Amy's story

[@hectorandjudidesautels1457]

Thank you Amy for such an informative video. I have never heard of this condition before, but you explain it very well for everyone. Good luck to you and your family. x

[@elenahernandez1442]

Thank you for sharing your story. I would love know how she's doing now?

[@ali1583]

My one year baby due to hypoxia have brain cystic encephalomalacia he is not smiling and social Eye contact I start his treatment under pedia neuro physician still same condition

[@thedrzrule]

Hello amy i have two children suffering from infantile spasms but i live in Pakistan Child 1 male age 2 years 5 months with global Developmental delay and no vision (can't see) He was finally treated with steroid after 1 years of spasm as many conventional anti epileptics were tried before that. Child 2 daughter 1 year 1 month old started to IS at 6 months but we started her on steroid but she also lost her vision / IS stopped but she can't apply force on her feet will some developmental delay

[@soniaali5547]

How are ur children now? From Pakistan fsd.

[@thedrzrule]

@@soniaali5547 permanently disabled bed ridden cannot sit both, boy age 4years 6months, girl 3 years 1month I hope u dont have such problem.

[@soniaali5547]

My czn has an adhd baby. THSTS WHY I AM HERE FOR SEARCHING THIS. He is very agressive. May ALLAH GIVE UR CHILDREN A HEALTHY LIFE. MY SISTER IS A SPECIAL EDUCATION TEACHER. N SHE TECHES BLIND CHILDREN.

[@kimalonzo3363]

Sweet little curly top!❤😊