Ask the Expert Series: Spotlight on Lennox-Gastaut Syndrome Treatment

[@palinas1]

Yes......Never give up !!

[@Im_King_Richard]

Im 37 years old and ive have epilepsy since i was 11 (1991) Ive been on multiple AEDs and my seizures have only gotten worse. I suffer from Generalized Tonic Clonic Seizures with Simple Partial Seizures with seizure auras and Myoclonic jerking in my face and mouth down left arm. Seizure auras are daily with Somatosensory tingling, sometimes stopping, most of the time progressing to severe Tonic Clonic Seizure lasting up to 2 minutes with memory loss. I suffer Jacksonian March Seizures with Status Epilepticus, seizure activity is strongest at night, especially upon awaking. 99% of my Tonic Clonic Seizures are right upon awaking leading to severe anxiety and sleep disorders. Do i have Lennox-Gastaut syndrome?

[@ravonstewart9342]

Man just keep being strong I know exactly what your going through

[@missionariakassiafarias7048]

Hello is cbd too lennox gastaut?

[@kstina2011]

Epidiolex (CBD) has been life changing for my son!

[@fondapwatson]

Us too! We are not at the top dose, but still seeing lots of improvement over the last 2 years.

[@kstina2011]

@@fondapwatson we are not at top dose either and my son has gone from 8/10 spasms a day to none. It's been almost two years now.

[@fondapwatson]

@@kstina2011 that's wonderful! We will go a few months with nothing, then the falls come back. We are at 7 ml. twice daily.

[@ravonstewart9342]

I have LSG seizures

[@nadiashirazi3925]

From what age

[@ravonstewart9342]

@@nadiashirazi3925 birth

[@nadiashirazi3925]

So u can live independently

[@nadiashirazi3925]

Or need support