Anencephaly infant loss 1

How we got the news we were having an anencephaly baby. Some words of encouragement.

[@alisacupcake.]

Almost 5 years since I had my son. I'm glad I found this post, it's comforting listening to other mothers stories and knowing I'm not alone. 💙

[@noracollins2040]

Thank. You for sharing your story

[@blessedsabbathbelievers3428]

I'm so sorry for your loss. My son and daughter in law lost their pregnancy when their second son (my second grandson) was stillborn. He had a neural tube defect as well called occipital encepholocele in which the brain was protruding from an open skull and he had severe cardiovascular anomalies including a hole in his heart. We are all still grieving (this happened 9-15 of 2021 just 9 days before my birthday). Ecclesiastes 12:7 was the only comfort I got - it reads "The dust shall return to the earth but the spirit shall return to God who gave it". I know our sweet baby Alex is with Jesus now.

[@SS-lb5dk]

My doctor walked in and said, there’s something wrong and there’s a 50/50 percent chance you’ll have to terminate. So we’re sending you to a specialist to confirm. Nothing else

[@rebeccainspiringhope4357]

I misspoke. The anniversary is Sept 19.

[@juliebrowning2016]

Thank you so much for sharing your story. My husband and I found out on May 5 2017 at 19 weeks our baby girl had anencephaly. My heart was and still is broken. I delivered her on May 6 2017. Hardest thing I have ever had to do.

[@rebeccainspiringhope4357]

Julie Browning I'm so very sorry for your loss. It is a pain like nothing we've ever experienced. I will be praying for you!

[@ashleypeterson9727]

Thank you so much for sharing your story. On June 8th my husband and I went to our 21 week ultrasound to make sure our baby was healthy. But our hearts were broken when the nurse said that there wasn't a heartbeat. He passed away a couple of days before the Ultrasound. Our baby boy was diagnosed with anencephaly. I delivered our sweet baby boy on June 11th.

[@rebeccainspiringhope4357]

ashley peterson you are the reason I'm making these videos. You are not along. I am praying for you. I'm so very sorry for your loss. Have they indicated what you should do in the future? Increasing folate etc? Genetic testing?

[@ashleypeterson9727]

Rebecca Inspiring Hope. My doctor has put me on a high dose of folic acid. He told us we can start trying for another baby in a month. We did try genetic testing but it was inconclusive because the DNA wasn't good because he had been gone for a little bit.

[@rebeccainspiringhope4357]

ashley peterson I want to google mthfr mutation. I also want you to look into methylated folate. www.iherb.com/pr/Thorne-Research-5-MTHF-5-mg-60-Veggie-Caps/38045?gclid=EAIaIQobChMI3JGe2_eQ1QIViAOGCh1b2QiqEAkYDyABEgKbuvD_BwE. You want to take a folate your body doesn't have to convert in order to make sure you're actually absorbing the vitamin. Just start googling and learning! Get your nutrition 100% and reduce stress! :) praying for you.

[@ashleypeterson9727]

Rebecca Inspiring Hope thank you so much. I don't know anyone who lost a baby to anencephaly and it's nice to talk to someone who's been through it too.

[@rebeccainspiringhope4357]

ashley peterson I didn't know anyone either...it was a very only time. Don't be afraid to talk about it...people will come out of the woodwork and tell you their story... just know, some people are idiots and say terrible things ..just know that it WILL happen. They don't mean anything bad, they literally just don't know what to do or say. And you can pick and choose who you tell. It's your story, your business. But if you feel like sharing, don't be afraid.

[@MawMawsGirlz]

Thank you sooooo much for that prayer! I lost my son and a husband so I know the pain very well, but I know that I couldn't have made it without the Lord. God bless you dear sister. I needed that prayer today. 🤗🤗❤❤🤗❤

[@rebeccainspiringhope4357]

MawMaw 13 wow! You've been through a lot! I'm so glad that you're found strength in God! You will see them again. I'm glad you received a blessing! ❤️ praying for you today!

[@kellymccallister7373]

Thank you love for praying for me and I'm praying for you much love from one mama to another

[@rebeccainspiringhope4357]

Kelly takerskitty mcCallister I hope you’re doing ok.

[@megbat8666]

Sorry to hear that! Do you have other babies after that abortion? I’m 19 weeks pregnant. My baby boy has an anencephaly. I’m still thinking about best decision. For him, myself and my family! I need to hear someone’s good history! It’s my first baby. I’m scared of my future 😞

[@rebeccainspiringhope4357]

Darkhanchimeg Naranbat we did not abort. We carried to term and then delivered our Daughter, has a funeral, and then we’ve since had two children one on the way. You should look into MTHFR.