Ask the Experts: Spotlight on Nonepileptic Seizures Part 3

[@lynnebehrend9587]

Just diagnosed. Mine was from trauma received by bad hypnosis in instilling false memories. I am getting better, but diagnosis was a long time coming. From 2003 until 2019. Wish more neurologists knew about this. Thank you for information.

[@sarakimm4125]

Please keep them coming. Your resources are vital to me. Thank you so much again.

[@henrydanc]

I am having much difficulty finding practitioners who know about PNES in Utah. I am researching and contacting practitioners. I would be grateful if I could help with a database. I will document my progress and gladly share any information.

[@clairerobertson4442]

Told to just wait until it all passes. Diagnosis FND with Non-epileptic dissociate disorder.

[@henrydanc]

All you can do. My episodes last weeks during which I have tongue biting, pant/bed wetting, emergency service, come to in positions that could have killed me events. I play like a child to treat myself and have to work really hard to have interest when episodic. Still I force myself and this is when I find my next hobby. Water colors for now. Puzzles are great for many reasons related to psychology. Giant bubbles with my German Shepard. All you can do is distract yourself. I hope you have a good support network. From what I understand this gets better. I still sleep with a mouth piece. I get pretty wrestles in my sleep.

[@clairerobertson4442]

@@henrydanc oh it's a hard business a strange illness not alot of people can understand it. I just take each day as it comes and hope to cope, things can overwhelm me, easy stressed mother of 3.

[@hamidahlouch7727]

Thank you very much for all the information . I have a nefew that had a seizure that lasted for 5 hours a week ago doctors are still confused if it is epelipsy or something else . I checked on internet in youtube and google I noticed that all seizures last around 5 mn no more . Please ;do you have any explination for a seizure that lasts 5 hours . Best regards from Morocco.

[@Zxouf873]

Thanks for sharing 😊

[@debradavies9377]

But the kind I have every morining my head goes right back my hand starts shaking and sometimes I fall backwards I have them every morning then when I come out of it I can't rember a thing I know I get headaches but it felt like they frying my brain

[@debradavies9377]

I have epilepsy sezuires and non sezuires like 4 types

[@WILDGAMERS-lx8vs]

My 10 months old daughter video EEG report suggested as non epileptic seizure, I am worried ,does it affect my child mental and physical growth? Please answer it..

[@believeinjesus2677]

There is different types of non epileptic seizures I can send you a link

[@believeinjesus2677]

Non epileptic seizures can be caused by diabetes or a brain tumour or a heart condition

[@believeinjesus2677]

www.cedars-sinai.org/health-library/diseases-and-conditions/n/non-epileptic-seizures.html

[@believeinjesus2677]

Reflex anoxic seizures can happen to babies

[@believeinjesus2677]

Non epileptic seizures shouldn’t affect your baby growth but it can affect mental Health as they get older I have non epileptic seizures I have been having them since I was a kid and having a poor support can lead to depression and anxiety as long as you give your child a lot of support going through these seizures everything will be okay

[@oc3694]

Keppra👍

[@BLKGURL1990]

Does that work?