Brian's ALS Diagnosis Story

[@brandonlefler5226]

this my is my1st EMG results but after my primary care doctor did a clinical exam she found I had generalized weakness in both legs , no reflex in my deep tendon in my right arm and no more arm swing in my right arm. so she ordered and MRI of my spine and brain....the brain MRI shows no stroke damage I had a positive finger to nose test shaking while hand was away from my nose. Cant do Romberg stance or tandem stance or tandem walk. I take deep breaths through the day I also have sleep apnea....I have an EMG coming up again for all 4 limbs.....I also have hyperflexia ....over exagerated reflex on my left side of my body....here were my 1st EMG results Chronic bilateral lumbosacral radiculopathy findings: @ L4 = none on left; very mild on right @ L5 = mild category on both sides @ S1 = very mild on left; none on right. my right arm is weak and I cant lift a gallon of milk with it without aching pain and weakness it is the same arm that has no natural arm swing. My left side of the body is more affected than the right when it comes to arm and hand shaking. I get lateral tremors in my fingers that started in my left hand little over two years ago and moved to my right hand....both my arms shake involuntarily throughout the day...from prior Spine MRI's I had with a former primary she noticed there was no compression in my spine...I do have multilevel degenerative disc disease but next time I get my MRI of the spine I want them to investigate my Anterior Horn in the spine and see if I am having issues with motor neuron disease...If anyone has ALS and has been through something simular to this please respond thank you.

[@jerryfawcett1399]

I said a prayer for Brian to be healed.

[@lanarey4944]

Behold the results was negative. I'm ALS negative it's been 4 years since I got my complete healing naturally with the help of Drchala from west Africa who I find here on KZbin channel

[@lanarey4944]

Behold the results was negative. I'm ALS negative it's been 4 years since I got my complete healing naturally with the help of Drchala from west Africa who I find here on KZbin channel

[@shawnmcanthony5724]

​@@lanarey4944 behold Lana i can fly 😮

[@lanarey4944]

@@shawnmcanthony5724 you can get this out of your body just for once this man has the solution to it

[@shawnmcanthony5724]

@@lanarey4944 hi Lana ALS is fatal. Only in Jehovah gods kingdom here on earth just like in the garden of eden which was Jehovah gods original purpose at isiah 33:24 no one will say i am sick.

[@joshuajohnson4672]

Am I understanding correctly that Brian had EMGs that were inconclusive prior to the one that they finally gave the diagnosis? My mother has ALS, but is progressing very slowly. Her mother, my grandmother, had ALS and lived for 13 years. Her father, my great-grandfather, died of ALS. His father, my great great grandfather, died of "wasting disease". I am now noticing unusual fatigue in my left leg with activity i previously tolerated. It is, for lack of a better term, clumsy. I went to a neurologist who said that I was clinically strong and that there was "mild slowing" on my EMG but not consistent with ALS. He said I was getting myself anxious because of my family. The weakness/clumsiness continues and is slowly worsening but I am afraid to go back and get told it is all in my head again.

[@YourALSGuide]

Hi Joshua, we have a full Q & A with Lori that provides more context. There you can also find the info for her popular Facebook group and could contact her there directly. Visit www.youralsguide.com/lori-andre-interview ... Also, if you're concerned, it could help to visit a neurologist who specializes in ALS. You can visit our ALS clinics directory to search at www.youralsguide.com/als-clinics-directory Hope that helps!

[@Cmscp2]

@@YourALSGuide these KZbins & Fb page are invaluable, thank YOU! I recently had a very comprehensive emg with a tenured, acclaimed emg doctor who has diagnosed me with progressive bulbar palsy. Genetic testing has also stated als as well as being diagnosed recently with oropharyngeal dysphagia from a swallowing test. The one als specialist I saw last week disregarded the info above & has suggested a ent doctor. Like Brian, I try to stay very active & feel it must be a slow progressive als as well, esp. after meeting this emg dr & understanding his report & years of weakness, dropping things, falling, clumsiness, etc. I read Lori's interview & saw she & Brian saw Dr. Merit Cudkowicz in Boston. Is that the doctor that diagnosed his als? I'm in Louisiana but willing to travel there to get a correct diagnosis from a doctor who can recognize a slow progressive form of als. Again, thank you Lori & Brian for your courage & bravery in sharing ur inspiring story! Praying for you both.

[@klauszweig6709]

on EMG, you look for signs of denervation, which is pathologic spontaneous activity (fasciculations, fibrillations, positive sharp waves) and sign of reinnervation (increased potentials, satellite potentials...). whatever "mild slowing" means... Weakness/clumsiness could have hundreds of causes, go see a professional.

[@fufurabumbacka]

Basketball? Its a cause of ALS

[@La_cubana]

My husband had diagnosed Mar but I know something is not good maybe around 2 years before 🥲

[@Skybluewindcool]

What are his symptoms ?

[@neecie9075]

Same with my sister... lots of falling and tripping. I believe brain fog, too. You could just tell with the falling, hitting her head, etc., something wasn't right.

[@La_cubana]

@@neecie9075 him past 6 months ago , my ❤️ are 💔💔💔

[@La_cubana]

@@Skybluewindcool the most shocking, he’s hands legs

[@La_cubana]

@johngallagher3732 a lots of choking, weak hands left legs he’s past 6 months ago , fast after 9 months 😭😭