Battling DIPG: An Incurable Childhood Brain Tumor

  Рет қаралды 920,482

Oregon Public Broadcasting

Oregon Public Broadcasting

Күн бұрын

Пікірлер: 986
@troyf374
@troyf374 5 жыл бұрын
Stories like this are so sad. I have terminal brain cancer & I always think to my self thank god it is me and not my daughter. Even with that I am so scared to not be there for her when she get's older.
@gentryPR
@gentryPR 5 жыл бұрын
Sorry to hear this :(
@Peace_and_Love_777.....
@Peace_and_Love_777..... 5 жыл бұрын
You will always be there with her! ❤ Just like my Dad is for me even though he passed away years ago... have you thought about doing daily vlogs dedicated to her?
@waterlily5670
@waterlily5670 5 жыл бұрын
You are a true soul, God bless you !! Yes you will allways be with your daughter, spiritually.
@arrymitchell1982
@arrymitchell1982 5 жыл бұрын
Omg!! I am so so sorry☹️☹️☹️ I cannot even imagine what your going through or how you feel but I know this....God will take care of you and their is definitely 💯 life on the other side. Don't worry and know that your daughter will always have you no matter what. You will see her again. Also I hope you are able to live your life to the fullest ❤️🙏💗 until God calls you home. I wish you all the blessings and love in the world.
@lizdiaz4169
@lizdiaz4169 5 жыл бұрын
May God Bless You and your daughter .. 🙏🏻🙏🏻
@LeaskleineWelt92
@LeaskleineWelt92 4 жыл бұрын
My four year old died of DIPG. He was a great soul and even though he is gone I love him to pieces. I am thankful for the wonderful time we had together but I wish for others not to have to go trough this, a cure MUST be found. Please!
@pamelaraney4654
@pamelaraney4654 4 жыл бұрын
z1cke92 truly my condolences
@othersbyuri
@othersbyuri 4 жыл бұрын
So sorry about your angel😭
@daughterofaking1562
@daughterofaking1562 3 жыл бұрын
I'm sorry for your loss dear can you tell me the symptoms
@missyartistic1760
@missyartistic1760 3 жыл бұрын
Cures ARE found.. this is simply genocide. Sorry to tell you. kzbin.info/www/bejne/q4TaYaGZbpZnf68
@Reiko9
@Reiko9 3 жыл бұрын
@@missyartistic1760 fuck off
@vivyadgreat
@vivyadgreat 5 жыл бұрын
My 5 year daughter died of DIPG just one month ago..Hope no parents ever suffer the pain we are suffering after seeing our cute babe suffered for nearly 2 months and then succumbed to her fate..
@Idkbrosef
@Idkbrosef 5 жыл бұрын
My 5 year old brother has it now. He has DIPG and was diagnosed april 2nd or 3rd. More info on the "Mighty Matt" facebook page
@deanalong211
@deanalong211 5 жыл бұрын
I'm so sorry...we lost our beautiful daughter in 2005 with the same tumor. So hard, and miss her so much. Love and hugs to you and your family. The longs
@Idkbrosef
@Idkbrosef 5 жыл бұрын
@@deanalong211 thanks, im sorry you guys had to go through it.
@Julia-en5ys
@Julia-en5ys 5 жыл бұрын
Sending strength to your family💛
@ella-bt8hp
@ella-bt8hp 5 жыл бұрын
So sorry to hear from families who have suffered the loss of a child from this horrific Illness. As a parent myself I can't imagine how you cope with something like that 💔💔💔
@gentryPR
@gentryPR 5 жыл бұрын
They have got to do more research on this!!! This DIPG is so devastating. These babies don't deserve this!
@nancyfarkas3592
@nancyfarkas3592 5 жыл бұрын
They are trying but so far nothing is working. They have clinical trials and such but so far nothing is working.
@camilamontoya3447
@camilamontoya3447 5 жыл бұрын
Noone does not just kids!
@gentryPR
@gentryPR 5 жыл бұрын
@@camilamontoya3447 ok lol
@donatedbaconunicorn8853
@donatedbaconunicorn8853 5 жыл бұрын
No one does
@gentryPR
@gentryPR 5 жыл бұрын
@@donatedbaconunicorn8853 DUH. My reply is specific to THIS video. My comment pertains to THIS video. MY opinion is for THIS VIDEO.
@andrewbellamy575
@andrewbellamy575 Жыл бұрын
My sister diagnosed with brain tumour 1965 at age 16, she had it a long time before diagnosis, she too didn't have it removed, was on the motor part of her brain, she had radiation therapy and a stent to eleviate the pressure, she was told not to get married, she did, told not to have children, she had three with five grandchildren, has out lived our parents, her husband, she will turn 80 Feb 2024, just let her live and be greedy about life.
@wesbravo8251
@wesbravo8251 Жыл бұрын
My 3 year old daughter was just diagnosed. She is our only child. I'm continuously praying for her and for other children. It's my sincere hope that funding increases as awareness spreads. Please spread the word if you can.
@loriijanee
@loriijanee Жыл бұрын
prayers ops
@beth6288
@beth6288 5 ай бұрын
Peace and love to you ❤✌️
@kahrlenhenryck56
@kahrlenhenryck56 5 ай бұрын
I have a problem that is trying to kill me. A few months ago I started chewing cloves. First it was 1 or 2. Now it is 6 or 7, 4 or 5 times a day. It has made a big difference and I feel that I am finally winning.
@madamjaynie87
@madamjaynie87 5 жыл бұрын
This is the most unfair disease ever... There was a little girl in our area that I watched progress though the disease and I thought why isn’t more being done.... It just makes your heartache for these poor babies....
@TheSpiritualPhysicist
@TheSpiritualPhysicist 5 жыл бұрын
and the most mistreated
@fefemyluv
@fefemyluv 5 жыл бұрын
Between this and ALS, they break my heart.
@pallavisreetambraparni6995
@pallavisreetambraparni6995 4 жыл бұрын
very true
@missyartistic1760
@missyartistic1760 3 жыл бұрын
The absolute horror is to know there are cures. Its a big genocide done by the elites, just watch the doc kzbin.info/www/bejne/q4TaYaGZbpZnf68. Its not only the covid lie... the whole medical science is a lie
@amberowens5381
@amberowens5381 3 жыл бұрын
i think all diseases are unfair..
@amber.6909
@amber.6909 5 жыл бұрын
It broke my heart when the mother told her child to close her eyes. Imagining what what this family are going through, is so unbearable
@luvdaturtles
@luvdaturtles 5 жыл бұрын
I know two families who’s daughters had DIPG. So sad to watch them go through it. You’ll always be remembered Tatum and Molly.
@pallavisreetambraparni6995
@pallavisreetambraparni6995 2 жыл бұрын
So sad
@Susan-d5d
@Susan-d5d 7 ай бұрын
So heart breaking
@Bastian6z9
@Bastian6z9 5 жыл бұрын
My little sister savannah has dipg and shes only 11 diagnosed back in november and i know the pain you guys are going thru and no one deserves this keep your head up guys. Shed want it. Bc ik savannah would
@lolinut
@lolinut 5 жыл бұрын
Bastian6z9 i‘m so sorry for you.💗
@the8cuevas552
@the8cuevas552 5 жыл бұрын
so sorry ur family is going through this! i will be praying for your little sister!
@vernamorales9816
@vernamorales9816 5 жыл бұрын
I'm praying for you !!!!
@sodone4078
@sodone4078 5 жыл бұрын
So so sorry 😢
@Idkbrosef
@Idkbrosef 5 жыл бұрын
My brother is 5 and he has it too. How is your sister?
@Howiesgirl
@Howiesgirl 5 жыл бұрын
I'm usually pretty good at getting through the tragic illness videos, as I've been through leukemia with my husband, & I've been dealing with a chronic cancer myself for over 4 years. But when I saw little Vivian in her daddy's arms as they danced, I lost it. I'm still crying. I'm crying for them, but also for the little-girl me who's daddy died when she was only seven. I can't imagine being a parent who has to face the oncoming death of their child. Life can be so cruel.
@garrettweber7062
@garrettweber7062 4 жыл бұрын
I am 21 years old and I was just diagnosed with DIPG three months ago. This video has truly made me cry somebody’s so Young has no reason to die so quick. God has bigger plans for this young lady and her family. I believe she is going to a better place. As will I eventually. It’s a horrible reality to overcome each and every day my life is been taken away from me. There is nothing that can help. I love my family and my girlfriend to the death. I plan to guide them through this thing called life once I’m upstairs in heaven.
@StephAnie....
@StephAnie.... 4 жыл бұрын
😔
@christiefrater9844
@christiefrater9844 3 жыл бұрын
I wish you the best of luck young man!!! I m still in tears over this video it's truly sad little ones and people going through all this at a young age!!! There is a better place for us all I hope you don't see yours any time soon!!! Take care of your self and your loved ones!!!
@Princessslayer00
@Princessslayer00 3 жыл бұрын
Start writing in a journal. Random things. The good bad and the ugly. Leave it for your family and gf.
@jennyd5728
@jennyd5728 3 жыл бұрын
I’m so sorry you are going through this.
@Reiko9
@Reiko9 3 жыл бұрын
@@Princessslayer00 he passed away
@daniellenichols9757
@daniellenichols9757 4 жыл бұрын
I can't imagine the soul crushing pain of no longer feeling the warm embrace of you child. The absence of her tiny arms around mom and dads neck 😭💔
@katemillis8372
@katemillis8372 4 жыл бұрын
It turns out that I know her uncle, she recently passed away at the age of 5. Rest in peace Vivian.
@barbibutton9619
@barbibutton9619 4 жыл бұрын
Omg...I was wondering. Her poor parents must be heartbroken
@heatherwilson6221
@heatherwilson6221 4 жыл бұрын
That’s so sad I’m so sorry for there loss that breaks my heart 😞😔
@abi-gailboothe2633
@abi-gailboothe2633 4 жыл бұрын
My gosh 😔. I can't imagine the grief they're enduring right now. May God comfort their hearts and give them hope
@chelbydavis8202
@chelbydavis8202 4 жыл бұрын
It breaks my heart. It's very sad
@ceeshanks8319
@ceeshanks8319 4 жыл бұрын
😢 Sweet Vivian. May she be rest in peace in the arms of Jesus. My prayers go out to the family. I can't imagine that pain.
@ticklethypickle6368
@ticklethypickle6368 5 жыл бұрын
I can’t imagine that little girls fear & confusion and her parents heartbreak. This is so so wrong ☹️
@KimorasMommy
@KimorasMommy 3 жыл бұрын
Turned this on and the little girl has my grandmas name that died of cancer when I was 11. Hearing her name just brought me to tears. Sending the family prayers and ♥️
@red-lotus1
@red-lotus1 5 жыл бұрын
Please take me instead of one of these children Lord. I’ve lived a good life.
@sneepsnorp1404
@sneepsnorp1404 5 жыл бұрын
I'm progressively ill and honestly I'm so glad it was me and not some sweet little youngin. I mean I'm only 20 but still, better me than a child. It would just be so hard for them to understand.
@Hari-bz1mh
@Hari-bz1mh 5 жыл бұрын
@@sneepsnorp1404 You are very young. Praying for your recovery.
@yessikacee9427
@yessikacee9427 5 жыл бұрын
Look at all those chickens such a beautiful soul to say that🤧♥️Praying for your recovery and sending you strength🙏🏼🙏🏼
@sneepsnorp1404
@sneepsnorp1404 5 жыл бұрын
@@Hari-bz1mh Thank you 💕
@sneepsnorp1404
@sneepsnorp1404 5 жыл бұрын
@@yessikacee9427 I am humbled. Thank you so much 💕🌺
@jarey9222
@jarey9222 2 жыл бұрын
I am sorry for anybody else that has to go through this, my 12 year old brother was diagnosed 3 months ago and it is a whirlwind of emotions
@loriijanee
@loriijanee Жыл бұрын
prayers ops
@jarey9222
@jarey9222 Жыл бұрын
Update my brother passed in September we gave him the best 1.5 years we possibly could. I love and miss him so much and hope to meet him again in the afterlife. Please, if you want to read about his story search FrommieStrong online.
@ashandthecats
@ashandthecats Жыл бұрын
I've heard that when diagnosed in older kids DIPG is less aggressive, is that true? how things went for him?
@susanoldham7752
@susanoldham7752 3 жыл бұрын
We lost our darling grandson Jack to this horrendous disease in February 2020 💔 He fought so hard for 12 months... We love and miss him every moment of every day ☹️😢 #forever4💙
@pallavisreetambraparni6995
@pallavisreetambraparni6995 3 жыл бұрын
I am so sorry
@Totalchaos0228
@Totalchaos0228 5 жыл бұрын
We so often take for granted having healthy children. This is just so sad. Seeing her little sparkly boots on that table....
@julievanderleest
@julievanderleest 3 жыл бұрын
The title alone broke my heart. The moment I saw Vivian’s face, I just cried. Such a brutal disease no child should ever have to endure. Precious little girl.
@gladysvogel9442
@gladysvogel9442 3 жыл бұрын
So sorry for the loss of your beautiful child....May God comfort and keep you in his care...Now and Always.
@user-le8xi9xi2i
@user-le8xi9xi2i 5 жыл бұрын
When she said unreasonably optimistic- I felt the tears When the father daughter dance started - I balled 😓
@simplymoss
@simplymoss 8 ай бұрын
My friend just fied of DIPG. She was 13. It was around 1 PM today. It just hit me that shes gone. Love you, Sophie
@cryptidforsale_
@cryptidforsale_ 2 жыл бұрын
At my school, a teachers daughter had this disease. She passed away in November. It’s so sad to hear about. Sending love to anyone who unfortunately has to go through this
@senoraantero2836
@senoraantero2836 5 жыл бұрын
Poor poor baby.. my heart breaks and I feel for her parents .. God Bless all those having to suffer from this.
@MaestroStefanoPetrini
@MaestroStefanoPetrini 3 жыл бұрын
begin to realize that we are only animals who get sick and in the eyes of the universe we are nothing.*Ps any god doesn't exists
@andreaa1659
@andreaa1659 3 жыл бұрын
If there was a god, wouldn’t he be the one making them suffer, if he, according to Christians, controls everything? And what would his blessing do if he made them suffer? There’s no God, and if there was, he would deffinetely not be loving how Christians picture him, but very mean and cruel
@IndigoRoses7
@IndigoRoses7 5 жыл бұрын
One thing I'm thankful for, all the children I've seen struggle with this seem to have amazingly loving parents. Thank God for that
@salami3058
@salami3058 5 жыл бұрын
My parents work at OHSU and they are trying their best!
@hunterskia4071
@hunterskia4071 Жыл бұрын
My 10 year boy is suffering from this disease,its so brutal
@celestialstar124
@celestialstar124 5 жыл бұрын
Sorry to hear about it. Hope she doesn't have to suffer too much discomfort n live cheerfully.
@applejellypucci
@applejellypucci 5 жыл бұрын
What a beautiful child and such loving parents.
@natashagreen-chillaxedprod7769
@natashagreen-chillaxedprod7769 5 жыл бұрын
I had Cervical Cancer stage 4 Twice in 9yrs, thankfully the second time my Specialist allowed me to try Stem Cell Transfer (From Childs Cord blood) the 2nd time had shrunk it faster, I wasn’t as sick n I lost no hair. 3yrs ago my uncle had the deadly kind of hogintons lymphoma, our son saved his lupine as we donated some cells to him n he got better and stronger much quicker . I’m hi; We can donate to people outside Australia 🇦🇺 and still have plenty left for if ever we n our families need to. It doesn’t cost anyone anything because we are donating it. His Blood type is A+
@guardiansanimalrescuestate7289
@guardiansanimalrescuestate7289 5 жыл бұрын
Makes no sense. They would have removed the cervix if any cancer was detected. I had a complete hysterectomy. If u truly had cancer once the entire cervix, uterus, tubes and ovaries would have been removed.
@aloneinthedark8081
@aloneinthedark8081 5 жыл бұрын
guardians animal rescue/ state certified 501c3 nobody can force you to remove your cervix if you refuse. Also, if it is stage 4, it had effected other lymph nodes so they would need to use chemo or more likely radiation.
@marlisselight3064
@marlisselight3064 5 жыл бұрын
@@guardiansanimalrescuestate7289 that isnt true...I have a family member that had stage 4 cervical cancer and they didnt remove anything. I was told it depends on where exactly the cancer is...not everything can be removed.
@guardiansanimalrescuestate7289
@guardiansanimalrescuestate7289 5 жыл бұрын
Alone in the Dark of course no one can force u to remove anything but they can give a person their best hope for a longer life.
@guardiansanimalrescuestate7289
@guardiansanimalrescuestate7289 5 жыл бұрын
marlisse light I mean if it’s terminal then of course removing something would be fruitless. But my husband is a doctor and u can argue with him. He’s sitting right here.
@vanessaderenzio8541
@vanessaderenzio8541 4 жыл бұрын
I can't imagine being a doctor going through this because you know exactly what they're saying and the prognosis.
@TheBritot
@TheBritot 5 жыл бұрын
God bless Vivian and her family. Praying for them.❤
@MaestroStefanoPetrini
@MaestroStefanoPetrini 3 жыл бұрын
begin to realize that we are only animals who get sick and in the eyes of the universe we are nothing.*Ps any god doesn't exists
@lejlaletic7591
@lejlaletic7591 5 жыл бұрын
I can literally feel the raw desperation from the parents.... I hope Vivian is stable ❤️
@Elizabeth_-lq3jk
@Elizabeth_-lq3jk 4 жыл бұрын
Lejla Letic she passed away at 10:40 pm last night surrounded with people who loved her
@barbibutton9619
@barbibutton9619 4 жыл бұрын
@@Elizabeth_-lq3jk so sorry to hear. Hoping her parents are getting by...nothing could be more tragic
@ScarlettM
@ScarlettM 4 жыл бұрын
Car-T cells cleared most of DIPG cancer cells from mice in a Standford research in 2019. I hope the treatment will be approved for humans soon and Vivian will share a miracle story with us.
@jaelynmerchant6244
@jaelynmerchant6244 4 жыл бұрын
she passed 5 days ago. that sweet girl
@garrettweber7062
@garrettweber7062 4 жыл бұрын
I will be the second candidate in Seattle doing that
@absidyabsidy2727
@absidyabsidy2727 4 жыл бұрын
@@garrettweber7062 best of luck man
@marylennardi6201
@marylennardi6201 4 жыл бұрын
@@garrettweber7062 good luck!! Hoping for the best!
@Reiko9
@Reiko9 3 жыл бұрын
@@marylennardi6201 sadly he died this year
@bdlimea7018
@bdlimea7018 5 жыл бұрын
Stories like this are why I have such a hard time with faith. Why do babies have to suffer? They should live long lives, not suffer with brain tumors. I don't understand.. Both of your daughters are beautiful.
@eej902
@eej902 5 жыл бұрын
Dude no one makes it out alive. Has nothing to do with faith
@Kidnapthegovernor
@Kidnapthegovernor 5 жыл бұрын
3 year olds getting brain tumors is all part of “gods plan” apparently
@xoivufueuduxucja1804
@xoivufueuduxucja1804 5 жыл бұрын
M 98 ridiculous, isn’t it?
@chrisbruggers8076
@chrisbruggers8076 5 жыл бұрын
Just accept that there is no plan... it may be more comfortable to think there's some intelligent being planning every second of your life and death, but there's not... technological advancement is the closest thing to god you will find. As Arthur C Clarke said, "any sufficiently advanced technology is indestinguishable from magic." Technology is the only real chance we have at an afterlife.
@jscjrmom1075
@jscjrmom1075 4 жыл бұрын
BDLIME my niece was one of 7 children that were killed when a tornado hit their elementary school. The kids were following the teachers safety plan and hiding under tables in the lunch room. She was actually under the same table as her sister & brother. They watched her die. That’s when I started question Why God would do this considering a tornado is in itself an act of God. I still struggle with it. So, I understand your feelings. 💙
@margief1798
@margief1798 5 жыл бұрын
Such a brave and courageous little girl.
@alisonorigel573
@alisonorigel573 4 жыл бұрын
Sending love and prayers to this family. We lost one of our twin daughters to this cancer at age 10. She passed away 39 days after diagnosis. 💜
@pallavisreetambraparni6995
@pallavisreetambraparni6995 2 жыл бұрын
I am so sorry for your loss
@angelxtasy
@angelxtasy 3 жыл бұрын
I can’t watch these kind videos. It’s so heartbreaking. AS i watch this, my soul is hurting for the baby girl. Lord please hold her in your arms, and hug her with your spirit. Let her live her days in love and harmony, until its her day to go back home to you oh lord. Amen.
@poloab2273
@poloab2273 Жыл бұрын
😢😢😢😢😢😢😢😢😢😢 it is horrible disease , my daughter was passed away on October. I was watching,this video before that happed , after that 😢😢😢 , that happed again to me . I wish all of kids which has this disease 🦠 have gotten the medication. It is painful .God bless all kids
@miriamr.5096
@miriamr.5096 5 жыл бұрын
My little treasure.. 💝💝 It is very sad to see that a child is suffering in this way 😞 love for her family, so courageous and strong 🌹💖💖🌟
@davesandhu3421
@davesandhu3421 4 жыл бұрын
So sorry for your loss. I cannot imagine what it must be like for a parent in that situation. Words Escape me. Be good to each other. Your daughter's memory lives in your love.
@hjdr1000
@hjdr1000 5 жыл бұрын
this is a horrible and devastating disease that nobody should go through especially a child. We just lost our nephew this morning from DIPG he fought it like a champ for a little over a year and now we have an Angel watching over all of us .... RIP Liam Rodriguez ....
@Elizabeth_-lq3jk
@Elizabeth_-lq3jk 4 жыл бұрын
Vivian rose passed away at 10:40 last night. This world is so cruel.
@magda3102
@magda3102 4 жыл бұрын
Si triste !!!
@pallavisreetambraparni6995
@pallavisreetambraparni6995 3 жыл бұрын
Very sad
@niicooleee1
@niicooleee1 4 жыл бұрын
Vivian sadly passed away on March 6, 2020. My heart breaks for this family💔
@faithhope1684
@faithhope1684 4 жыл бұрын
great parents🙏god will reward these parents in heaven🙏🙏🙏🙏🙏
@kevinthomas9002
@kevinthomas9002 3 жыл бұрын
so wrong she was just a kid
@pallavisreetambraparni6995
@pallavisreetambraparni6995 2 жыл бұрын
I am so sorry
@Fazzer57
@Fazzer57 9 ай бұрын
Heartbreaking story. I am so sorry for the loss of your beautiful daughter. God Bless all the family. RIP Vivian 🌹❤️🌹
@teresadubler6056
@teresadubler6056 5 жыл бұрын
I can't imagine what you are going through. And to find out that research in this cancer is so small. You are wonderful parents .
@sallymccoy6286
@sallymccoy6286 8 ай бұрын
I'm so sorry for the loss of your precious baby girl. No more pain, chemo, radiation. She is running around in heaven with other little Angels to play with. Be strong. May God continue to give you comfort and peace.
@marialee627
@marialee627 5 жыл бұрын
This is terrifyingly scary one week they are normal then this tumor hits them and shortens there life expectation so so sad as no cure so you see your child deteriorate in front of your eyes how the parents cope with this I will never know as the strength it must take just to get by day by day is something I don't possess God bless them all
@Bernie61dee
@Bernie61dee Жыл бұрын
My son Tony passed with this same cancer 2 years ago ❤
@maybelline081
@maybelline081 Жыл бұрын
😪🙏
@destinywaldridge9480
@destinywaldridge9480 5 жыл бұрын
Im 18 right now but when I was 10 one of my best freinds was diagnosed with DIPG. He unfortunantley passed away when I was 11. DIPG, along with all cancer is so awful. He went from a normal boy, then had trouble with speech and slowly lost everything else. He went in the hospital because he choked on food from not being able to chew it up and never came out. Its a horrible disease. And my hearts go out to the families and kids who deal with this
@Meow-gp5nk
@Meow-gp5nk 5 жыл бұрын
Life isn't fair; could've been you or me or anyone.
@OgramRavot21
@OgramRavot21 3 жыл бұрын
My first born daughter passed away at 19 years old with hers. She started having symptoms at the end of summer whe she was still 18 years and she lived 9 months and 7 days. December 13th. 1979 - June 7th,1999 rest in peace sweetheart, your out of pain and can see and can walk again. I love you Leeah Marie ❤
@TamaraScully
@TamaraScully 2 жыл бұрын
I’m so sorry for your lost, as a mother I can imagine your pain. May your daughter Rest In Peace. 💕🌸
@pallavisreetambraparni6995
@pallavisreetambraparni6995 2 жыл бұрын
I am so sorry for your loss
@sunshiner29
@sunshiner29 2 жыл бұрын
I am so very thankful that you had her. I am so sorry for your loss. So very sorry.
@shinyhunteralana2297
@shinyhunteralana2297 3 ай бұрын
I didn't know an 18 year old could be diagnosed with that
@dianemarois2760
@dianemarois2760 4 жыл бұрын
She died on March 06, 2020. RIP little one.
@pallavisreetambraparni6995
@pallavisreetambraparni6995 3 жыл бұрын
So sad
@a.stewart5046
@a.stewart5046 3 жыл бұрын
I am so sorry for your loss...it never makes sense, why a child? it’s just not fair. We lost our beautiful, kind 10 year old Granddaughter 3 years ago to a very aggressive DIPG tumor...from diagnosis to passing was 26 days....she was home with all of her loving family...we miss her so much...blessed with her love for almost 11 years...
@hamishwilson9787
@hamishwilson9787 5 жыл бұрын
My 8 year old step brother passed away from a brain tumor, it's messed my life up so much.
@Mro183
@Mro183 5 жыл бұрын
Hamish Wilson I’m sorry x
@mitchbry6640
@mitchbry6640 5 жыл бұрын
Rip stay strong bro
@teresadubler6056
@teresadubler6056 5 жыл бұрын
Your brother is at peace now. Live your life for you and you brother to the fullest. God bless you
@houseofballet
@houseofballet 5 жыл бұрын
The love between you two is stronger than death, believe in that true love, my friend.
@debbiedoestinyliving85
@debbiedoestinyliving85 4 жыл бұрын
So sorry.. #prayers
@marcelpilon5279
@marcelpilon5279 5 жыл бұрын
There are just no words to describe in having to see any child going though something like this. My heart goes out to the parents
@shemarlove1409
@shemarlove1409 5 жыл бұрын
I lost it when she rang the bell after receiving radiation. 😭
@TRUE1LA
@TRUE1LA 10 ай бұрын
My nephew just got diagnosed 1 week ago I’m lost for words
@takwaxaweelew8017
@takwaxaweelew8017 10 ай бұрын
So sorry. 🥲
@cookeeee1962
@cookeeee1962 5 жыл бұрын
My heart goes out to you , I have no idea how desperate you must feel. You do appear to me to be VERY special and gracefilled and pray that a miracle happens with a cure.
@Susan-d5d
@Susan-d5d 7 ай бұрын
So sad 😞 hearing about this …I know a 7 year old boy 😢who has it .. Breaks my heart watching this children suffer .. I hope and pray they find a cure one day.. Vivian’s family taking her dancing .. Her parents are so amazing …My thoughts are all the children 🧒 DIPG .
@stephenkings5910
@stephenkings5910 5 жыл бұрын
This breaks my heart, my prayers go out to this family
@nishanamaharaj5530
@nishanamaharaj5530 4 жыл бұрын
life can completely change in a second...that is a terrifying yet sobering thought. I cannot imagine the pain and struggle if these parents and their beautiful daughter...but I pray for happiness and peace for all of u. and may your daughters life..however long...be a wonderful one.
@elainebird58
@elainebird58 4 жыл бұрын
I'm just about freaking tired of cancer, and parents being robbed of their children, where is the freaking cure?
@pyrettablaze0414
@pyrettablaze0414 2 жыл бұрын
Being a mother and watching this …. To know so many children suffer from this disease ~ and the parents who have to deal with watching their baby die….. there are NO Words to describe …. I can’t stop crying…..❤️‍🩹…. A true nightmare which you’ll never wake from! Sending Big Love & Hugs to these little warriors & their parents.🥹
@pamwhite1330
@pamwhite1330 5 жыл бұрын
They need a cure for cancer! My Best friend just lost her baby December 14 from this beast! He was only 5😢😢😢
@takwaxaweelew8017
@takwaxaweelew8017 7 ай бұрын
These beautiful children are always surrounded by the most loving families and communities. Such a sad scenario. May a cure be found very soon.
@EddieTruckingAdventures
@EddieTruckingAdventures 4 жыл бұрын
This is so sad. This reminds of Little Stevie Lynn Stock who died just 10 days after her 3rd birthday
@amandawilson2485
@amandawilson2485 4 жыл бұрын
This beautiful little girl passed away on the 6th of March 2020, fly high Vivian Rose 🕊
@pallavisreetambraparni6995
@pallavisreetambraparni6995 3 жыл бұрын
Very sad
@melissabuttram6631
@melissabuttram6631 4 жыл бұрын
I'm just blown away by the fact that only 4% of cancer research funding is for pediatrics. These poor sweet babies.🥺
@KidnapSix
@KidnapSix 6 ай бұрын
Thank you for all the experimental treatments.
@dovespaligrino8312
@dovespaligrino8312 3 жыл бұрын
May God Bless you both. Just remember, you will be together again...❤️
@randomvintagefilm273
@randomvintagefilm273 4 жыл бұрын
What a brave little girl. I was supposed to have one of those head cages put on me and into that machine and I panicked and didn't do it.
@linda9081
@linda9081 Жыл бұрын
These children are SO brave. As someone who is very claustrophobic I absolutely would not wear a head cage or go in to an MRI. Children should be sedated for this.
@poloab2273
@poloab2273 Жыл бұрын
I don’t know what to say about this, m😢😢😢😢my daughter is suffering from this disease at this moments. Anybody share your idea/ hope about this diseases please she is still alive prayer of the God 😢😢😢😢😢😢😢
@takwaxaweelew8017
@takwaxaweelew8017 10 ай бұрын
So sorry
@darlind6463
@darlind6463 3 жыл бұрын
I'm so sorry for your loss. RIP little angel. 🕊💕
@paulahoward552
@paulahoward552 5 жыл бұрын
There have been several girls to have this and 2 have died and 1 is still living but doesn't have long. they are from the saraland/mobile Alabama area. I'm so sorry y'all are going through this.
@irmajgarcia6009
@irmajgarcia6009 5 жыл бұрын
Wow Paula Howard, Prayers is all that is needed.. Your post is very upsetting.. Hope the family doesn't see it..
@Meow-gp5nk
@Meow-gp5nk 5 жыл бұрын
@@irmajgarcia6009 After what they've been through a measly comment isn't much ... Acceptance will come ... God bless!
@theresacarmody702
@theresacarmody702 4 жыл бұрын
Poor baby girl hope she will go on to have more years with her beautiful family have hope stay strong and keep having fun with her she is so adorable ❤️
@tjastrow1976
@tjastrow1976 5 жыл бұрын
Awesome family! She is a precious little girl! I will put her c in my prayers! !
@Coco-dz3id
@Coco-dz3id 4 жыл бұрын
Bless you all.Brain cancer struck our family...my very very precious 4 yr old grandson was diagnosed with medullablastoma.Albeit hell and holds no promise.It is not comparable to DIPG.BLESS YOU ALL & forever will be in my prayers🙏🏻💜✝️
@annebenoit4095
@annebenoit4095 5 жыл бұрын
My sincere thoughts of love and healing to these parents
@masterchiefjoe
@masterchiefjoe 5 жыл бұрын
If anyone is curious there is a foundation that is taking donations for DIPG research. The Cure Starts Now is the foundation in question and Lauren Hill the soul who brought this disease into the spotlight and raised a couple million for research, I pray one day there will be curative treatments.
@rebecaman7466
@rebecaman7466 5 жыл бұрын
These is so sad 😭. I am a mother of 3 and is hard to see kids so young going true these, and also parent having to endure so much pain 😢😭😢
@MsT-xm8xz
@MsT-xm8xz 5 жыл бұрын
Same
@emilymoore4841
@emilymoore4841 3 жыл бұрын
my friends sister died from it in may of this year at 6 years old, you are loved Emma 💜
@victorambula3687
@victorambula3687 4 жыл бұрын
its so painful to watch these babies suffering this much.may God be with them.
@pirogizzy3059
@pirogizzy3059 4 жыл бұрын
Earlier Last year I was diagnosed with CANCER in 2019 and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about a herbalist preparing herbal medicines to cure everything type of diseases. including CANCER, at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for CANCER and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. They gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now CANCER free, all thanks to Dr. PETER You can also contact this great herbalist for help by email: peteroare0@gmail.com or contact Dr. PETER through his whatsapp number: +2348161615389 He is also specialize in treating all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES EPILEPSY AND MORE ...... He will also be of help to you ...
@debisusan4338
@debisusan4338 4 жыл бұрын
This is a terrible cancer, no cure! These parents are the best! Every moment is precious.
@isabelcarballo6183
@isabelcarballo6183 3 жыл бұрын
I feel so bad for the parents…She’s in heaven now safe and sound. And also good thing she didn’t have to go through COVID-19 that would be really bad.😇RIP little angel 👼
@takwaxaweelew8017
@takwaxaweelew8017 10 ай бұрын
The mom said God has bigger plans for her. I believe her. I’m so sorry you lost your precious child. She was special.
@chas9914
@chas9914 4 жыл бұрын
I’m so heartbroken I can only imagine the level of pain
@pirogizzy3059
@pirogizzy3059 4 жыл бұрын
Earlier Last year I was diagnosed with CANCER in 2019 and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about a herbalist preparing herbal medicines to cure everything type of diseases. including CANCER, at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for CANCER and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. They gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now CANCER free, all thanks to Dr. PETER You can also contact this great herbalist for help by email: peteroare0@gmail.com or contact Dr. PETER through his whatsapp number: +2348161615389 He is also specialize in treating all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES EPILEPSY AND MORE ...... He will also be of help to you ...
@TheOfficialDHONE
@TheOfficialDHONE 4 жыл бұрын
Rest peacefully, Vivian😭❤️
@sudhakannali4216
@sudhakannali4216 5 жыл бұрын
God is there with you Dear child. You will be alright soon. With lots of love to you...
@pittypaws6633
@pittypaws6633 3 ай бұрын
My dad got to ring a bell when he was done with his radiation treatment. Later he died of a cancer that was caused by that same treatment. What a cruel irony.
@kaycochran5914
@kaycochran5914 5 жыл бұрын
My daughter Brandi died at age 4 from a tumor in the brain stem. And my son Matt died 16 years later in an auto wreck. I know God has a plan and I will see my babies again. Thank you Jesus
@StephAnie....
@StephAnie.... 5 жыл бұрын
Kay Cochran Oh my godness...its...so...hard...unbeliveable... To say „i am sorry“ is s o less, but i cant say nothing else... My heart is going out to you. Greetings and hugs from germany
@dorindamehm2203
@dorindamehm2203 5 жыл бұрын
So so sorry Kay
@vivyadgreat
@vivyadgreat 5 жыл бұрын
I lost my only daughter one month ago.what r the possible reasons for dipg?
@nbtstan3198
@nbtstan3198 5 жыл бұрын
God bless you all. I'm not Christian but I'm sure you'll meet your kids one day. Never lose hope and stay strong. Proud of you ❤️❤️❤️
@kaycochran5914
@kaycochran5914 5 жыл бұрын
@@nbtstan3198 May you feel God's presence and receive Jesus as your Saviour. Jesus is the only way. Love you💝💝💝💝
@charmingheartphotography6758
@charmingheartphotography6758 Жыл бұрын
I encourage everyone to get involved whether through volunteering, donating, fundraising etc. Did you know that only 4% of funding goes to pediatric cancer research? 4%. Thats why the treatmenta they receive are outdated and meant for full grown adults. Even if they survive the cancer the treatments often cause lifelong problems and even death. This is unacceptable in an industry worth trillions.
@ilovemycats1121
@ilovemycats1121 4 жыл бұрын
From her fb page a few days ago: she is very weak, too weak to even give a thumbs up and sleeps most of the day. 😥😢😭🙏🏻😇
@Elizabeth_-lq3jk
@Elizabeth_-lq3jk 4 жыл бұрын
She passed away last night at 10:40 pm. This world is so cruel.
@ilovemycats1121
@ilovemycats1121 4 жыл бұрын
Elizabeth _0424 so very sad
@directioner2870
@directioner2870 4 жыл бұрын
@@Elizabeth_-lq3jk 💔💔💔💔💔 I was hoping she will get better but 😭😭😭😭😭😭😭😭
@shinyhunteralana2297
@shinyhunteralana2297 3 ай бұрын
DIPG only gets worse overtime sadly
@instylered1875
@instylered1875 2 жыл бұрын
Praying for all the little ones that are fighting this horrible disease. 😢
@joyhenson1877
@joyhenson1877 5 жыл бұрын
What a sweet little precious angel. I pray that a miracle happens for your family and that the tumor shrinks. Yes, Jesus has a plan and will take good care of her no matter what. You are such good parents. That's easy to see. The father and daughter dance was special and you will remember it always!!!
@ellaxx2437
@ellaxx2437 4 жыл бұрын
Rest in peace beautiful angel, love to the family💕🤍
@Kelly-ig7ci
@Kelly-ig7ci 5 жыл бұрын
I don’t understand why things like this happen. Prayers for advances in treatment. There’s a lot of people thinking of your family.
@browniepee6555
@browniepee6555 3 жыл бұрын
Really sorry to hear about your sweet little girl. It's so sad to know. Heaven she be now. May her little soul RIP..
@maryem8263
@maryem8263 5 жыл бұрын
:( They seem like such sweet people.
Mila's Story
9:48
Boston Children's Hospital
Рет қаралды 1,1 МЛН
Amity & Liliana - Seeking a cure for DIPG
6:26
Children's Cancer Institute
Рет қаралды 52 М.
Леон киллер и Оля Полякова 😹
00:42
Канал Смеха
Рет қаралды 4,7 МЛН
Living with Juvenile Huntington's Disease
9:44
HDYO
Рет қаралды 2 МЛН
Meet Ellie, Leaving a Legacy for Her Son | My Last Days
20:31
Participant
Рет қаралды 6 МЛН
Jessie's Story - How it all started!
6:56
TeamNEGU
Рет қаралды 651 М.
Luca's Story: Imagine being told your three-year-old has a rare brain tumour
4:31
Perth Children's Hospital Foundation
Рет қаралды 84 М.
Teen Cancer
29:40
wpsu
Рет қаралды 22 М.
Nathan's Story - Honoring the Life of Nathan Waggoner
6:39
Team Jack Foundation
Рет қаралды 101 М.
"This was among the most severe cases ... I have ever seen."
14:25
nwitimestv
Рет қаралды 3,1 МЛН