Brain Activity Revealed Through Your Skin: Stress, Sleep, & Seizures | Rosalind Picard | TEDxNatick

[@amytomas712]

I have the watch on right now. Dad bought it for me after a huge seizure that occurred a week or so ago. Im so thankful that my loved ones have a peace of mind that I am okay at work, school, and while im out with my friends. This watch gave me the quality of life Ive always wanted as a young person ❤ much luck to anyone going through this!

[@amberanthony3611]

What kind of watch and how much is the price range? My Mom and I both have seizures.

[@mtjposhea]

Thank you, I discovered this past year that I have epilepsy. I am 60 years old and have not told many people. I have only told those I could trust. I am afraid to tell others because the authorities may find out and I may lose some of my freedoms. Epilepsy has really changed my life. Again thank you for being epilepsy to the surface. Lastly, Bailey is brave and encouraging young lady.

[@justme-ij2qy]

Sorry to hear about your new struggles. Mine started about 5 years ago after a head injury, but through lots of research and persistence things have improved. As for losing your freedoms, such as driving, your doctor is the one that decides that. They have to contact the licensing bureau and tell them to revoke your license. I wish you well.

[@dougfredricks2017]

Only strong friends,will stand by you. I am In my Late 50s currently applying for disability due to seizure disorder. The AED gives erratic patterns of sleep.

[@everythingiseverything9920]

When I was in middle school (in the 90's), we were informed very simply that one of our classmates had epilepsy. She said that she was okay most of the time, but that a ceisure could come up at any time. To my knowledge, nobody gave her a hard time for it - tbh it had never crossed my mind until... this video. When unfortunately, my classmate did have a ceisure in school, we knew she wasn't messing around or anything. Help was called at once, nobody was freaking out, we gave her space, and all of our support. Epileptic people should be able to count on people around them. The only thing to do is just help.

[@meghanmendoza4349]

I was diagnosed with epilepsy when I was 9. I'm 30 now and still have it. Meds didn't fully delete them. Neither did age (60% of kids outgrow their seizures). I have a surgery called Vagal Nerve Stimulator, which has helped control my tonic clonic seizures, but I still have them. I have honestly had 0 problems being open about my epilepsy. People don't stigma you. They respect you more. People tell me I'm an inspiration. I have this disease, but I don't let it get in the way of living my life. Don't ever be afraid to tell someone. The most common response I get if I'm first mentioning it to someone (and I've done that a LOT) is "Oh, I have cousin/uncle/sister/relative/friend, etc who has that." I think people are afraid to talk about their epilepsy openly because they feel like they will be judged, but honestly, it's been the opposite. People are good, and they ask you how they can help if you have a seizure with them. You can undo common myths they have about epilepsy, or even just educate people. This is a REALLY common disorder. The stigma there is the stigma you are putting on your own self. People, especially your friends and family LOVE you, and they only want to help you. This is so important! Tell someone about your experience with epilepsy today!

[@elisabethmulder4315]

When dealing with energy in TCM, traditional Chinese medicine, always both wrists are checked as the body consists of two halves, Yin and Yang. Chinese doctors with their knowledge of the meridian system could be valuable in this kind of research.

[@justme-ij2qy]

I can recognize the signs ahead of time now. After a head injury I had seizures very often. Enough so that I have patterned them, I can recognize even the small hints, and I can sometimes prevent them, but when I cannot I can at least lessen their severity. It has been a long interesting road of understanding.

[@romie7054]

Prayers things are okay. Wish we could get a sample of what to look for.

[@justme-ij2qy]

@@romie7054 I will try my best to put things into understandable detail. I commented now to bump a notification back up the list so it doesn't get buried. Any reply will bump it back up. It will take me a couple of hours as I get some other things done.

[@PINKLUNAMOON]

This should be standard available to every family dealing with epilepsy, one of my twins has just recently been diagnosed and if I could I would buy three bracelets, one for each of my boys, my eldest has autism and the other twin has behaviour issues, I would like to know and be alerted on what happens at night but not only. It would give me great peace of mind. I hope prices go down and these become more popular!!!

[@RealexcelEpilepsyPortal]

Hello Pilar, were you contacted ? I am also interested in the bracelets...did you find out where to get it ?

[@summertakacs-michaelsonch8842]

Would you please go visit a DAN doctor? Get allergy tests done and proper diagnosis? It's one thing to get a sensing device, it is a whole other topic to actually start healing your children's health problems! 50% of people with autism go on to develop seizure disorder, and many question the autism diagnosis in the first place as a low level seizure problem. Bottom line, systematic inflammation must be addressed! These things cannot only be diagnosed, but healed, put into remission, and all kinds of amazing things! And if you REALLY want a sensing device, there are older methods that will alert you!

[@LostVindication]

This is so fascinating to me cause for years I get random "numbing bumps" on one arm or leg. Over the years my neurologist explained to me they might be breakthough seizures. I wish I could have a study like this done on me.

[@bryanschroeder6379]

I am so glad to see something like this come to market. I have Complex partial I have streesful job for 23 years trying to do the Wright thing. Feel epilepsy is catch up to me :( had ups and downs the worst is when your company takes your illness for granted and harassed you at hospital thinking your not really having seizure unbelievable. The stigma is real.

[@plainegrace5712]

I can not believe that epilepsy is still so stigmatized!

[@oh-duh]

Yet we can't get SSDI if we're not half-dead. I'm so frustrated.

[@Potentialaj]

This is absolutely beautiful.

[@teresabarrett8676]

I am blessed to be Jessica's mom and caregiver and disabled person. She has LGS a severe former of epilepsy. I have been putting together a smart home with just the outline of smart energy devices, color(Phillips), Sensor lights outside, inside cameras just showing me where Jessie is and is she okay as she wanders restlessly all night, security gate with smart lock and softening and lowering furniture and obstacles in our home so I maybe can sleep and better manage our care. What computer desktop or laptop would best fit my needs and still be affordable?

[@jeff-xy7qp]

Very moving video, thanks for raising awareness.

[@summertakacs-michaelsonch8842]

Awareness that she has the ONLY sensing device?

[@leightreme6848]

At night I found the epilepsy mat that fits under your mattress is great although volume of the alarm could be higher. I also have an empatica watch but sometimes find it loses signal even when it’s within range. When out shopping I make sure my phone (Bluetooth source) is right next to my watch in my hand or in my pocket or bag but connectivity still can fail. Others comment on this difficult too. Read the customer reviews. Although there’s drawbacks I still recommend both are worth trying.What I do really like about the watch if I keep close watch on it’s connecting, is its tracking system. It brings my family security knowing they track where I am and if I seize. For the first time I’ve gone on short walks by myself. This is empowering and if your one needing a support person as I do, you’ll understand the freedom experienced in being able to adventure out of someones vision is beyond description.

[@leightreme6848]

Dealing with the underlying inflammation I really believe. There’s doctors who are trained to do this. Also investigating the plasticity of the brain with memory loss that accompanies severe seizures, doesn’t as some experts will say cause irreversible brain damage. It’s proven to improve brain function incredibly

[@deborahmcneal8186]

I have epilepsy and thought this SPA was excellent. Thank you. Would like to know where to get one of the bracelets, please

[@melissa4856]

This is an incredible discovery!!! God bless you all💖

[@melissa4856]

And Baily you are incredible!!!

[@km8342]

Going back to the beginning of the speech, I have to throw a flag out there. Emotional expressions are not universal. They are learned associations and they differ. More universal sharing of expressions enable people to understand cross-cultural body language and facial expressions, but the application of a program to assist autistic people in identifying emotion won't be helpful across the board... only to groups of people to whom those expressions apply as valid. I have two autistic kids, and that's kind of resonated with me. I have epilepsy, so the speech was interesting on a number of levels, although I didn't find myself agreeing with some of it.

[@saragriselda5668]

I had brain surgery for epilepsy and still have them just really mild

[@OurGalaxieSystemIsQueer]

Has anyone had any experience using these for non-epileptic seizures? Mine mimic grand mal and often begin before I can let my caregiver know I'm going to seize. It would be awesome to have a device to help me communicate when I need help. It sounds like these wristband devices rely heavily on convulsions to create a seizure alert, rather than electrical signals in the brain (which I lack). But if that's the case, wouldn't they work just as well for non-epileptic seizures with convulsions?

[@leightreme6848]

I have both epileptic and non epileptic seizures. They very rarely pick up psychogenic seizures but definitely pick up my epileptic ones.

[@LifeIsWonderful675]

@@leightreme6848 l was diagnosed with epilepsy in 2005 after a blow to the head, l thought all seizures were classed as epilepsy ? l just looked up watches and there are mixed reviews

[@omkareswararao9779]

could you please tell us where we can get this the most valuable product?

[@Muuip]

Knowing which arm sends a signal can help by 50% to diagnose the source of the seizure, which would be the opposite brain hemisphere to the arm sending the signal. Which arm was sending the signal?

[@jillianquinn3641]

Where can you purchase this? Thank you?

[@danaredditt5609]

Thank you Bailey.

[@thewillsfamilyaccount6486]

Very interesting.. my dad had epilepsy.. I have a better understanding of it now..

[@erikestrada1404]

can someone attach the link to obtain one of these bracelets please. I am epileptic and I'd like to try this bracelet. I've been looking for a hook and I believe I found it.

[@summertakacs-michaelsonch8842]

There is no *hook* in life, I am so sorry to have to be the person to tell you this! There is no simple solution, however, there are so many things you can start doing and older sensing devices available!!!!

[@blugost7828]

Google "empatica embrace" and the link is the first result.

[@eklektek]

Remarkable discovery. Can this also be applied to predicting when an alcoholic starts to feel the compulsion to go for the bottle?

[@Muuip]

Naina Marbus Possibly. There is a "alcohol - magnesium deficiency - epilepsy" connection. The Mg deficiency usually occurs many hours after drinking and this is also the dangerous time point for seizures. Now to detect BEFORE the need to drink comes? Very interesting, possibly a nervousness can be monitored and one could react quickly enough to give the person a healthy substitute to calm down the need to drink.

[@jennyziegler9277]

I'm so excited to try new things to provide new information regarding epilepsy. I've been having seizures for over 30 years. I have Uncontrollable Epileptic seizures throughout the day and night. I'm very happy to help people understand Epliepic seizures.

[@summertakacs-michaelsonch8842]

There ARE SO MANY THINGS to do for epilepsy!!!!!!!!!!!!!!!!!!!!!!!!!!! New things won't necessarily give you insight into why your own body is suffering from disconnection and inflammation!!!!! This inventor doesn't even know!!!!

[@vibrantspirit5403]

Can you please help me. I am lost. I am scared. Thank you.😔😭😭😭

[@Muuip]

This sounds very promising, glad I have seen this video. I am still trying to figure out why the signal is stronger on one arm. Somehow very important to understand epilepsy.

[@summertakacs-michaelsonch8842]

Other peoples arms have nothing to do with your arms, your nervous system, and your brain. If you want to understand epilepsy, please go deeper. This may be an okay sensing device, but there are older models of this device that provide more benefits. And healing is a whole other subject. Who here is asking how to heal from this disorder, how to put it into remission. I am absolutely flabbergasted that people think healing isn't an option.

[@vibrantspirit5403]

@@summertakacs-michaelsonch8842 I agree. How do you heal? Can you please help give me some tips? What do I need to do? I'm scared. Thank you so much.❤😭😭😭

[@shannonhammond9382]

Anyone know where we can buy the device?

[@RealexcelEpilepsyPortal]

Thank you for the seminar, not only great content, yet also entertaining. Very interested in contacting you regarding distributing these devices. Please get back to us. Thank you

[@cedarforest4621]

So which side should have the bracelet? My dd is a RH, would that mean we put on the bracelet on the left (where the storm is starting) or the right (where most of the symptoms occur)?

[@summertakacs-michaelsonch8842]

How could anyone answer this question for you without a brain scan by a doctor?

[@sengarmajeed2923]

Bayly you are brave and heroes, I'm as dad thank for what you done for all family safaris from these 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🎖🎖🎖🎈🎈🎈

[@MegaLiggie]

ok here are having a seizure, HEY WAKE UP! you don't die?

[@julissaramsey5507]

Hi if you have any left can you help me I have epilepsy and I’m always alone

[@stashadunbar5861]

I have seizures what smart watch is this

[@sj.2156]

Don't EVER trust the medical field. I have to much to relate but every time one of my family needed care they have always received nothing or the "care" resulted in something worse. They have been though treated like dirt and been put down because the staff didn't have enough brains to see there was an actual problem. It wasn't until my daughter actually had a seizure right in front of them, they said ok maybe we should do something.

[@shavindraf]

they should be available in Asia, Sri Lanka as there are many epileptic people who can't afford. Hope it's spread round the world at a nominal price direct from product house / whorehouse retail with a unique number sold to the customer

[@summertakacs-michaelsonch8842]

If a poor person *could afford* this technology, what would they do with it? How about the present technology already available?

[@cheryldavis8776]

Shavindra Fernando - I think you meant Warehouse, right?

[@oh-duh]

@@summertakacs-michaelsonch8842 poor ppl cannot afford it if they don't have income, such as a job or nearly impossible SSDI or SSSI (in the States)

[@summertakacs-michaelsonch8842]

@@oh-duh, I have yet to see this new technology help much, whether rich or poor. How about the older technology that already exists?

[@chrisbertrand3537]

MERCI PR CE RENSEIGNEMENT POURRIEZ VOUS METTRE LE LIEN EN FRANCAIS....ET VIDEO...JE NE SAIS PAS COMMENT MY PRENDRE//CORDIALEMENT

[@royalekhai8159]

does this device can also work with focal seizures? thanks for the answer. My nephew has focal seizures and has autism. he is 5 years old now but he is non verbal and he behaves like a 2 year old boy. i would appreciate if anyone could answer my question😊

[@TheSeanvarner]

thank you

[@Ari-xz9en]

I have seizures to I wanna know how I can sleep without dying in my sleep

[@africasud]

I came across this video when trying to find out about how the Apple Watch could help with seizures and found it interesting. You mentioned about how your devices can detect seizures etc but is that only the Tonic Clonic / Grand Mal types or could it possibly pick up on absences and other types? Thank you . Neil

[@angeliabaker1296]

I"m aslo interested in knowing if it can pick up on absence type seizures.

[@usamarafieck1715]

Not much is known about seizures.

[@victomeyezr]

So if this device uses electircal signals, why does the one my fiance wears reports a seizure on a BUMPY ROAD?... It uses more than just vibration huh?

[@antonioalonso5831]

It obviously uses more than vibration, if it even uses vibration at all, you absolute smooth brain

[@haizekhaze8868]

😋She is like the woman from insidious, wow! 💭

[@SRoseBlog]

I feel as tho she didnt renearse this. Else she would have summarized her narratives

[@summertakacs-michaelsonch8842]

Awesome she created some sensing device! However, she doesn't seem to have a deep understanding of either autism or grand mal seizure disorder, as well as other methods and modes of sensing. What seems like a scientific breakthrough to her, is actually, common sense for anyone who lives with or around this disorder. She doesn't have enough experience, but tons of learning. The young lady she had visit at the end has, clearly, lots of inflammation happening in her nervous system as seen through her body language and through the position of her eyes. Despite her surgeries, there are break through seizures wanting to happen as her nervous system is still inflamed. The bigger issue is reducing inflammation and putting into remission the seizures. I would like to try the device sometime, but is it as effective as the other means available? And does this device and surgeries that treat temporary symptoms....is this what we are striving for...or SHOULD we be striving for healing the underlying problems? This talk mentions one in twenty-six Americans will have a seizure in their life? Are you KIDDING ME? What was that statistic fifty years ago? I feel like this woman is a sincere person who is, through life experience luckily, quite insulated in her understanding of these particular problems. Her product may be incredible, yet ignores the older methods of extremely accurate seizure prediction. As far as Autism goes, the systematic inflammation of course, has dysregulated organ systems. SUDED is rediculous. Grand mal seizure folks HAVE TO KEEP AN AIRWAY OPEN! What is this term created for? The REASON GRAND MAL SEIZURE FOLKS don't drive is because of losing bodily function. Surgeries guarantee nothing except treating symptoms. WORKING on the UNDERLYING problem makes a safer driver. The talk started with one topic, then ended with the gracious volunteering of a teenager, without more information, of surgeries as a cure. Her eyes bespeak of ongoing inflammation that this lady should start looking into deeply. Please do not USE those people with medical problems as your stepping stone for developing and selling products. For SHAME!!!!

[@km8342]

Agreed. I have epilepsy and I have two autistic children.

[@motivationwordscouldchange4538]

Is watching tedx vidios considerd as wasting time....and addiction

[@mattkay4162]

lol what is this

[@mattkay4162]

lol what is this