Amy's Story - Pituitary Tumor - Prolactinoma

[@joshuaruslander1313]

My wife has been dealing with this for 6+ years..... We gave up we knew it wasn't psychosomatic but the doctors were failing us. Finally got diagnosis when her eyes drifted apart. The tumor is now 4.5 cm a giant prolactinoma. Turns out the problem was all in her head after all. We meet a second surgeon today..... 🙏

[@sandragarcia2348]

So happy I found this video ❤️ I'm not alone.... this journey has been hard for me. I pray for everyone who is going through the same as me.

[@Gracefuly]

Sandra garcia You're definitely not alone, I've been going through this for some time now and I knew something was wrong and it took my gyno doctor to find out what was wrong but now I cannot find a doctor to treat me. I live in Ohio Valley and the hospitals around here you have better luck finding somewhere else. I'm trying to find a doctor in Pittsburgh that will accept me but they're giving me a hard time because of my insurance. Can I ask did you get any treatment or are you better now?

[@Gracefuly]

I tried to reply to your comment for some reason I couldn't so I've posted on your message

[@powdercleaningobsession29]

Been trying to h e my second child my right nipple has leaked sense I had my first one and I never Brest feed but the right boob never dried up I’m glad I keep asking doctors cause none could figure out why

[@karlhans6678]

@@Gracefuly is your tumor removed?

[@Gracefuly]

@@karlhans6678 I finally was able to get into a oncologist and bc I’m not able to get a MRI ( due to a pellet in my head) he said he couldn’t see it but that I do have calcium that that has formed around the pellet. And that has caused all my problems.

[@emilylyons3352]

We need to normalize taking peoples symptoms seriously. I'm going through this right now, I have alot of pretty scary symptoms I still have no answers, have been told to see a phycologist and that I'm basically crazy.

[@namirachaki2452]

Exactly!! I also have a prolactin tumour and for the past few months all I am doing is crying even though I don't want to

[@Lachina-o3z]

I been told the same 😢

[@Lachina-o3z]

Did anyone have surgery or has to be on hormonal supplements?

[@Lachina-o3z]

For off work how much time was taken off ? Or recovery?

[@Lachina-o3z]

I get severe headache, vision , with parodel gets me tired sleepy and numbness speech also shudder I never had tht before? To strong for me these meds I’m trying to be off work but only got reduced schedule anyone whom has work and gone threw this how was ur symptoms and treatment options ? And if opted for surgery the down time the recovery the going back to work process

[@melanierae9087]

I was diagnosed with non functioning pituitary tumour last September, this was after months of trips to the Drs saying how unwell i felt and 2 years of bad vision in my eye. In the end I nearly collapsed and ended up in hospital with the lowest levels of cortisol, potassium and sodium ever seen in a person still functioning. After an MRI the tumour was found, I am on my 3rd consultant, 2nd specialist hospital. Migraines are unbearable and I just want life to go back to normal 😪 Good luck to you all who have come out of the other side.

[@jeromeglover605]

How are you doing today?

[@xoxomangakcorxoxo]

I just got diagnosed with prolactinoma today! I do feel the headaches and stuff and I feel her on that

[@sinbadoakley1990]

Mine was drug induced. Don't take the drug Resparitdal

[@monalisaparida7747]

@@sinbadoakley1990 what was your prolactin level?

[@sinbadoakley1990]

@@monalisaparida7747 I don't remember but when I got tested my levels were higher than usual so I had to have 2 mri done. I don't see the doctor for it anymore bc my doctor said it was safe to say it was the medicine I took for so many years. I yet wonder if my enlarged pituitary gland is the reason why I am alot taller than my two older sisters. My levels were back to normal when I stop taking resparital

[@kristakensil4750]

I’m currently taking Bromocriptine for it. I was diagnosed in March of 2020. I’m having a difficult time getting help from my doctors. My prolactin levels tested at over 900 when I started.

[@sinbadoakley1990]

@@kristakensil4750 after i stopped taking resparidal my level went back to normal

[@brittanyaghuru9647]

I’m so happy I found this video. I doctor is referring me to a endocrinologist because she feels this is what’s going on. I have the headaches and I don’t have my monthly cycle. Thank you so much

[@Aishuislam1991]

Hello did u find out what happend?

[@karlhans6678]

Any news?

[@brittanyaghuru9647]

@@karlhans6678 I lost my daughter through complications

[@karlhans6678]

@@brittanyaghuru9647 sorry to hear.

[@karengiacomotto8707]

My gynaecologist thinks also ..and has referred me to for an MRI ...no menses..headaches ..was misdiagnosed for years with pcos..but my lh and testesterone levels are excellent

[@youtubeyoungestgrandmastor4523]

I have this and I'm glad I found out I did a video. I'm so scared tho. I have no one to talk to.

[@joostnederlof3150]

I might not be the right person to talk to, as I am a male with this condition living in a different country, but feel free to message me about it. I am about a year into treatment with medicine. Regardless, if it helps, know that in my case my life improved greatly since the diagnosis. Doctor visits and side effects are annoying, but when your hormones start getting balanced again alot will start making sense, atleast it did for me.

[@StarzzyJJASD]

Hello there I'm sorry to hear your feeling alone , may I ask what your symptoms were prier to finding out you had a tumor and did the check your prolactin levels and if so may I ask what your levels were number , the reason I'm asking is because I have to have a mri next week because my prolactin levels were higher than normal , so my endocholgist wants me to do the mri just to rule any tumor out , he told me dont be scared he said hes 90 persent confident that I'm ok , but I'm still scared

[@joostnederlof3150]

@@StarzzyJJASD Not the one you asked this question to, but just want to wish you good luck on your scan. Just know that even if it does turn out to be one, this is almost never cancerous and most of the time treatable with medicine. Even if not, operations are fairly routine. So please do not worry too much. Take care.

[@StarzzyJJASD]

@@joostnederlof3150 I thanks

[@StarzzyJJASD]

@@joostnederlof3150 may I ask what your symptoms were prier to knowing, and what your prolactin levels are mine is 45 and I'm a male also , my engracholgist recommend me go get an mri just so I can get a peice off mind , so I'm going next week to get the mri , I'm very scared not off getting the mri but not knowing what the results will be and just waiting for them how long does it usually take to get the results back thanks

[@simplylivingrare4312]

I too have a pituitary tumor acromegaly and will have to undergo brain surgery soon. I have started to vlog my journey. Thank you for this video.

[@youtubeyoungestgrandmastor4523]

How are you doing I'm looking for your videos

[@youtubeyoungestgrandmastor4523]

How are you doing

[@Daynish648]

Are you on any social platforms, would love to connect with you. I believe have have this and getting diagnosed has been troublesome. Be blessed

[@ceairaelzey2999]

After years of my hair falling out, irregular periods, and excruciating headaches, I up and moves to a new doctor. I had thought hormones, PCOS. My last doctor, upon the results of a transvaginal/transabdominal and a normal thyroid test, decided I was just making things up. Nothing could explain what was going on. This new doctor tested for hormones. Testosterone was normal, but prolactin was way too high. I am scheduled for an MRI on August 3rd. Now, this being said, I also have MS. Have had it for 3 years now. I’ve had multiple MRIs of my brain to check for lesions. So how, if I do have a prolactinoma like my new doctors thinks, how has it not been seen already?

[@Chan-dq8yk]

Just wondering if you ended up getting an answer? I’m in the same position

[@asraaa9506]

We know its not natural for us to become anxious, sleepless ,numb in many areas, vision changes ,concentration ,dizziness weakness ,menstruation probs ,weightgain,metabolism changes,all at once.sadly I return home from doctor hearing that I may have a anxiety disorder that's it.well I know its something more than that and yes pituitary tumour makes sense though its hard to detect it.

[@karlhans6678]

Most doctors are heartless assholes. I also got told its just anxiety and doesnt want to give me an mri. Now i need to search for a new doctor cause my also doctor doesnt give a shit!

[@AnotherPilot1]

13 years to get a diagnosis...in 2006. Miserable...

[@ShadeMeadows]

I'm having migraines non-stop for almost 3 months now, AND I have a prolactinoma... we don't know if they are related, but I started a treatment with cabergoline last month, I hope this is it, but so far, the migraines do not stop, so I'm going to many other doctors to find another possible reason.

[@terricundell3968]

Wow !!! I wish this method had of been available when I was 14 !!! I had my pituitary tumour removed and now have a nice scar from ear to ear and am on 5 hormonal meds ! I don't understand how they diagnosed her with the one thing though since the pituitary gland controls so many things!

[@hp44858]

Wow what a story, Amy. It's really cool to.see that everything going so well with you.- Shawn Wendt

[@cheryllawson142]

I had a tumor and cyst on my pituitary gland. I had them removed by transphenoidal approach. My symptoms were migraines, no period and breast leakage.

[@Fifoutility]

Cheryl Lawson How are you going now? So scared been diagnosed with Pituitary Tumor, Monday I'm going to see the Neurosurgeons, Wish me luck no surgery for me.

[@karlhans6678]

I have migraines daily but my stupid doctor says its just anxiety, wtf!

[@lotoyathompson7410]

@@karlhans6678 I've had the same thing, lactating for 9 years. I was put on antidepressants just to find out that I have 1.1 cm tumor a week ago.

[@karlhans6678]

@@lotoyathompson7410 damn sorry to hear that. I've had an MRI and my brain is fine, no more headaches either.

[@monalisaparida7747]

@@lotoyathompson7410 how are you now...?

[@cutebre11]

After watching this video, I just don’t understand after going through headaches for so long, why an MRI or any scans/ test were not recommended. I was diagnosed with a pituitary tumor Sep 2022 a week after having my baby. It became very life threatening but luckily I survived. Mine was found with an MRI

[@jeromeglover605]

Hey. How are you feeling now after the surgery?

[@cutebre11]

@@jeromeglover605 hi, I never had surgery. Mine was treated with medication. The tumor has continued to shrink since! 🙂 Yes God has had a hand in this, medication and weighing our options when making decisions (I had the option for surgery but chose to treat with medication, it has worked since)

[@jeromeglover605]

@@cutebre11 that’s great to god be the glory. I pray that your tumor goes away.

[@jeromeglover605]

I also have a tumor I’m going to ask my doctor if I can also take the medication.

[@cutebre11]

@@jeromeglover605 yes amen, thank you! And yes definitely have that conversation and weigh your options, especially if you may not need surgery. Praying for healing also and for clarity. 💕 Please feel free to reach out also if you have any other questions, here to support!

[@dancinggold17]

Oh my God me to a T. The depression diagnosis- yes! Finally my legs swelled up so bad i couldn't put my shoes on. I went in and asked him "is this depression?" I was in early kidney failure. It took four more years for my tumor to be diagnosed. The first MRI missed it but every neuro who has seen it says it never should have been signed off on because the image is so poor. I'm in a pituitary tumor group on Facebook and sadly this is so common.

[@andrespalacios6356]

Why your legs swelled up? I suppose it was because you pituitary tumor was affecting your kidney function through the antidiuretic hormone, right? I have several problems where I really don't know where they come from. First I noticed I have nauseas, depression, fatigue, cloudy mind all time, low libido, got weight so quick and my amount of urine was very little and concentrated even If was drinking a lot of water I dont feel the sensation that my bladder is full. I went to see my Doctor and after some blood and urine tests he told me that there was nothing wrong with my kidneys, he told that I should drink more water and that my symptoms were caused due a depression (like your doctor said to you) but I know that there is something else happening... so in two weeks I will make a MRI. I appreciate so much if you could tell me more about your personal expierence and other people's experience about how pituitary tumor affects kidneys function and other organs. Sorry for my english it's my second lenguague and I dont know it propely perfect

[@yelincastro3774]

did you have shoulder pain?

[@aleezahid7268]

How the pituitary tumor is diagnosed was you depressed all time and restless.

[@lorib5398]

@@andrespalacios6356 I think one way kidneys are affected, are from diabetes. If cortisol is being produced, because the pituitary says to make too much, our bodies convert protein(our butt arms and leg muscles) into sugar and fat. Even if you eat well, low carb, no sugar, and manage diabetes, it will still do this. It's the high sugar that destroys kidneys, nerves, eyes, hearts, arteries, and the rest.

[@megnoonan9799]

What is the group. I have a pituitary adenoma

[@KyleWasHere101]

I’m quite curious how this effects men as I might be one. My prolactin levels are super high, no libido, no energy and migraines all day. Been given a MRI to look at my gland. I was never this way before but got bad Covid back in November so curious what will become of this. This gives me hope that there is light at the end of the tunnel.

[@tech4u680]

Do you have an update I'm a male also who has high prolactin and low testosterone. I had an MRI done also and they found a 3mm growth on my pituitary gland.

[@bernadettemendoza3044]

As a man that was diagnose with prolactinoma today. these are the symptoms I have . Migraines that last 1to two weeks, anxiety attacks, insomnia, vision loss,(blurry vision), memory problems, panic attacks that wake me up in the middle of the nights, nausea. But my sex drive was never affected which is weird.

[@thelauriebelle11]

Have you had any luck in figuring this out?

[@jeromeglover605]

@@tech4u680 Hey. How are you doing? I wanted to know if you’re still doing good?

[@jeromeglover605]

@@bernadettemendoza3044 Hey how are you doing?

[@asraaa9506]

I just wish and pray for a doctor to detect it in me someday b4 its too late.

[@xoxomangakcorxoxo]

Ask the doctor for a CT scan!

[@heathercovington5220]

Lots of Drs failed me. I take cabergoline. But my tumor is growing so this month we will be discussing surgery

[@AshaSoulaani]

I haven’t had a period in 2 years. I’m under 40 so menopause is unlikely. I’ve also always had irregular periods. Went to do a physical and bloodwork. Lab came back that I have high prolactin. We did another blood test so just waiting. I personally hope that this is the issue and nothing worse

[@sehrishsalman9395]

What's up prolactin levels?

[@kathybaligwat1058]

I have a friend who has the same case as Amy. Is it really necessarily to undergo surgery? I'm so worried about her. She's been taking medications for more than a year but the tumor isn't getting smaller.

[@09ShyGurl]

Hi there! How’s your friend doing with her tumor? I have been on medications for 1 year now and nothing working just a whole lot of medication side effects. Would love to know if there’s anything specific that has helped her!

[@MSangle24]

How much pain be after the surgery ... days to feel better

[@GB-cj3ok]

I have all the signs and symptoms. I am having the surgery this coming Wednesday April 27th, 2022 at UAB NEUROLOGICAL CENTER DR. RILEY. I'm not nervous nor am I scared I don't won't the catheter, but hey I'll be sleep and it's only for a day. GOD has the final say so and it's in his heads. I'm looking forward to getting it over with and the road to recovery. My motto is nothing last forever bc as soon as something starts it's already in the past. GOD BLESS YOU ALL. By the way I am a male so no menstrual problems however the testosterone is very low, I'm so waiting to fix that and get back to business 🤣🤣🤣

[@lil_problemo]

I'm so tired and exhausted all the time and have had horrible headaches. My vision is weird but I still see. I'm producing breast milk after 8 years of not breast feeding. I asked my doctors to check my bloods today and I have to wait to see a doc before they will do that. I've already been diagnosed with anxiety and depression. I feel like no one listens I also have endometriosis, but so far the only care I've been offered is total hysterectomy and ovary removal! Why can't they just look into the hormonal issue?!!!

[@kaitlynngasparinho2604]

Hi everyone! I was wondering if there has been anyone that has had the surgery ,and what their recovery was like? I was diagnosed with the tumor in December of 2015...three different failed attempts at medication I am going to see the surgeon then end of this month to discuss about surgery. I am turning 17 next month and I am very scared and was just hoping if anyone would be willing to share their recovery and an update on how they are now after it? Thank you❤

[@deeyanavalentina5369]

@@kimberlyw3847 Hello, I know this is really late however Im wondering if you would be willing to share your experience with gamma knife.

[@anseswarilaxmi10c29]

Hey I had this and had a surgery. Can you tell me what’s your journeys.

[@asraaa9506]

I am undergoing similar problems for abt one and half yes.I just pray that God guides me to healing and cure.

[@Fifoutility]

Asra Aleem How are you going with your treatment?

[@yelincastro3774]

did anyone have shoulder pain? I have high prolactin havent been diagnosed yet had an MRI 4 days ago!

[@yelincastro3774]

DanNiDae no tumor and my prolactin is at a 45 right now but last time it was at a 22 so idk it keeps going up and down

[@husssein5153]

@DanNiDae Hi, guys I have this pain also in my neck, shoulders and upper back. bones feel like they are rocks and not smooth. still waiting for MRI appointment. but was wondering if you found out what the problem is. thnx

[@sehrishsalman9395]

What was ur prolactin level

[@HOPELESSMALAK]

I have neck pain

[@ewayjeng1]

My wife was diagnoses as well they are recommending medication first before surgery

[@MonicaCeçil-v6v]

I went through the same issue had doctor thinking I want pain medicine all I want was to no what was wrong three years later going through this found out I had a pituitary tumor

[@1colerock]

My story is A little different . My wife and I were rearended by a semi truck doing 50 while we were stopped .i went to er and later was diagnosed with concussion and several herniated discs in my neck and back . That was July . In October my blood sugar went to over 500 and stayed there . In December my left side of wy face went numb ,went to er they said bells Paul’s and we found a brain tumor .its been a hell of a ride .finally saw neurologist said it was 10 mm and has grown to 13 .wondering how big does it have to get before they operate? Thank God no headaches but break into crying fits all the time,weight gain,no energy,snap on people especially wife and daughter,won’t speak to me anymore .tthey don’t understand.ready for some good news for once !

[@drinabooboo]

Same here.

[@dianehaydock9154]

Would love more info if any experts out there ?

[@terrytahutu1343]

I never had a surgery to remove the tumour, I’ve had time that’s unforgiving pain throughout the body’s system, confusion, headaches, loss of energy or drive, it’s been 4 years of hard times me my wife family, in Australia

[@meaganvalenti2946]

I hope my story ends up like Amy's.

[@crystalangel84]

Doctors told me I have the same at age 23... i will be 31 in 2 weeks. I have a Prolactinoma microadenome in pituitary... I want to get it removed but I am so scared of the risks 😢😞

[@semperparatus678]

Not to mention cutting you life span b 20 to 25 years on the average. I'm getting mine done next month and am also scared shitless. I am 44 and never had a surgery. But I don't want my life cut short due to being scared.

[@semperparatus678]

Come to MD Anderson hospital in Houston, we could go through it together.

[@cmanresa1]

Nella Balda I feel you, I am going threw the same thing as in thinking of getting the surgery done. its comforting to know that I'm not the only one going threw this.. I wish nothing but the best for all of you ❤️

[@vanessatorres2517]

try meds therapy .prolactinenoma is responsive to meds therapy

[@arsalakhan1698]

Nella Balda dame here’ I’m tired of taking the medicines they are getting me crazy

[@puch7261]

geez i been going through this for almost 3 years this sucks.

[@semperparatus678]

What are the chances of my tumor coming back?

[@keresiadewar7907]

I have been taking bromicriptine for 2 years now for high prolactin my doctor take me off 2 time because it went into normal range and 3 months later it go up high again and now he is sending me to some specialists and am really scared because I mite have to do surgery

[@AkankshaKumariLSC]

.my pituitary tumor is 4.4 × 3.7 mm and doctor suggest cabergoline..

[@nancyrogers5950]

searching out alternative treatment.

[@greenbyu]

How did your search go? I’m on that path now

[@naijaaprincess]

I have one and been trying to get pregnant for 12 years!!!!! no doctors will prescribe me cabergoline or bromocriptine even though I have symptoms

[@72chargerse72]

Similar story not the same but.. Takeaway... If your doctor isnt Helping you ...DUMP them. find the care you need. Thankfully I did and my new doc got me a new specialist that did the simple hormone test that discoverd my problem and drug is working. Bumpy and scary road though.

[@Tengap02]

ive been diagnosed for prolactonoma ive been drinking medicine since 2014 but now my doc. suggested to done a surgery but im so scared for this is connected to brain. Is there any way to cure this deceased.. Many thanks hoping for ur reply

[@nmcraven]

I have a 5mm tumor (diagnosed 5 years ago it was 7mm). They first had me on bromocriptine and after a few years on this it was making my prolactin levels too low, so my endo took me off it. Now I'm not on any meds and take a herb called Vitex. I have had no headaches or any complications since taking Vitex for the past 3 years. Keep in mind that I also am organic vegan and exercise regularly.

[@Mina-wn5ip]

@@nmcraven hello how are you doing now my prolactin level is 585 and I am scared of what will be next?

[@lorib5398]

Find a good surgen and get it removed. Such amazing technology out there now. I'm sorry you're scared. So am I. But the good surgen do this ALL THE TIME. They are fascinated by the challenge. It'll work out.

[@lynnali7315]

​@@nmcraven did your tumor shrink with medication?

[@lynnali7315]

​@@nmcraven so it took 5 years for the tumor to shrink 2 mm? I'm asking because I have a 5 mm microprolactinoma and the tumor did not shrink at all after 3 years of treatment

[@nitajasmine]

I have this I was diagnosed at 22 AMY has the exact same signs that I am Going through I live in cincinnati and I first went to mercy then I went to Christ and christ tried to tell me that I have real bad migraines...I knew that wasn't it because the migraine meds made it worse..I would like to have the surgery because I know that I want to have kids and get rid of these horrible headaches I am just thankfull that I see that it's common and it is a cure.This video was very helpful to me Thank you Amy for sharing you story after this I LOOOve you tube even more now.

[@longbrandee]

Hi, I’m in Ohio and recently underwent the surgery & I’m wondering did you end up having it & how it went for you?

[@AnhNgo-ib1xy]

did all of you ever had radiation for pituitary?

[@terricundell3968]

I had my first tumour removed and than my second ! After my second one I had to have radiation! The doctors weren't sure if it came back right away or if they had missed some if it !

[@terricundell3968]

@SRR no I didn't! It's actually embarrassing but all I know is that it was a tumour that ruined my pituitary gland and I'm on all female hormone meds ! It happened when I was 14 ! And I'm now 44 with LOTS of problems with my damn thyroid !

[@shaziakhanish]

I have a micro prolactinoma since 1999 now have hyperthyroidism as well does anyone else have same?

[@Spiritpup5]

+shezkhan I have it, as a result of Cushing's Disease. I had my pituitary removed in January of 2001, and have some other problems from it as well

[@IR1S1SY0URF4V]

Jeff R. There are great support groups on Facebook for people with cushings. Hope you’re doing okay

[@lynnali7315]

Has the tumor shrunk?

[@joeslacker1020]

Joe Slacker 3 hours ago (edited) I'm pretty sure I have this or something close to this like a prolactinoma. I get the diabetes inspidis (thirst badly sometimes so sever I can drink a gallon and i'm still super super thirsty) Very frequent urination. Urinating in bed (a little bit sometimes). Have these odd sensations in my head. Loss of vision with sensations. One eye will seem like I can't see out of it and then I'll close the other one to confirm myself I can still see out of it (some will alternate one or the other). At night time right before sleep I'll almost go completely blind in one or the other rarely but sometimes both. Extreme confusion at times with a lack of vision and hearing. Vision of colors gets very enhanced at times only for a brief few seconds. Feeling of terror or fear on a regular basis (not a thought but a sense or feeling ps. TERRIFYING). Low attention span at times (very hard to sit and read things). Poor short term memory and memory loss with previous events in my life (almost all of it). Can't feel the left side of my body at times or there's an awful feeling I've never experienced before in them (left arm and leg mostly). Sometimes I can wake up and not feel my entire body. Sometimes It feels like I'm not INSIDE my body. Pressure inside my head at times (feels like inside the skull around brain). Tingling inside the back part of my head and other areas as well sometimes (Crawling feeling). Tingling in face (somewhat rare but lately I've definitely noticed this). Stopping mid conversation and ask what we were talking about right in middle of sentence over and over and over all day (this has gotten a little better though). Staring into the distance at random times. Sense of impending doom (95% a former symptom). Muscle ridgidity (can't work out like I used to). Muscles weakness. Fatigue. Waking up 10-15 times in sleep. Severe insomnia for a few weeks. Feeling like I'm extremely high in my sleep (not a good feeling but almost like I smoked some adhesive or carbon fiber or something). Feeling like I can feel myself dead in my sleep ( if I dream about falling off a cliff and dying I'll feel myself dead somehow). Moaning in my sleep (like when someone gets injured really badly in some sort of an accident). Lower to mid back numbness and heat from lower back as well sometimes. Upper spine or upper mid back where top vertabre is is numb as well. People look fake to me (might be a vision problem). Severe weight gain. Bloating, distended stomach. Constipation. Chills in the mornings after waking up. Severe anxiety at times. Zero sex drive for a few months and recently it has sky rocketed.

[@imani4548]

Did you get a diagnosis?

[@GB-cj3ok]

You have all the signs and symptoms. I am having the surgery this coming Wednesday April 27th, 2022 at UAB NEUROLOGICAL CENTER DR. RILEY. I'm not nervous nor am I scared I don't won't the the catheter but hey I'll be sleep and it's only for a day. GOD has the final say so and it's in his heads. I'm looking forward to getting it over with and the road to recovery. My motto is nothing last forever bc as soon as something starts it's already in the past. GOD BLESS YOU ALL

[@joeslacker1020]

@@GB-cj3ok signs and symptoms of what

[@GB-cj3ok]

@@joeslacker1020 we're talking about pituitary gland tumors right?

[@ankitabaul3132]

Same ...did you recovered??

[@charasmarieplans5889]

they found a tumor and there taking it out on april 6th any advice when did you go back to work how many days did you stay in the hospital when can you eat when can you take showers please any advice the mri showed that my daughter had a size of a walnut is it safe to say they will get all of her tumor out!!! did u get back hair and did your hair break off well my daughter hair start being healthy again after they put her on hormones pills

[@AleksaDiaz]

hi! Please can I ask, what medication helped her? I'm scared about my hair, it's much worse now, but I just got diagnosed, hoping medication will help :(

[@AleksaDiaz]

@Hussainy Souls micro adenoma....hyperprolactinemia but doctor said it was my ovaries. I've been off cabergolinem which I took for 2 years. My hair still sheds but I am not bald lol I am unsure still as to why it happens.

[@AleksaDiaz]

@Hussainy Souls I wish it was so simple! I had a thyroid lab this week, all numbers were in the optimal range used in functional medicine.

[@mofizmofiz9966]

@@AleksaDiaz does this tumour cause hair fall.... What was your symptoms

[@afnanabir5042]

Is there anyone who got diagnosed only with medication for pituitary micro tumour ? Which is less than 1 cm in size

[@cutebre11]

I was diagnosed with a pituitary macroadenoma Sep 2022, so a little larger in size and we’ve been treating with medication. Tumor has continued to shrink 🙂❤️

[@afnanabir5042]

Which medication you have taken? And you’re from which country dear?

[@cutebre11]

@@afnanabir5042 hi there and U.S. I am taking levothyroxine for my thyroid and (hypothyroidism/ adrenaline insufficiency) and Hydrocortisone (tablets) 10mg and 5mg for the tumor

[@honeymavi3086]

2016 to 2021 my prolactin not balance pcod PCOS headache etc😭😭

[@asraaa9506]

I am undergoing similar problems for abt one and half yes.I just pray that God guides me to healing and cure.

[@Tengap02]

I go with neurologist for giving me advice that it could be possible to not go under surgery f the sizes of tumor is small and as long as the vision of the eyes was still clear its ok not to do with surgery,, but if tumor size is 10mm this is should go for surgery and he said that is easy surgery that on the next day u can discharge already in the hospital.. Until now im taking caborlagine 2x in a week for 6 months again then again MRI should be done again if tumor not growing coz ihave size of 7mmx9mm,,really it was very annoying everytime that the symptoms is attacking especially the non stop headaches will come from no where, and the irregular period.. And the Doctors explained to me that not to planned to be pregnant coz tumor will possible to grow more.. Im suffering for this since 2013 its really bad..

[@flavadog17]

How are things for you now? Did you have surgery for your issue? Hope all is well for you.