Wiley Lucente | Beckwith-Wiedemann Children's Foundation Int'l

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[@WendyMast]

Respect en Gods zegen mijn dochter heeft bws is 8 jaar ze groeit sneller dan gemiddeld andere kinderen ze doet het heel goed maar ze heeft wel geregeld een bolle holle buik wat ik soms wel eng vind, geregeld bij artsen geweest maar ze hoeft voorlopig niet meer heen maar ik ben altijd extra oplettend als ik zie dat ze zich minder voelt

[@jabedali5048]

I'm from Nepal my son also surfing BWS and I don't know what is the treatment? my baby age now 1 years old one side leg and arms large size and tongue is big.

[@joannnnaaaaaa]

I also got BWS.. Today I look like a normal teenager but when I was born I looked like the baby in the video. My Tounge is bigger than the normal and my one leg is bigger than the other. But that’s okay. I learned to live with it.

[@godfreymiles7066]

Is it only the leg that is bigger than the other or the whole one side of the body is bigger than the other?

[@littlered4259]

Lara DUDE SAMEEEEEEEE

[@marialucente2399]

The whole side of the body is larger.

[@joannnnaaaaaa]

@@marialucente2399 no, in my case it’s only my leg..

[@joannnnaaaaaa]

@@littlered4259 nice dude!!

[@judieahmed98]

Hod please bless and heal this child ❤️🙏🎉🙏❤️🙏

[@hackhack9063]

Cute cute cute cutr cute cute cute cute boy❤❤😍😍😍😍😍😍😍😍😍😍❤❤❤❤❤❤❤❤❤

[@ThobileMolefe-w1x]

I have twins one has the syndrome I used to cry everyday after they where born had no support other than my husband's it was reli tough but we reli trying our level best to be there

[@piotsongchannel4060]

Good day sir..im from Philippines, my pregnant wife was pregnant she done of ultrasoun and then we found out that our baby is suffering a macroglossia,frog eyes and omphalocoele inside her womb..can you please help us?thank you and GOD BLESS

[@tigistadeb1619]

my sister baby also born with this problem and we are from ethiopia. Now her baby is 5 years old without any treatment because of poverty. So any one can help us pls.....just for medication.

[@138-sagarmehta8]

Is ur calendar 7 years behind rest of world ???

[@mgmartin51]

There’s something wrong with your baby. We’ll be in in a minute. WTF??

[@lynnxavier3918]

it was painful to hear your testimony. You have been brave!

[@marialucente2399]

Thank you 💛

[@TheSiahFr]

@@marialucente2399 higher power gave you an incredible responsibility, your strength is truly admirable.

[@chrissmith-no3bo]

,omg he is too cute❤

[@caitlinlyons8376]

I was a 10 pounder at birth. My mom was 13 pounds and she was born in the back of my grandads car on the way to hospital.

[@AlejandroRodriguez-rc1nd]

I’m in denial

[@littlered4259]

AHHH he looks so much like me so cuteeeeeee

[@marialucente2399]

💛💛

[@littlered4259]

I have this syndrome two

[@joannnnaaaaaa]

xXUnLovedXx same

[@littlered4259]

Lara oh my I didn’t see this till now, I would love to get to know you if you don’t mind

[@littlered4259]

@Addison Clark omg that’s so cool 😆

[@littlered4259]

@Addison Clark GOOD LUCKKK ✨✨✨

[@tylahoc9271]

I have it too!