Ask the Ataxia Expert with Dr. Schmahmann

[@joanamarando5038]

Thank u for your informative presentation❤

[@birkdaleneurorehabilitatio9539]

How does a child with cerebral ataxia feel that she cannot be left alone and has anxiety? She feels she needs to constantly hold something, is very emotional sometimes, and has difficulty regulating her emotions. the cognition is not understood in the school. could you advise? How do you think I could help with a neuro physio?

[@williamwhyte505]

How can I possibly have a quality of life when I cannot walk, have no control of my side of my body, cannot write and many other things. I have Privogen immunization every month, but it’s hard to live a meaningful life. I’ve had Ataxia for over seven years !!!

[@karennogare2549]

Look into gluten free diet. Look up vitamins for all brain support vitamin E, ginko biloba CoQ10 b3 crucial. I am determined to reverse it. I 55 years old Australia. I wish you best recovery. My legs and hands and feet affected. I researching I will start gluten free and vitamins giving myself 3 months

[@AJD-Home]

My mother has CANVA and it is progressing badly and she is 81 years of age. The medical professionals in the UK are dosing her up with high strength pain relief and that's it... Nothing else. She is being told there is no cure and no other treatments. For years I have been suggesting exercise, nutrition, supplements, tests, research etc but I am met with mistrust and aggression every time. I have also asked for access to her medical records to understand what form of ataxia she has and what tests she has received. However again, I am met with mistrust and aggression. "What do you know? Do you think you know better than the doctors?" I try to explain I am researching and trying to help but then she will become more aggressive and spin the conversations into something unconnected for an argument. Personally I think as well as the CANVA she is addicted to the pain killers and just wants rest plus more and more of those, which they are giving her. Please can someone help or advise?

[@kristinataylorthriftingupn7127]

Hi. My husband has ataxia. Cerebellar Ataxia as a result to bacterial meningitis after a brain tumour resection in 2016. It has been degenerative and he is basically bed ridden as of October 2023. Thanks for the information ❤

[@vinodbajaj3708]

Pl may i know how to confirm a diagnosis of Ataxia?

[@mehmoodurrehmanrehman1916]

Iam victom of spin cerebral atxia type 1 I have so many difficulties in life walking speaking no ballsing my body weight I offend fall down what I do exercise?

[@petehalverson1151]

Thank you Dr. Schmahmann!

[@memelove3640]

I was dx with ataxia and I seem to be getting a little better over time I have not been able to do any of the therapy things such as speech therapy or physical therapy and I don't take any meds for any of the symptoms I just seen to be getting better but still can tell I have it some. just not getting worse like we thought 🤔 is that possible

[@anamariafernandezpabon822]

I am Epileptic (absences seizures) taking Lamotrigine for it and have Cerebellum Atrophy/ loosing memory, but not others symptoms yet. One side effect of Lamotrigine is having problems with balance, coordination. I want to know if the Lamotrigine med can harm the Cerebellum? Thanks!

[@mariannekintaert1320]

Do your research and try to get genetic testing. We, my children and I had problems because of B1 (thiamine) and B6 deficiency. I have acquired cerebella’s ataxia due to overlooked liver disease. Maybe your absences have another origin. My son had epilepsy for a decade but it was resolved with vitamins and diet. He also has underlying liver disease

[@anamariafernandezpabon822]

@mariannekintaert1320 ¡Thanks very much, I will be looking for liver information. Yes, l am also in a low carbs diet and taking B1, thiamine 👍👍👍and trying to get Benfotiamine/ also B1, but better absorbe for the brain. Thanks again, Merry Christmas and a Happy New Year!!!

[@joely2121]

Thank you very much - this has been most interesting x

[@stevenkirkpatrick6248]

Thank you doctor

[@ggbrait7140]

Thank you !!!

[@parnamukherjee2334]

Awesome!

[@VernonRhem]

My question i had stroke. Can ataxia muscles the eye musles?and far as getting the vaccine I think it stroked me double edge sword

[@VernonRhem]

I mean, can ataxia affect the eye muscles you explained, yes

[@Sunheatgamz]

What is the treatment for ataxia? I suffer a lot for 3 years.

[@memelove3640]

how is msa different from SCA?

[@vinodbajaj3708]

Is stem cell transplant a good solution to improve Ataxia

[@ahmedsearcher2741]

What is the cure for cerebellar ataxia?? I suffer a lot

[@alkagupta9256]

Very helpful thanks

[@Themedicobhas]

very helpful video

[@riyousharma3808]

Will taxia be fully cured in future?

[@johnnymartinez727]

If you want to get rid of ataxia contact Dr Oyas for more information kzbin.info/door/_P0bRMfTyX73HS0ncu0k1Q

[@johnnymartinez727]

Yes

[@ahmedsearcher2741]

What is the cure for cerebellar ataxia?? I suffer a lot

[@PoojaGupta-ql7wr]

I am suffering from 2 years

[@laurahelenhealy8156]

Hi did he say if he believes be a cure

[@Decodecyber_help]

Hey do you have ataxia, search for Dr nafuar on KZbin he has herbal cure

[@surendrapardeshi4234]

@@Decodecyber_help u have any link

[@surendrapardeshi4234]

@@Decodecyber_help can't search thatswhy

[@Decodecyber_help]

@@surendrapardeshi4234 kzbin.info/www/bejne/aIHVf355psqoa8U

[@surendrapardeshi4234]

@@Decodecyber_help thanks It is genuine sir

[@suhad4610]

My goal is to walk without using my hands

[@Themedicobhas]

nice mam

[@marloncunanan8774]

I am