Brian O'Sullivan's Battle with Mantle Cell Lymphoma: A Hopeful Journey through Clinical Trials

[@lorinapoli]

Keep shining your bright light, Brian! Thank you for sharing your story. Grateful for your doctors and for your honesty. You are helping so many! ❤

[@Brians_Journey]

Thank you Lori 😊❤

[@user-sg5hg5er9l]

Thanks for sharing your story Had MCL last year was cleared of it Thank You JESUS.

[@Brians_Journey]

🙏 Thank you, let’s keep on keeping on

[@chrisunherded2374]

Brian reached out to me, and i am forever grateful. He was a pleasure to talk with and we got along great. I had gone over 3 years with no treatment after a splenectomy (oct 20 - jan23) just making life style changes, but things returned jan 23. I have since had 6 months b + r (did not work). I got a quality 4 months from Calquence (stopped working). They added venetoclax to no avail . I am awaiting car-t cell therapy and hopeful 🙏. My journey continues. God Bless Brian and all that see this that are fighting.

[@Brians_Journey]

I’m always here for you brother

[@robertswinburne3973]

My veins might be gone forever. I am a year ahead of you and of similar age and thankful for what you have done and continue to do. I did the full Nordic routine as it currently stands as part of a study. (in remission) I'm so happy you are speaking for so many of us.

[@Brians_Journey]

I’m truly grateful for you brother thanks for being on the journey with me

[@timsohn5537]

Brian is an inspiration to me & many.

[@Brians_Journey]

Thank you brother

[@claudinaangelino1847]

💚

[@MassiveBio]

❤️

[@papakilo1925]

Hi Brian, I just got diagnosed with indolent Mantel cell B lymphoma . I have no real symptoms, no weight loss, but my WBC is 24K, just saw Drs. and both say no treatment now, wait and watch....like being on death row just waiting for the executioner to open the door. I currently go to Moffitt and ORMC but do not qualify for clinical trials as I have no symptoms. Any advice for a newbie??

[@Brians_Journey]

I definitely want to stay in touch with you. I don’t usually give any medical advice, but I agree about watch and wait. It is tough. I actually was on watch and wait in advertently as the insurance company was fighting against what my doctors described for my treatment