Autism| Episode 42| With Dr. Anaita Hegde and Mrs. Archana Chandra

[@anitasingh-us1xd]

Life is difficult not just for autistic children but also for their parents and caretakers. It is draining.

[@yaminisrivastava338]

I am literally crying as I can see the world around us will change and accept our kids as they are...Thank you Namita Mam for coming up with such topics. People hardly talk about it and a few of them feel ashamed to say that my kid is Autistic.

[@dimplebrothers5967]

Crying everyday without showing to anyone ...... people look differently to our kids..

[@advayrashmikulkarni9192]

True

[@pavithrashivakumar8489]

True

[@snehasharma-wg9yf]

Me too hv an autistic son nd m proud of him.He z such an innocent soul who does not know any of the shrewdness of this world..we r sailing in the same boat dear..nd remember our kids r Awesome❤️

[@TheEnglishPlayground1]

I am a mother of autistic daughter , i hope the society and schools are more acceptable of our children.

[@abhiam18]

Forget society at least a SCHOOL.

[@TheEnglishPlayground1]

@@abhiam18 my daughter was bullied in school, i pulled her out and got her admitted in online school

[@abhiam18]

@@TheEnglishPlayground1 That's sad to hear. There should be a different class in a school.

[@TheEnglishPlayground1]

@@abhiam18 yeah but unfortunately I alone cannot change the system and those normal children who think bullying is fun😞 bullying is not right should be taught by parents.

[@OurSpeciesTV-jc5ge]

​@@TheEnglishPlayground1yes right. But the teachings doesnt work in the real world. An autistic kid will be bullied for sure. I have seen this first hand done to my autistic best friend from preshool till high school. Hes a cybersecurity engineer today thats a different story😂

[@shubhanga59]

This is probably one of the best informed podcast on Autism I have heard. Regards, Father of an autistic child 🙏

[@plkysharma9567]

Listen at 20 minutes this is the solution parents have to learn. So beautifully told by Dr.

[@TogetherForAutism-e1t]

I am writing this in separate posts to highlight its significance. I met many individuals from various sectors, including NGOs, social workers, and politicians, to discuss research programs and explore new aspects of autism. Unfortunately, many rejected my proposals, with some even suggesting, "Why don’t you go to the USA on your own?" Some NGOs mentioned they already had their research programs in place, but none offered support. However, when I met Sunil Anna Shelke, MLA, he was the first person to listen patiently and truly understand the impact of autism and the importance of research for the overall wellness of autistic children. I wanted to initiate this effort with some NGOs, and he suggested we take it to the government level to ensure its longevity. He wasn’t just thinking about his constituency but the entire state of Maharashtra. We even visited the Mantralaya to meet with minister, and Anna has consistently been there to see what the government can do. I deeply respect Anna for being a leader who genuinely cares about the well-being of everyone. We need more ministers like him who listen to our pleas and respond wholeheartedly.

[@Motherinsearchofhope]

We need ministers like this. It is rare to find leader who listens to you. Good work. Keep it up.

[@SunilJadhav-tj4tz]

It's great to hear from Dr Anaita Hegde mam. Best pediatric neurologist doctor 😊

[@shainis9806]

I am mildly autistic and am an mbbs student. I am not able to catch up things like instructions and social cues like the rest of my classmates and it takes me time to do so. This was there even in my school days where I had my own kindergarten teacher scold me everyday for not understanding tasks/instructions. I even had no friends. I thought all this would get over when I come to college. But no, it's still the same: no friends, being picked on/underestimated by classmates and some professors in a MEDICAL college. Can't believe some of these same people are gonna underestimate/ill treat people like me and become psychiatrists to treat people with autism

[@arjavjain-lq3rh]

I'm also mildly autistic omg

[@TogetherForAutism-e1t]

Archana ma’am, thank you so much for your selfless work. It feels imperative that parents come together to create more centers for our autistic children, providing all necessary therapies in one place. We need many more of these comprehensive centers. Additionally, there should be government schemes in place to support this effort. We need increased research, more facilities, and sensory-based parks where parents can take their children. Such initiatives would significantly enhance the quality of life for autistic kids and their families.

[@TogetherForAutism-e1t]

This issue holds my whole heart. Empathy seems to be dwindling in our society. Few people attempt to understand what parents and families of autistic children are going through. Almost all parents have that one million dollar question, "When will my child outgrow autism?" They get response, “It is a lifelong condition “. This can feel dismissive, especially for parents who have only recently come to terms with their child’s diagnosis. These parents are vulnerable, scared, and often devastated, having cried countless days and nights, feeling like it's the end of the world. Many fall into depression, suffer panic attacks, and experience anxiety. Anyone interacting with the parents of an autistic child should show at least an ounce of empathy. You may not know that these parents have barely slept through the night for the past few years. They feel incredibly lonely, their aging parents can’t help with babysitting, and their siblings are preoccupied with their own lives and struggles. These parents are fighting tirelessly for the well-being of their children. If possible, try to offer a helping hand. A little empathy and support can make a world of difference.

[@SwaranjaliKshatriya]

Very well said. Parents needs to be understood and empowered

[@anitasingh-us1xd]

Such parents really need help. But in reality that is not the case. Families who have autistic children rarely have relatives who visit, no one wants to be around such children or caretakers, everyone likes a picture perfect family. No one cares about the emptiness that they go through. No one can feel it..such heart's are rare.

[@Motherinsearchofhope]

Agreed. It is high time to create an inclusive society.

[@THC2202]

Totally agreed..... exactly this happens but sadly nobody understands and the so-called families don't even want to speak and think to understand about this....😢😢😢

[@nehaagoyal]

Even though what you say is possinle in an ideal world, still the fact is that world aa a unit cannot be expected to function only on one way . For the parents of autistic children to expect worldwide empathy is a futile desire...and the sooner they drop this expectation, better it is. The world is the way it is atleast in this case

[@samiuddinkhan5958]

Thank you so much for having such a wonderful session with experts on this very lesser talked topic.

[@piahemnaani]

God bless u Namita Ma’am for bringing Autism into awareness for nation with such an educative vast pool 🙏🏻🙏🏻 I hope this helps us to sail our children out of this spectrum

[@plkysharma9567]

So so beautifully said doctor. You are so positive and gave me lot of positivity today. My son is 4 and mild autistic. My concern is his social clues where he is struggling to follow teachers instructions.

[@fragilexsocietyindia6698]

Fantastic discussion! It's great to see Namita Thapar, Archana from Jai Vakeel, and Dr. Anaita shedding light on autism and its co-conditions. We would like to highlight that Fragile X syndrome is the only known single-gene cause of autism and intellectual disability which can be identified with a simple blood test. Many children with autism are also diagnosed with FXS, which has distinct physical features. Raising awareness about this connection is crucial for early diagnosis and support. Thank you for mentioning Fragile X in this important conversation!

[@sanaparveen6326]

Thank you ladies for doing this podcast, it is so important to spread awareness about Autism Spectrum Disorder to our society..people have just heard of the word but doesn't understand what it exactly is.

[@gsrlakshmi9377]

Firstly thanks for this video. My elder son is autistic and my younger son is 8months old, after watching this video l am worried about my younger son now 😭

[@TogetherForAutism-e1t]

Such a compelling episode, evoking mixed emotions. Autism was covered at a very basic level, making it accessible for everyone. However, there's so much more to explore. It felt like just a trailer-there's still a whole story to unfold. We need more comprehensive resources and support for parents with autistic children.

[@bobbysiddhu1599]

Loved this conversation. As doctor mentioned.. Mom can be the best to understand kids in spectrum.. Rightly said.. My son now is 12 years old, definitely now I can tell what upsets him and how to calm him down.. Very rightly said.. Thank you for a such good interview. 👏

[@sandeepkatira7898]

Absolutely Superb presentation & extremely Informaive ... Very Indepth ... Thanks 👍

[@nabneetasarkar6289]

Such a beautiful podcast. So much of information. I really hope people who do not have anyone in the spectrum in their family should also watch it. What we need in our society is kindness and empathy.

[@the_unfiltered_truth7181]

Thank you. Lovely topic! One of the most amazing youtube videos I have seen in a long long time.

[@SudhaRani-hf9oc]

Respected Namita Ma'am you're doing a great job. ❤ I sincerely request you to make some contribution towards Autistic children by opening Autism freindly special schools or Vocational training institutes or Residencial homes and that would be a great service to millions of children with ASD and a silver lining for many Parents with Autistic children . Thank you

[@fauziamalik5569]

Canada has inclusive approach from very beginning as early as can be and early intervention makes a huge difference.

[@droverthinker3930]

I m mama of an autistic child..nd i hv felt that pain..nd being a doctor it is more pinful....but ya we should all accept this reality!

[@drbipinsingh3602]

Mam मेरा बच्चा अभी 5 साल का है,,, स्पीच delay है,,, कुछ डॉक्टर कह रहे है कि ASD है ,,कुछ कह रहे है कि ASD नहीं है, confuse हूं क्या किया जाए

[@THC2202]

​@@drbipinsingh3602please try Aroma therapy, ayurved oil massage and gluten free diet ....it works but takes little time

[@zebahashmi9006]

One of the best podcasts.. Thanks Namita maam for coming up with this topic.

[@Rc27700]

Thank you so much for this Namitha. Hope this creates more awareness on Autism. Being a mother of autistic kids, what I would say is we need more inclusive society with kindness and empathy. Thank you

[@SabaPatni-uv9es]

Anaita Hegde is the best dr. For autistic child

[@sanamahmood9574]

Allah Bless all of u with his blessings, n these types of kids also n their parents also, I don't have words to express may pain

[@yuvichinnushetty2289]

Such a nice message given in this video. May this video reach lot of people around us and everyone understand and there will be more inclusion in the society and schools as well. Thank you 🙏

[@RanjeetSingh-mk4tk]

Thank you very much very informative video.

[@tanushreesrivastava2584]

Very informative and crisp discussion. Will definitely share

[@mailtoratnasri]

Thank you for increasing the awareness about autism. Much needed

[@shalusingh-pp3gu]

Life is as such 😢I m feeling so so great that ppl like such celebrities are talking and responding about word autism and trying to define it 💕much luv mam ❤🎉

[@heenakhatoon5003]

we really need more movies on autism then only people will be aware ,stop blaming mothers for wrong parenting.

[@overseaspakistani5126]

Thanks alot for this really helpful podcast , I was sad but happy also to get such wonderful information , thanks to anaita mam and namita also

[@richar3545]

For lower middle class autism is a lifelong curse.

[@priyasrinivasan90]

Very informative video.. Thanks for this

[@harpreetrait3260]

Very informative and I loved the way doctor explained everything, very positive and I felt it. It would be great if it’s in Hindi language too as all parents don’t understand English. Thanks 🎉

[@plkysharma9567]

Thank you for addressing such an amazing session ❤Dr. Anita explained everything so nicely and in easy language.

[@angelagomes7599]

Thank u so much mam for such an informative interview,I have a 9;year old son on autism spectrum with communication

[@amitkamat9551]

Sincere Many thanks to the host & the guests for providing such a valuable information. This is indeed educative & will much helpful for all parents & others ppl supporting our beloved proud stars..✨️

[@smith8nov]

I have a child who is autistic non verbal but seeks sensory activities. He is addicted to movement. Movement of swings, he loves the feeling when an aeroplane manoeuvres, he loves trampoline movement which can overstimulate him sometimes. He can stay on swing for 6 hours a day. He's not addicted to iPad or screens. He can go on rollercoaster 12 times in a funfair and not get bored or scared. He loves soft play and play parks. His biggest let down is no interest for learning language, puzzles, toys l. His body is toy for him. He are traumatised by parks and funfairs as he won't come out of them!

[@achandra4902]

Thanks 🙏🏾 for doing this for the sake of inclusion and kindness

[@sumanaspirit]

Excellent discussion. Informative and compassionate.

[@rachnapathak4756]

Thank you 🙏 Namita ma'am

[@ankitasharma5292]

Very informative, thanks Namita for bringing this up!

[@rokerheadz]

Great content 👌 and communication is wow

[@ankitameshram5484]

I can completely relate with mixer not working thing!

[@umair1419]

Anyway to connect Dr Anita hedge for online consultation any leads appreciated

[@priyajha7597]

Thanks for bringing this topic .❤

[@NupurPandit-b2y]

Can we share this video for information on our page

[@surajbhandari9694]

Hello mam, This talk is really nice and informative. I just want to ask is there any vaccines for ASD?

[@shabeerreebhas6435]

Come forward with the parents and siblings of special needs or general population to pursue allied medical professional courses recognised by RCI (Rehabilitation Courses): 1.Professional Mphil in Rehabilitation/Clinical Psychology . 2.Speech Pathology and Audiology. 3.Occupational Therapy 4.MSc Psychology (Behaviour Therapy) 5.Physiotherapy 6.Special Education (BEd,Spl Edu in ID,VI,HI) 7.Social Worker (MSW) . 8.Orthotics and Prosthetics

[@ramindians]

Please explain on Virtual Autism as well please ..

[@TogetherForAutism-e1t]

Anaita ma’am, you mentioned that there is study and research going on all over the world. What about India? Are any research programs being conducted here? If possible, could you please elaborate. I totally agree with you that we don't have many experts. Compared to the number of ASD cases, the number of specialists is woefully inadequate. In the USA, numerous studies are being conducted, exploring different facets of autism. Autism feels like a jigsaw puzzle with many missing pieces. For instance, many doctors are reluctant to consider the role of gut health and diet. However, when I followed specific dietary recommendations, I observed significant changes. A more open-minded approach could lead to better outcomes for children with ASD. As you said, root cause is not yet clear, it would be better not to rule out any possibility.

[@krunalsaraiya3528]

Thanks for doing this

[@pardeepsoni4355]

Please banani hai to video bnaye jisme aap therapy itni expensive 🫰 ki bhut sare perents afford ni kr paa rahe 😢😢jis wjh se buche aur perents dono hi ki life difficult hoti ja rahi hai

[@piahemnaani]

That’s true Highly expensive therapies

[@RajSachde]

Its true Its is much expensive and everyone can’t afford it

[@anitasingh-us1xd]

Specialties in the occupation and speech therapy are minting money. There is provision to get any discount on high fees being charged. Parents eventually give up because they are unable to cope up with such increasing cost. We need some support here.

[@MsFreedom1986]

Thank you for this session, good information for parents whose child is autism issue... 🙏

[@renukachoudhary6848]

I'm autism Mom....each n every day is struggling.

[@THC2202]

​@@renukachoudhary6848please do Aroma therapy ayurved oil massage and gluten free diet

[@SmritiDeora]

Amazing episode!

[@anitasingh-us1xd]

Please share details of autism support centers and schools in Mumbai. I am looking for guidance for my 5 yr old autistic child.

[@harpreetrait3260]

Look for reena Singh. She shares lot of valuable information @awetisminsights

[@amirfssai1843]

My baby boy is 20 months old.. He is not talking to others and mingle with other.. He plays with him only.. He listens sounds around. My doctor told it is autism.. What should I do now

[@ramanamurthy6849]

Good evening Ma'am. My granddaughter aged 5 years is suffering with autism. How to meet you for your guidance and let me know the address of your campus. Please help us madam. Thank you.

[@Victoryput]

Mam there are so few facilities for ASD children with greater needs. Programs and people always veer to children who need less I.e. level 1 Autism and level 2 Autism. Level 3 ASD children have great needs with regard to learning, speech and communication, social behaviour, motor issue, sensory issues and no one thinks about them. Please if you can help in this regard.

[@BurnmaverickYT]

Really informative , thank you

[@hello-rf9ox]

Good initiative Mam

[@fauziamalik5569]

Please text the nname of movis depicting autism

[@anupriyarastogi9748]

Great job ❤

[@samriddhigupta8866]

Make a epi of savant sandrrome

[@yourinteriorspaceandbeyond]

We highly need government intervention be in the form of early intervention, inclusion and employment opportunities.

[@dr.ashutoshsharma2546]

These ladies are only discuss the issue not for conclude the solution only make like and trp tour own tube chnanell forget, i think they undestand the sistutaion of parents

[@Imran_sham]

Better this conversation…translation for Hindi version…🎉

[@sanchiagarwal1123]

Wht is virtual autism

[@Zindagi30seconds]

Thanks for bringing this topic 🙏

[@linudaniel849]

Good one

[@Adivergentmind]

We humans make definitions mostly based on our lack of understanding. Psychiatry is just a theory for these so-called neuro typical people to define neuro divergence. The neuro typical brain will never understand or be able to define the neuro divergent brain with the english words you know. It's way more complicated than that.

[@natashabraganzaalmeida7631]

Desensitization isn't a thing. What it teaches the child is to bear the sensation of the stimulus over and over and adjust their outward reaction to it. The sensation never goes away, you just teach them how to hide their reaction to it. Which is essentially ABA. Instead of desensitization maybe give them the supports to handle that exposure to stimulus. Like ear protection for sounds etc. Thanks for the video. Acceptance starts with awareness.

[@ruchisharma7307]

Bhugat rahe h hm toh pta nhi kya paap kiye hmne ki puri life khrb ho gayi bechare bache bhugat rhe aur haan kch hota therapy s dwai s kch nhi hone wala hr roz bhtar s bhtar hoti jyegi hmari jindgi aise hi jeena h aur problem aur bdegi age k sath puri jindgi rona likha h hmre naseeb m

[@ChaoMridu]

Aisa kyun bol Rahi ho aap?

[@nofiltersanvi]

❤❤❤

[@TogetherForAutism-e1t]

Many people talk about autism, but afterwards they forget. We need to keep this inclusive society fighting spirit alive. Namita ma’am, would you be willing to be part of a campaign or initiative related to autism? Would you take the time to listen to a parent of an autistic child? You have the reach, means, and power to drive meaningful change. Your involvement could make a significant difference in the lives of autistic children and their families. Would you like to be part of making that difference?

[@Sriprappanaholisticsupport]

Most of the children getting delay during sensory motor stage 0 to 2 years. They are getting exposed to various sensory play. Where sensory issue arise. As a special educator, i have seen many kids with autistic features than autism due to environment. Cognitive is more important.

[@Adivergentmind]

You yourself say that we don't know what causes Autism and it is a million dollar question. This implies that we do not know how to define autism and you just assume based on symptoms that you think is not normal. SO WE HAVE PEOPLE WHO DO NOT UNDERSTAND AUTISM, LABELLING PEOPLE AS AUTISTIC, CALLING IT A DISORDER AND GIVING THEM MEDICINES. 🤦

[@Yourhealing.catalyst]

We even don't know what causes Parkinson and it's also a million dollar question. But it still effects people, we still needs medicine or occupational therapies. Because it is affecting daily lives of people. It's also a disorder because it means to disturb the order / regular or normal functions. Same is with autism it disturbs normal functions and developmental milestones of the child.

[@Adivergentmind]

The problem is that there is purposeful intent to undermine the autistic community by adding individuals with genuine mental disabilities in there. Every so-called high functioning autistic individual can explain autism better than any other neuro-typical psychiatrist here. That is, if the NT's who control them allow them to interact with each other freely.

[@piahemnaani]

My son doesn’t understand language, language based command following is just 5% and doesn’t speak any specific meaningful word

[@ushasingh9800]

Hindi mai bolte to or acha lagtaa😏

[@mahisingh4297]

Settings me jake language hondi kr lo

[@Adivergentmind]

You need a different perspective. The neuro-typical brain is a brain that has adapted to our Safe/Secure lifestyle in gated communities where people do repetitive tasks to achive a greater common goal. This type of lifestyle and jobs with repetitive tasks makes the brain dumb as it ignores all the sensory inputs it gets from our senses and hence zero emotional outputs for a successful marriage and work life. Our brains are devolving and we call that normal whereas the neuro-divergent brain where all this works has been classified as a disorder 🤣

[@dr.anilkumar2346]

We have no exact cause, so everyone is saying differently about autism

[@sujatasingh8673]

I am not liking the interview at all. You know how they speak with so much confidence and this and that and casualness as if they are giving some speech with zero empathy and simply laughing. Only I know how much I have suffered with my son and how much he has suffered. I am sorry to say but why there is no medicine. Again the people will say it is not a disesse it is a disorder. But even if it is a disorder why are the doctors sleeping. Or it is that there is a medicine but they do not want to reveal.

[@TheMahima19]

My son was absolutely fine before 2 years .. he was very social , dancing , following commands , making eye contact , he used to look at the camera, repeat the words n all but the regression happened and he lost his words and autism happened … he lost eye contact , didn’t respond to his name , no pointing n all …. God know what’s the reason behind this regression… was it the environment after covid or genetic .. and now a days there is a new term called virtual autism …. I wonder if it really happens due to too much screen time

[@nirmal886]

Combination of many factors.. Screen time is one of them

[@aq4294]

Definitely multi factorial but often maternal physical and mental health during pregnancy is often missed.

[@arjavjain-lq3rh]

I'm pretty sure it's virtual autism....i am mildly autistic and mobile phone can cause this What will help -> let him talk more n more to ppl he likes talking, spend a lot of time outside, cry, laugh, all emotions let him feel

[@TogetherForAutism-e1t]

Such a compelling episode, evoking mixed emotions. Autism was covered at a very basic level, making it accessible for everyone. However, there's so much more to explore. It felt like just a trailer-there's still a whole story to unfold. We need more comprehensive resources and support for parents with autistic children.

[@Motherinsearchofhope]

Agreed

[@shreyashreepandit4837]

❤❤❤