Behind The Mystery: Fibrodysplasia Ossificans Progressiva (FOP)

[@petana7284]

Isnt this amazing on her? She suffers and still in her mind focusing on helping others , not a simgle complain coming from her mouth..😍😍take care Carli..xx

[@heidigone]

This world can be so unfair and cruel.

[@wanya_telborn]

Nope just the people in it

[@MySerpentine]

@@wanya_telborn So who invented this disease?

[@leenmangaka]

​@@wanya_telbornbro this is the result of a genertic mutation

[@EkratkayeOfficial]

It ain't the world's or the parents fault, it's the genetics fault.

[@CrazyCircleOriginal]

What an incredibly devastating disease. I would be so scared to vomit and choke or aspirate if my jaw froze like that.

[@bryanmarty7085]

What a strong woman. I would be a mess

[@eclypsegrl]

Same!

[@TeDynef]

Must be insane to be that lucky to go to some random doctor that encountered that before and remembered it instantly. Probably this is even more rare than 2 in a million. She should play some superball... this is insane statistical luck.

[@krysomish]

Когда ищешь, всегда найдешь, есть такая закономерность. Ей не просто повезло: ее родители большие умницы, что стали искать ещё мнений, что не сдались тупо сразу медикам, как делает 90% народных масс.

[@candacehodges1045]

For anyone and everyone who suffers from rare genetic medical conditions, I pray and wish you nothing but the best in life never stop hoping that one day you will be cured🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏

[@BreakingChains383]

God this is awful. I pray this woman finds some relief

[@anchalchaudhary5040]

what a spirit..god bless her

[@krysomish]

Прекрасная девушка и у нее прекрасная семья, родители просто умницы! Я очень рада, что есть ещё этот фильм о ней, я смотрела один, в нем она ещё помладше. Ютуб предложил мне его, и я с удовольствием посмотрела. Рада видеть, что с ней все хорошо.

[@Mentalsauceage]

I resonated with the having a dark sense of humor to cope with what you're going through

[@wheatstonebridge]

I get so sad knowing my condition is rare (1 in 2000.) That's got to be tough if it's 1 in 1 million.

[@SirKunta15]

Whats your condition

[@steviedub9370]

Such a beautiful person inside & out , I hope she gets better

[@GunsAndAmmo3]

There is no cure and no way to stop it

[@berner]

If there is a heaven, then there is surely a place for her there.

[@daisukicliff9119]

God bless this woman.

[@podoau]

why did god allow this to happen ? Not much of a god

[@Wtvrflotesurgoat]

i will never complain about my ehlers danlos syndrome again :(

[@chantalseguin1091]

Ok....might sound stupid...but what about permanent anti inflammation drugs??

[@justinlucus9580]

I'm definitely not a doctor. The main thing I heard was an over reactive inflammation response. What about cold therapy and cryogenic therapy?

[@dog_owner]

osteoblasts are cells that promote bone growth normally, my idea would be to use some substance that suppresses osteoblast activity and another that slows down or stops the body's immune response

[@ValourCreed]

@@dog_ownerit doesn't work, IFOPA have tried.

[@mrunknown-gn4js]

Please can anyone explain the difference between FIBROUSDYSPLASIA and (FOP)

[@ValourCreed]

The former is soft tissue calcification, FOP is progressive connective tissues ossification.

[@MelyssaAKASkittlez]

There are a lot of parallels with Ehlers-Danlos syndrome.

[@luckydevil1601]

Ectually none

[@ValourCreed]

None.

[@shardbade3984]

I am from India is there solution of that diagnosis my sister is also suffering that

[@mirrorreflex]

6:40

[@SamiraMahi-l2k]

Miller Christopher Harris Linda Johnson Jose

[@JeffreyLopez-m2k]

Young Frank Williams Jessica Gonzalez Brenda

[@AaronBate-g1r]

Harris Eric Lewis Christopher Martin Mark

[@chetanuniyal3428]

Pewdiepie anyone?

[@dontump2286]

Did this begin at a young age after getting vaccinations?

[@davidjslack]

Is a genetic disease and is not caused by vaccinations. However any intramuscular injury can trigger bone growth. Some viruses are known to cause inflammation and trigger or flare up so some vaccines are not recommended.

[@pvpperdogs]

She was born with it

[@Just-Some-Helium]

Thats like getting hit by a truck and saying vaccines started it

[@MySerpentine]

It began at birth, weren't you listening? God, anti-vaxxers are idiots.

[@mossvibes]

It’s good to see Carli still going strong despite more progression! I went to college with her for a bit and she was always friendly and funny when I saw her around 🫶

[@nikrosevca9294]

You are amazing✨🌻🦋🥰🙏🏽