Amy's story

  Рет қаралды 24,069

UK Infantile Spasms Trust

UK Infantile Spasms Trust

Күн бұрын

Пікірлер: 10
@hectorandjudidesautels1457
@hectorandjudidesautels1457 5 жыл бұрын
Thank you Amy for such an informative video. I have never heard of this condition before, but you explain it very well for everyone. Good luck to you and your family. x
@kimalonzo3363
@kimalonzo3363 11 ай бұрын
Sweet little curly top!❤😊
@elenahernandez1442
@elenahernandez1442 2 жыл бұрын
Thank you for sharing your story. I would love know how she's doing now?
@thedrzrule
@thedrzrule 5 жыл бұрын
Hello amy i have two children suffering from infantile spasms but i live in Pakistan Child 1 male age 2 years 5 months with global Developmental delay and no vision (can't see) He was finally treated with steroid after 1 years of spasm as many conventional anti epileptics were tried before that. Child 2 daughter 1 year 1 month old started to IS at 6 months but we started her on steroid but she also lost her vision / IS stopped but she can't apply force on her feet will some developmental delay
@soniaali5547
@soniaali5547 3 жыл бұрын
How are ur children now? From Pakistan fsd.
@thedrzrule
@thedrzrule 3 жыл бұрын
@@soniaali5547 permanently disabled bed ridden cannot sit both, boy age 4years 6months, girl 3 years 1month I hope u dont have such problem.
@soniaali5547
@soniaali5547 3 жыл бұрын
My czn has an adhd baby. THSTS WHY I AM HERE FOR SEARCHING THIS. He is very agressive. May ALLAH GIVE UR CHILDREN A HEALTHY LIFE. MY SISTER IS A SPECIAL EDUCATION TEACHER. N SHE TECHES BLIND CHILDREN.
@ali1583
@ali1583 Жыл бұрын
My one year baby due to hypoxia have brain cystic encephalomalacia he is not smiling and social Eye contact I start his treatment under pedia neuro physician still same condition
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