Benzo Induced Neurological Dysfunction: BIND

[@kmjansen]

I’m 4yrs off and wholly disabled by BIND after taking benzodiazepines as prescribed, daily, for 12 years. I went from being ranked #1/9000 students in college and having a successful engineering career to having a working memory ranked in the 2nd percentile. Benzodiazepines are still being prescribed for daily use by many, if not most, prescribers. And the medical establishment knew about these problems as early as the 80s when there was a huge lawsuit in the UK against Pharma that sadly never succeeded. There were 1000s of people in the support groups when I used to spend my time in them. I hope to one day reclaim my life as it seems I have only anger at what happened to me to keep me going through this.

[@plang12749]

I feel you as I have suffered greatly after complete suicidal mental collapse after CT over 4 years ago. Off X for over 2 years but still suffer from constant episodic eye-head tension. About 1/2 way to normalcy.

[@TheAjmos]

I’m right there with you and everyone else. And I dint even take them for that long, but it’s not getting better.

[@marialuisaferrero1413]

Estoy perfectamente de acuerdo contigo, aun sabiendo siguen recetandolo y causando miles de tragedias y vidas truncadas. Yo llevo casi 31 meses sin tomar y mi insomio todavia es grave, otros sintomas como espasmos musculares y sacudidas de adrenalina eso ya no lo tengo pero me duro unos 20 meses. Es criminal, vergonzoso, no se cuando recuperare mi vida o si ya es irreversible, nadie me advertio, ni siquiera me dijeron q no se podian dejar de golpe, ni supieron identificar mis sintomas como abstinencia por tolerancia, solo subian mas la dosis. Yo decidi por mi misma la descontinuacion gracias a leer el manual Asthon y reconocer mis sintomas. Muchas personas, tienen estos sintomas horribles y no saben que les pasa y sus medicos solo añaden mas dosis o medicamentos adicionales ahravando asi la situacion. Terrible, si sabiendolo lo recetan debieran estar en la carcel por envenenar a la poblacion, el remedio es peor que la enfermedad. En mi caso solo tome clonacepan 0,5 durante 7 meses.

[@Mark-k1g7w]

15 years into a 45mg diazepam daily as prescribed I'm right there where you were I hope n pray I'll regain my mood as I do you n all others suffering, i would never wish this on anyone and would not even be able to post this in the 1st 3 to 4 hours of everyday

[@kmjansen]

@@Mark-k1g7w How long have you been off, or are you still tapering?

[@Jennsart1378]

17 mo off today. Still suffering not only physically, mentally, psychologically, emotionally but it has robbed me of my life and identity. Lost my job, relationships, and all of my savings. This has been the biggest nightmare that we can seem to wake up from because it affects every aspect of living. Do your research prior if you are considering taking this medication and know the possible horrors that you could endure as a result.

[@davecat6661]

Almost 5 years off still suffering from this

[@dawnkulan4514]

Thanks for this video. I’ve been prescribed for 12+ years. I just discovered 1 week ago this is what’s wrong with me, why I’m having all these health problems and chronic pain, recently intense light sensitivity. I’m going to look at your resources and I’d like to have that 2023 paper on long term BIND consequences. Thank you. I’m scared yet relieved because I feel validated for everything I’m experiencing the past 10 years. No idea it was Xanax. Thx 🙏🏻

[@pattif192]

I can't get up off the couch. I can't take a shower or change my clothes. I am praying to God for help.

[@yvettex2976]

You will get better i healed after 5 years took a while but some heal faster than others

[@pattif192]

@@yvettex2976 5 years, that's not long ( I have a LITTLE humor still :) )

[@nonyabusiness7200]

​@pattif192 how r u now

[@elviramendoza7662]

Thank you for making this video

[@LevelheadedMind]

You're welcome 😊

[@Veteran365]

Dose and frequency are important factors that should be considered. Please include these when referring to the literature. Thank you.

[@OldBenKenobi1964]

Six years post cold turkey. There are more symptoms than this…you can tack on cardiovascular issues.

[@materiais10]

Much more symptoms such as legs dysfunction

[@pdcdesign9632]

You need to talk about PROTRACTED WITHDRAWAL SYNDROME 😢 IT'S DEVASTATING AS WELL. 😮

[@LevelheadedMind]

BIND is the new term that encompasses protracted withdrawal syndrome. And yes it is devastating.

[@dawnkulan4514]

Yea, I was under the impression BIND is the new term for protracted withdrawal since withdrawal can be misunderstood.

[@dosquintoiuos]

Memory loss, foggy mind, dissasotiation, depersonalization, constant feeling of shame - nobody takes it seriously and it’s been going on for 4 years: utterly disfunctional. Suicide attempt. I am now on 7 meds in lieu of benzos. Unable to function. MRIs show brain damage too. The sad thing is, nothing worked as well as benzos- i had sich confidence and drive on them

[@michaelthau1007]

Thanks so much!! Was on clonazapam for 2 years for anxiety and panic. O.75 mg at bed. I have been off for 27 months and still not myself, still have chronic insomnia since coming off. I still have bad GAD and recently prescibed Buspar. Do you feel buspar is effective in treatment of Gad? I dont want SSRI because of there withdrawl. Also my dr suggested Dayvigo, she says very safe long term and safer thsn z drugs. Thank you for all your help

[@LevelheadedMind]

I would say good therapy is best. Buspar is 50/50 on efficacy. Not sure about Dayvigo, but have heard no withdrawals and safe for insomnia.

[@39pinkmoon]

It does get better. I was at a max dose of 8mg klonopin about two decades ago I tapered down to four in ten years. Five to get down to 2mg and another five to get off it altogether. The first few years were quite tough but it slowly got better. I scream a lot and I need to be busy to be sane. Also do not think too long over a subject just act and take it from there

[@Dabenport]

What should I do if I cant sleep. The problem runs in my family. I have a sleep tracker it says I get pretty much 0 deep sleep most nights. I constantly move around at night, Sometimes I talk and wake myself up from sleeping, biting tongue or cheek happens occasionally too. I asked my NP for help and they prescribed a ton of different stuff off label which nothing seems to help. Ive tried ambien doxepin clonidine hydroxyzine trazodone(worked the best but major side effects) Now I am with a new NP and they refuse to prescribe me anything for sleep. Its driving me crazy. I feel like nobody is listening to my problem :(

[@carolfactor1865]

Same here.

[@michaelthau1007]

I feel your pain, chronic insomnia for 4 years, tried everything, Lunesta, ambien, Quvivic, seroquel. Was put on Dayvigo about a month ago, works well, no side effects, or withdrawl. Nin addictive. Maybe ask your Dr. Best of luck

[@pdcdesign9632]

Have you tried melatonin supplements?

[@Dabenport]

@pdcdesign9632 yes. Melatonin didnt do anything for me. But I already avoid using the computer or watching TV about an hour before bed. Have a solid sleep routine. Just no deep sleep always tired but functional it's weird.

[@LevelheadedMind]

That's because no one is looking for root cause. Check labs, assess for sleep apnea, nutrient deficiencies and cortisol dysregulation very common with sleep issues. See a therapist who knows CBT-i and work on your fears, mindset and anxiety surrounding sleep.

[@EphesianRose]

Off topic but would appreciate a video series on OCD and specifically the medicine Anafranil. What mechanism makes it OCD specific? And Tricyclics in general! Thank you!!

[@shubhankarpaul4554]

I have been taking clonazepam 0.5 mg + ssri and snri group of drugs for 12 years and have experience this symptoms

[@MrPeterISABELLA]

Can you ever heal bind?

[@amylandry4108]

Thank you so much for this information ❤️ My story is much too long and complicated to share here. I appreciate you giving us the opportunity however ❤️

[@LevelheadedMind]

Thank you for watching. I understand how complex all of this can be. I hope you are being supported in your healing journey ✨️

[@mentalhealthwithalana]

I personally have taken Diazepam for over a year and it's massively helped me and my Psychiatrist monitors it. I think there is a lot of negative views on these meds but for some people they are life changers and needed.

[@ExecutivePenStylus]

Agreed! Without it i would suffer!

[@Beyondgrief1]

Ohh dear for 1 year. And yes provider should moniter it u are right otherwise it will not be good thing. Psychological and physiological dependence happens with long time use?? Plz let me know. And also thier is a lot of stigma associated with benzos. I have felt it while I went to get clonazepam. Usually the pharmacist here in Mumbai where I stay I have experienced very humiliation so to say. Whenever I showed my prescription given by my doctor I got strange feeling as if I m being judged or here they just think anyone who asks for this benzos they have themselves assuming each of us are misused them which leads to Mr me question myself what the he'll is happening I mean not everyone are same. Some don't develop habit others might develop leading to overusing. But thud thing biases should be eliminated. People like me then try to avoid going to buy these meds. This is unfair and something must be done to make the stigma and this biases go away. I took klonopin for short term then I said I won't take this is habit forming thier is a term called patient autonomy. Right. We can say give me other alternative like thier is buspirone. But benzos should be monitored absolutely 💯. Which are other meds which cause dependence apart from benzos and cns stimulants like methylphenidate. Can u name them plz ?? 😊hope my reply makes some sense

[@Beyondgrief1]

But does it help in the condition for which it's given. And what is limit a month for the benzos no longer than than or then the anxiety hits more than before. Is this 's kinf of cure?? Personal opinion no they don't cure ateast with me. For others it must be a blessing and I m happy for those. But what is solution. This medicine a caused be a lot of trouble. Mam members do share your opinion. And correct me whenever I m wrong

[@Jewell55737]

Wait till you get cut off or can't get them because the pharmacy either doesn't have them or the doors get closed

[@deborahcaine7647]

It works miracles until one day that stops, and they make you worse, then you have to get off of them. I don't wish what I went through on anyone.

[@GeraltOfRivia99]

20% only? where did you come up with this exact number like its a total fact? not everyone is even taken serious that they suffer from issues from benzos by there doctor so how can this be an exact number? its way more......

[@marleneholik-ls9wr]

Define “supportive “ because it is foreign to me. Did not happen.

[@LevelheadedMind]

It came from the BIND research paper I cited, and you can click on the link to it in the description.

[@dustygatrell-ru7tg]

Most people are not taken seriously. More then 30 million people are on benzos in America. Most likely millions of people are suffering frim benzos.

[@dustygatrell-ru7tg]

@@LevelheadedMind the number is way off. Way more people are suffering then that. We've been lied too.

[@MarkTraynor-mw6om]

I was suffering for years while on benzodiazepines, but did not know that was the reason. Only when I was taken off them abruptly and things got SO much worse and a neurologist diagnosed me with BIND did I realize what had been happening to me for years before. It's hard to put 2 and 2 together when neither you nor your doctor are aware of these things. The number of sufferers is probably much larger, they just don't realize the cause of the bizarre symptoms they have.

[@dustygatrell-ru7tg]

Its actaully benzo induceced nuero dysfunstion an nueroinflamattion..that can be detected by a spinal tap or lumbsr puncture. Noone ever talks about how it can be detected by a spinal tap. Start talking about how it can be detected by a spinal tap. Thats extremely important. Benzos can cause encephaloathy aswell also detectectablr by a spinal tap.

[@ItsAGoodChannel]

The damage is definitely permanent?

[@dodgdurango6128]

Can you make a video on caplyta

[@nerdbamarich2063]

Thank you so much for this. 😊😊

[@LevelheadedMind]

You're welcome! Thanks for watching.

[@sl3724]

Can you please do a video on Caplyta

[@ExecutivePenStylus]

I notice a lot of your videos are very negative for benzodiazepines. Yet this is one of , if not the most commonly prescribed medications in the world. It work’s incredibly well for anxiety vs any other medications or treatments in the world. Yes, withdrawal is real. Yes, people can get bind. But what are the other options for people with panic disorder and extreme anxiety? Nothing is really out there that works immediately. I remember I had a panic attack, didn’t know it went to the ER, my BP was to the moon 180/100. Did they give me BP meds ? No, they gave me intravenous 10mg diazepam…I was hesitant to, in like no I don’t want it…they were like trust us. No joke, within 60 seconds I was feeling relaxed and in less than an hour my BP was back to normal. They use benzos for nearly everything in a hospital, colonoscopy, MRI’s, pre-surgery etc. I’m not saying your Fear Mongering but maybe do some videos of the benefits. I’ve seen like 3 vids on your channel about negatives only.

[@pdcdesign9632]

Unless I'm missing something, the whole point of these videos is the negative effect of CONTINUOUS long term use of benzos. We've all taken these to placate panic attacks in case of emergency but many doctors have prescribed them like candy without telling most people the devastating side effects and damage to our brains.

[@LevelheadedMind]

It's about the misprescribing and long-term effects. For painc disorder, as I state in the video is for short-term use only. Even the FDA had to change their black box warning due to the mounting evidence of harm. Risks far out weigh the benefits and you wouldn't understand unless you went through it yourself or witnessed someone else go through this type of torture. Read up, get informed and stop drinking the kool-aid!! Benzoreform.org

[@LevelheadedMind]

You're exactly right. Thanks for sharing your thoughts!

[@EphesianRose]

The sad thing about the overprescribing phenomenon is that some providers now fear prescribing them even to non-addicted individuals who truly need it short term, or just occasionally. Same thing applies to stimulants.

[@dustygatrell-ru7tg]

@@EphesianRose good. They shouldn't be precribed at all. They are literally nuero toxins. They sre toxic to the brain sn nervous system.i wish they nevrr invented them . Much less people would be suffering. Horribly. Literally millions of people are suffering from them.

[@truehuman9449]

How about amitriptyline?

[@LevelheadedMind]

Yes, tapering off antidepressants can also cause similar problems, unfortunately.

[@jorclerkin8749]

2:41 2:42 ​@@LevelheadedMind

[@anthonycanton]

Please do a video on lithium!

[@cavebeast540]

It's torture, been on these since I got out of the army in 2013, I take too much and snort them, I'm high right now. The withdrawal make me a sweaty nightmare of a mess. I feel like dying. I wish I could get help but just quit alcohol for good 120 days sober. I hope one day I can be free of this demon. I've had ALOT of siezures.

[@nonyabusiness7200]

How r u now

[@nimofarah6969]

Thank you for The Education I really enjoy it

[@shorty3alyna]

I trying to not counting how many years benzidines stolled from my life and I'm stll a high functional vegetable ! Still mental fog , all the mental disorder that I was diagnosed, with bezos using it so many years, it's making sypmpomes much more worse when bezos ar used for long term ! I don't use it now for 4 years, my medication was changed! Still I'm not better,but better without benzodiazepines!

[@lam7402]

Going on 9 years ……TORMENT , I CANT DOING THIS ANYMORE

[@materiais10]

There much more to this than what's mentioned here. Intermitent use is thd worst way to take a Benzo, it ruined me, can't walk due to a dose. Look up kindling

[@Raymond-c2z]

I developed on some of those

[@Raymond-c2z]

The skin changes colors so I thought other states have different laws

[@Raymond-c2z]

I must of headed for about close to 40 years 😂

[@ItsAGoodChannel]

You haven't gotten better?