I'm sorry I'm so late with this comment! You did a great job! Thanks for doing this challenge! I was just thinking how fun it would be if a bunch of us with feeding tubes were together and we all did this challenge at the same time! How fun would that be?!
@cindyshaw58676 жыл бұрын
The Frey Life hello mary. I'm cindy and I have a PEG style feeding tube to. and I don't known how to make videos yet but when I learn soo I will do this challage. I wanted to say I watch you all the time. I have terminal cancer and I have a power port mine is triangle shape its a bard power port its a pretty puruple color. lol and I'm accssed right now so you know what that means " I got a needle in my chest in my chest " lol I'm on a PCA pain pump threw I'm IV port it has dilliuid in it. but I'm still doing good. I have 6 months to 2 yrs and my dream is to meet you but I cant travel so maybe you guys could make it out to see me. your my big inspiration and you help me in ways you would never understand and were close in agae as well please comment back would mean the world to me
@melissareynolds96126 жыл бұрын
The Frey Life I watch you and you are so amazing as well
@RJ-mk6ep6 жыл бұрын
@@cindyshaw5867 Did you ever get to meet her? I hope you can one day xx
@usrafieckx95 жыл бұрын
Are you in college?
@darkbluematter17537 жыл бұрын
I love the Frey Life! Thumbs up to you for trying the challenge. That looked hard, but you did great!
@emilieh14587 жыл бұрын
I just watched Mary and Peter's video on this! Great job! Love your videos 😄💕
@TimeLapseDriver17 жыл бұрын
YES! Another Frey watcher!
@smashyabackdoorin6 жыл бұрын
The frey life are amazing also with Amy's life x
@oliverlikescats47367 жыл бұрын
whenever my blood sugar goes low at night I play the "blindfolded diabetic challenge"
@veraroosvall86827 жыл бұрын
Oliver Likes Cats I should try that, I usually just turn on the light and get me some dextros
@bri67626 жыл бұрын
Me too
@curtisbemis66404 жыл бұрын
Lol right that's always fun !!!
@curtisbemis66404 жыл бұрын
Lol right that's always fun !!!
@miriamsokora45546 жыл бұрын
Glad to know you watch the Frey life! I love Mary and Peter!
@claraw9722 ай бұрын
Damn, finding this video back now as a new PEG-owner, just hits different. When I first saw it I was like "how can you know your tube so well?!" But now as a tubie myself, even though it has only been a few days, I totally get it
@madison85687 жыл бұрын
I am thinking a blind TPN challenge video wouldn't be a good idea lol. I have the stuff for tube feeding just waiting to get a surgical tube right now so TPN only for me at the moment.
@LifewithStripes7 жыл бұрын
Madison I agree, a blind TPN might not be a great idea 😂
@mauragrier69587 жыл бұрын
Madison nooo😂😂. I can only imagine between handling the needles to inject the vitamins and keeping everything sterile it would be a mess😂😂😂😂
@rylee27926 жыл бұрын
You have an NB TUBE TOO!?!? I don’t post that I have one because I’m too scared of the reaction I will get but I use boost plus for my formula and I have longer bags then you do but I use the same pump as you. I want a mickey but I might get my ng out soon so they don’t want to do that or any type of button
@floraldanni80266 жыл бұрын
She has an nj tube. We'll she did in this video
@allisoncrawford34736 жыл бұрын
How long does one bag last?
@o_p0tterhead6 жыл бұрын
depends on how your pump's set.
@o_p0tterhead6 жыл бұрын
and on how many ml in your bag are.
@allisoncrawford34736 жыл бұрын
o _p0tterhead oh, thank you
@o_p0tterhead6 жыл бұрын
Allison Crawford you're welcome:)
@yukirose99255 жыл бұрын
You did good.
@arslansataish11442 жыл бұрын
How much you take calories on daily basis.. And which type of liquids you take by nj tube
@amybogdahn79026 жыл бұрын
You did a great job
@Little_redwolf947 жыл бұрын
I remember I used to have feeding tube since I was a baby to 13 year old honestly it’s was not fun because I couldn’t not stand the pain when my mom used to change my old tube and it’s was little pain when she tried to put back on idk why.. and did it hurt when they trying to change your feeding tube or nah?
@floraldanni80267 жыл бұрын
Ashley Wolf she has a nj tube so her changes have to be at the hospital and she can opt for medication
@sarahlouisebutler12555 жыл бұрын
Well done
@clare70947 жыл бұрын
Can you eat regular food to or just the liquid food
@zoey228605 жыл бұрын
Yes she can eat I have one too I eat food but my stomach hurts mostly all day
@aubriejackson99596 жыл бұрын
I hope this isn’t offensive. I’m just curious, can u eat solid food at all or is it just your formula?
@katie94576 жыл бұрын
Aubrie Jackson she can but it aggravates her stomach and she usually doesn’t have the appetite eat real food so that’s why she has the feeding tube to give her the nutrition she isn’t getting
@Selenelaszlobjj7 жыл бұрын
What formula do you use?
@LifewithStripes7 жыл бұрын
Forever Rose Kate Farms core essentials
@usrafieckx95 жыл бұрын
@@LifewithStripes are those expensive.
@moshemoshe88887 жыл бұрын
😙😙😙❤❤❤👏👏👏👏👏👏
@repterria8797 жыл бұрын
Are you still able to go to school with the feeding tube ?
@tulapappathopoulos51007 жыл бұрын
Sharki _ she is homeschooled
@usrafieckx95 жыл бұрын
That's what I want to know.
@RambleJar669 Жыл бұрын
@@usrafieckx9 you can most definitely go to school with a feeding tube.
@jacquelinesmith-jackson28156 жыл бұрын
I'm sorry to say I would hate not being able to eat by mouth. 😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭
@haganstim96357 жыл бұрын
Pump from hell
@dorate1004 жыл бұрын
Can we be friends q
@norahparmese58096 жыл бұрын
can she eat other foods by her mouth
@katie94576 жыл бұрын
norah parmese Yes but it she never usually the appetite to do so it also makes her sick and she dosent get enough nutrition without the tube so yeah
@dorate1007 жыл бұрын
i have the same pump as U and im a tube feeder too