tested, so I figured that if I didn't know that you guys may not know either??? I hope you see this.

[@kayleamays9204]

I have the same thing but i haven’t had surgery I know how you feel or used to feel.Have you had one of the spells it seems like someone crazy took over your body if you haven’t had one it is really bad and I am happy that you have had surgery.

[@annemarie326]

Yay Delilah! Happy Surgiversary!

[@AlyssaAllDayVlogs]

💜

[@mirandasyoutubegirlypop]

I also have chairinmalformation.. I don’t think I am nearly as symptomatic as Delilah is but I get chronic migraines and dizziness, migraines, nerve pain, and other random things that I can thank chiari for. It’s hard to explain to people that I work with that I don’t want to be touched or poked even just for fun because it really hurts me, my nerves are all very sensitive. Nobody understands and I usually just suffer in silence. I know how you feel Delilah. I had a few neurosurgeons who wanted to give me a decompression but I didn’t know that I needed it at that time. Anyway I hope your surgery worked for you

[@AlyssaAllDayVlogs]

I'm sorry that you suffer in silence. A lot of chronic pain sufferers do and it breaks my heart.

[@madisoncoleman6843]

Love this

[@9ik9]

At the end of looking back at the surgery you say the result of the surgery was dissapointing. The condition got worse... What does that meen voor delilah? Such a positieve family! ❤️

[@AlyssaAllDayVlogs]

+9ik9 When I made that clip her cyst in her spinal cord had gotten better, but it has since shrunk.

[@sistersquad5579]

I have chiari too!!😊 #chiaristrong💪🏼💜

[@charlotteandcarlee1997]

Delilah is so cute

[@AlyssaAllDayVlogs]

Thank you

[@tracyfaulkner902]

Fun with Charlotte yes she is. I said the same thing a month ago :3

[@emilysuarez1608]

What time is the girls bedtime?

[@danikapysher6236]

Omg.😢😢😢😢😢😢😢😢😢😢

[@siobhangannon520]

Your so cute

[@thehennesseys5447]

Stay strong I have A OPTICLEYOMA ON MY OPTIC IN A LITTLE ONTHE HYTHALOMIS THATS WHAT I AM HAVING SURGERYBFOR OVER MLK DAY