Ruptured brain aneurysms: The patient journey | Webinar

[@gerardstockwell5661]

Hi am here in UK. had my SAH in 2020 just before my 50th birthday after having thunderclap headache on a Mon morning left till the Fri before takin myself to A&E before being rushed straight into theatre in Southampton under care of Mr Durnford who I will be eternally grateful for saving my life. I am a Survivor

[@erikkink3440]

My wife went to the hospital BP 240/140 nauseous vomiting neck pain dizzy headache did a CT scan thought they saw blood then said it was from a hair pin... removed it did a 2nd didn't see anything kept her overnight sent her home... 6 days later had horrible headache by the time she made it to the hospital she was unconscious. Sent to a larger hospital underwent emergency surgery. Spent about 12 days in the hospital. Surgeon said another hour she would not have survived. She's home now recovering. After I talked to a few ppl in the hospital and did a little research I can't believe they didn't recognize the symptoms. I'm so thankful she's alive.

[@theotherlauren]

At least she got a CT but yeah the amount of people who have had these symptoms missed or misdiagnosed is awful.

[@SkipFlem]

My SAH was 'clipped' 5/93...returned to work 9/93.🎉

[@radimonohovino2120]

My aneurysm burst last August. By calling an ambulance myself, I probably saved my life. Upon arrival at the hospital, I lost consciousness and I do not remember one month at all. I have 6 platinum clips in my head. I have no consequences, a slightly impaired short-term memory, and sometimes I have feelings of anxiety. Thanks for the enlightenment.

[@coolistkidinqnz]

😢😢🎉😢🎉ut😢yu😮

[@coolistkidinqnz]

😮😅😮o😢o😢😢 😢😢😅😢i😢ih😮y🎉😮😅😢ohtoti🎉ui😢😢😮😢ol😊l😊v r rr rkrngto d gitiio😮😅😢😢hif🎉😅😢

[@joannerodriguez4977]

My brother died from a aneurysms on Jan 11 2023 he didn't make it love you KiKi til we see each other in heaven

[@fowzeiatorkmani3906]

My sister just her aneurysm burst yesterday we didn’t even know started with severe headache and we are so worried

[@keynview]

Ih ea eurysm ni on bloodthinnerdoes ood thinner er makeaneurysm worse

[@MiserereMeiODeus]

This is the best info I've found on ruptured brain anneurysms. Mine happened Sept 1, 2023. I was hospitalized for 6 weeks and am still recovering. 6 months later I still have my feeding tube, double vision, a paralyzed vocal cord (multiple intubations while hospitalized) and range of motion issues in my left arm (most likely from placement during my craniotomy). I consider myself blessed to have survived this. I hope to one day feel normal again, but am so happy to be alive. I thank God for my mom and husband who have cared for me since day one. This is something that can be survived, but it can take a lot of patience and work. God bless anyone going through this, you have my prayers🙏🏻

[@lisam1251]

Hope you make a full recovery and are feeling better every day.

[@loridarlin1]

Bless your heart. I had numerous vasospasms and still feel depressed most days but nothing like what you’ve endured. Bless you and stay strong ❤

[@barbaravyse660]

Thank you for covering other symptoms you can have. I’ve had lots of horrible migraines send me to the ER. But not when I had a ruptured brain aneurysm. I had a terrible cold and gently blew my nose and felt an electric ⚡️ bolt hit the top of my head and travel down my spine. I had been having an extremely stiff and painful neck and that’s about it. I thought maybe I had meningitis. To make a long story short, I called 911 and the doctors quickly diagnosed me and fixed the bleed and aneurysm. And now I’m perfectly fine. 🙏🏼

[@ginacollins8594]

I think God every day that they caught my aneurysms on a fluke because I had been taken to the hospital for vertigo my mother died from them in 1996 she had five . Thank you so much and I wish everybody the best I just got a clean bill of health after three years three angiograms every year and my coil and my stent off from a bilateral intracranial aneurysms I’m still alive I still have headaches but not as bad as I used to

[@BerniceAlorgbe]

Thank you for the valuable lesson. I just went through the phase and had Aneurysm coiling 3 days ago and already back at home. This helped me understand what I went through

[@blessed2bjj]

Thank you for this video. My sibling suffered a ruptured aneurysm in May. This video helped prepare me for her treatment at UCLA. Her team of doctors and nurses were nothing short of amazing. Her treatment involved most of the topics you covered including coiling, hydrocephalus, ventricular drains, vasospasms and shunts. I was able to ask appropriate questions and advocate for her properly. Her recovery was slow and we learned it was due to hydrocephalus. Once the shunt was installed her recovery made a dramatic turn for the better. She was in the ICU for 6 weeks, 2weeks on the general neurological floor. She came home in August. She’s doing great. A walking miracle thanks to amazing medical care.

[@Anonymous-xy7mh]

UCLA is a farce. Three neuro physicians dismissed my mom's brain aneurysm case.

[@karenschultz712]

Thank you for this information. Mine was nov 2002. Misdiagnosed. 8 days before hitting hospital. Then found 2nd one March 2003. Still have issues with migraines/headaches, speech, coming up with words, dizzy, and other minor issues.

[@loridarlin1]

I had a subarachnoid hemorrhage 2-2-2020 and I still have side effects because of the area where my rupture was located. The worst thing is that I have survivors guilt. It is a life long struggle at least it has been for me since it happened. Bless all of you.

[@hawke1800]

our family friend suffered a ruptured aneurysm a few weeks ago. ive been learning more about it each day to understand her experience. thank you for this video

[@DancadoBrasilJan]

Thank you so much for this. 3 days ago my friend had a ruptured aneurysm. He’s in a coma, waiting to see how he does. This was so helpful to understand more. Thank you.

[@radimonohovino2120]

I keep My fingers crossed. Be kind to him taking his hand.

[@jeoshanbhag]

How is your friend now? And if you can suggest how long did it take for recovery

[@kajmiiir__RN_BSN_CCRN]

My dad right now 🥺💔

[@universe-Universe-1]

How is he now?

[@suzzannesimmons6013]

My aneurysm is at the tip of the basilar arty. About one to two weeks prior to the rupture I was having migraines and my blood pressure’s was 193/43 or so. I stood up and started having a pulse like pounding in my head. With each pulse the pain intensified. I called 911 and was already slipping into a coma. Woke up two weeks later.

[@fmatsveru]

Thank you very much for this video. It has helped me to be patient. My otherwise healthy sister is suddenly in ICU on oxygen due to a ruptured aneurysm and subsequent surgery. rupture rupture

[@earnestinebarkley6769]

Yes, I have had a ruptured brain aneurysm in 2020.

[@deantisdale8731]

My rupture happened while I was asleep. The headache from it was the first time I ever had a headache.

[@minidigger1000]

Also I had a drian installed they tried to drain it from the back by needle it was running to much ,after 8 weeks in hospital I'm now back home and about another 8 weeks later I feel great hopefully I continue on that route

[@itsmystyless]

Thank you for your time and exploitations🎉❤

[@pragnayadav]

My father has brain aneurysm ruptured this oct 21, he fall down because of hemorrhage, we immediately took him to hospital, they found out there is internal bleeding in brain, they wanted to do surgery, coiling treatment but his platelets reduced to only 25k😭, the treatment could be done next day, till then the blood spread all over, now he's unable to move his body. He's alive but totally bed ridden

[@SaucerJess]

I'm so sorry this has touched your family. Sending love and light y'all's way ❤️

[@chrissyybaby1]

Similar to my father. My dad spent about 3.5 months in ICU sedated after the surgery he had the vasospasm and another stroke as well because blood wasn't flowing through properly (vasospam) etc. They gave us no hope of him moving. Mum would go In every day and do exercises on his legs and arms while he was sedated. He had right sided paralysis. Over time he started to twitch his toes and we saw this as a sign. Doctors kept neglecting it. He went to rehab and he's now able to walk slowly using both his legs (he started walking 6 months after) don't lose hope Just make sure you always get clarification on everything they say. Don't lose hope. My greatest advice is that you spend time with him in ICU and massage his feet and legs because he can sense you doing that. The main thing is he's alive. I wish him a safe recovery and good luck to you all

[@Angela-t9z]

My daughter is in indianpolis Indiana Methodist ,with a ruptured aniresian been a monthbleed 3 weeks her range from3-1 5 hers her s is been at a3 an opened eyes so went to 5 1/2 sckull is out guess sweelling so bad been bleeding 3weeks no responseive s , what do you think her surviveal rate is

[@ginacollins8594]

I had bilateral inner cranial aneurysms I had a clip craniotomy / A stent and a coil clipping on the right coil and stent on the left I felt like at first it’s been since 2018 and sometimes I feel like my brain is different in someways I don’t understand it sometimes but when this came up today I’ve been listening and it’s really great help I’d like to be a part or some thing I am retired now and I am thanking God every day that they caught these aneurysms it was only because I had gotten vertigo if I had not gotten vertigo they probably would’ve ruptured my mother died of them in 1996 and she had 51 in the center of her for head and wound two on the right and two on the left of the top of her brain so it’s been very scary all of my life I just got done with a clean bill of health after three years from my neurosurgeon Dr. Ariel Patel at Swedish neural center in Seattle Cherry Hill thank you Gina Collins

[@andrelebel7148]

clear and precise information. Very helpful!

[@ladybakiza8278]

He is describing my case: SAH stroke +coiling + Hydrocephalus + vasospasm. they had to place external ventricle drain+ raise my blood pressure and I had angioplasty.. I also got infections: lungs, Blood, C-difficile. I was fed through naso-gastric tube. All this happened while I was in coma . I am doing fine now. I lost the left eye field of both eyes. this was in 2021.

[@faithoverfear4344]

Thankyou do you have discuss inoperable?

[@birgittalbot7345]

Great lecture. I learned a lot!

[@madihaawan6702]

What if the person with ruptured brain aneurysm has low platelets and being treated with blood transfusion. How soon does the patient become responsive?

[@jennyjohnson2867]

When undergoing CT angio to see if my aneurysm ruptured the dye injection caused the worst headache of my life, indescribable. I figure that might be what I feel if it ruptures one day. I’ve had terrible, blinding migraines that were not that painful 🤷‍♀️

[@SaucerJess]

Thank y'all for doing this ❤️

[@annathiel2593]

This past Friday *September 27tb 2023, my Uncle John died from a burst aneurysm. My confusion is that he was admitted into the hospital the Wed. before he died. He was admitted for flu like symptoms at some point he fell unconscious and (from what the family told me) had the rupture while already unconscious. He lapsed into a coma and was put on life support. My question is, were his symptoms that he had before admitted due to the rupture already happening or could the rupture? There was no complaint of headache before admitted. Thanks

[@barbaravyse660]

The neurosurgeon inserted an EVD first while the neuro interventionist was driving to the hospital. Having the EVD is wasn’t painful but it was such an annoyance because you’re not allowed to move very much. My aneurysm was fixed with a flow diverter via an angiogram. I woke up in my room cursing at everyone when the doctor was extubating because it was like someone was choking me. I think they knew I was gonna be fine after that 😂.

[@lindamyers8876]

I was punched in the nose a d they found my a om

[@lindamyers8876]

ACOM

[@Pixels-xm4sm]

I've been having severe headaches and severe pain in my neck but I had a bunch of CAT scans done and they can't find anything apparently im lost and i don't know what to do

[@mzjewlzz]

Hi, I missed the comments section, but I have a question regarding therapy. I have wasn’t told that I needed therapy,but it’s been 2-/2years since I had my Subarachnoid Hemorrhagic, and I ended up doing my own research, and still am to this day. I ended up asking my primary doctor, I never got a returned call from the neuropsychologist, I know now that this was something I absolutely needed and still do. I’m still have some short term memory loss, and I find myself having to search for words often. The question I have at this time is, I’m having terrible anger outbursts, and sometimes I even blackout during, how do I go about getting help for this? My family hasn’t been understanding, they don’t think any of this was caused from the aneurysm.

[@loridarlin1]

I too suffer with the same symptoms. I never did out patient therapy either. I went straight back to my high stress job 3 months after my rupture. I’ve been threatened to be fired several times because of anger issues. My rupture was in the front right lobe which fits with all of my side effects. Hang in there and good luck! Nobody understands unless they’ve had a rupture.

[@randyrogers8568]

No warnings (no headache) and no risk factors. (no high BP, not overweight, never smoke or drank, not diabetic) Just out of nowhere I could not walk and left arm was very weak. Had a brain bleed in right basal ganglia.

[@IldyVasquez]

Thankyou

[@petergalloway678]

Thank you

[@ChrystalVasquez-s5k]

Hi my name is Chrystal Vasquez last night was the second time I experienced a bad headache. I went to the hospital and first time ever light was hurting my right eye hurt so much like it was bleeding or going to pop out.

[@theotherlauren]

I had a rupture out of nowhere in Sep 2022 and knew instantly something was very wrong. I was very sick and my heart was pounding, I called an ambulance and had to wait for a few hours before being seen. They gave me IV fluids and some painkillers and discharged me. The following week is like a fever dream, I called off work and was just so out of it, i got migraine meds from my GP but they work by increasing blood flow so it made my bleed worse 😂 and i ended up with left side weakness, facial droop and unable to communicate properly. I thought it was a medication reaction initially and after a few more days I got a cousin to take me to hospital. After again a wait of several hours (overnight) i got MRI, CT etc and they told me I'd had a stroke. After a day they did another scan and referred it to specialists so I got diagnosed with SAH and transferred to a specialist hospital for embolization. I can't believe how lucky I was to come through all of that with very few adverse effects. I'm glad that you guys are doing this work sharing what to look out for and what's involved.

[@Anonymous-xy7mh]

It is horrible to be misdiagnosed by an expert physician.

[@preetindersingh4577]

What if the GCS level is M2

[@trinicastaneda9507]

Can we travel on a plane

[@virginiaambe2578]

we can. I am also an aneurysm survivor (had it last Aug 27, 2021) and have been travelling since last March 2022 by plane.

[@loridarlin1]

Absolutely!! Flying doesn’t affect me at all. Go travel!!

[@michrea63]

My first leaking aneurysium I was 5 mths preg 29 yrs ago Drs here in Australia didn't know much about clipping them one amazing Dr gave it a go and succeeded my baby healthy and me but around 10 years ago a second Aneurysium didn't leak was found when having a bad migraine major surgery clipping ok now I suffer from 3 immunity disorders.

[@heidicridlebaugh7499]

Is there inappropriate behavior

[@jacintofragoso1211]

I had 3 in 2014 they said I am the 4% that lived thru this. BUT THE FUCKN SHIT I HAVE TO DEAL WITH FUCK!!!!!!

[@jacintofragoso1211]

Insomnia PTSD ANXIETY THE NO SLEEP IS WHAT KILLS ME BUT THERE ARE TIMES I DONT SLEEP LIKE 5 DAYS THEN MY BODY BREAKS DOWN

[@Anonymous-xy7mh]

I'm so sorry to hear about your story.

[@lbollow1]

My sister had a Brain Aneurysm in 2020 she is still on a ventilator and seen to have very little cognizant.

[@Angela-t9z]

An no body wants to talk about it

[@heidicridlebaugh7499]

Is acting on impose and behavior along with saying unrealistic things

[@Angela-t9z]

A N thats were her rupture was in th deep back , of brain an havnt been able to do surgery even ,family wants to keep her on breathing machine its the only thing keeping her alive , i say take the resperator out an see if shes going to breath on her own if so than we go from there ,an if not god take her home , yes ir no but i say see if she can breath on here own say surgery is to dangerous, even its been a month

[@Angela-t9z]

An multiple strokes