Breathlessness in Long COVID - What's Dysautonomia? | Dr Boon Lim

[@jeanniecampbell1374]

the muscles hurting so much is a shock to me as I am an x dancer and was very active ..and I am surprised how many people I come across who don't believe in Long Covid ..I kind of hide my shame of feeling emotional about it . I have just got a chest infection and it feels that I have covid again ! in every part of my body I hurt ,its taken me a while to get my head around what is going on and still have not finished my antibiotics for the chest infection ..I feel like I have an infection crawling through from top to toe ..just hoping things will improve all around and for all of us .

[@nomebear]

In the 3 years I've been suffering from long haul COVID, dysautonomia has been the most frightening of all of the symptoms. But I'm also dealing with poly myalgia rheumatica, which I treat with prednisone. Close to $29k in medical examinations indicate everything is in range. I have recently enrolled in the UC Davis AWE program to learn how to stop the tachycardia.

[@saponi2]

Chinese breathing "Chi" is the only relief that I have found. If I'm not careful my heart rate will hit 130 bpm, BP of 80/70 and my lungs shut down. Terrifying!!! Dr's can't find anything so I'll do it myself. God bless you all.

[@LoriGreco]

I didn't suffer long covid but suffered after the vax and believe I had MCAS and adopted a low histamine diet. Please try it. I also had ectopic beats for 3 months and neuropathy down the left side of my body. H1 AND H2 meds will also help. Remove coffee and tea from your diet too. All the best..

[@jamiedorn4105]

Thank you for doing this interview every bit of explanation helps

[@thomaswhitelake]

Thank you for a brilliant presentation! Great job Polin and thank you Dr Lim. A lot of the information speaks to my symptoms. I had a chuckle over the 'Type A' personality observation. Boon's description sounded like things I actually say each day about defeating the condition quickly etc. It is astounding how many systems are impacted by this illness and how disabling it is. I'm a psychotherapist working well with the psychological dynamics and taking personal agency based approach with significant emphasis on diet and pacing. Although 'two steps forward, one step back' describes my presentation, most days I feel that I am improving and I am confident that I will defeat the condition. Thank you for providing more valuable information.

[@davidclode3601]

Great interview, well presented, with lots of useful explanations and information. Thank you both!

[@vickydittfield9822]

Wow ~ thank you,Dr.Your Gifts to humanity are greatly appreciated ❣️

[@mooseliver1772]

Very interesting! Thank you for explaining so clearly.

[@MamaRestInPeace1424]

We are taking Nattokinase 4000FU daily at the urging of our docs. Good for stopping Thrombosis and other L/C problems. Great Research on it.

[@rachaelt3294]

I've heard an SGB helps the vagus nerve reset, but it is 50/50. I haven't been able to smell or taste for over 2.5 years. There are many like me!

[@Jennifer-gr7hn]

Totally - type A, adrenaline junkie, former active, fit, nurse, allergies to desk work, etc. Also, ptsd from traumas. And yes re: women and the hormones. I think something else that contributes to more women than men -- women have stronger immune system, and therefore, if the brain has a stronger immune system than the body in general, then you have women stronger than men in that, plus the hormones? I do know that my premenstrual time exacerbated all my long haul symptoms.

[@jeanniecampbell1374]

This is Amazing ..I have learned so much !

[@greenthumb8266]

Thank you for this compassionate and informative talk. It’s to bad YT seems to be holding back this video. I had CoVid 19 in December of 2019. I survived the initial infection (104.9 temp, unconscious for two days, and a cough that lingered two months) but in mid 2020 I awoke with myocarditis, numb hands and feet, a feeling like I had no strength in the connective tissues in my hips, and feeling like death was eminent. It took months to see a cardiologist and I was diagnosed with dysautonomia POTS, and over the course of roughly three years I’ve been observed to have white matter lesions, swollen spinal cord, many more things I can’t remember right now , and most recently left-sided hemorrhagic colitis. I don’t think any doctors in my area even believe LC is a real medical condition. I haven’t had an appetite since this all started I force myself to eat two or three bites of plain oatmeal or gluten free toast to try to keep my stomach and intestines moving. Other then my most recent trip to the ER because I was losing a lot of blood, I have basically quit seeking medical intervention because I’m tired of the medical “professionals” “gaslighting” me, looking at me like I have two heads, and saying “ I’ve never seen anything like it”. I lost a total of 70lbs and have no muscles anymore. I was very active all terrain runner before this. Pre CoVid- I don’t drink alcohol, I don’t eat gluten ( caused interstitial cystitis of my kidneys and bladder many years ago) since CoVid I have no appetite and I am completely repulsed by meat. My diet now consists of lots of water ( but I was always a big water drinker) rice, carrots, green beans,and plain oatmeal. I have resolved to the fact that CoVid is most likely going to take my life, slowly and painfully. Not because that’s just what CoVid does, but because I live in a state that denies it even exists. I’ll just add the ER doctor prescribed two 500mg antibiotics and something to numb the pain that is usually prescribed for a UTI.

[@BluetheRaccoon]

It honestly seems you've got something more then long COVID going on.

[@renaissance5300]

reading your comment made me cry I am so sorry I have had it lc for 2 years but I think that it sounds like lyme disease also which I also have had for over 10 years your name green thumb indicates your gardening alot and that is where ticks are. so it also sounds lke lyme disease I hope you feel so much better there are many herbs to help god speed@@BluetheRaccoon

[@casta9172]

I'm suffering from long haul Covid 😢 it's really terrible,, my body feels weak, strange.. It caused uterine cancer now,, I'm battling all of this daily Things that help: Guanábana tea Moringa Bromelain NAC Nattokinase Aloe Vera Curcumin Ginger Garlic Fish omega-3

[@thizzyglider555]

I tried the acupuncture and Chinese herbs. And I feel a little bit better

[@MrJhockley]

I get the opposite symptoms. More issues laying down and feel fine standing. I’m a type a personality who used to be quite a strong athlete. I also struggle to get my body warmed up for exercise, especially swimming that involves laying

[@ThisIsTheRealMe2]

I'm the same, my heart goes out of rhythm when I lay down and does the same as I wake from sleep.

[@malaknicola9020]

Plenty of patients attend the clinic with different unexplained symptoms in my opinion it is related to long covid but i am unable to convince neither the patient nor other doctors

[@alyshaphillips9195]

As a fellow type A my dysautonomia is terrible! Thanks for the video. Is the book available on Amazon?

[@TalkHealthAsia]

We're glad that the video helped! Yes the book is available on Amazon, you could search for it easily.

[@yuanyuanjames8130]

Why does no one mention DLco? Kinda odd

[@sandiehutchinson9575]

Long covid is MYALGIC ENCEPHALOMYELITIS........I have ME and DYSAUTONOMIA

[@Jennifer-gr7hn]

Good information. EBOO MethyleneBlue, NAD has been awesome! March 2020 - severe in march 2020, no help. ICU patient but not admitted since I didn't take the vent. It's been an incredibly hard time and year 3, finally recovering, but here's my problem (one of many)....just going for a walk which is a lovely, calm, beautiful thing, but...I'm energy depleted afterwards. And shortness of breath AFTERwards. It's like tight muscles, but deeper. I know there are dysautonomia for sure, but so...... would Accupunture help with this? I developed hypoglycemic unawareness as a controlled type I DM. Totally messed up my CNS. Does it occur because the spike proteins went to the brain which I think it does.

[@MamaRestInPeace1424]

We were told yes by our Docs. We were put on 2000-4000FU of Nattokinase daily to brake stop the mi cro clot ting and other issues.

[@ezza1236]

Long Covid is Dysautonomia end of story, why do people try to complicate it so much, chill the hell out and you will balance again