Aplastic Anemia and Hypoplastic MDS A Treatment Dilemma

  Рет қаралды 869

AAMDSIF

AAMDSIF

Күн бұрын

Пікірлер: 4
@JMSsssssss
@JMSsssssss 2 ай бұрын
My first abnormal bone marrow biopsy was 30 years ago. Chromosomally normal but hypoplastic. About 15 years later I had my third biopsy. Trisomy 8 was present at this time. 8 years after that in 2017 I had my 4th and last bone marrow biopsy still hypoplastic and trisomy 8 still present. I am now followed yearly at Dana Farber with a differential dx of chronic idiopathic aplastic anemia vs hypoplastic MDS. No genetic findings to explain things. No history of chemotherapy. 30 years. Why is this happening? So many years.
@AAMDSIF
@AAMDSIF 2 ай бұрын
The past 30 years have been quite a journey for you. Not having a diagnosis must have been frustrating and overwhelming for you. Talking with others who understand all the challenges you have been facing can be very helpful. AAMDS has virtual support groups where you can talk with others who have been diagnosed with aplastic anemia. www.aamds.org/support/patient-family-support-groups
@badribhattarai3781
@badribhattarai3781 6 ай бұрын
What wiil be the trratment for hypo plastic MDS del20q
@badribhattarai3781
@badribhattarai3781 5 ай бұрын
What will be the treatment for hMDS del 20q?.please suggest me.l am 66yrs old
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