This was very interesting. My son in end stage, stage 5 in his late 20’s. He is on hemodialysis 3x a week. He has been doing this dialysis for 1 year and 8 months. He has survived two broken hips. He is my titanium man. In addition he is underweight. The kidney affects so many other parts of the body. By the grace of God we do our best to live with him through all the complications.
@Ayixlia Жыл бұрын
I am stage 5 at age 35 with diabetes type 2 and high blood pressure. As I see it the day my kidneys failed is the day I died only thing is that the machine is keeping me alive, it's like looking at a bright star that is years away from earth. The star light in the night sky we see is a dead star that died eons ago we are looking at a star light from the past that still exists in the present. It's an unpleasant thought and feeling knowing this and the fact that I am a dead person walking who is still fighting to exist in the physical world.
@birthdaybash4721 Жыл бұрын
I hear what you are saying, well put.
@Shannon71172 Жыл бұрын
I totally understand, same at age 51, plus I have calaphalaxis……🙏🏼❤️🙏🏼
@birthdaybash4721 Жыл бұрын
@@Shannon71172 I hope you have support by loved ones around you.
@Alan-cl2ix Жыл бұрын
@@Ayixlia You're not a dead person, there's a big difference between life and death. Any dead rich man right now would give you everything they had just to come back and live some more years even if it meant going 3x a week to connect to a machine. Life is the most precious thing a human has, be glad you're alive and breathing and seeing and hearing and experiencing things and nature and seeing family members, make the most out of your time and enjoy because death is a lack of all of those.
@ralphkilloran806510 ай бұрын
In my 30s I was posted to an isolated federal facility without the knowledge of its contamination and a remediation cleanup commencing immediately after my departure. In my 40s medical problems started showing up stomach ulcars, skin cancers, degenerative changes of chondromalacia, osteoarthritis, diabetes 2, kidney disorder stage 4 and prostate cancer. Now in my 70s have accept my future will include dialysis treatment I am glad for the extra few years allowed by this treatment. What I want now is to warn others not to completely trust others to stay honourable in situations that corruption can be both allowable and profitable.
@jenrt77 Жыл бұрын
This was so helpful. My husband has been on dialysis for over 5 years and it helped so much to hear that the anxiety we both feel about the future is normal and that there are resources for us in the medical community.
@dipalijagadale8097 Жыл бұрын
Ur husbands age?
@maryanncanter3655 Жыл бұрын
This answered many questions I had. Thanks for being honest about the different problems.
@debbieali4025 Жыл бұрын
I understand more about the 2 types of dialysis. Thank you. Continue your great work.
@zekehanzl4485 Жыл бұрын
What a wonderful proram, thanks you all so much....and also thanks for bringing up chaplaincy. Best regards and blessings, Zeke
@andrebordeaux57008 ай бұрын
Thank you so much for the discussion. I am 66 years of age with Stage 4 CKD. You talk about the alternatives to dialysis was very informative. My Nephrologist at the VA is pushing dialysis. I am liking the alternative comprehensive management. Thanks so much. God bless
@russelljohnson6243 Жыл бұрын
There was a place where the video and sound froze for a couple of seconds and I really wanted to hear what the doctor had to say. It was about the stages and symptoms of a person dying of kidney failure. I really want to know what it is like, pain-wise, to die of kidney failure. Is there a lot of suffering? I really need to know.
@johnelliott361710 ай бұрын
I am 69.5 years old, I have Heart Disease, (CABGx2) 6 years ago, Type II Diabetes, and clinical depression. My skin itches I scratch and I bleed. How long does anyone want to live like this? I live alone and I will not burden my family with this. Science is not always the best way to travel. I have chosen my path, and I will walk it with the Lord. Thanks for your Video.
@michaelluca60048 ай бұрын
GOD bless you my friend.
@jeanettemarkley7299 Жыл бұрын
I'm 58 and at stage 4. I progressed very fast from 2 so I probably don't have a lot of time. I would like this Active medical management care. I am certainly not getting that now. Where should I look? I'm in North East PA. Thank you.
@themoley913 ай бұрын
My grandfather's been at stage 5 for over a year. He's reaching the end quickly now (which is why I'm watching this to know what to expect, so thanks for this resource) but yeah, can confirm there's lots they can do other than dialysis (we're in Canada). He's 94 so he didn't want it, didn't want to be in a hospital for half the week at his age when it probably wouldn't have extended his life by much, and I think that was a good choice. He was followed closely by a kidney clinic and managed with medications for his electrolytes, anemia etc. It's odd to hear that this sort of management isn't offered widely in the US?? Dialysis makes hospitals more money, I guess :\
@FrankTurner-t8c Жыл бұрын
I have had a kidney transplant for 10 years. When my kidney fails I will no longer go on dialysis. I would rather die.
@HassanLoukili-ke1tq11 ай бұрын
Accept islam before you die
@Mike5008 ай бұрын
@@HassanLoukili-ke1tq LOL, out of all the possible answers, this was the coldest one...
@guyoakes482 Жыл бұрын
This series is quite useful. But like the first session, this one was too general and elementary, covering material that one can easily access online from, e.g., Mayo, Cleveland Clinic. The session is called ‘Dying with Kidney Failure’. But much of the conversation does not cover that at all, but rather the medical treatment of chronic kidney disease. What does someone dying of kidney malfunction want to know? Essentially answers to 2 questions: What does the experience of dying this way involve - phenomenological, what is it like? And what can be done to ease the transition from dying to death? Very little in the session on these questions and virtually nothing until around minute 45. For future sessions, I suggest targeting what might be called the hard-core issues that are the real concern of people who are dying. I.e. adopt and speak from the perspective of the terminal patient instead of - as was the case here - the perspective of physicians. 58:53
@quiltyri Жыл бұрын
Thank you. Very informative!
@mikecozzi10407 ай бұрын
😳? What about delaying dialysis? While at 5 CKD? A person in this condition suffers from anemia and has to undergo blood transfusions, is Epogen a good option to keep the blood count from dropping? Is Epogen a good treatment and is there any other options? There are many other medical issues when a person is at stage 5 CKD.
@susanpeticolas2319 Жыл бұрын
Excellent video!
@billydiaz7280 Жыл бұрын
My has kidney disease but without a bad egfr? Why ?
@Rag292Rah2 ай бұрын
Yes I have questions my cousin Michele has 1 kidney shut down completely shut down the other working at 16percent she just recently found out this a few months ago she didn't know that she was sick she doesn't want to go to the doctor and afraid of insurance being raised it what do these things mean please explain doctors
@davidroscoe42045 ай бұрын
Hi I have been on dialysis for 11 years I have had bad 2 years 3 hart attacks and 4 months a bypass op whitch was very hard on me but getting stronger day by day I still work but I work for myself so after dialysis I generally don't work on times I have to suck it up and do a job or 2 on my dialysis days however it is getting harder for me as lack of energy is a problem for me
@kakashi83393 ай бұрын
My grandma dies yesterday 17 September 2024 rest in peace grandma we will also be there one day....
@tiramisu5901 Жыл бұрын
I really wish the facilitator would be quiet so the doctor could speak without the inappropriate noises. This isn’t a one-on-one conversation where the the listenneeds to indicate agreement or understanding. She was speaking to an audience.
@maryjurisons464810 ай бұрын
This was an interview! The doctor was speaking with her,not an audience. What they talked about was shared with the audience.
@Zorach160611 ай бұрын
The Neuphrolismt spends at most 15 seconds per patient. Its really sad. For the techs sticking you, the have OJT, practice on us, take a test & their qualified. By the end of the week my fistula looks like it went through a meat grinder. Im 56 & was exposed to a chemical reaction. We’ve managed it until now. I feel like a money factory. I don’t have any family . The bad part about this is i had a surgery & they didnt read my notes & automatically started dialysis. Now i live a life of misery.
@quentin-u3e10 ай бұрын
World Kindey Day Raising kidney disease awareness In the work place. When starting dialysis at Rotherham council they refused me days off for dialysis. I had to ask the dialysis team to change my dialysis days. Once the dialysis team rearranged my dialysis days my employer then threatened me with the sack if I didn't get my dialysis days changed. Then they threatened me with the sack if I didn't stop attending dialysis three days per week. They made working and dialysis an utter night mare with constant threats of sacking me. Constant questioning and demanding an exact date and time of a transplant and saying dialysis patients are liars and lazy. Daily threats of the sack if I didn't stop dialysis and work overtime as they had no staff just non crb checked agency staff most of the children's homes.
@patricialk49965 ай бұрын
I do not want dialysis. Would prefer a more conservative path, but no one listens.
@christianeadАй бұрын
If that’s what you want then that’s all that matters
@lynnepaquette41245 күн бұрын
hi, same here. I asked for alternatives too. I'm in the same situation.
@stevelindsey5696 Жыл бұрын
Can’t listen to this with all the “mmmm hmmms” from the moderator. If she’d just listen instead of interjecting and interrupting, we’d all be able to benefit from this. Ugh.
@maryjurisons464810 ай бұрын
Then don’t listen!
@gerrysullivan5797 Жыл бұрын
To bad she had to make it political.
@cl5470 Жыл бұрын
If you can't get anything out of this because someone has different opinions than you, you're in a cult.
@johiggins6615 ай бұрын
Please explain
@Jesusiswatchingyou-1233 ай бұрын
Exactly...this world would stop revolving without white men. They are the workers, the explorers, the military, the providers, etc