Brain Tumor Journey 2: From dizzy spells, headaches, vertigo, to diagnosis, Jodi Orgill Brown

Get Jodi's bestselling and award-winning memoir, The Sun Still Shines! www.amazon.com/gp/product/099...
Check out the second part of Jodi's story, from a mid-fossa craniotomy that lead to facial paralysis, pneumocephalus, a cerebral spinal fluid leak (CSF), hearing loss, experimental surgery, and more than a month in and out of the Neuro Critical Care Unit as a team of doctors tried to save her life. Nearly 4 weeks into her hospitalization, she had a near-death experience and then her body found the will to keep fighting.
In video part 1, Jodi experienced symptoms, including dizzy spells, vertigo, headaches, and migraines, before finally getting diagnosed with a tumor between her right auditory canal and her brainstem. After an MRI of her brain, a radiologist saw a mass and referred her to Neurosurgeons and specialists to determine the next steps.
Get her bestselling and award-winning memoir, The Sun Still Shines, www.amazon.com/gp/product/099....
* 2016 Gold Quill
* 2014 Storymakers contest winner (for nonfiction)
* 2018 & 2019 Amazon Bestseller
Her second book, Rise Above Depression, was an Amazon bestseller 2018.
Jodi Orgill Brown is an interactions expert and a C.F.R.E. certified nonprofit consultant, as well as a professional speaker, a best-selling author, and a brain tumor survivor. She earned a Master’s Degree in Organizational Communication from the University of Utah and a Bachelor’s Degree in Public Relations from BYU. Her work focuses on helping people amplify their interactions so they can increase their influence for good. She believes in Authenticity, Vulnerability, Self-love, Empowerment, Amplifying Good, and Giving with Purpose.

Jodi has lived in the Middle East, and on both U.S. coasts, but believes home is where you make it. She is the wife of Tolan Brown and they are parents to four amazing children.
Other Specialties: Teaching courses on nonfiction writing and memoir writing; For-profit trainings for Customer Care; Training for physicians and professional caregivers; and Fundraising development and nonprofit management; Campaign development and implementation; Public Relations. CFRE certified (Certified Fund Raising Executive).

[@helenmurphy5587]

thank you Jodi for sharing your story, you are an amazing human being. I had my surgery to remove my acoustic neuroma May 2018. At the time it was the worst thing that happened to me, the recovery was harder and more frustrating than i could ever imagine but now i have to say , i have learnt so much about myself, my strength, my patience, my determination, i set myself challenges and still do to this day, i also studied natural facelift massage and completed this course 2 years ago so i can help relieve my own facial weakness. I also learnt so much about other people, the kindness was over whelming and i honestly have grown so much as a person i wouldn't change my experience if i had the choice. Keep inspiring others Jodi x

[@JodiOrgillBrown]

Wow, thanks for sharing a little of your story, Helen. You sound like an incredible person. So glad you found me. Stay tuned for more hope and inspiration!!! God bless you! ;) Jodi

[@ameegrant6055]

God really saved your life by having all these doctors available for your treatment.

[@JodiOrgillBrown]

Yes, I am so grateful for the doctors who saved my life so I can still be here as a wife and mother! Thanks, Amee. God bless!

[@karenhegarty7244]

What a beautiful person, honest and brave.

[@JodiOrgillBrown]

Thank you, Karen!! I am most grateful for my life -- and even for my struggles!

[@trexmidnite]

Still is a precious lady..

[@jeanbrooks3493]

​@@JodiOrgillBrown ɛɛ

[@trexmidnite]

I hope she can be given a slight face pull for the paralysis.. either electrically or mechanically somehow.. god bless

[@user-bs4hc9rl4c]

The peace that surpasses all understanding! Thank You Lord. Jodi, your witness is beautiful! 🙏🧡🙏

[@JodiOrgillBrown]

Many thanks for your kind comment. God is so good. My life has been preserved for a reason, and I'm dedicated to make the most of every day! God bless. So glad you found me here. Stay tuned for more hope and encouragement to navigate the challenges of life. Jodi

[@lab4389]

I love how you explored and dealt with your process, inside and outside. My dad died from a glioblastoma. He had surgery, but it didn’t help. He died soon after. You definitely are a miracle, and by sharing, are helping many others. 💯♥️

[@JodiOrgillBrown]

I'm so sorry to hear about your father. My brother just passed away unexpectedly last month, and the emotions are so raw and difficult. I hope you've found peace in God through your grief. Thanks for your kind words, I'm truly honored. Glad you found me. ;) I have new videos going up soon, I hope you'll enjoy them! God bless. Jodi

[@jaydenp4975]

This came up in my recommended videos randomly and wow, What a powerful story. Jodi is an amazing. Strong, beautiful woman. Hope that she is doing well and living her best life.

[@JodiOrgillBrown]

Thank you, Jayden! Life is good, even when its hard. I still have many issues, but I'm so grateful to be here and try to give people hope, courage, and resilience! And YES, I am living my best life. I hope you are, too!! Many thanks for the comment. Glad you found me. Stay tuned for more videos! God bless. Jodi

[@kathyduer7108]

WOW.... what an amazing powerful story. So many messages...such depth. Jody is a phenomenal story teller. I hung on her every word. GOD put her video out there in youtube world to give an example of strength and courage and to teach us the power of putting our trust in HIM our allmighty savior. Thank you Jody...with all my heart. Thank you God for keeping Jody here on earth to share her incredible journey.😇

[@JodiOrgillBrown]

This comment just made my day! I'm honored by your kind words. Thanks so much! I've got new videos going up soon. I hope you'll enjoy! God bless.

[@lindamastropietro4429]

Jody gave me hope that God will help me. Thank you Jody.

[@JodiOrgillBrown]

GOD WILL HELP YOU!! His help is so evident in our lives, even if it doesn't come in the form of healing or fixing everything. I came to realize that every person who came into my life was a gift from God, my pack of angels. The more you look for God's help, the more you will see it. Stay strong!

[@pam164]

My Father died at 52 of a brain tumour, he died with in 4 months of being diagnosed, I was 17 my brother was 10, I still remember all the emotions I felt and I'm 61 now, it saddens me a lot of people, young people are dying of this.

[@JodiOrgillBrown]

Pam, I'm sorry your father died so young. I think the technology has improved -- it certainly helped save my life. God bless you and your family.

[@pam164]

@@JodiOrgillBrown Thankyou was a tough time. I still think to many people are dying of brain tumours especially young people, I live in England and treatments have not advanced that much in 40 years. Glad you are still here and fighting this devastating illness.

[@JodiOrgillBrown]

Oh, that is sad. Here in the U.S., technology for tumors has advanced greatly. I hope the medical tech catches up to help people throughout the world.

[@Corina-dq2my]

I am sorry for your loss. My family got mad at me. Yelled at me because of stress. I didn't wake up in the morning and choose to have health issues. . But you know, I lost my mother. So I empathize. God Bless ❤

[@collettebrynes1075]

I had a craniotomy for brain Tumor the most pain I ever felt but I was so blessed with my surgeon he did a perfect job I was ready to go back to work in 6 weeks your journey was so hard you are amazing to make a recovery ❤❤❤❤❤❤

[@JodiOrgillBrown]

Collette, I am so glad your surgery turned out so well! It is not always easy, but EVERY DAY IS WORTH IT. So glad you found me. Stay tuned for more hope and inspiration!!! God bless you! ;) Jodi

[@pentiuman]

I had a TBI from (allegedly) falling off a ladder onto a concrete patio in my backyard. I said "allegedly", jokingly, because I don't remember anything from the accident or the first 2 weeks in Hospital #1. Was in an induced coma for a few days, couldn't breath on my own initially, w/ "raccoon eyes" when I woke up, and had to eat pureed food! You reminded me of that when you indicated your facial paralysis made it hard to keep food in your mouth. - Which also reminded me of trying to spoon feed my son as a baby, and he'd spit it out as fast as I could try to put it back in! Ha. Then I went to Madonna Rehab. Hospital in NE for the next 4 weeks to recover - learn to walk, balance, and had to do so many mental tasks, Math and puzzles to show them I was capable of taking care of myself (living alone). Of course, I received a lot of help from my family, but none of them live in my state, and everyone has to go back to their own homes and lives eventually. I have made a miraculous recovery though - from the 1st week at Madonna I was trying to convince them that I was FINE! With TBI patients you have to prove that you're well enough to be "Independent" - 1st in your bed, and the sensors should be removed, then independent in your room, and don't have to be babysat, then independent in the hospital, and you can go to get hot coffee safely, w/out help. At least 1 member of my family came every single day, and I was released to go home on my Bday! The only remaining issues are a bit of pain (I also have fibromyalgia), and some slight double vision - correctable w/ prism glasses. So, I'm very fortunate! Had bleeding on the brain, but it went down and didn't have to have brain surgery. Had skull fractures, but they were closed and they healed on their own, w/ no scars. Only left w/ a small scar on my chest where they had to put a tube in at the E.R. Had fractured ribs, but they too were closed and healed up good. Going to Neurologist #2 in 1 month, and expected to be able to drive again, since it will have been 6 months since the seizure at the E.R., and my sight is better than ever w/ the glasses! But I'm not allowed to get on a ladder again. lol

[@JodiOrgillBrown]

Well, maybe staying away from ladders is ok. ;) I'm glad to hear that you have improved and are functioning well on your own. Congrats on your progress. Warrior on, my friend!

[@Corina-dq2my]

Wow. I'm sorry. It's hard to go through traumas especially sudden and then repeated. It's a lot to deal with.

[@andith]

I have two. nieces with brain tumors. One, after going through chemotherapies and all kind of treatments, adopted a girl who is in her 20's, the other one was diagnosed more than 15 years ago and is still in good shape. So, there is hope. I knew a woman who was sent home to die, and even when she had some sequels, many years after, she was taking her daughter to school every day.

[@JodiOrgillBrown]

YES, there is HOPE!!! Treatments are difficult, but survival is possible. Thank you, thank you! So glad you found me here. I've got new videos going up soon. I hope you'll enjoy them! God Bless. Jodi

[@maryhirsch8044]

Wow Jodi! What a soul searching journey you went through. You are such a beautiful, strong person and it's a miracle you survived all that. Your explanation of "acceptance' was right on! I'll tell you my story of acceptance. I had to retire at the age of 62 because my hip went out 2 years prior and I could no longer do my job. About a month before I retired I noticed I was having abnormal stools and had less of an appetite. Symptoms were minor so I ignored it. When I retired I no longer had my health insurance. After I retired things got worse. Over the next 3 years I went from weighing 140 to 107. I had no appetite, couldn't eat much and rarely passed a stool and it hurt. I knew something was very wrong but I was not in a financial position to do anything about it. I thought I was going to shrivel down to nothing and die. I cried and cried and was very upset for a while but then I finally accepted it and a huge peace came over me. I quit stressing over it and just said "It's God's will, Let Go, Let God." I refused to let it consume me anymore and I put it in God's hands and I am going to be happy with the time I have left. When I turned 65 I got Medicare! I thought, ok, maybe I won't die after all. First thing I did was go to a gastrologist and had my first colonoscopy. He removed 8 polyps that were blocking my colon and I slowly put my weight back on over time. The funny thing about reaching "acceptance" is once you experience that, you no longer have a fear of dying. At least I don't. Every day I wake up is a blessing. A gift! I appreciate life much more now and have more compassion for others. Acceptance changes the way you think, forever!

[@JodiOrgillBrown]

Thank you, Mary! I agree with you, once you let go and let God, it is much easier to accept anything that is to come. And, even dying no longer seems scary. Life is good, even when its hard. I still have many issues, but I'm so grateful to be here and try to give people hope, courage, and resilience! Many thanks for the comment. Glad you found me. Stay tuned for more videos! God bless. Jodi

[@iCanHearUSign]

I just wanted to tell you how inspirational you are as a person. Your story touched my Soul. The way you explain things shows deep inner reflection and wisdom beyond your years. Thanks for sharing your story❤️🦋

[@JodiOrgillBrown]

I'm honored by your kind words. You made my day! Thanks for watching and investing your time in me. Wisdom comes not from learning, but from hard, deep, been-there-down-that, glad-I-survived experiences. ;) I've had a few of those, I suppose. Thanks again. I've got new videos going up soon. I hope you'll enjoy! God bless. Jodi

[@lightningstar6668]

your story is so gripping. You have most certainly proven that u are amazing strong n full of courage. I hope u make a full recovery 💓 🙏

[@JodiOrgillBrown]

Many thanks for your kind note. Life is messy, and oh, so tough, but I feel BLESSED and GRATEFUL for every day I get! When you know the purpose of your life, even the hard days are good days. God bless!

[@misterscruffle]

Wow my heart just opened so much more after hearing your story. You are truly a gift. Thank you

[@bobgear5859]

I,dont,b lame,you,for,being,scared

[@mayponcedeleon343]

Thank you Ms Jodi for sharing to us your beautiful story. It gives us hope.. those who is going through the same journey. My sister Faye Ponce de Leon, 46 years old, living in Malaysia, is scheduled for a brain tumor surgery on May 18, 2023. The whole family is praying and supporting her in her journey to healing and recovery. Your story gave us a very clear understanding of the what goes in the innermost thoughts and feelings of both the patient and the family members. Thank you and God bless you.. More Power !

[@JodiOrgillBrown]

Thank you for this beautiful comment! I'm honored by your words. I am so glad my story is helping others move forward, have faith, and live their best lives. I still have plenty of hard days, but sharing my story helps give purpose to the pain. Many thanks. I will pray for your sister and for your family. Healing is possible! God bless. Jodi Oh, and I have new videos coming out in the next few days, I hope you'll check them out and let me know what you think.

[@plasmaa76]

What an exceptionally classy woman !👏 I wish you the very best life has to offer.

[@JodiOrgillBrown]

Thank you, thank you, for the kind comment. I try to live my best life every day, so I'd say I'm getting the best life has to offer! There are still many hard days, but it is a GIFT to be alive. I hope you'll stay tuned for more courage, hope, and inspiration! Thanks again, and God bless!

[@mysteryandmeaning297]

Your amazingly survived! My brother died days after his brain surgery.

[@JodiOrgillBrown]

Thank you for the comment! I'm so sorry to hear about your brother, that is devastating. I hope and pray you and your family have found peace and remember all the good times. I still have plenty of hard days, but sharing my story helps give purpose to the pain. Many thanks. God bless. Jodi Oh, and I have new videos coming out in the next few days, I hope you'll check them out and let me know what you think.

[@margaretmanzer2194]

When you surrender to the Lord all things change and the burden is lifted from you. Peace does come and you learn that it's all in Gods timing. You absolutely nailed it with your acceptance of The Lord. Blessings to you Jodi and to your interviewer. You are free aren"t you ?❤

[@Miriam-fk9wr]

Beautifully said 🙏🏻

[@JodiOrgillBrown]

Thank you, Margaret. Love this beautiful note. I'm grateful for God's grace, timing, and strength which has kept me going! God bless you! And stay tuned for more hope and inspiration! Jodi

[@Cookingforacrowd]

I’m flying from Laramie to Boston on Friday. My daughter just diagnosed with a brain tumor. I don’t know the results of the biopsy yet- but my nerves are shot! I’m glad I found your story.

[@JodiOrgillBrown]

By now, you probably know the results of the biopsy, and I hope and pray your daughter is in good hands. Please keep me posted. I'm so glad you found me here. Stay tuned and check out some of my other videos for help navigating this journey. And please, ASK ME QUESTIONS and I'll do my best to answer and provide a little help and guidance. Warrior on! God bless, Jodi

[@Cookingforacrowd]

@@JodiOrgillBrown oh thank you for replying Jodi! I’ve been watching your videos! Still no answers from the biopsy! They said it could take 2 weeks! We will be at 2 weeks by Monday- and her follow up with the surgeon is on Tuesday… it’s nerve racking to say the least! I’ll keep you posted! Xo

[@JodiOrgillBrown]

Please keep me posted and STAY STRONG, no matter what the biopsy says. Her future is not determined by a medical test. God bless! Jodi

[@Partyanimal1066]

In hindsight,so obvious just looking at the facial movements,but,doctors don’t have a retrospectoscope ,all we can do is watch and learn,and be grateful for people like Jodi for sharing her experience so that we CAN learn.

[@JodiOrgillBrown]

Thank you, great comment. It is easy to say now that docs should have caught the signs earlier, but you are right, that is all in hindsight. At the time, I KNOW my doc was doing what he thought was right, even though it took a long time to diagnose the brain tumor. I'm so grateful that my videos are helpful. So glad you found me here -- stay tuned for more hope, inspiration, and encouragement. God bless! Jodi

[@deborahmeyers551]

The way this woman listens with her full attention and compassion for herself and the interviewer telling his story brave man brave woman they are amazing this woman is sooooo sooooo sooooo amazing thank you for sharing your story with us beautiful soul ❤️

[@JodiOrgillBrown]

@deborah, thank you, thank you for your lovely note. I'm honored by your kind words. Life is good, even when it is hard. I'm grateful to be alive and to have the chance to live my best life! I'm so glad you found me here on YT. I hope I can bring you a little hope, inspiration, and courage for handling the challenges of life. Stay tuned. Thanks again! God bless!

[@Miriam-fk9wr]

Absolutely 💯

[@misterscruffle]

You are so inspiring and powerful, thank you for sharing your vulnerability and story.😊

[@alanp1014]

Random KZbin recommendation, but very glad I watched this. You are so, so brave and a true inspiration. Best wishes to you and your husband!

[@JodiOrgillBrown]

I'm grateful YT sent you to me! ;) Hooray for random recommendations. I'm glad I can stil be here to make a difference! I've got some great content coming soon, so stay tuned. God bless.

[@karenjohnson5271]

So profound. Thank you for sharing.

[@JodiOrgillBrown]

Thank you Karen! I am so glad you got something from my journey. God bless!

[@mattysithole7554]

Powerful testimony! This will help a lot of people. Wishing you the best 🙏

[@JodiOrgillBrown]

Thank you, Matty! I appreciate your kind well wishes. I'm grateful for every day I can be here to make a difference! Glad you found me. I've got some great videos coming soon, so stay tuned. God bless.

[@gillluke8448]

What an amazing human being you are. To have gone through so much and to tell your story with such clarity of thought is truly inspirational. I'm having a few challenges myself at the moment one dealing with the death of my wonderful dad and some health issues of my own. Where does this inner courage/ strength / insight come from to face up to these challenges? You are quite exceptional and I wish you nothing but the best that life can offer. Stay well ❤

[@JodiOrgillBrown]

Thank you, Gill! I appreciate your kind note. I'm sorry to hear of your father's passing. I just lost my brother and the grief is still raw and very real. We can mourn together for our loved ones. As for you, please take care of yourself and get medical help, if you need it. I'm grateful for life and for every day I can be here to make a difference! Just for you, I'm going to record a video to answer your question: "Where does this inner courage/ strength / insight come from to face up to these challenges?" Stay tuned. Glad you found me. God bless.

[@erinbean7185]

Wow. You are a truly strong and beautiful person. I'm so sorry what you have been through, but pray you are doing better. God bless you.

[@JodiOrgillBrown]

Thank you, Erin! I appreciate your kind note. I'm grateful for life and for every day I can be here to make a difference! Glad you found me. I've got some great videos coming soon, so stay tuned. God bless.

[@samuelabraham8636]

Where did you get all this courage ? Well done 👏 ✔️ 👍 wishing you long happy life, you are a brave.

[@JodiOrgillBrown]

You just made my day!!! I needed this more than you know. Thank you for your kind note and uplift. God bless you! So glad you found me. Stay tuned for more hope and inspiration!!! ;) Jodi

[@maryannebarry9123]

Hi, I hope that your journey is one of healing. Continued prayers.

[@JodiOrgillBrown]

THANK YOU, Mary Anne! My journey is definitely one of healing. Life is so good, even when it's hard. Thanks again. I've got new videos going up soon. I hope you'll enjoy them! God Bless. Jodi

[@chloebug4573]

You are so unbelievably amazing and inspiring! You are proof that whatever you might be facing in life as long as you believe and stay strong u can conquer it. I’ve had headaches and migraines my whole life but recently migraines increased and having 2 a week sometimes. I am a unbelievably chronic streser and never sleep but I always fear something could be wrong but I’ve always been too fearful to ask and i definitely can’t afford it either. It scares me. I’m a single mom with a toddler and I can’t imagine not having her.

[@JodiOrgillBrown]

Thank you, Chloe! I'm sorry you experience migraines. I'd recommend visiting a doctor to get help. And remember, Life is good, even when its hard. Many thanks for the comment. Glad you found me. Stay tuned for more videos! God bless. Jodi

[@moussaka4738]

God bless you and your supportive emotional, spiritual and professional team. When you finally let go...miracles happen.

[@JodiOrgillBrown]

YES, when you finally let go, miracles happen! Well said, I agree 100% Thank you so much for watching my story. Life is SO good, even when it's hard. Thank you again. I have new videos going up soon, I hope you'll enjoy them! God bless. Jodi

[@kishwarzaidi]

Thank you for sharing your feelings struggles and strengths. You are a living miracle on the earth. Recently, someone in our relatives went through under this surgery and I am far away from him, I am praying deep in my heart and hoping the young man will come across to your story and he will get strength and determination from your story.and I am sure you are the inspiration for those who are dealing with disease. I love you for your brave attitude under those bad days.

[@JodiOrgillBrown]

Thank you for your kind note. I hope and pray your relative is doing well and learning to press forward every day. It is a long, tough battle, but it can be conquered! I'm so glad you found me here. Stay tuned for more hope, inspiration, and courage! God bless, Jodi

[@Hojiii]

Our stories parallel one another. Thank you so much for being so honest and vulnerable. I am happy you are healthy today.

[@JodiOrgillBrown]

Being vulnerable has made my journey much better -- I can share openly, and it helps people understand and become more sympathetic to difficult situations. Thanks again. I've got new videos going up soon. I hope you'll enjoy them! God Bless. Jodi

[@Hojiii]

@@JodiOrgillBrown Being vulnerable is a super power to be sure. ❤️🙏❤️

[@tracymcgrath1192]

Beautiful soul. Very graceful and an amazing speaker. God bless. 🙏🙏🙏♥️🌹

[@JodiOrgillBrown]

Thank you for your kind comment! I am glad you found the videos to be helpful and touching. So glad you found me. Stay tuned for more hope and inspiration!!! God bless you! ;) Jodi

[@nickywilks7928]

What a brave beautiful woman.

[@JodiOrgillBrown]

Thank you for the comment @Nicky. I am so glad my story is helping others move forward, have faith, and live their best lives. I still have plenty of hard days, but sharing my story helps give purpose to the pain. Many thanks. God bless. Jodi Oh, and I have new videos coming out in the next few days, I hope you'll check them out and let me know what you think.

[@briggettemihm2319]

The human body is amazing. Science is amazing and you are amazing! God is really good. Thank you for your testimony! Blessings to you and your family💝✝️💝

[@JodiOrgillBrown]

I'm honored by your kind words. Thanks so much! I agree, science is amazing, but GOD is the best! ;) I've got new videos going up soon. I hope you'll enjoy! God bless.

[@Miriam-fk9wr]

Thank you, Thank you, Thank you 🙏🏻 ❤️ 🙏🏻 for Your amazing story, thrilled you are ok.

[@JodiOrgillBrown]

Thank you for this beautiful comment! I'm honored by your words. I am so glad my story is helping others move forward, have faith, and live their best lives. I still have plenty of hard days, but sharing my story helps give purpose to the pain. Many thanks. God bless. Jodi Oh, and I have new videos coming out in the next few days, I hope you'll check them out and let me know what you think.

[@Miriam-fk9wr]

@@JodiOrgillBrown I will be looking forward to your future updates, much blessings ❤️🙏🏻

[@leftalone9881]

Your story had me hooked, you’re a captivating story teller. I usually have a short attention span but I could pay attention the whole time

[@JodiOrgillBrown]

@leftalone, thank you, thank you for the kind comment. I'm glad you found my story compelling. Next week I'm filming several videos giving updates on brain tumor issues as they are now. I hope you'll stick around for more inspiration, hope, and courage! Jodi

[@leftalone9881]

@@JodiOrgillBrown I’ll be on the look out! Thank you!

[@JodiOrgillBrown]

Oh, and if you enjoy my storytelling, check out this video: kzbin.info/www/bejne/h6rSZmmDopmZoMU Thanks so much! God bless.

[@kandydewey1286]

Beautiful testimony

[@JodiOrgillBrown]

Thank you, Kandy! I'm grateful for life and for every day I can be here to make a difference! Glad you found me. I've got some great content coming soon, so stay tuned. God bless.

[@kandydewey1286]

@@JodiOrgillBrown God bless you too honey

[@irenefeltham8984]

How totally the work of God, that He brought these two Beautiful Souls together to Give and accept in telling their Stories ~ Trusting in the Love, with new Wisdom to give to the World ~ Thank You Jodi and NDE Experiencer from my Heart for this Gift💗💫🕊

[@JodiOrgillBrown]

Thank you, Irene! Your kind words touched my heart. Life is good, even when its hard! My NDE has fundamentally changed the way I look at life and death. I'm grateful to still be here and have the opportunity to live my best life. I'm so glad you found me. I'm excited to share more inspiration, hope, and courage for persevering! Stay tuned. God bless!

[@shirleehughes8125]

God bless you Judith and I am praying g for you 🙏

[@JodiOrgillBrown]

Thank you, Shirlee! I appreciate your kind well wishes and prayers. I'm grateful for every day I can be here to make a difference! Glad you found me. I've got some great videos coming soon, so stay tuned. God bless.

[@annperon6169]

God Bless you 🙏🏻

[@JodiOrgillBrown]

Thank you, Ann. God bless you, and yours! And always live your best life!

[@patriciaanndemello4652]

Honey. You are a warrior.

[@JodiOrgillBrown]

Thank you, Patricia Ann! I'm grateful for your kind words. Life is good, even when its hard! I'm grateful to be here and have the opportunity to live my best life. I'm so glad you found me here. I'm excited to share more inspiration, hope, and courage for persevering! Stay tuned. God bless!

[@tawthylawn351]

You are very brave and blest. God bless you🙏✝️🙏 Thank you for sharing. I believe that God was with you.

[@JodiOrgillBrown]

Thank you, Tawthy! Life is good, even when its hard. I still have many issues, but I'm so grateful to be here and try to give people hope, courage, and resilience! And yes, I agree, God has been with me through it all!!! Many thanks for the comment. Glad you found me. Stay tuned for more videos! God bless. Jodi

[@bettydanico2959]

Praise God for your recovery. I had an acoustic neuroma in 1998! I can identify with your experience.! Never surrendered totally to God until this experience!🙏🕊❤️

[@chickedee1085]

Gift from god are always good 🙏

[@JodiOrgillBrown]

Betty, we are fellow warriors! I'm so glad you are still here. I hope you are living your best life. So glad you found me here! Thanks again. I've got new videos going up soon. I hope you'll enjoy them! God Bless. Jodi

[@deniseinpeace1170]

i had a similar issue and some black outs and a near fatal accident in Chicago this happened over ten years then i had a stroke which caused possibly by the tumor and it was never ruled as the cause of the stroke but it made me wonder 😢

[@JodiOrgillBrown]

Denise, you've had scary experiences! How are you doing now? I'd love and update. Please stay in touch and stay tuned for hope, inspiration, and courage to move forward! God bless! Jodi

[@rachaelduardo3164]

You are incredible ❤❤🌸🌸🌸🌸🌸🌸🌸

[@JodiOrgillBrown]

Many thanks, Rachel! It is not always easy, but EVERY DAY IS WORTH IT. I'm so glad you were blessed by my story. God bless you! So glad you found me. Stay tuned for more hope and inspiration!!! ;) Jodi

[@alineking4146]

I’m hoping for a part 3 and beyond?!!!! 👍

[@JodiOrgillBrown]

Thank you! Lots more videos to come. I'm glad you are enjoying them!

[@shirleyhodge3524]

Thanks for your story i am going thru problems with dizziness and it cause me to fall. I fell and broke my rt collarbone and alot of bruising. However i assume you did not have cancer but it would of been nice to know if it was. God Bless you and all your family.

[@JodiOrgillBrown]

Thank you, thank you, Shirley! I am grateful for your kindness and well wishes! So glad you found me here! To answer your question, my tumor was not cancerous, the bigger danger for me was the location around my brainstem. So scary, but through it all, life is still good! Thanks again. I've got new videos going up soon. I hope you'll enjoy them! God Bless. Jodi

[@alineking4146]

We cannot understand Gods ways at times.. we must go through a “crushing” a time of intense purifying for our Father to begin a new work in us.. we must trust His way of doing this because we cannot truly understand it! But He knows..He lives us beyond what we can ever comprehend.. our lives are not about OUR happiness.. it’s about glorifying the one and pleading the One who created us and died for us ❤️ I pray strength and continued faith for you in this “rest of your mortal life” journey! 💕🥰

[@JodiOrgillBrown]

Thanks again for the comment. Love your insights. Jodi

[@Nightlifeimages]

How simple-minded must you be to think there's a god.

[@JodiOrgillBrown]

@shaun_belligero, to say someone is simple minded because they don't agree with you is nothing more than, well, simple-minded. We all have the choice to be part of the problem of the division facing the world today, or part of the problem. As for me, I earned a master's degree and multiple certifications, but beyond education, I know what I experienced and I know there is a God. But I respect your right to believe as you will. Please respect my beliefs, and those of @aline and others. That is "simple" common courtesy.

[@Nightlifeimages]

@@JodiOrgillBrown "but beyond education, I know what I experienced and I know there is a God." That education did not do you too well in that case. To think there is a man that just clicked his fingers and boom we are all here is extremely simple minded. It was science that saves you. Nothing more.

[@JodiOrgillBrown]

We will not convince each other, so I think we need to agree to kindly disagree.

[@melodioushaste]

Thank you so much for sharing this. I needed to hear it. I have a TBI and am in my second year of recovery from it. It gives me a lot of hope to see how you have been able to move forward.

[@JodiOrgillBrown]

Thank you, Melody! Life is good, even when its hard. Like you, I still have many issues, but I'm so grateful to be here and try to give people hope, courage, and resilience! Many thanks for the comment. Glad you found me. Stay tuned for more videos! God bless. Jodi

[@melgibsonrespecter]

God bless you.

[@JodiOrgillBrown]

Many, many thanks, and God bless you, as well! Life is so good, I am grateful for every day (though I have to remind myself of that on the tough days). I hope you are doing well -- and I hope you'll stay tuned for more courage, hope, and inspiration!

[@NewZealandAmerican]

Jodi: You are inspiring, beautiful and strong! I'm not trying to be funny but you are so beautiful, so really pretty and amazing, outwardly and inwardly. If you were single, my life would be elevated beyond measure I would struggle to get down out of the clouds if I were with you!!! CHEERS from beautiful Provo UTAH! "New Zealand born & raised, AMERICAN by the grace of GOD!"🌺🇺🇸🇺🇸🇳🇿

[@JodiOrgillBrown]

Thanks for you kine note. Beauty truly comes from within -- thank you for seeing mine. Oh, and I'm in Ogden, so Provo friend, we are practically neighbors. ;) God bless.

[@anthearees6129]

Jodi, you are a very strong lady and tell your story so well. Bless you. My daughter has fairly recently had what she believes is a small amount of spinal fluid leakage through her nose and often has 'wet' ears. She does not have a tumor/mass but was diagnosed with Idiopathic intracranial hypertension (IIH) following an eye checkup at the start of 2023 and ended up in hospital for quite some time and was put on medication and also subsequently had a shunt put into a vein in the back of her head. She has had a MRI recently but not with dye following the leakage. Nothing was found but she continues to suffer very bad headaches even though she is told the IIH is under control. I was wondering how the location of your leakage hole was found as I do not know if an MRI without dye present could possibly pick one up.

[@JodiOrgillBrown]

@anthearees6129 Thank you so much for your kind words and compliments on how I tell my story. I am so sorry to hear about your daughter's experiences. To answer your question, I don't know how they found the spinal fluid leak, but I can tell you they didn't find it on the first surgery, it took multiple procedures for them to find and seal the leak. They also tried a lumbar drain, in hopes the leak would seal itself. A full 4 weeks of my hospitalization was because of the spinal fluid leak, and the ensuing pneumocephalus (air on the brain, which seeped in from the hole where the spinal fluid was leaking out). I wish I had better answers, but the reality is, they couldn't find and fix it until they surgically got back in my brain and found it. Keep asking the doctors and looking for answers! Sooo glad you found me here! Stay tuned for more hope, inspiration, and courage for navigating the challenges of life. God bless! Please keep me posted! Jodi

[@anthearees6129]

@@JodiOrgillBrown Jodi, thankyou. ❤️. I will send your reply to my daughter. I wish you all the very best and I will continue to follow you.

[@JodiOrgillBrown]

Please keep me posted. I am anxious to hear what they discover and how they can help your daughter!@@anthearees6129

[@anthearees6129]

@@JodiOrgillBrown i will Jodi. Thankyou. 🙏🏻

[@chickedee1085]

If god gives you a gift you have to accept it with open arms. Any gift from god is good. 🙏

[@JodiOrgillBrown]

Thanks so much! I agree, what first seemed like a terrible trial was actually a gift of new life! I've got new videos going up soon. I hope you'll enjoy! God bless.

[@sybiltjiesnyman9783]

So sorry May the good Lord bless you amen 🙏

[@JodiOrgillBrown]

Thank you! Life is good, even when its hard. I still have many issues, but I'm so grateful to be here and try to give people hope, courage, and resilience! Many thanks for the comment. Glad you found me. Stay tuned for more videos! God bless. Jodi

[@gmckenna9108]

Thank you Jodi…..your inner beauty is just as lovely as your outer…

[@JodiOrgillBrown]

Thank you, thank you! I'm honored by your words. God bless.

[@donnasherwood283]

Brave soul lord love her

[@JodiOrgillBrown]

Thank you, Donna! Life is good, even when its hard. I still have many issues, but I'm so grateful to be here and try to give people hope, courage, and resilience! Many thanks for the comment. Glad you found me. Stay tuned for more videos! God bless. Jodi

[@donnasherwood283]

@@JodiOrgillBrown delighted to hear from you. You are an incredible person your bravery in facing this ordeal and willingness to publicly discuss it is beyond inspiring. You look fantastic love the striped dress suits you well. Best for a continued improvement in your physical health.

[@JodiOrgillBrown]

Thank you!! I am honored by your words. And thanks for the compliment -- I love the striped dress, too! ;)

[@shirleehughes8125]

Sorry jodi

[@jenneyryan]

I fought vertigo for two years and could not find any help. The doctors said I was fine.

[@maryhirsch8044]

Do you have ear pain on one side? I have ear pain in my right ear and vertigo for over a year. I thought ear wax, ear infection, I tried everything. The pain in my right ear recently has now included my right jaw. Come to find out I have TMJ - Temporomandibular Joint. My jaw is dislocated. Just thought I would tell you as it took me a long time to figure it out. There is no cure for what I have but there are exercises for it on KZbin that help a lot. Don't know if this is what you have but you can check it out.

[@JodiOrgillBrown]

Sorry to hear that Jenney! Vertigo is debilitating. I hope you are doing better now! Glad you found me here on YT. I hope you'll stay tuned for more videos for HOPE and INSPIRATION! God bless.

[@JodiOrgillBrown]

Mary, I'm glad you found some exercises that are helping. And you are right to encourage Mary, it can take a LONG time to figure out the source of vertigo. My diagnosis took 8 months, from the time I first visited the doctor to an actual diagnosis of a brain tumor. Hope you are doing better now! God bless.

[@rosemarypalmer9729]

AMEN 🙏

[@JodiOrgillBrown]

Thank you!! So glad you found me. Stay tuned for more hope and inspiration!!! God bless you! ;) Jodi

[@KoolT]

My daddy did too

[@JodiOrgillBrown]

So sorry to hear that. All my best to you! Stay tuned for more hope, inspiration, and courage. God bless.

[@lindakerr9283]

Oh Jodi, I am so sorry about what you have been through in your young life, and with 4 Children. God Bless you Honey. It sounds like you have a beautiful personal relationship with Jesus as you stated you are a Christian. I am curious because you live in Utah, may I ask if you are Mormon?

[@JodiOrgillBrown]

Thank you, Linda! I am so grateful for life, and I'm living it the best I can. My MOST important relationship is the one with my Savior, Jesus Christ. And, Yes, I am a member of the Church of Jesus Christ of Latter-day Saints. ;)

[@lindakerr9283]

Hi again Jodi, I have been thinking about you quite a bit. I care about you. I am a Born Again Christian. I met Christ after my husband began a relationship with Jesus. Would you consider discussions with me on why there are differences between the Jesus of the Bible and the Jesus of Latter Day Saints? Respectfully, Linda

[@JodiOrgillBrown]

Hi, Linda! Thanks for the note. I am a whole-heartedly a Christian, like you! I absolutely worship the Jesus from the Bible, my studies this morning were from Mark and Luke, and I love to learn and grow from my Savior's example. God bless you!

[@lindakerr9283]

I am trying to understand, if the Bible says it is by Grace we are saved through Faith and not by works and LDS says we are saved after all we can do. It doesn’t sound the same to me. Also, respectfully I don’t know where it says in the Bible that when we die we become a god and have our own planet?

[@JodiOrgillBrown]

I am a Christian, through and through. Please accept and honor that. We are saved after all "we can do" in this case refers to "we" as in us and Christ -- we need to accept Him and honor His commandments, and HE does the saving! God bless.

[@afiyaameer5410]

Hi What was your diagnosis?

[@rebeccaallain9159]

Yes, can we know what the diagnosis was? Was it a glioblastoma?

[@dalhousiekid]

Probably brain stem glioma.

[@JodiOrgillBrown]

Great question -- final pathology: Indeterminate. Tumor did not match anything on record.

[@JodiOrgillBrown]

@@dalhousiekid Great question -- final pathology: Indeterminate. Tumor did not match anything on record. Most of the mass was not made up of brain cells/tissue.

[@JodiOrgillBrown]

@Moss chino Boss I care! I'm glad she asked, so I can answer and help, as possible. God bless, Moss!

[@Bernie61dee]

We list our 31 year old son to this

[@JodiOrgillBrown]

I'm so sorry, @bernie61dee . My heart and prayers are with you!

[@jenniferkwiek4321]

What is her diagnosis?

[@JodiOrgillBrown]

Thanks for asking. My diagnosis is an unidentifiable type of brain tumor going from the end of my ear canal and wrapping around me brain stem. Most of the tumor was removed, but there is still a 5x7mm mass that can't be removed. So glad you found me here. I hope you stay tuned for more encouragement, hope, and inspiration. God bless. Jodi

[@carissamartine35ornelas43]

In my left ear I have dizzy vision and headaches and I get vertigo ,when I touch my head it hurts

[@maryhirsch8044]

Do you have ear pain on one side? I have ear pain in my right ear and vertigo for over a year. I thought ear wax, ear infection, I tried everything. The pain in my right ear recently has now included my right jaw. Come to find out I have TMJ - Temporomandibular Joint. My jaw is dislocated. Just thought I would tell you as it took me a long time to figure it out. There is no cure for what I have but there are exercises for it on KZbin that help a lot. Don't know if this is what you have but you can check it out.

[@carissamartine35ornelas43]

@@maryhirsch8044 it all started with a tooth and my whole left side has gotten worse blurry vision headaches dizziness n high blood pressure at 28

[@carissamartine35ornelas43]

@@maryhirsch8044 thank you for the information and trying to help me 😊🙏

[@maryhirsch8044]

@@carissamartine35ornelas43 Did you have that tooth pulled? Having a tooth pulled was what gave me TMJ. Even though I was numbed up and didn't feel it, the doctor was WAY too aggressive when he pulled it. He yanked my jaw out of place and now I have to live with it. There are a few different things that cause vertigo though. You may have something else. I had vertigo when my ear only was hurting. The vertigo went away but now my ear and jaw hurts. I've read that a chiropractor or a dentist might be able to fix it but I can't pay for that right now.

[@maryhirsch8044]

@@carissamartine35ornelas43 Oh, you're welcome. I was hoping to help as it sounded like you have the same thing I have that took me 2 years to figure out. Google vertigo and read about all the different kinds and see which one has the symptoms you have. That's how I found TMJ but I had ear pain with vertigo.

[@Hojiii]

How are you feeling now Jodi?

[@JodiOrgillBrown]

Hoji, thanks for inquiring. I am still battling -- new issues continue to arise, but I am still fighting, and smiling, every day. How are you doing? I'd love to learn more. God bless!

[@Hojiii]

@@JodiOrgillBrown I'm sorry you're still dealing with issues. I hope you find healing and ease at some point. Turns out my tumor is in a spot that presents surgical challenges that are a bit too risky. I just finished 5 rounds od Radiostatic Surgery at UCLA to slow the growth. I feel enormously grateful for the help I'm receiving and we beleive treatment went very well. Thank you for asking. I have been putting prayer up for you dear woman.

[@JodiOrgillBrown]

@hoji, God bless you, my fellow warrior! I still have some of the tumor wrapped around my brainstem because it is too risky to operate. You have a beautiful soul and I'm glad you are practicing gratitude in your difficult journey. Let's stay in touch. Please keep me posted on your progress. I'm glad you found me here!! Go warriors!

[@carissamartine35ornelas43]

My right eye feels like its getting smaller

[@suehowie152]

Go to the doctor Carissa ..

[@carissamartine35ornelas43]

@@suehowie152 I've been to the doctor they see nothing, it all happened with a tooth and now my left side of my head feels weird

[@JodiOrgillBrown]

I do hope you will go to the doctor and get the care you need. Warrior on and stay strong!

[@carissamartine35ornelas43]

@@JodiOrgillBrown thank you 😊 🙏