Arteriovenous Malformation AVM: Causes, Testing and Treatment

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All you need to know about Arteriovenous Malformation AVM to better treat this condition.
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#DrOmarDanoun #Epilepsy #AVM

[@DrOmarDanoun]

If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays Phone: [phone] Email: [e-mail] In USA call the clinic www.henryford.com/physician-directory/d/danoun-omar

[@shamshersingh-cm4nq]

@dromardanoun Hi doctor thanks for this wonderful video.. just needed your one suggestion... I had been diagnosed with Brain AVM in 2010 and then embolization was carried with some glue.. post that after one year I was again asked to go for angiography and doctor confirmed glues is still in place and everything is ok.. and anti epileptic medicines he had prescribed and said whole life I Have to continue with it.. so is it true that I have to be on medicines lifelong??? Please reply thanks

[@meganholden3279]

Can this be found during mri without contrast. I don’t want to risk the dye I’m very sensitive to anything

[@anniechap]

I was diagnosed with AVM after headaches, speech problems and vertigo over a couple of years which was gradually getting worse. Once diagnosed I had a treatment called ‘ embolisation ‘ via my groin which ‘ glued’ the AVM and I did not need to have any further operation. The neurosurgeon explained that I had most probably had the AVM since birth but only started getting symptoms when I was in my 50s. My embolism left me with aphasia which has improved but I still have some problems to figure out numbers and forget words. As I live abroad I have to speak in two different languages; English and Spanish which can be difficult as my speech has been affected. I can write well but struggle to read quickly which is another consequence. Having said that I am lucky that my excellent Spanish doctors found the problem before a more serious stroke or bleed could have happened.

[@shanebembridge8915]

This happened to me 3 years ago and was suffering with headaches 2 weeks ago so went to my local hospital and got told I was just over tired so went home went to bed 1 hour later I'm having a seizure good job kings mill

[@richardkeilig4062]

Well done. Great explanation of direct connection between artery and vein with no capillaries. High pressure to lower pressure causes inflammation and damage to the brain tissue. I understand. Thanks

[@mattramzzz]

Every one of my 15 brain hemorrhages was extremely painful. The first of which occurred in my mother's womb. It caused delays in my ability to roll over, then sit up, then crawl, then stand, as an infant. However, once I stood, soon, I walked and a ran; therefore, nine years later, when I had my second bleed, it was a surprise and it was amazingly painful. (I went on to experience 13 more, before being saved, surgically.)

[@brianloftus4919]

Right on Doc. Thanks for the video. Survivor here.

[@DrOmarDanoun]

All the best for you

[@carmenmorey6266]

This is the best info, that I have heard, I was just told I have a AVM.

[@lukescrimshaw7678]

Same! Do you know much more about yours ?

[@beingwithuislame]

Same just found out a week ago and I have no info until my app on the 23rd with the specialist.

[@fionaledger1939]

I had an AVM that ruptured in 2020 causing an inter cranial brain haemorrhage. I had slight dizziness before hand and my speech slurred. This led to me suffering a large stroke which affected my left side. I underwent major brain surgery the night before the first national breakdown. Unfortunately it was unsuccessful so I underwent gamma knife in 2021. I’m still rehabilitating.

[@bettygiag305]

Mine ruptured 2 months ago and also couldn't successfully do embolization.In ten days i m going for Gamma knife .What do you mean still rehabilitating?are you dizzy? I m a little anxious

[@lukescrimshaw7678]

How’s the gamma knife gone?

[@peachie5026]

My sister 41 years old diagnosed with AVM a week ago. Now in treatment theraphy for a week to see the progressed. Not yet DSA so didnt know what causes

[@tttsss0064]

Salam alaik doctor Omar I am medical student and my mom has been diagnosed with. AVM in the right temporal lobe that is connected with cavernous angioma in the thalamus .it did bleed and it causes loss of vision in the temporal left side and numbness in her left body but she is doing well allhamdullah. Is the place dangerous and sensitive to operate .I am reaaly confused 😢😢😢😢😢 it is so hard for me .please doctor can you answer me 🙏🙏🙏

[@gul.s21]

Hello Doctor! Thank you for your informative videos. Could you please shed some light on eating epilepsy?

[@DrOmarDanoun]

There is a type of epilepsy that is triggered by eating

[@nazneenkhan1355]

My nephew just passed away from this.He was a healthy child.

[@juliegordon6643]

Doctor Omar I was just diagnosed with a hypothalamic hamartoma after a life of partial epilepsy (I’m 45)… apparently this is a rare diagnosis… can you make a video on it? It looks like it affects not only children but adults like me too. Thank you for your videos

[@DrOmarDanoun]

Thank you

[@chooseaname1423]

Do you mind sharing what your symptoms were? I was looking up my symptoms and that condition popped up.

[@annemie5064]

I don't understand, I am told that I have AVM in the foot. It's very painful and I have difficulties to walk. Is this the same disease?

[@maryannpelino6857]

I had MRI almost 3 yrs AGO..but ALHAMDULILLAH doctor said i have HEALTHLY BRAIN.. i just want to know, if it can grow anytime?

[@Tony-dd4hr]

I have a avn i had another anngigram last week feels weird i have to have a mr scan next to decide whats best plan for treatment i had no symptoms just got found by house could not talk and lost vision in right eye i was in hospital 4 weeks and diagnosed with a heamorage and vision has not come back

[@CSTA2024]

What is the difference between AVM and dAVF. I am a survivor (if I can say that) from dAVF. The thing is, it sounds so much the same, but instead of being hereditary, mine could have come from an accident years and years ago. I thought I read the odds of surviving a dAVF was very, very low, just to have an incident was 0.002% of 100,000 people. Can you tell me what is the difference? I have a meeting, 1 year after what happened this September at St Mike's in Toronto about it. And I guess on how I feel 1-year on

[@nadermadanat2078]

Hi Doctor, my wife has a lesion in her brain shows on MRI. From so many neurologists we saw, some think it’s venous angioma some say they’ve never seen such a thing. It’s been the same size for years but last 6 years started to give her seizures. She’s on meds but they are not fully controlled.. very frustrating no one knows what she has. Would your team be able to look at her records? Perhaps a new perspective. Thx

[@DrOmarDanoun]

Yes if the patient comes to my clinic.. Online I can't provide medical advice without evaluating the patient in my clinic

[@nadermadanat2078]

@@DrOmarDanoun Thank you. We live in Arizona but have family in your area so on our next trip we will coordinate

[@maryannpelino6857]

Helo..how to know,if you have AVM? IT CAN GROW yearly or instant?

[@deepapattnaik3454]

I have pulsatile tinnitus and due for a CECT scan in four days. This wasn't reassuring.

[@AlexChilliebrunning]

I had a bleed on my brain a few years ago causing me to have a stroke , I had the worst headaches of my life well before the bleed but didn’t do anything & just took loads of codeine

[@zuenishahh]

Salam. Dr i hv been diagnosed with AVM 2 years ago. I had done my first embolization...feeling much better. Only mild headache. My question is can i get pregnant? Is it too risky. Im like stage 3.

[@kuttyrt6073]

Hello Doctor! ...my sister have AVM ( Spetzler Martin Grade 5) and she is 4 months pregnant now, Our doctor told that this stage can't do open surgical procedure, by radiation only it can curable . But she is pregnant, so what type of surgery is best for her. Please clarify my doubts. It's emergency.!

[@ekongto63]

As-salamu alaykum. Dr. Omar, greetings. My MRI scan just revealed that I have an AVM. I talked with the ENT before deciding to get an MRI scan because I'd been experiencing Tinnitus for about a year. They didn't notice any problem with my ear, so they told me to have an MRI. I've been having problems with experiencing hypnic jerks and thunderclap headache or orgasm headache a month before my MRI scan, therefore I scheduled an MRI as quickly as possible. doctor. Omar, since I'm scared, is the surgical process extremely dangerous, and I'm absolutely concerned? If you notice my post-comment, I would be extremely grateful.

[@jedheart8059]

I had a. ENT tell me my tinnitus is from some artery looping in my brain over ten years ago. He said it was not unusual and gave no more information. But.... I have told my neurologists over time, my tinnitus gets worse, louder, and nonstop prior to my nocturnal seizures and when I begin to lose sleep due to waking from sleep, I have myoclonis after I wake for a time in the mornings.

[@ekongto63]

@@jedheart8059 What actions are you making to deal with this problem?

[@s.a.g.6627]

Hallo Dr.Danoun. Vielen lieben Dank für dieses Video und einer so guten Erklärung. Ich habe eine Frage. Ich kenne einen jungen Menschen der auch AVM hat. Er leidet seit 3 Jahren. Er hat Embolisation paar mal gemacht und 7 mal durch die Leiste 😢… zuletzt musste er operiert werden. Dass war vor 1 Jahr. Angeblich ist die OP super verlaufen laut dem Operateur (Professor ). Heute 1 Jahre danach war die nachkontrolle ob alles gut ist. Leider hat der Operateur nicht richtig gearbeitet. Jetzt wartet man auf Erklärung des Professors. Meine Frage; Kann man so eine Operation zweimal machen? Bitte bitte 🙏 Antwort sie mir das ist sehr wichtig 🙏🙏🙏vielen Dank

[@Rmaharshi-l5o]

Sir please tell me one answer 5 years boy baby suddenly blood bleeding in brain surgery completed and after 2 months radiation completed but skull in stomach after 6 months set in same sir plz give me permanent solution please sir

[@MaksuratulMomenenMasura]

Hello Doctor, My husband avm problem, places in right said face, then treatment ambulization, one year leter again problem 😢

[@muhammadsani9480]

Salam Dr. i have been having seizures for about 2 years now but only few episodes,all of the time i had a seizure they were cause by similar triggers either lack of sleep of when i drink caffeine,i was put on epilim but even on the drug i’ve had seizures by the same triggers (lack of sleep) i’ve learnt to control having an episode when i’m feeling sleepy and also stopped drinking caffeine i was wondering if medication will still be needed as they do not seem to work

[@DrOmarDanoun]

Please review the video on seizure triggers and discuss with your neurologist. Epilepsy is a chronic condition and needs long term treatment or things will get worse with time

[@adrianboston8482]

I Have this AVM I am 63

[@haseebahmad9477]

Dr omer plz guide.. My 3year child have avm on left temporal side on scalp..and facing behavioural problem like focusing understading and delayed speech .. Is there any link to this issue? Its increasing in size by every year

[@ahmedbaida2]

السلام عليكم ورحمة الله وبركاته ، ممكن عمر تحكي علي التشوه الشرياني الوردي في الوجه وخاصة الانف وطرق العلاج واخر التطورات وسوال مهم ليش لا يستعمل القامة نايف في علاج تشوهات الوجه

[@priyankasoni1538]

thalidomide can treat brain avm??

[@Arda-st3mh]

Is the Epigastric Ascending sensation seen only in epilepsy, or is it due to what other reasons?

[@DrOmarDanoun]

Possible seizures and other causes. Discuss this with your neurologist

[@priyankasoni1538]

sir i have avm 1.8 cm . due to this i only have seizures at night..what i do now?

[@1time1day]

Hello Doc. My son is 26 and was diagnosed with avm at 22. He was told it was to risky to remove it. He's in pain at time. What can he do to relieve pain?

[@DrOmarDanoun]

Treated as a headache treatment

[@user-gl6gl6op2p]

Avm in back.. is it serious?

[@Lovelinessoverload]

Hi Dr. Omar i have cavernoma size of a raspberry in the left side of the brain. Found out about it 3 years ago Can this be dangerous?

[@fowziadavids3284]

Hi, my husband has the same thing. Do you see a Neurologist? And what have they recommended for you

[@asmabenlarbi17]

Es ce qu'il y a des contres indications a l'eeg chez les patients avec MAV et comment poser le diagnostic d'une mav sa suffit de baser sur l'irm sans qu'il ya recours a l'angiographie ? Pour l'épilepsie pharmaco résistante quels sont les alternatives thérapeutiques

[@DrOmarDanoun]

Please review the video on drug resistant epilepsy for full information and discuss with your neurologist

[@asmabenlarbi17]

@@DrOmarDanoun je suis un médecin et j'ai un patient avec malformation areterio veineuse qui refusera de faire l'encephalo elecro gramme sous prétexte qui'il est contre indiqué chez lui

[@JPigxvi]

Hi Doc, my AVM was removed 10 years ago - Can I do exercise / lift weights? Thank you

[@mattramzzz]

1 of my 15 hemorrhages took place in high school gym class; please be extremely careful.

[@johannesbelin7685]

I had the same exp. Did some chins in the gym and just hang in bar for some time. When I let go my AVM burst. I would recommend you to just to do strength training without weigths. Push-ups, squats and so on. You can get a good workout without weights. Just youtube 7 minute workout and that is all you need ;)

[@johannesbelin7685]

Oh, you had it removed? Well so did I and I started working out with weights 3 months after surgery, no problem. Just start very gentle and listen to your body.

[@user-lh3be5os3z]

What is your treament?

[@aspirants1011]

Hii sir pls rly same problem facing me, pls get me soln

[@farhanabdullah619]

Assalamoalikom sir.Now my baby is a patient of central seizure.His age is 4 years 7 month. A Child neurologist gave him Levetiracetam . 5+0+.5ml for 7days then 1+0+1ml for 7 days then 1.5+0+1.5ml for 7 days then 2+0+2ml to be continue,sodium valproate 7ml+0+7ml to be continue and oxcarbazepine 0+0+1ml for 7 days then 1+0+1ml for 7days then 1+0+2ml for 7 days then 2+0+2 for 7 days then 3+0+3ml to be continue. Now my baby is taking medicine from 18 days.How this treatment is?please answer.

[@DrOmarDanoun]

I can't provide medical advice online. Please review the videos on the channel for information and discuss with your neurologist

[@farhanabdullah619]

Thank you sir.

[@nicolejohnson829]

Is this the same as sinus paracranii? My son was diagnosed with this. We could see a circular pulsing through his head because his hair was cut very short. He had an MRI and They said it was unlikely to burst and not connected to a major artery

[@Zahare1995]

انا كان فيني تشوه شرياني وريدي و تم ازالته حابه اسأل هل الصرع يروح بعد عملية ازلة التشوه و هل اقدر مع السنوات الجايه اقطع الادويه؟

[@DrOmarDanoun]

حسب الحالة والاستجابة على العلاج.. يمكن ولكن يفضل الاستمرار على العلاج والا ترجع النوبات. الرجاء متابعة قناة د عمر دنون بالعربي للفيديوهات العربية