I have Veds. I was diagnosed at age 58 when I had a sudden ascending aortic dissection. I always knew since a very young age that I was different. My diagnose was a great relief to know that I have not been crazy all these years that I have been going to doctors with various problems. My Veds significantly advanced in the last few years. My whole body fatigue has worsened greatly. I cannot express how difficult this condition is. I appreciate very much finding you. Thank you .
@TranslucentOne3 ай бұрын
Sending you so much love. Have you connected with any others with VEDS in the community?
@partharoy60776 ай бұрын
R u have marfan??
@TranslucentOne6 ай бұрын
Hi! I have a related condition called Vascular Ehlers-Danlos syndrome (VEDS)