I've definitely experienced the reluctance to give a diagnosis. I went to my primary care doctor and a rheumatologist several times, they ran a bunch of tests, and in the end all I got was "ummmm, probably fibromyalgia, but it doesn't really matter". Like, what?
@olgachronics32732 жыл бұрын
Yeah, it matters so much! It's infuriating that they seem so indifferent to this issue
@kimatkinson32042 жыл бұрын
Thank you for this talk
@debbieg6772 жыл бұрын
So glad to see you back! Sorry to hear about your new diagnosis and how long it took to get it. My doctors who have helped me the most have all mostly been male. They have been super kind, compassionate and willing to work with me. I do understand how you feel...the guilt is bad, as is the "oh great, yet another thing wrong with me". (((((HUGS))))
@Tattytreasure2 жыл бұрын
Love a olga rant 👍 very nice to see you, you look really well 💐
@olgachronics32732 жыл бұрын
Haha, thanks, i didn't mean for it to be but i guess it is huh? Hope you had a good holiday season 💖
@Tattytreasure2 жыл бұрын
@@olgachronics3273 I had a wonderful Christmas and New year thank you. You? I'm a bit up and down at the moment with the cold I'm never great in the winter but I'm nowhere as bad as at the beginning. I had big flares with 1st and booster jab though
@olgachronics32732 жыл бұрын
It was okay, thanks! I had a big flare up in between Christmas and New Years but im doing better now! The cold is always hard but i find it easier than the heat so im pretty content. I also had big flare ups with the vaccines, mostly really bad fatigue and whole body aches, but the worst one was with the flu vaccine oddly enough 🙄😅
@ReinaElizondo2 жыл бұрын
Hugs! I really hate the way doctors are systematically dismissive of patients and how they get paid regardless of whether they help you or not. There's no incentive to help. I've had my asthma diagnosis the longest. Hopefully you've found a lot of these type of tips already, but just in case it helps... I avoid a ton of environmental triggers too. Like I don't use central air heating in my room (where I spend the most time.) I use an electric radiator heater that uses convection instead of blowing air (and dust). For AC I have some thin filters in the vents. I find toilet paper that doesn't shed as much dust and try not to let it near my face when I tear it. I wear a mask to vacuum. When I can choose, I prefer not to have carpet in my living spaces. I avoid things with strong scents. If I see dust in the air or smell something strong, I might hold my breath and remove myself so I'm not triggered. If I can find it, I really like Fabreeze's allergen reducer but it might be discontinued.
@olgachronics32732 жыл бұрын
I do a lot of those already! I want to make a video about my allergies & coping mechanisms!
@MadManMarvin2 жыл бұрын
How are you doing this spring? Hope all is well. much love
@allengraham1434 Жыл бұрын
This video gives me hope for myself
@ClandestineGirl16X2 жыл бұрын
You described my whole chronic illness journey (the bad doctors, the burnout, the gaslighting...). I didn't know so many other people have similar experiences when seeking help! I am sorry about your asthma diagnosis. This is irrelevant, but you look so pretty in green!
@olgachronics32732 жыл бұрын
Thank you! Yup, its definitely the majority of people i know that have been through some form of this, sadly. You're very much not alone 💖
@julie82342 жыл бұрын
I'm having an achey grouchy day, trying to work with that with food, rest and videos 👍🌿
@olgachronics32732 жыл бұрын
I hope tomorrow is better :)
@PurpleRJ2 жыл бұрын
I didn't find the actual new label of a diagnosis challenging - it has always been a bit of a relief, can finally put a name to everything that's going on, and it usually opens up doors for specific treatments and communities. I do however experience the burnout that comes with managing multiple diagnoses because mine are across many different specialities of medicine and so I need different specialists and different medication for each and that management/juggling takes a lot of time and energy (plus extra precautions now with the pandemic). Also the guilt when I have a flare up - because I have tools (like pacing and other management techniques) to generally stabilise my conditions, it feels like I'm responsible and have failed when they're not being managed properly.
@olgachronics32732 жыл бұрын
Yes, that is what i meant when i said that ableism holds us back, not the actual diagnosis 😊
@PurpleRJ2 жыл бұрын
@@olgachronics3273 absolutely
@LifeOnHoth Жыл бұрын
Hmm. The world is full of doctors that don't understand compound issues. I tend to laugh a bit about it now and I kinda laugh at serious matters- rhats how I am wired and somehow people are sometimes offended by that. But I laugh a bit yeah... thinking- u have my sympathy hehe. Also have fm and asthma. It was a struggle to be taken seriously. Got diagnosed with asthma many years ago. After a long struggle to be taken seriously. A few years later, fm. Also a struggle to get that label. But it helped to tell the doc to either do his job and help me figure out things or I need to send a complaint. Nah... good times. Not. I guess the take-away is to actually demand to be taken seriously and if not possible- get a new doc.
@rosespecktor19702 жыл бұрын
I've actually had the exact opposite experience. I've seen many doctors and have had some really awful female doctors and some very kind male doctors. It has nothing to do with gender. However, modern medicine is absolutely NOT made for people with chronic illnesses, male or female. I've found that most doctors aren't willing to diagnose quickly BECAUSE of overlapping/chronic symptoms.
@olgachronics32732 жыл бұрын
Maybe its a regional thing? Most people i know in Europe have this experience of gender bias.