An Ostomy Appliance with the MOST Unique Feature! | Let's Talk IBD

I'm grateful to partner with Ostoform to share their new FLOWASSIST 2-Piece Pouch! Check it out here: bit.ly/flowass...
I never recommend trying a new ostomy product when you're leaving the house, but sometimes life gets in the way. I was shocked at how well it held up (and how little I thought about my ostomy) the day I was trying this pouch. The flange stuck so well and was extremely comfortable, feeling like a second layer of skin.
Thank you Ostoform for sponsoring this video!
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*This video is not meant to diagnose or treat any illness or condition. This is for entertainment purposes and to get you thinking! Please ALWAYS refer to your physician for medical care.
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Hi, I'm Maggie and I have Crohn's disease. I am thrilled to be here sharing my personal experiences with Inflammatory Bowel Disease as well as living with an ostomy. I'm proud to share a little bit from a clinical experience as well, having worked as a GI pediatric nurse and ostomy telehealth nurse. I am so glad you are here. ♥ #ibd #crohnsdisease #ostomy

[@LetsTalkIBD]

I'm grateful to partner with Ostoform to share their new FLOWASSIST 2-Piece Pouch! Check it out here: bit.ly/flowassist-2-piece-pouch

[@Kazacks9602]

Unlike many people that are doing paid presentations yours was flowed & unscripted and honest! Thank you for that and congrats on a very useful partnership.

[@LetsTalkIBD]

Aw I appreciate that! Ostoform has been so wonderful- such a kind company and very motivated to make new solutions for patients!

[@debbytharp4557]

I had just finished watching this video and thought "that's cool ". My husband went out to check the mail and came back in with my samples. What a coincidence. Have a great day 🎉

[@marciadichiara5688]

I do not have an ostomy but my sister passed from crohns due to the fact she would not even consider surgery. She signed paperwork that she def declined and told her husband same. Such a shame she would not listen to Dr or watch channel. Rest in peace my sister. 7/20/22 🙏🏻💝

[@lorrainewhite4313]

That really so sad. I've had stoma since 2011 from bowel cancer. I won't let it get me down.

[@natashaw401]

Oh my goodness wow ur sister didnt want surgery to live life more

[@marciadichiara5688]

@@lorrainewhite4313yes so sad

[@marciadichiara5688]

@@natashaw401she wanted to end her life rather than have an ostomy. Uninformed and stubborn

[@LetsTalkIBD]

I am so sorry! It's certainly a scary thing to go through and each person faces it differently. I hope you have been able to find some peace!! ❤️

[@SerenaPerry-mj4kz]

I found your channel 2 years ago when i got my ileostomy. You helped educate and encourage me a lot. A lot of what i know, I learned from you. You're awesome!

[@rachelboothroyd208]

Thank you so much for sharing this. I wish this system had been available when my Mum had her stoma after surgery for bowel cancer. She had a really tricky time managing her output while on chemo, and something like this would have been a game changer for her. Neither of us knew anything about stomas and the world of ostomy appliances when she was diagnosed, and we spent lots of time while she was recovering from surgery doing lots of research and watching KZbin videos to educate ourselves and to find her better appliances. It's really courageous of you to share so openly about your experiences with your stoma, and I have no doubt you're helping many people to feel less scared and isolated :).

[@frankied.roosevelt6232]

I wish they would make something similar for those of us with severe stoma leakage from our j feeding tubes... we would benefit so much from a system like this!

[@marcfournier823]

Do they have a version with convexity?

[@annegreenwood3624]

love your wreath on the wall so pretty it’s like how changes are being made in catheters there is so many options plus with bowel disease there is so much support another great video

[@CDMatt94]

Thank you for sharing

[@tammytime360]

Thank you so much for sharing this story. I've suffered for many yrs with irritated areas. This could change my world. Hearing this video I felt like you were telling part of my story. I've watched you for years. I'm so proud of you. Wish you were my granddaughter. I went to the web site did all they said now I wait anxiously to hear back. You have a beautiful day. Big hugs❤❤❤

[@LetsTalkIBD]

Let me know how they work out for you!!

[@tammytime360]

@@LetsTalkIBD I'm sure I'll come back with another thank you. Good bless you in your journey called life. Big hugs❤️❤️❤️

[@natashaw401]

did u change ur hair looks beautiful looks so great w volume

[@maryallabaugh598]

I just tried the seals, love them ! It's like a little sliding board for your output lol

[@Jenseitskontakte]

Hello Maggie, greetings from Germany -- Girl you rock - I love watching you, as you bring so much sunshine in the world. I would like to ask, if the inner part of the colon hurts while changing the pouch. Or could you describe, how does it feel at all, being touched? Many thanks Melanie

[@LetsTalkIBD]

Intestine doesn't have nerve endings so most people cannot feel the intestine at all! The only part I feel is the skin around my stoma :) sometimes I'll feel pressure on the skin as I have output, or if I have skin breakdown, it'll be painful on the surface.

[@AdAstra870]

Today was the first day I changed my ostomy and realized that Arizona in the summer time has it's own unique challenges. Apparently when I hopped in a hot car and put my seatbelt on the hot seatbelt pressed the bag shut against the flange, melting the two pieces together, effectively sealing off the output. Couldn't separate the top of the bag from the flange without tearing it, so ended up swapping out the bag. Maybe if the spout on this device sticks out a little bit it could help prevent that kind of a seal.

[@sewlady33]

That flow assist thing would have been wonderful during the time I had to deal with my ileostomy. The leaking and burning and itching from the output was so disheartening. Thank you for sharing this info.

[@colleenkennedy1407]

Your video are so helpful!

[@karken7729]

Does Medicaid pay for this?

[@LetsTalkIBD]

I am going to check with Ostoform to see if this is the plan!

[@zaheerashraf1547]

Hello Maggie... You are amazing ! Thanks for creating this channel and this reservoir of information. I had total proctocolectomy two months back. In one of your videos ( don't remember which one) you mentioned thatyour back passage was sewn and an incision was made near it. I also had similar surgery, my anus being sewn and an incision made just above that. Can you help me with the time frame how long this perineal wound generally takes to heal. I also experience serous discharge from that wound... Any idea how long i should expect it to continue? Thanks. 🙂

[@jenny_rice]

That is an awesome design! I would have used that with my ilesotomy. I don't have that problem with my colostomy now but good to know that that is out there as an option. ☺

[@fredjones4163]

This is really interesting and helpful, like you I have an overly active stoma, porridge and flapjacks help loads but to have this system looks like a game changer. Have ordered a sample and will also discuss with the Stoma Nurse. Thankyou so much.

[@lanieleigh9970]

Very informative! Not to get off topic or take away from this video but could you do a close up of the beautiful wreath behind you in this video?

[@karenshepler7128]

Thank you for sharing with us very nice 😀

[@DunoonVanRijn-dx1hr]

I am still waiting to see a Surgeon. I guess they are very busy. I am waiting...... Hopefully they will hire a Colorectal Surgeon. I saw the Clinical Nurse and she was Great.

[@LetsTalkIBD]

I hope you are able to see one soon!!

[@kristiwetsel9531]

does insurance cover it ?

[@feliciabourque]

Where was this when I first got my ostomy

[@MAwithMKloves2knit]

Would this work for a colostomy? My hubby has issues with pancaking and we wish he could get the output to drop into the pouch.

[@ostoform]

Hi, FLOWASSIST is best suited for watery output. However, we have seen many cases where it has worked well with colostomies and it has helped with pancaking for some people. He could try our FLOWASSIST Seal with his current pouching system first to see if it helps.

[@lorikeogan2457]

Once again, I have to thank you since the day I had my surgery you’ve seen me through every single moment and prior to almost every single bag change. I listen to your voice. I’ve watched your bag changes over and over when I do mine because it makes me less anxious about doing it even though it’s been over a year and eight months. It doesn’t seem like it, but You’ve gotten me through it all always. So I thank you again for a product that with my Iliostomy and the fact that I am having a hard time eating I have really bad watery output and this would be amazing so I put into get some samples and prove your right once again, my question is you stick with this all the time because I recently had to change to Convatec because Coloplast did the same thing to me as you, adhesive bothered my skin terribly. Same with Hollister I’m tired of the leaking between the two pieces constantly. It’s becoming an all the time thing so I am now trying and using some of Convatec’s products???? Thanks hun😉❤️❤️❤️❣️

[@ghost105st]

Yes I have

[@malinnesse3876]

☀️🌼

[@chrisjohanson9284]

❤️🙏👍🌹😊

[@yim198]

❤❤❤❤❤

[@elekay312]

❤

[@SmallTownBlogger6424]

Hey Maggie what is the name of your intro music and where do you get it? Thank you

[@LetsTalkIBD]

I feel so bad - I don't know the name but it was from Envato! Unfortunately they banned me from their platform (I have no idea why) so I cannot access this song anymore. Any other music I get is from Epidemic sound which is I find to be much better! More variety as well as being able to use on multiple accounts if needed :)

[@SmallTownBlogger6424]

@@LetsTalkIBD Thank you, sorry about the banning. Shame on them!

[@Christine-Golden66]

My son has multiple disabilities and 2 years ago had a bowel obstruction and perforation. After 8 surgeries he was given a colostomy. I’m so grateful that I found your channel to help me navigate his new normal.