Aplastic Anemia Survivor: Matt Fioretti

Watch aplastic anemia survivor Matt Fioretti share his story about the day he was diagnosed. Matt, a Himalayan guide for 20 years, was in perfect shape. Shocked to learn his diagnosis, Matt was devastated and in denial. Three days later he decided to face his treatment journey like a long expedition. His advice to other patients: think positively and keep your body moving. This helped Matt make it through his bone marrow transplant.

[@kristiny4727]

Thank you for this video. I totally relate to your story and have the same issue. Was terrified of BMT but think it’s the way to go if I want my life back

[@nofxjosh]

So glad to see that you are doing so well! My daughter also suffers from aplastic anemia. We have not had a transplant yet but she is doing well. As a parent, it means so much for me to hear how the experience is for others that are also on this wild and crazy ride. Thank you and God Bless!

[@k.g6086]

how's your daughter now sir?

[@timosadventures2548]

Love your story and your attitude. I was just diagnosed with SAA and staying in the hospital currently. I’m going to keep your story my friend.

[@THESAUCE714]

Recently diagnosed, super healthy but such a shocker, my goals to keep moving and seek stem transplant. Did you ever need more than one? ty for the vid

[@tonyg2002Aust]

Very good to hear your story. My sister has been diagnosed with AA and a BMT is being planned for 10th Sept 2009. Was your donor from in your family?

[@user-cb3nq6gr8q]

هل ATG يعتبر علاج نهاهي لمرض بلاستك الانيميا

[@A111SiriusA]

I'm 40 now, but I've always had to write things down so I remember it. So I don't exactly remember when I got ill with Aplastic Anemia. But my parents says it were in 95. I remember this one time I got to spend the weekend at home. I were crossing the road with my mom, holding onto her arm and walking like I were 90 years old. Then this idiot of a car driver started honking his horn impatiently, because all he sees is this young person with their mom crossing the street, and he saw no reason why someone so young walks this slow. I were clearly showing I had problems wealking any faster, but he either did not care or understand. Even to this day it angers me how shortminded people can be, angry at this idiot. Just because I were young, it doesn't mean I can't get ill...

[@mamusonam631]

Hey!..everyone i am recently suffering frm aplastic anaemia n it had been like 4 months i have only been treated with medition n blood transfer in my body ...it is getting difficult fr me n my family in this pandemic period..i am depressed plse help or any useful advice..n there had been no improvement in my body..

[@KellyW-bu4qw]

Try chlorophyll or juice some beets

[@palwinderjitsandhu9713]

Keep the positive behavior and fight this devil out. God bless!

[@zubydubydoo5613]

What about now??? Are you ok???

[@zohan-2823]

How are you now??

[@angelmikaella8438]

My niece's husband recently diagnosed aplastic anemia. What if you don't have a bone marrow donor? Here in the Philippines transplant is very very expensive 😔

[@orangejacket7833]

I’m not sure how helpful I can be due to my age for when I treated for aplastic anemia, but I can tell you what I remember and what I looked up. So basically I didn’t have a bone marrow transplant, based on my small research I think the treatment I had was called Anti-Thymocyte Globuli(ATG). You should ask a doctor about this form of treatment. This treatment doesn’t always work, but it worked for me. The side effects of it sucks, but if it works out like it did for me, then trust me, It was all worth it. I’m not sure how expensive it was, but my guess is that it was less than a bone marrow transplant. And if all of this was wrong, then I recommend to reach out to family to see if any would be willing to Attempt to donate. It has to be a match though, if it doesn’t match, the body will reject it. I hope this helped in someway, if not, my apologies and I hope that things will work out; if they haven’t already.

[@ayeyiemon9670]

@@orangejacket7833 Can I know how old are you? My dad is 69 yrs and seems aplastic anemia. I think he couldn't do transplant. May I know how long it has been now? Thank you so much.

[@orangejacket7833]

@@ayeyiemon9670 I’m currently 15 years old, It’s been about 5 years since I’ve had aplastic anemia. And I’m doing pretty good, I’m now in football and wrestling nowadays.

[@ayeyiemon9670]

@@orangejacket7833 Great! Thanks for your answers

[@orangejacket7833]

@@ayeyiemon9670 I forgot to mention that they put me on Neo Cyclosporine after the ATG. What they did was they lowered the dosage for me until I didn’t need it it anymore. They also put me on a steroid of some kind too, in order to help me rebuild my strength(I don’t remember when they took me off the steroid). Took me about 1 year or so to recover, but now I feel 1,000 times better now. I hope that everything thing works out for your dad.

[@maryam4143]

hi i am aptic anemia i need bonemarrow transplant but in my family and other i dind not match i am very depsresses i am 22 year girl i need help plzz tell me what to do?i am now in italy i need help???

[@proudsonofalgeria8837]

This happened to me too ....

[@bastabsaikia6929]

How are u now???