21 күн бұрын
3 ай бұрын
Пікірлер
@susandennington6803 13 минут бұрын
I prayed for a way to help you. I hope it does not make you mad. I watched her and love her help to understand. I love you.
@wandajensen9104 Сағат бұрын
This was an awesome video. Very helpful and you explained the reason behind everything. Super helpful. Thank you. I don't have one but I know others who do. 💙🧡❤
@JoAnnJonesholden 4 сағат бұрын
loved the gray dress!!
@sitakumarirai7228 6 сағат бұрын
Same my mom
@candacecookvassallo4404 14 сағат бұрын
What about the odor
@sheilawallace9177 15 сағат бұрын
Go GREEN!!!
@RoseWiegman-qq6yy 22 сағат бұрын
You are a brave young woman to share this and live with this,I am 68,don't think I would want to live anyymore
@JuneArkell-n6p Күн бұрын
Hi Maggie. I have just watched your video endorsing non-drainable pouches. I don’t think you mentioned who manufactured these. I am 80 years old and this might solve my problem. I had a very lengthy surgical procedure to remove scar tissue, large paristomal hernia, scar tissue, bowel and rectum. I had an iliostomy done for UC five years ago and I never had a problem fitting a two piece drainable system and was able to get 10 to 12 days from an appliance change. Now my body does a cave in below the stoma, causing two creases above and below the stoma. I am trying everything on the market. The Ostomy nurses I am working with say it is going to be trial and error because they don’t know how to help me. Please dear, do you have any suggestions.
@LetsTalkIBD Күн бұрын
The ones I used when I filmed this video was Hollister's mini pouches! Now I use a similar nondrainable by Convatec!
@LanceNosil Күн бұрын
Thank you for the info
@cgomez77 Күн бұрын
Thanks for sharing!!!! I have had some middle of the night leaks that are so embarrassing even though I have been with my husband 27 years and he is so good about not making me feel bad.
@cgomez77 Күн бұрын
Miconazole powder works well and is available without a prescription. ❤
@Nitram365 Күн бұрын
Calamine cream works wonder to me.
@suzettesoto8389 Күн бұрын
Why as a nurse to I always walk into a room with anyone who has an ileostomy bag and I’m sorry but I think there’s spillage and there fine. Someone should invent a deodorant that works. Bc the patient can’t smell it but everyone around can . I remember even sitting on the subway and knowing that the have one on
@LetsTalkIBD Күн бұрын
There IS ostomy deodorant that works. Some companies that offer this are Na'Scent, Hollister's M9 drops, Convatec's Esenta Lubricating Deodorizer and many more. It isn't often times available in the hospital or nursing doesn't know about it to order for the patient. I educated my co-workers on many accessory items for ostomies because nursing school doesn't cover it. Please remember, when a person is in the hospital, they may not be able to care for their ostomy the way someone at home can. It takes time to learn how to keep it clean and quite a bit of dexterity that one hospitalized may not currently have. It's the nurse's job to help a patient with the care of their stoma until the point they are capable of fully caring for it on their own.
@sheilawallace9177 Күн бұрын
Those people who think you did that video for shock value need to get a life!!!total ignorance. You are so brave and beautiful. Keep up yoir courageous videos. You inspire many. ❤❤❤
@pamkillentaylor6585 Күн бұрын
How does it taste?
@LetsTalkIBD Күн бұрын
I love it! Not too sweet, not salty at all!
@pamkillentaylor6585 Күн бұрын
You make it look easy. I’m i lay 3 wks post op and changing my bag stresses me to no end. Thank you for sharing.
@LetsTalkIBD Күн бұрын
I was exactly the same way! My dad changed mine for me for the first 6 months until I felt capable of doing it on my own. I hope you're recovery is going smoothly! 🩷
@JayBirdBlue-n1d Күн бұрын
You are an amazing inspiration!!❤️❤️🇨🇦
@deedeestaub Күн бұрын
You are an amazing and brave woman helping many along the way. God bless you! ❤
@barbarafritchie2000 Күн бұрын
They look beautiful.
@barbarafritchie2000 Күн бұрын
Practice before next time with a pairing knife. I’ve been using one for 60 years. Great for potatoes also.
@bethsilcox727 Күн бұрын
Maggie, loved the castle and didn’t know we had one so close to where I grew up in York County Pennsylvania. Maggie I love your blog and wish I had someone like you around when I had my colostomy.
@adrianamipiace3237 2 күн бұрын
IHAVE permanent iliostomy I didn't know anything about passing mucous this was regular basis but now very rarely really i was happy about it but now ( should i report it to stoma nurse) I too I wasn't told anything about stoma I learned a lot from yr video thank yousoo much😮
@tombosanko3085 2 күн бұрын
This might not be a good question. But do you miss passing gas?
@jimrichardson9829 2 күн бұрын
I am 84 years old with an ostomy. I really love you and your videos. You have the spunk of a warrior.
@Multi2794 2 күн бұрын
😊
@nadinecooper8709 2 күн бұрын
Love the stone wall in the guest bedroom!!
@barbarafritchie2000 2 күн бұрын
I’m 13 weeks since ileostomy surgery. Didn’t have much instruction. Developed a hole the size of a quarter next to my Stoma. And very painful. Found a wound care nurse once. I’ve been using the silver felt material. Topped with a matching piece of skin barrier. The broken skin is finally down to dime size. I change everything every 2 days. Great channel. Thank you.
@nadineevans5195 2 күн бұрын
Question: how do you wear these dresses as the pouch begins to fill? Do you have to empty it really often?
@margaretmays9031 2 күн бұрын
Hi can you tell me what the difference if you join you chanel is between supporter and friend?
@JasonWeber-f8i 2 күн бұрын
I have cerebral palsy along with IBD. My ex wife divorced me after I got cancer, she told me she wasn't my mother and wasn't going to take care of me.
@nursek931 2 күн бұрын
I use the same type but hollister brand. It is the best. One piece is so much easier. And seldom leaks, but stay ahead of it.
@Justicewilks 2 күн бұрын
WHAT IS THAT
@nursek931 2 күн бұрын
Maggie you are doing a wonderful service to all Ostomy patients. When I 1st became an Ostomy patient I had very few resources. Being a nurse myself, I was easily able to learn just about everything. Including diet. Keep it up Maggie. You are encouraging. 💗
@janicesteele1248 2 күн бұрын
It would be nice if these companies that produce the ostomy supplies or the supplier of ostomy products would have a catalog to see the products available.
@viv8117 3 күн бұрын
If I looked half as good as you do in all the swim suits I would be very happy!
@user-wx4wy6um2t 3 күн бұрын
❤❤❤
@user-wx4wy6um2t 3 күн бұрын
❤❤❤
@กรุงทองสรวงศิริ 3 күн бұрын
หายเร็ววันนะครับ❤
@suzettesoto8389 3 күн бұрын
Why do people like to see something so horrible. The way someone loves to see a horrible car crash with dead people. You literally ask what happened? People will say nothing just a bumper bender and leave but boi do the stay if there are dead people with lost limb’s just came to the conclusion humans are evil.
@LetsTalkIBD 3 күн бұрын
What a bizarre comment. I'm a nurse trying to educate about ostomy care. If you don't want to see this, simply move along. There are patients given little education about their stomas who DO want to see this. Just because it doesn't cater to you doesn't mean the content doesn't cater to others.
@kristisandy7422 3 күн бұрын
Great video. Thanks so much.
@duanestamnes4524 3 күн бұрын
Is it a filter or a vent ?
@zuzia7099 3 күн бұрын
Zycze Ci aby twoja choroba sie odwrocila bys mogla funkcjonowac jak przed choroba. To piekne co pokazujesz , mowisz dajesz otuche innym ale ty tez na to zaslugujesz.
@barbarafritchie2000 3 күн бұрын
Great video thanks.
@barbarafritchie2000 3 күн бұрын
Thank you.
@stevechapman6433 3 күн бұрын
stunned I have a friend who had this procedure he bowls on my league I never knew about the actual pre and post mechanic of this
@bonita3867 3 күн бұрын
Now that’s a trick I need to try! I change my bag after I shower and cover it with gauze
@nursek931 3 күн бұрын
I cannot use a filter because I have an ileostomy. Also I use a one piece pouch. I would get too much leaking around flange. Ahh, just heard that part. I’ve been in that position. It’s terrible. But a one piece is very comfortable. And it stays for 3-4 days. Very comfortable. I prefer the Hollister also.
@lisaoconnor7897 4 күн бұрын
My birthday is 26th of may . Hope u have a great day
@edweinb 4 күн бұрын
I started using this product and so far it's resolved all my previous problems.