Ask the Ataxia Expert with Dr. Schmahmann

  Рет қаралды 12,463

National Ataxia Foundation

National Ataxia Foundation

Күн бұрын

Пікірлер: 58
@joanamarando5038
@joanamarando5038 27 күн бұрын
Thank u for your informative presentation❤
@williamwhyte505
@williamwhyte505 Жыл бұрын
How can I possibly have a quality of life when I cannot walk, have no control of my side of my body, cannot write and many other things. I have Privogen immunization every month, but it’s hard to live a meaningful life. I’ve had Ataxia for over seven years !!!
@karennogare2549
@karennogare2549 Жыл бұрын
Look into gluten free diet. Look up vitamins for all brain support vitamin E, ginko biloba CoQ10 b3 crucial. I am determined to reverse it. I 55 years old Australia. I wish you best recovery. My legs and hands and feet affected. I researching I will start gluten free and vitamins giving myself 3 months
@kristinataylorthriftingupn7127
@kristinataylorthriftingupn7127 8 ай бұрын
Hi. My husband has ataxia. Cerebellar Ataxia as a result to bacterial meningitis after a brain tumour resection in 2016. It has been degenerative and he is basically bed ridden as of October 2023. Thanks for the information ❤
@AJD-Home
@AJD-Home 10 ай бұрын
My mother has CANVA and it is progressing badly and she is 81 years of age. The medical professionals in the UK are dosing her up with high strength pain relief and that's it... Nothing else. She is being told there is no cure and no other treatments. For years I have been suggesting exercise, nutrition, supplements, tests, research etc but I am met with mistrust and aggression every time. I have also asked for access to her medical records to understand what form of ataxia she has and what tests she has received. However again, I am met with mistrust and aggression. "What do you know? Do you think you know better than the doctors?" I try to explain I am researching and trying to help but then she will become more aggressive and spin the conversations into something unconnected for an argument. Personally I think as well as the CANVA she is addicted to the pain killers and just wants rest plus more and more of those, which they are giving her. Please can someone help or advise?
@stevenkirkpatrick6248
@stevenkirkpatrick6248 Жыл бұрын
Thank you doctor
@ggbrait7140
@ggbrait7140 7 ай бұрын
Thank you !!!
@birkdaleneurorehabilitatio9539
@birkdaleneurorehabilitatio9539 4 ай бұрын
How does a child with cerebral ataxia feel that she cannot be left alone and has anxiety? She feels she needs to constantly hold something, is very emotional sometimes, and has difficulty regulating her emotions. the cognition is not understood in the school. could you advise? How do you think I could help with a neuro physio?
@petehalverson1151
@petehalverson1151 3 жыл бұрын
Thank you Dr. Schmahmann!
@vinodbajaj3708
@vinodbajaj3708 2 жыл бұрын
Pl may i know how to confirm a diagnosis of Ataxia?
@anamariafernandezpabon822
@anamariafernandezpabon822 5 ай бұрын
I am Epileptic (absences seizures) taking Lamotrigine for it and have Cerebellum Atrophy/ loosing memory, but not others symptoms yet. One side effect of Lamotrigine is having problems with balance, coordination. I want to know if the Lamotrigine med can harm the Cerebellum? Thanks!
@joely2121
@joely2121 3 жыл бұрын
Thank you very much - this has been most interesting x
@mehmoodurrehmanrehman1916
@mehmoodurrehmanrehman1916 2 жыл бұрын
Iam victom of spin cerebral atxia type 1 I have so many difficulties in life walking speaking no ballsing my body weight I offend fall down what I do exercise?
@memelove3640
@memelove3640 2 жыл бұрын
I was dx with ataxia and I seem to be getting a little better over time I have not been able to do any of the therapy things such as speech therapy or physical therapy and I don't take any meds for any of the symptoms I just seen to be getting better but still can tell I have it some. just not getting worse like we thought 🤔 is that possible
@parnamukherjee2334
@parnamukherjee2334 Жыл бұрын
Awesome!
@VernonRhem
@VernonRhem Ай бұрын
My question i had stroke. Can ataxia muscles the eye musles?and far as getting the vaccine I think it stroked me double edge sword
@VernonRhem
@VernonRhem Ай бұрын
I mean, can ataxia affect the eye muscles you explained, yes
@memelove3640
@memelove3640 2 жыл бұрын
how is msa different from SCA?
@Sunheatgamz
@Sunheatgamz 2 жыл бұрын
What is the treatment for ataxia? I suffer a lot for 3 years.
@alkagupta9256
@alkagupta9256 3 жыл бұрын
Very helpful thanks
@ahmedsearcher2741
@ahmedsearcher2741 2 жыл бұрын
What is the cure for cerebellar ataxia?? I suffer a lot
@vinodbajaj3708
@vinodbajaj3708 2 жыл бұрын
Is stem cell transplant a good solution to improve Ataxia
@riyousharma3808
@riyousharma3808 3 жыл бұрын
Will taxia be fully cured in future?
@johnnymartinez727
@johnnymartinez727 3 жыл бұрын
If you want to get rid of ataxia contact Dr Oyas for more information kzbin.info/door/_P0bRMfTyX73HS0ncu0k1Q
@johnnymartinez727
@johnnymartinez727 3 жыл бұрын
Yes
@ahmedsearcher2741
@ahmedsearcher2741 2 жыл бұрын
What is the cure for cerebellar ataxia?? I suffer a lot
@PoojaGupta-ql7wr
@PoojaGupta-ql7wr 2 жыл бұрын
I am suffering from 2 years
@Themedicobhas
@Themedicobhas 3 жыл бұрын
very helpful video
@laurahelenhealy8156
@laurahelenhealy8156 3 жыл бұрын
Hi did he say if he believes be a cure
@markmartin2413
@markmartin2413 3 жыл бұрын
Hey do you have ataxia, search for Dr nafuar on KZbin he has herbal cure
@surendrapardeshi4234
@surendrapardeshi4234 3 жыл бұрын
@@markmartin2413 u have any link
@surendrapardeshi4234
@surendrapardeshi4234 3 жыл бұрын
@@markmartin2413 can't search thatswhy
@markmartin2413
@markmartin2413 3 жыл бұрын
@@surendrapardeshi4234 kzbin.info/www/bejne/aIHVf355psqoa8U
@surendrapardeshi4234
@surendrapardeshi4234 3 жыл бұрын
@@markmartin2413 thanks It is genuine sir
@suhad4610
@suhad4610 2 жыл бұрын
My goal is to walk without using my hands
@Themedicobhas
@Themedicobhas 3 жыл бұрын
nice mam
@marloncunanan8774
@marloncunanan8774 Жыл бұрын
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